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Experiences with
Mixed connective tissue disease (MCTD)
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Joint inflammation
I am new to this and trying to gain a better understanding (I have
mctd
btw ...arthritis with lupus overlap)
I am new to this and trying to gain a better understanding (I have
mctd
btw ...arthritis with lupus overlap)
Bettina1865
in
Arthritis Action
4 years ago
Joint inflammation
I am new to this and trying to gain a better understanding (I have
mctd
btw ...rheumatoid arthritis with lupus overlap) Related Tags
I am new to this and trying to gain a better understanding (I have
mctd
btw ...rheumatoid arthritis with lupus overlap) Related Tags
Bettina1865
in
NRAS
4 years ago
Neurology Telephone Appointment
He told me that he had a letter on file from the Rheumatologist stating I had
MCTD
. I resisted the urge to tell him all about the diagnosis differences and concentrated instead on my “ funny turns”.
He told me that he had a letter on file from the Rheumatologist stating I had
MCTD
. I resisted the urge to tell him all about the diagnosis differences and concentrated instead on my “ funny turns”.
CecilyParsley
in
LUPUS UK
3 years ago
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Waving Goodbye to Hand Hobbies 👋
My post today is revolves mainly around Rauynards Phenomenon and mobility issues caused by various illness whether it's Scleroderma, Lupus,
MCTD
, Arthritis etc.
My post today is revolves mainly around Rauynards Phenomenon and mobility issues caused by various illness whether it's Scleroderma, Lupus,
MCTD
, Arthritis etc.
Vicrum88
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Heart & Sole (Diagnosis)
How do each of these diseases (RA,
MCTD
and UCTD) differ (or not) in their effect on the heart? What to believe....and whom?
How do each of these diseases (RA,
MCTD
and UCTD) differ (or not) in their effect on the heart? What to believe....and whom?
RxMe
in
LUPUS UK
4 years ago
Protocol supports hwp.
I was asked to share my hwp Protocol - I share only because it is supporting him and he is not on any Parkinson medications. Daily Brain (30 day supplement) breakfast prepackaged - inc. grapeseed extract, phosphatidylserine, curcumin, omega-3 EPA/DHA, 10 billion Probiotic. Check out nationalnutrition.ca
I was asked to share my hwp Protocol - I share only because it is supporting him and he is not on any Parkinson medications. Daily Brain (30 day supplement) breakfast prepackaged - inc. grapeseed extract, phosphatidylserine, curcumin, omega-3 EPA/DHA, 10 billion Probiotic. Check out nationalnutrition.ca
Spencer53
in
Cure Parkinson's
4 years ago
What is light ... my quest for knowledge.
Following my recent
MCTD
/Lupus diagnosis I've been on a quest to understand photosensitivity and photophobia (two separate medical conditions and not the same as is often suggested) and what I could do practically around my home to alleviate my symptoms, particularly in choosing light bulbs.
Following my recent
MCTD
/Lupus diagnosis I've been on a quest to understand photosensitivity and photophobia (two separate medical conditions and not the same as is often suggested) and what I could do practically around my home to alleviate my symptoms, particularly in choosing light bulbs.
FabledPilgrim
in
LUPUS UK
4 years ago
Azothiaprine and recurrent neutropenia MCTD
Hi all, I was diagnosed with
MCTD
this Feb. I have severe raynauds, pain and swelling in all of my joints and fatigue.
Hi all, I was diagnosed with
MCTD
this Feb. I have severe raynauds, pain and swelling in all of my joints and fatigue.
katiehopeful81
in
LUPUS UK
4 years ago
Hydroxychloroquine side effects?
Hiya, I was fortunate enough to have an actual live, in-person new patient rheumatology appointment on Monday and have a provisional
MCTD
/overlap diagnosis. I really liked the consultant - he explained things really clearly and kept prompting me to ask questions!
Hiya, I was fortunate enough to have an actual live, in-person new patient rheumatology appointment on Monday and have a provisional
MCTD
/overlap diagnosis. I really liked the consultant - he explained things really clearly and kept prompting me to ask questions!
TennisCat90
in
LUPUS UK
4 years ago
Help please
Hi, I have
MCTD
probable Lupus and Sjorgens. All the usual fatigue, joint pain etc. I was wandering if anyone can tell me if the problems shown in the photos are connected with any of the above. My doctor says the pigmentation is Melasmia (Chloasma) and the red spots are old age!!
Hi, I have
MCTD
probable Lupus and Sjorgens. All the usual fatigue, joint pain etc. I was wandering if anyone can tell me if the problems shown in the photos are connected with any of the above. My doctor says the pigmentation is Melasmia (Chloasma) and the red spots are old age!!
Pinky1go
in
LUPUS UK
4 years ago
Results : Organic Acid Test (OAT) from Great Plains Laboratory.
I wanted to share the details of the results for my mother, based on Urine test . Hopefully, this will help a few on this forum. I am only indicating the High/Low items in the report. The remaining ( of the total of 77 items) were within the Ref. Range. See attached sample report from their website
I wanted to share the details of the results for my mother, based on Urine test . Hopefully, this will help a few on this forum. I am only indicating the High/Low items in the report. The remaining ( of the total of 77 items) were within the Ref. Range. See attached sample report from their website
John_morris71
in
Cure Parkinson's
4 years ago
Chilblain Lupus (Erythromyalgia?)
After many, many months of increasing unusual symptoms, I was finally diagnosed in June 2020 with Mixed Connective Tissue Disease (
MCTD
), based on the results of a skin biopsy on one of my toes. Although, I was told that the skin biopsy results were “suggestive” of
MCTD
.
After many, many months of increasing unusual symptoms, I was finally diagnosed in June 2020 with Mixed Connective Tissue Disease (
MCTD
), based on the results of a skin biopsy on one of my toes. Although, I was told that the skin biopsy results were “suggestive” of
MCTD
.
GrandMAptm
in
LUPUS UK
4 years ago
Help! Tinnitus and MCTD Drugs
I was diagnosed with
MCTD
Feb 20 after starting with Raynauds, joint point and fatigue. I tried Hydroxychloriquine but it gave me tinnitus after a few weeks, so stopped taking it and months down the line, the tinnitus remains.
I was diagnosed with
MCTD
Feb 20 after starting with Raynauds, joint point and fatigue. I tried Hydroxychloriquine but it gave me tinnitus after a few weeks, so stopped taking it and months down the line, the tinnitus remains.
katiehopeful81
in
LUPUS UK
4 years ago
Lung function test
I have
MCTD
with Raynauds I was diagnosed in January had a few aches and pains nothing to bad as yet. Just trying to smile though it 🌸🦋
I have
MCTD
with Raynauds I was diagnosed in January had a few aches and pains nothing to bad as yet. Just trying to smile though it 🌸🦋
Wolfie1972
in
LUPUS UK
4 years ago
Sore sore blistered feet skin peeling off ? Help plz if you can .
Iv had RA since aged 11
MCTD
.
Iv had RA since aged 11
MCTD
.
Weemillie
in
NRAS
4 years ago
Thyroid Results - please help
Hello, my latest results from Medichecks. (I take 100mg Levo & 1/4 grain of ERFA). I have Hashi's, ulcerative colitis, endometriosis & interstitial cystitis. TSH 0.268 (0.27 - 4.2) Free T3 4.73 (3.1 - 6.8) Free T4 16.1 (12-22) I'd like to get my free T3 & T4 higher if possible. I take B, D, K, multi
Hello, my latest results from Medichecks. (I take 100mg Levo & 1/4 grain of ERFA). I have Hashi's, ulcerative colitis, endometriosis & interstitial cystitis. TSH 0.268 (0.27 - 4.2) Free T3 4.73 (3.1 - 6.8) Free T4 16.1 (12-22) I'd like to get my free T3 & T4 higher if possible. I take B, D, K, multi
jostafford0
in
Thyroid UK
4 years ago
Second wave of NHS letters?
I have
MCTD
and am on hydroxychloroquine, should note I also have coeliac disease and am offered the flu jab annually Just wondering if anyone else has got one recently? I want expecting to get one.
I have
MCTD
and am on hydroxychloroquine, should note I also have coeliac disease and am offered the flu jab annually Just wondering if anyone else has got one recently? I want expecting to get one.
BellaC79
in
LUPUS UK
4 years ago
Struggling with lump feeling in throat that feels worse when I bend forward. Came on suddenly feels uncomfortable when I burp
Diagnosed overlap
mctd
. Be good to hear from some of you. Take care all xxxxx
Diagnosed overlap
mctd
. Be good to hear from some of you. Take care all xxxxx
Melarky
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
MCTD are we more at risk of catching coronovirus?
Should any
MCTD
patients on hydroxychloroquine be following the guidelines/advice for those with pre existing health issues and over 70?
Should any
MCTD
patients on hydroxychloroquine be following the guidelines/advice for those with pre existing health issues and over 70?
BellaC79
in
LUPUS UK
4 years ago
MCTD = RA?
Can Connect Tissue Disease lead to Rheumatoid Arthritis?
Can Connect Tissue Disease lead to Rheumatoid Arthritis?
AMDP
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
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