Search
Search
About
Log in
Join
Experiences with
Mast cell activation syndrome (MCAS)
Posts
Communities
4,507 public posts
Filter results
Just been approved for Vitamin B12 injection treatment.
hello everyone this is my first post. I have been experiencing many of the symptoms of functional b12 deficiency/pernicious anemia for close to 7 years. My doctor was reluctant for whatever reason to authorize the injections, even though I had a positive parietal cell antibody test. I guess my question
hello everyone this is my first post. I have been experiencing many of the symptoms of functional b12 deficiency/pernicious anemia for close to 7 years. My doctor was reluctant for whatever reason to authorize the injections, even though I had a positive parietal cell antibody test. I guess my question
MikeyO
in
Pernicious Anaemia Society
2 years ago
Pred affects glucose...what about thyroid?
i have been struggling to reduce my pred dose. Since I went from 22.5 to 20 every day has been different. The first day was ok. No real change. Then my pain was high....I was shakey, very tired/exhausted,efeated for the rest. Today my pain is a smidge better..but I am so tired. I have that out
i have been struggling to reduce my pred dose. Since I went from 22.5 to 20 every day has been different. The first day was ok. No real change. Then my pain was high....I was shakey, very tired/exhausted,efeated for the rest. Today my pain is a smidge better..but I am so tired. I have that out
Wallysma
in
PMRGCAuk
2 years ago
ATG treatment /Rabbit antigens
Hi as previously explained I am awaiting bone marrow transplant. Have been told I will need rabbit antigens or ATG ahead of the process. From what the consultant has said it can cause lots of side effects eg high temp amongst other things. Has anybody else had this treatment? Thanks Joanne
Hi as previously explained I am awaiting bone marrow transplant. Have been told I will need rabbit antigens or ATG ahead of the process. From what the consultant has said it can cause lots of side effects eg high temp amongst other things. Has anybody else had this treatment? Thanks Joanne
Platelets2022
in
Leukaemia Support
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
blood test bingo!
I've just been to Bristol stem cell department in preparation for a possible Stem cell transplant. I had to have 14 phials of blood taken for tests. Is this a record at one sitting? !!
I've just been to Bristol stem cell department in preparation for a possible Stem cell transplant. I had to have 14 phials of blood taken for tests. Is this a record at one sitting? !!
Scaredy_cat
in
MPN Voice
2 years ago
Insomnia add CBD oil
CBD oil acts on different receptors than Opioids and THC . If you are taking low dose CBD with THC or medical marijuana and you still suffer insomnia add extra pure CBD oil. If you suffer from opioid insomnia add PURE CBD OIL always sublingual it has some many health benefits a great nights sleep
CBD oil acts on different receptors than Opioids and THC . If you are taking low dose CBD with THC or medical marijuana and you still suffer insomnia add extra pure CBD oil. If you suffer from opioid insomnia add PURE CBD OIL always sublingual it has some many health benefits a great nights sleep
Shumbah
in
Restless Legs Syndrome
2 years ago
Thalassemia and PA
Hello, I've been telling everyone I know about PA, and so far two friends quite possibly have it. One definitely. But my nieces husband and daughter have Thalassemia. A very rare genetic blood disorder. When i googled it, I was surprised to see it can be linked to b12d and PA. Does anyone here have this
Hello, I've been telling everyone I know about PA, and so far two friends quite possibly have it. One definitely. But my nieces husband and daughter have Thalassemia. A very rare genetic blood disorder. When i googled it, I was surprised to see it can be linked to b12d and PA. Does anyone here have this
EllaNore
in
Pernicious Anaemia Society
2 years ago
Does half dose of sertraline make any difference?
I’ve spoken to a GP this morning (not my usual one, sadly) about my restless legs having returned since taking sertraline. She mentioned other antidepressants as an alternative but all of them are listed as having restless legs as side effects. She suggested halving the dose. As I’m only on the lowest
I’ve spoken to a GP this morning (not my usual one, sadly) about my restless legs having returned since taking sertraline. She mentioned other antidepressants as an alternative but all of them are listed as having restless legs as side effects. She suggested halving the dose. As I’m only on the lowest
NJB71
in
Restless Legs Syndrome
2 years ago
3 years Buprenorphine Success.
BUPRENORPHINE Hi everyone as you know know October 29th will be 3rd anniversary for 2mg Buprenorphine. Although the Buprenorphine worked from night one what I did not expect was the PTSD . I did struggled with PTSD I continued on helping other access buprenorphine in as many countries as possible
BUPRENORPHINE Hi everyone as you know know October 29th will be 3rd anniversary for 2mg Buprenorphine. Although the Buprenorphine worked from night one what I did not expect was the PTSD . I did struggled with PTSD I continued on helping other access buprenorphine in as many countries as possible
Shumbah
in
Restless Legs Syndrome
2 years ago
Compression boots w/heat
Hello, So far the only the only things I have found to help my severe RLS is 15 mgs of methodone w/400 mgs of magnesium (long term fix about 24 hrs), hot baths with epsom salt (short term fix, maybe 30 mins.) Being how I do NOT want to be on methodone for ever. I am looking for other solutions.
Hello, So far the only the only things I have found to help my severe RLS is 15 mgs of methodone w/400 mgs of magnesium (long term fix about 24 hrs), hot baths with epsom salt (short term fix, maybe 30 mins.) Being how I do NOT want to be on methodone for ever. I am looking for other solutions.
Anguished
in
Restless Legs Syndrome
2 years ago
Here we go again!
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
broomfield28
in
PMRGCAuk
2 years ago
best products
Hello,can I pick your brains please. recently diagnosed with sjorgrens.after a fight my drs gave agreed to supply some products on prescription. My first trip to the pharmacy cost me £50 and I top of this I purchase eye drops online and pay for my prescription for hydroxy. The drops I buy online
Hello,can I pick your brains please. recently diagnosed with sjorgrens.after a fight my drs gave agreed to supply some products on prescription. My first trip to the pharmacy cost me £50 and I top of this I purchase eye drops online and pay for my prescription for hydroxy. The drops I buy online
BonnyB
in
LUPUS UK
2 years ago
Here we go again!!
I just wanted to say hi to all the wonderful women on this forum. I've been following peoples journeys and I'm always inspired by everyone's stories and support for each other. I've just been for my scratch as I hope to start treatment again in a few days time. Weirdly the scratch wasn't as painful
I just wanted to say hi to all the wonderful women on this forum. I've been following peoples journeys and I'm always inspired by everyone's stories and support for each other. I've just been for my scratch as I hope to start treatment again in a few days time. Weirdly the scratch wasn't as painful
Pebbles345
in
Fertility Network UK
2 years ago
constipation
Hi folks Taking Levodopa Gabapentin and Tramadol for Parkinson and Restless legs and get bad constipation can you suggest any good things to take to help this .
Hi folks Taking Levodopa Gabapentin and Tramadol for Parkinson and Restless legs and get bad constipation can you suggest any good things to take to help this .
auldreekie18
in
Restless Legs Syndrome
2 years ago
alternative to sertraline due to restless legs
I have suffered restless legs all my life. A few years ago my dr checked my ferritin level. It was very low and I took iron. My legs got better and I was elated. No one had ever told me there was such a simple solution in all my 71 years. I have also taken sertraline in the past but never associated
I have suffered restless legs all my life. A few years ago my dr checked my ferritin level. It was very low and I took iron. My legs got better and I was elated. No one had ever told me there was such a simple solution in all my 71 years. I have also taken sertraline in the past but never associated
NJB71
in
Restless Legs Syndrome
2 years ago
Very high IgE levels
Does anyone else with autoimmune PA have a sky high IgE level as I do? Since diagnosis mine has been around 2000 KIU/L (normal range <20). I don’t suffer from any of the conditions usually associated with very high serum IgE such as aspergillosis, Hodgkin’s Disease etc, so whatever has caused it is
Does anyone else with autoimmune PA have a sky high IgE level as I do? Since diagnosis mine has been around 2000 KIU/L (normal range <20). I don’t suffer from any of the conditions usually associated with very high serum IgE such as aspergillosis, Hodgkin’s Disease etc, so whatever has caused it is
summersj
in
Pernicious Anaemia Society
2 years ago
Living in the PUPO bubble...10dp5dt *sensitive - updated...bfp*
Hi everyone! Not posted on here in a while but have never stopped lurking 😅 Sorry in advance for the long post and update! My last post was about thinking of moving to a clinic abroad, which we did early this year. Since then we've had 2 cycles in Spain. 1st cycle there (3rd overall after 2 x NHS cycles
Hi everyone! Not posted on here in a while but have never stopped lurking 😅 Sorry in advance for the long post and update! My last post was about thinking of moving to a clinic abroad, which we did early this year. Since then we've had 2 cycles in Spain. 1st cycle there (3rd overall after 2 x NHS cycles
Moonbeam8511
in
Fertility Network UK
2 years ago
RLS and THC oil
Hello everyone Im a 37 yo male who has suffered from RLS for around 9 years or so. During this time I have worked through every single possible treatment afforded to us such as iron supplements, less alcohol, no sugar dieting (ketogeneic diet), eating at varied times during the day - non of which changed
Hello everyone Im a 37 yo male who has suffered from RLS for around 9 years or so. During this time I have worked through every single possible treatment afforded to us such as iron supplements, less alcohol, no sugar dieting (ketogeneic diet), eating at varied times during the day - non of which changed
Geordie-sailor
in
Restless Legs Syndrome
2 years ago
no ppain.
Restless is not painful, it's an urge to keep moving, legs jump and junk impossible to sit or lie Down. you have no choice but To keep moving. My longest walkabout was from 6.30pm until 6 30am following morning. What is working for me now is tto Alternate between pramipexole
Restless is not painful, it's an urge to keep moving, legs jump and junk impossible to sit or lie Down. you have no choice but To keep moving. My longest walkabout was from 6.30pm until 6 30am following morning. What is working for me now is tto Alternate between pramipexole
cumoneileen
in
Restless Legs Syndrome
2 years ago
insomnia
I need some one who is taking CBD for insomnia with success to share the brand of CBD he is taking with me. From my past posts you may be familiar with my oxycodone-induced insomnia. The Hempland USA Cannabitol has lost effect after 7-8 months of daily dosage of 83.4 mg every night. I am now again
I need some one who is taking CBD for insomnia with success to share the brand of CBD he is taking with me. From my past posts you may be familiar with my oxycodone-induced insomnia. The Hempland USA Cannabitol has lost effect after 7-8 months of daily dosage of 83.4 mg every night. I am now again
halperinchen
in
Restless Legs Syndrome
2 years ago
Blood Test Results - TPA seem strange
Hi, I have just received my Medichecks results. The result for TPA is 9 The range is <34 I know this fluctuates but was surprised to see it under range. My doctor checked it in 2007 and it was 56. It has not been checked since. So, do I still have Hashimotos? Does it fluctuate so much? I have
Hi, I have just received my Medichecks results. The result for TPA is 9 The range is <34 I know this fluctuates but was surprised to see it under range. My doctor checked it in 2007 and it was 56. It has not been checked since. So, do I still have Hashimotos? Does it fluctuate so much? I have
Conniegirl
in
Thyroid UK
2 years ago
1
...
41
42
43
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1456 results
Fertility Network UK
361 results
Thyroid UK
353 results
View top 10 communities
Sort by
Most Relevant
Newest