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Experiences with
Mixed connective tissue disease (MCTD)
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vasculitus ????
was worse all blood test came back negative , went to see a dermotologist who did a chest x ray and a biopsy of one of the lumps x ray was clear but biopsy showed lymphocyte-rich dermatosis with perivascular distribution suggesting a lymphocytic vasculitis, my dermotoligist said it was a typical mild
mctd
was worse all blood test came back negative , went to see a dermotologist who did a chest x ray and a biopsy of one of the lumps x ray was clear but biopsy showed lymphocyte-rich dermatosis with perivascular distribution suggesting a lymphocytic vasculitis, my dermotoligist said it was a typical mild
mctd
messy94
in
Vasculitis UK
12 years ago
Back with another chapter
I had debated on not having it as two of the Cardiologist said it wasn't a heart attack and they were fairly positive it was caused by the
MCTD
, but I figured I need to know for sure. So I will soldier on with another test.
I had debated on not having it as two of the Cardiologist said it wasn't a heart attack and they were fairly positive it was caused by the
MCTD
, but I figured I need to know for sure. So I will soldier on with another test.
uknlv
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
Anyone else coping with SLE/MCTD "girdle" pain?
pain specialist's clonazepam & meptazinole for this kind of pain if it was really bad: I guess they helped, but I feel so out of it on them....and I haven't seen him since the SLE etc diagnosis to review my meds and last june when my vvvv autoimmune knowledgeable rheumy figured out i'd had SLE/
MCTD
pain specialist's clonazepam & meptazinole for this kind of pain if it was really bad: I guess they helped, but I feel so out of it on them....and I haven't seen him since the SLE etc diagnosis to review my meds and last june when my vvvv autoimmune knowledgeable rheumy figured out i'd had SLE/
MCTD
Barnclown
in
LUPUS UK
12 years ago
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MCTD help please...
No one seems to know very much about
MCTD
and I have never met a fellow 'sufferer'. Is there anyone else out there like me? Is it right to feel like this all the time with no release? Surely I should have periods where things are fine like I did when I was first diagnosed?
No one seems to know very much about
MCTD
and I have never met a fellow 'sufferer'. Is there anyone else out there like me? Is it right to feel like this all the time with no release? Surely I should have periods where things are fine like I did when I was first diagnosed?
MCTDGus
in
LUPUS UK
13 years ago
Just need to vent
I have had Lupus (
MCTD
) for the past 10 years -- diagnosed anyways. I recently went to my Dr and a few weeks ago I had a flare- but was feeling much better my prednisone intake went from 20 mg to 10mg and the Dr says that is a very high dose(I dont agree).
I have had Lupus (
MCTD
) for the past 10 years -- diagnosed anyways. I recently went to my Dr and a few weeks ago I had a flare- but was feeling much better my prednisone intake went from 20 mg to 10mg and the Dr says that is a very high dose(I dont agree).
TonyaM868
in
LUPUS UK
12 years ago
Has anybody suffered a chest pain leading to Pnemonia?
Last year, I was diagnosed with
MCTD
by Rheuma and have had a symptoms of chestpains, difficulty in breating due to pain & tiredness. Prescribed of steroids to reduce inflammation in my lungs.
Last year, I was diagnosed with
MCTD
by Rheuma and have had a symptoms of chestpains, difficulty in breating due to pain & tiredness. Prescribed of steroids to reduce inflammation in my lungs.
anya_marie
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
MCTD - is it genetic?
I have recently been diagnosed with Mixed Connective Tissue Disease and I forgot to ask at the appointment whether it is genetic? Will I pass this on to my kids?
I have recently been diagnosed with Mixed Connective Tissue Disease and I forgot to ask at the appointment whether it is genetic? Will I pass this on to my kids?
Jennie_103
in
LUPUS UK
13 years ago
Good News and Bad News
I presume there might be a
MCTD
society as well so I might have to join that too. I’m devastated and I don’t really know where to turn now. Thank you all for your help and advice over the last couple of years. Good luck and best wishes to you all. Ax
I presume there might be a
MCTD
society as well so I might have to join that too. I’m devastated and I don’t really know where to turn now. Thank you all for your help and advice over the last couple of years. Good luck and best wishes to you all. Ax
AMDP
in
NRAS
13 years ago
Anyone with hot, not cold, hands and feet?
I have only recently been diagnosed with
MCTD
and Scleroderma but my hands and feet are always hot and I mean really hot - so hot I have to soak them in cold water from time to time. I have never had Raynaud's, well one finger a couple of times so that hardly counts. Is this so usual?
I have only recently been diagnosed with
MCTD
and Scleroderma but my hands and feet are always hot and I mean really hot - so hot I have to soak them in cold water from time to time. I have never had Raynaud's, well one finger a couple of times so that hardly counts. Is this so usual?
AMDP
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
Does anybody else have Mixed Connective Tissue Disease with scleroderma?
Hi does any body else have
MCTD
with Scleroderma? I was recently diagnosed after being treated for RA for two years and would like to know more about it. I have read websites and booklets from R and S Ass but would be good to have some first hand, forgive the pun, information.
Hi does any body else have
MCTD
with Scleroderma? I was recently diagnosed after being treated for RA for two years and would like to know more about it. I have read websites and booklets from R and S Ass but would be good to have some first hand, forgive the pun, information.
AMDP
in
Scleroderma & Raynaud's UK (SRUK)
13 years ago
I have been passed from neurology to rheumatology and told I have MCTD but there is no treatment is this the case ?
has anyone had any medication that helps with Raynauds and other symptoms of
MCTD
?
has anyone had any medication that helps with Raynauds and other symptoms of
MCTD
?
sylviagreenhalgh
in
Scleroderma & Raynaud's UK (SRUK)
12 years ago
has anyone else been affected by their mother's taking stilbesterol (DES)?
instead i have spent 58 years being treated by a bunch of different nhs clinics without anyone connecting the dots and testing me for an underlying condition until last year when SLE,
MCTD
etc was diagnosed.
instead i have spent 58 years being treated by a bunch of different nhs clinics without anyone connecting the dots and testing me for an underlying condition until last year when SLE,
MCTD
etc was diagnosed.
Barnclown
in
LUPUS UK
12 years ago
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