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Experiences with
Mixed connective tissue disease (MCTD)
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Blood results normal.
I have had Sjogrens /
MCTD
for some time. I am taking Hydroxychloroquine and Mycophenolate. I have been feeling pretty rough in the past few months but my blood test results have been normal. I always ask the surgery for copy ( gone up to £5 !)
I have had Sjogrens /
MCTD
for some time. I am taking Hydroxychloroquine and Mycophenolate. I have been feeling pretty rough in the past few months but my blood test results have been normal. I always ask the surgery for copy ( gone up to £5 !)
bones-bones
in
The Australian Sjögren's Syndrome Association
7 years ago
Aussie1956
Late 20's diagnosed
MCTD
. 30's brought SLE, Sjogren's Syndrome, Raynaud's Syndrome, sml stroke- causing profound deafness in left ear. Fibromyalgia, Bowel cancer(surgery+chemo)9y free,blah blah the list goes on. But amazingly through this am a half full glass type of person. Shona xxx
Late 20's diagnosed
MCTD
. 30's brought SLE, Sjogren's Syndrome, Raynaud's Syndrome, sml stroke- causing profound deafness in left ear. Fibromyalgia, Bowel cancer(surgery+chemo)9y free,blah blah the list goes on. But amazingly through this am a half full glass type of person. Shona xxx
shonabrown1956
in
LUPUS UK
7 years ago
What next
scan and breathing test and I've still got an infection and have had a few is this it is this my life now breathless I feel as though I don't matter I even rang appointments office they said I should of been seen in Sept but gave me the 1St appointment Nov 24th it's not just the lung disease it's the
mctd
scan and breathing test and I've still got an infection and have had a few is this it is this my life now breathless I feel as though I don't matter I even rang appointments office they said I should of been seen in Sept but gave me the 1St appointment Nov 24th it's not just the lung disease it's the
mctd
Dion3844o1
in
LUPUS UK
7 years ago
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what to do what to expect
months I have infection after infection its not going away its not getting better iv had steroids once and they actually seamed ok but now my hope is going my ct scan is same scared but my lung function was a bit better this time so now I get told I'm been refered to a hospital that specializers in
mctd
months I have infection after infection its not going away its not getting better iv had steroids once and they actually seamed ok but now my hope is going my ct scan is same scared but my lung function was a bit better this time so now I get told I'm been refered to a hospital that specializers in
mctd
Dion3844o1
in
Lung Conditions Community Forum
7 years ago
A story for friends, family and others
If people actually googled
MCTD
they would see that 20 years ago maybe more people were only given 10 years to live and if they did live past that it would get 13% worse every year so yeah I’m selfish for my health I look after myself so I can stay alive and be there for you when you need me, not when
If people actually googled
MCTD
they would see that 20 years ago maybe more people were only given 10 years to live and if they did live past that it would get 13% worse every year so yeah I’m selfish for my health I look after myself so I can stay alive and be there for you when you need me, not when
Jess_doyle
in
LUPUS UK
7 years ago
Anyone cured Raynaud's with Thyroid meds? see links in message....
It was caused by secondary Raynaud's phenomenon, in a patient with Mixed Connective Tissue Disease (
MCTD
). The
MCTD
was diagnosed 5 years ago, after thyroid gland removal. ISN Photo Repository, contributed by Jeanne N. thanks Juliat
It was caused by secondary Raynaud's phenomenon, in a patient with Mixed Connective Tissue Disease (
MCTD
). The
MCTD
was diagnosed 5 years ago, after thyroid gland removal. ISN Photo Repository, contributed by Jeanne N. thanks Juliat
juliat
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Mctd and pregnancy
Hi all i was looking for advise, i have found out i am pregnant :) 9 weeks now and was wondering ladies who have had babies what do i need to expect? Do i see my rheumatologist? I have also had about 4 days of bleeding been for scans all ok thank goodness. Any info would be very appreciated. X
Hi all i was looking for advise, i have found out i am pregnant :) 9 weeks now and was wondering ladies who have had babies what do i need to expect? Do i see my rheumatologist? I have also had about 4 days of bleeding been for scans all ok thank goodness. Any info would be very appreciated. X
irishgirl13
in
LUPUS UK
7 years ago
How is it possible.
I have
MCTD
and Sjogren's. Two friends rang and told me they had been watching Venus AND SHE HAS SJOGREN'S ! Perhaps I'm not trying hard enough !😥
I have
MCTD
and Sjogren's. Two friends rang and told me they had been watching Venus AND SHE HAS SJOGREN'S ! Perhaps I'm not trying hard enough !😥
bones-bones
in
LUPUS UK
7 years ago
Mark Hyman: grab & go breakfasts
I class fruit, nuts & seeds as a convenient breakfast, but these might be nice for a treat or dessert, & some for lunch. http://drhyman.com/blog/2017/08/08/grab-go-breakfasts/?mc_cid=af119285b5&mc_eid=a9fd306e03 Grab-and-Go Breakfasts These grab-and-go breakfast options require little to no assembly
I class fruit, nuts & seeds as a convenient breakfast, but these might be nice for a treat or dessert, & some for lunch. http://drhyman.com/blog/2017/08/08/grab-go-breakfasts/?mc_cid=af119285b5&mc_eid=a9fd306e03 Grab-and-Go Breakfasts These grab-and-go breakfast options require little to no assembly
BadHare
in
Healthy Eating
7 years ago
Cut my hair.
My SLE and
MCTD
are stable now, unfortunately not in remission. And for my ILD i dont feel any different or better in my lungs. However the medicine or the disease is causing my hair to be super thin and fall out super fast. Ive tried shampoos and vitamins but iys not working.
My SLE and
MCTD
are stable now, unfortunately not in remission. And for my ILD i dont feel any different or better in my lungs. However the medicine or the disease is causing my hair to be super thin and fall out super fast. Ive tried shampoos and vitamins but iys not working.
Jaylowdancer
in
LUPUS UK
7 years ago
Possibly Lupus
There was evidence of
MCTD
but it was low he says so it is negative. Whether it is low or not it is there so I don't undertand him. He basically isn't bothered and he's done his bit I feel he is very curt with me again.
There was evidence of
MCTD
but it was low he says so it is negative. Whether it is low or not it is there so I don't undertand him. He basically isn't bothered and he's done his bit I feel he is very curt with me again.
cocodmer
in
LUPUS UK
7 years ago
Struggling with work
Hi all, I'm a 43 year old woman and was diagnosed with
MCTD
/Lupus with ME symptoms last year though I believe I have had these conditions since 2009. I have always been a busy person, have always worked and studied and am a self employed musician. I'm finding my working life extremely hard.
Hi all, I'm a 43 year old woman and was diagnosed with
MCTD
/Lupus with ME symptoms last year though I believe I have had these conditions since 2009. I have always been a busy person, have always worked and studied and am a self employed musician. I'm finding my working life extremely hard.
SaraDee
in
LUPUS UK
7 years ago
Molten rash on legs
Hi I'm 37 diagnosed with fibromyalgia, probable
MCTD
, hypothyroidism, and was told the purplish rash on my legs (worse on knees) was livedo recularis. I'm being tested for APS but the APS group says there rash looks different. Also it's on my arms but mostly my legs.
Hi I'm 37 diagnosed with fibromyalgia, probable
MCTD
, hypothyroidism, and was told the purplish rash on my legs (worse on knees) was livedo recularis. I'm being tested for APS but the APS group says there rash looks different. Also it's on my arms but mostly my legs.
falling2peices
in
Circulation Foundation
7 years ago
BUTTER VERSUS NON BUTTER
BUTTER VERSUS NON BUTTER While the decision of whether to choose butter or margarine is dependent on the individual and their specific dietary needs.,maintaining proper nutrition is a personal undertaking. What makes sense for one person might not be in the best interest of the next. Trans fat raises
BUTTER VERSUS NON BUTTER While the decision of whether to choose butter or margarine is dependent on the individual and their specific dietary needs.,maintaining proper nutrition is a personal undertaking. What makes sense for one person might not be in the best interest of the next. Trans fat raises
rvmasalvad
in
Healthy Eating
7 years ago
MCTD questions
Hello all i was diagnosed with
MCTD
a few days ago. Im just wondering if anyone knows if this condition can affect seasonal allergies. Or if since my immune system is awful is that why theyre so bad?
Hello all i was diagnosed with
MCTD
a few days ago. Im just wondering if anyone knows if this condition can affect seasonal allergies. Or if since my immune system is awful is that why theyre so bad?
Mouse24
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Sorting it all out
I have Sjogren's with
MCTD
and take Hydroxychloroquine, Mycophenolate and Amitriptylene. Now I am feeling very light headed when I stand up (? Orthostatic hypotension ) I have to record my BP twice every day for a month. If I've been sitting for some time then get up I feel dizzy and wobbly.
I have Sjogren's with
MCTD
and take Hydroxychloroquine, Mycophenolate and Amitriptylene. Now I am feeling very light headed when I stand up (? Orthostatic hypotension ) I have to record my BP twice every day for a month. If I've been sitting for some time then get up I feel dizzy and wobbly.
bones-bones
in
LUPUS UK
7 years ago
Help with results please
Having investigations for suspected Lupus/
MCTD
/Vasculitis - not all three might I add! The rheumatologist put these on his letter to my GP. Other tests are in the pipeline and I have yet to be given a definite diagnosis.
Having investigations for suspected Lupus/
MCTD
/Vasculitis - not all three might I add! The rheumatologist put these on his letter to my GP. Other tests are in the pipeline and I have yet to be given a definite diagnosis.
Minnskimoo
in
Thyroid UK
7 years ago
A few words of advice/encouragement please. Possible Lupus/MCTD/vasculitis.
Is it possible to have a combination of lupus/
MCTD
/vasculitis? Not really quite sure about anything at the moment.
Is it possible to have a combination of lupus/
MCTD
/vasculitis? Not really quite sure about anything at the moment.
Minnskimoo
in
LUPUS UK
7 years ago
Advice on what's happening to my thumb?
I have
MCTD
, diagnosed in 2011. About three years ago, I started getting pain at the end of my thumb. It felt like I had a splinter. After me poking and prodding at it trying to find the splinter, it hit all flaky, top layers of skin peeled off then the pain stopped.
I have
MCTD
, diagnosed in 2011. About three years ago, I started getting pain at the end of my thumb. It felt like I had a splinter. After me poking and prodding at it trying to find the splinter, it hit all flaky, top layers of skin peeled off then the pain stopped.
Lysianthus
in
LUPUS UK
7 years ago
No Rituxan for me
Ibreally want to get better soon and not have my
MCTD
progress in my lungs anymore.
Ibreally want to get better soon and not have my
MCTD
progress in my lungs anymore.
Jaylowdancer
in
LUPUS UK
7 years ago
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