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Experiences with
Mixed connective tissue disease (MCTD)
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Skin Issues Anyone
I have
MCTD
and get really annoyed with this. Taking immunoglobulin iv therapy now/
I have
MCTD
and get really annoyed with this. Taking immunoglobulin iv therapy now/
nanno
in
LUPUS UK
5 years ago
New at this sharing on line
Anyone with discoid lupus/
mctd
?? I'm new an still learning how to do this online thing
Anyone with discoid lupus/
mctd
?? I'm new an still learning how to do this online thing
K_fuller
in
LUPUS UK
5 years ago
Does c8 mct oil work?
Pure C8 MCT Oil | Boosts Ketones 3X More Than Other MCTs | Highest Purity C8 MCT Available 99.8% | Paleo & Vegan Friendly | Gluten Free | BPA-Free Plastic Bottle | Pure Caprylic Acid | Ketosource® My friends wife is using this. I never heard of it. Is it a gimmick like diet pills or does it work
Pure C8 MCT Oil | Boosts Ketones 3X More Than Other MCTs | Highest Purity C8 MCT Available 99.8% | Paleo & Vegan Friendly | Gluten Free | BPA-Free Plastic Bottle | Pure Caprylic Acid | Ketosource® My friends wife is using this. I never heard of it. Is it a gimmick like diet pills or does it work
freeway15
in
Low-Carb High-Fat (LCHF)
5 years ago
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Tremors in hand and lip
I have APS and
MCTD
and have developed tremors in mostly my left hand and lip. Has anyone had this happen? I see my socialist on Monday and hope he has an answer.
I have APS and
MCTD
and have developed tremors in mostly my left hand and lip. Has anyone had this happen? I see my socialist on Monday and hope he has an answer.
loretta1106
in
Hughes Syndrome APS Forum
5 years ago
New supplement
I have just started taking C8 MCT oil. It has lots of good reviews but as yet have not seen improvement in my energy or Fibromyalgia. Does anyone on here take this ?
I have just started taking C8 MCT oil. It has lots of good reviews but as yet have not seen improvement in my energy or Fibromyalgia. Does anyone on here take this ?
Sylvia22
in
Thyroid UK
5 years ago
MCTD turned from positive to negative
Just finish with my doctor’s visit. ANA is down and my mixed connective tissue disease marker went from positive to negative. The doctor thinks the hydro chloroquine is working and caused the change to negative. A year ago I reduced the dosage from 400 mg start up dosage down to 200mg maintenance
Just finish with my doctor’s visit. ANA is down and my mixed connective tissue disease marker went from positive to negative. The doctor thinks the hydro chloroquine is working and caused the change to negative. A year ago I reduced the dosage from 400 mg start up dosage down to 200mg maintenance
Krock1
in
LUPUS UK
5 years ago
Energenesis
Here is a new supplement which has most of everything that isn’t a vitamin or mineral in it. Expensive but maybe convenient if you want to try all these things at once? https://www.theenergyblueprint.com/energenesis “Energenesis is like a 5-star MEAL for your Mitochondria (LOADED with rare nutrients
Here is a new supplement which has most of everything that isn’t a vitamin or mineral in it. Expensive but maybe convenient if you want to try all these things at once? https://www.theenergyblueprint.com/energenesis “Energenesis is like a 5-star MEAL for your Mitochondria (LOADED with rare nutrients
LAJ12345
in
Cure Parkinson's
5 years ago
Any thoughts on Rituximab
Hi My husband who has
MCTD
for 20 years ( recently diagnosed with discoid lupus) has been offered rituximab. At the time it was offered , he had been recovering from acute liver failure ( hospital says cause unknown), this had limited the choice of medication he was offered.
Hi My husband who has
MCTD
for 20 years ( recently diagnosed with discoid lupus) has been offered rituximab. At the time it was offered , he had been recovering from acute liver failure ( hospital says cause unknown), this had limited the choice of medication he was offered.
Pop007
in
LUPUS UK
5 years ago
A photosensitivity question
Since being diagnosed with lupus (or a lupus like
mctd
) I now understand how important it is to wear a high spf. I was a bit sceptical when my rheumy suggested I should wear spf 50 all year round on exposed areas though.
Since being diagnosed with lupus (or a lupus like
mctd
) I now understand how important it is to wear a high spf. I was a bit sceptical when my rheumy suggested I should wear spf 50 all year round on exposed areas though.
123MrsG
in
LUPUS UK
5 years ago
Suspected RA or MCTD
Hi all, I have only recently been referred to a rheumatologist despite having certain symptoms 3 years ago. My last blood test was Positive 1.320 Ana speckled - Negative ENA antibody and normal DSN DNA, these are exactly the same results as the tests done 3 years ago where "everything was normal". The
Hi all, I have only recently been referred to a rheumatologist despite having certain symptoms 3 years ago. My last blood test was Positive 1.320 Ana speckled - Negative ENA antibody and normal DSN DNA, these are exactly the same results as the tests done 3 years ago where "everything was normal". The
Laina268
in
FieryBones - RA Community
5 years ago
Mixture connective tissue disease
Does anyone else suffer from
MCTD
as well and what’s your story?
Does anyone else suffer from
MCTD
as well and what’s your story?
ChoaticAdhd
in
Foggy's "Invisible Illness" Support
6 years ago
MCTD and The Liver
Hi My husband has had
MCTD
for over 20 years, it has become progressively worse. 6 months ago he suffered acute liver failure, caused by an iron infusion. ( low iron due to blood lose following operation).
Hi My husband has had
MCTD
for over 20 years, it has become progressively worse. 6 months ago he suffered acute liver failure, caused by an iron infusion. ( low iron due to blood lose following operation).
Pop007
in
NRAS
6 years ago
First Post: MCTD and Raynaud's
Got a very recent diagnosis of
MCTD
with lupus-like features and secondary Raynaud's. I have a pretty mild case so far but have had some serious recurring bouts of something like flu. About to go to Royal Free for a five-day outpatient iloprost infusion.
Got a very recent diagnosis of
MCTD
with lupus-like features and secondary Raynaud's. I have a pretty mild case so far but have had some serious recurring bouts of something like flu. About to go to Royal Free for a five-day outpatient iloprost infusion.
JodieBelll
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Anyone taking Exogenous Ketones including MCT oil?
Anyone taking Exogenous Ketones including MCT oil , Ketone salts , Ketone Esters? Please share your experiences here.
Anyone taking Exogenous Ketones including MCT oil , Ketone salts , Ketone Esters? Please share your experiences here.
Kia17
in
Cure Parkinson's
5 years ago
MCT Oil
Hai, I'm Catherine (user names were gone so I just typed whatever worked). I've been "skulking" around here since I gave myself a concussion in November. I stay quiet cause I don't really think I have much to offer folk on here... there are folk worse off than me and "it's only a concussion" (...that's
Hai, I'm Catherine (user names were gone so I just typed whatever worked). I've been "skulking" around here since I gave myself a concussion in November. I stay quiet cause I don't really think I have much to offer folk on here... there are folk worse off than me and "it's only a concussion" (...that's
Feebie8
in
Headway
5 years ago
How I Conquered Heart-Disease and What I Have Learned in the Process
Before I relay the story, please read this first: What is the nature of your diet? Do you consume: - soft drinks, alcohol or fruit juices? If so, how often? - pasta, rice, bread, pizza, potatoes? - potato chips (crisps), pretzels, crackers? - fried foods (including fried eggs)? French fries? -
Before I relay the story, please read this first: What is the nature of your diet? Do you consume: - soft drinks, alcohol or fruit juices? If so, how often? - pasta, rice, bread, pizza, potatoes? - potato chips (crisps), pretzels, crackers? - fried foods (including fried eggs)? French fries? -
sos007
Ambassador
in
Cholesterol Support
5 years ago
Looking ahead to summer - questions
It’s more like
MCTD
with lupus features. Anyway I commenced on hydroxy and I am beginning to feel some benefits. I am now thinking about the summer months. I’ve always come out in a rash in sunlight although I’m fortunate that I can avoid the rash if I wear a good SPF and regularly reapply.
It’s more like
MCTD
with lupus features. Anyway I commenced on hydroxy and I am beginning to feel some benefits. I am now thinking about the summer months. I’ve always come out in a rash in sunlight although I’m fortunate that I can avoid the rash if I wear a good SPF and regularly reapply.
123MrsG
in
LUPUS UK
6 years ago
My First post : Parkinsons Disease
Hi everyone, Have been reading the board and thought I can share my input and glean from the personal stories portrayed here. Mother, now 75 years old has PD ( was diagnosed in 2011, when she was 67). PD MEDICATION: Taking Carbidopa Levodopa (C/L) 25/100 since approx. 2 years. Dose started at 4 tablets
Hi everyone, Have been reading the board and thought I can share my input and glean from the personal stories portrayed here. Mother, now 75 years old has PD ( was diagnosed in 2011, when she was 67). PD MEDICATION: Taking Carbidopa Levodopa (C/L) 25/100 since approx. 2 years. Dose started at 4 tablets
John_morris71
in
Cure Parkinson's
6 years ago
Changing antibodies
Two years ago I was diagnosed with
MCTD
. My ANA was positive , alongside my RNP. I had the panel retested, and Anti-SM is now positive alongside RNP and ANA. Does anyone know why?
Two years ago I was diagnosed with
MCTD
. My ANA was positive , alongside my RNP. I had the panel retested, and Anti-SM is now positive alongside RNP and ANA. Does anyone know why?
Kikime
in
LUPUS UK
6 years ago
mctd/pulmonary fibrosis
hi all well after a long 2 and half year of well ,we think you could have ,or were not sure ,iv finally got the diagnosis of [rumathoyd arthritus]which has gone into my lungs so now iv got my head round it all its well oviously not what i want but im stuck with so here goes mixed connective tissue disease
hi all well after a long 2 and half year of well ,we think you could have ,or were not sure ,iv finally got the diagnosis of [rumathoyd arthritus]which has gone into my lungs so now iv got my head round it all its well oviously not what i want but im stuck with so here goes mixed connective tissue disease
Dion3844o1
in
Lung Conditions Community Forum
6 years ago
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