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Mast cell activation syndrome (MCAS)
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Mast cell activation syndrome
Just reading about. MCAS it reads about lots of things and tinnitus never heard of it before
Just reading about. MCAS it reads about lots of things and tinnitus never heard of it before
Eabxj28
in
British Tinnitus Association
5 years ago
Putting things in perspective
So it’s been almost 4 years since I was diagnosed with aggressive G9 PCa. Surgery, adjuvant RT and ADT, then more RT after recurrence in a handful of pelvic LNs. Been on ADT and Zytiga for 11 months to hopefully cleanup anything that may remain. PSA has been undetectable since the treatment for recurrence
So it’s been almost 4 years since I was diagnosed with aggressive G9 PCa. Surgery, adjuvant RT and ADT, then more RT after recurrence in a handful of pelvic LNs. Been on ADT and Zytiga for 11 months to hopefully cleanup anything that may remain. PSA has been undetectable since the treatment for recurrence
shueswim
in
Advanced Prostate Cancer
4 years ago
Clinical Utility of Chromosomal Microarray in Richter's Transformation
Chromosomal microarray (CMA) is clever, very sensitive technology which looks for extra (duplicated) or missing (deleted) chromosomal segments, sometimes called copy number variants (CNVs) - see illustration. These include: microdeletions and microduplications of chromosome segments, which are too
Chromosomal microarray (CMA) is clever, very sensitive technology which looks for extra (duplicated) or missing (deleted) chromosomal segments, sometimes called copy number variants (CNVs) - see illustration. These include: microdeletions and microduplications of chromosome segments, which are too
Jm954
Administrator
in
CLL Support
4 years ago
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Magnesium deficiency, PPIs & RLS - shock revelation!
I only found out today, quite by accident, that PPI's can, and do, cause magnesium deficiency. Magnesium deficiency, in turn, can then cause cramps, muscle twitches and RLS. Holy hell! I've been taking PPIs for years - literally years - and despite mentioning that I have RLS to several doctors, not ONE
I only found out today, quite by accident, that PPI's can, and do, cause magnesium deficiency. Magnesium deficiency, in turn, can then cause cramps, muscle twitches and RLS. Holy hell! I've been taking PPIs for years - literally years - and despite mentioning that I have RLS to several doctors, not ONE
Chancery
in
Restless Legs Syndrome
4 years ago
Started Buprenorphine 😴
Hello from NYC So far it has been really worth the long hall flight I have seen an amazing doctor in NYC I am seeing him again on Tuesday - I will seek his permission before popping his name up. He was lovely older man , hugged me when I left gave me his personal Mobile / cell number He reached
Hello from NYC So far it has been really worth the long hall flight I have seen an amazing doctor in NYC I am seeing him again on Tuesday - I will seek his permission before popping his name up. He was lovely older man , hugged me when I left gave me his personal Mobile / cell number He reached
Shumbah
in
Restless Legs Syndrome
5 years ago
I'm New - Boyfriend has EDS
Hello all! I do not know much about EDS other than what I've read online or what my boyfriend has told me about it. His EDS has always concerned me and it makes me sad because he believes his life expectancy is super short because some doctor told him this... It bothers me because not enough doctors
Hello all! I do not know much about EDS other than what I've read online or what my boyfriend has told me about it. His EDS has always concerned me and it makes me sad because he believes his life expectancy is super short because some doctor told him this... It bothers me because not enough doctors
Usako
in
Ehlers-Danlos Support UK
4 years ago
Rls
Hi everyone I’ve been suffering with restless legs for many years it is a bad disease I just hope I can find something natural that really works for me KRATOM seems to be working pretty well Requip is something That works but put you to sleep I can’t watch a movie without twitching my legs it’s just
Hi everyone I’ve been suffering with restless legs for many years it is a bad disease I just hope I can find something natural that really works for me KRATOM seems to be working pretty well Requip is something That works but put you to sleep I can’t watch a movie without twitching my legs it’s just
Applejacks95
in
Restless Legs Syndrome
4 years ago
Big thank you
I can't remember who to thank (Madlegs, maybe?) I've taken gabapentin for close to 30 years for unrelated nerve pain. About 5 years ago I was hospitalized and in the course of things, told that I had a magnesium deficiency and to supplement. So I have been taking magnesium. No one ever even mentioned
I can't remember who to thank (Madlegs, maybe?) I've taken gabapentin for close to 30 years for unrelated nerve pain. About 5 years ago I was hospitalized and in the course of things, told that I had a magnesium deficiency and to supplement. So I have been taking magnesium. No one ever even mentioned
Whippetmama
in
Restless Legs Syndrome
4 years ago
How long do L-dopa withdrawal symptoms last?
I took an over the counter L-dopa supplement (Macuna puriens) for a few months for my restless legs and then experienced augmentation and rebound. I stopped cold turkey a week ago and am experiencing withdrawal effects in the form of nervous system pain. Wondering how long it takes for the withdrawal
I took an over the counter L-dopa supplement (Macuna puriens) for a few months for my restless legs and then experienced augmentation and rebound. I stopped cold turkey a week ago and am experiencing withdrawal effects in the form of nervous system pain. Wondering how long it takes for the withdrawal
RoDomHarr
in
Restless Legs Syndrome
4 years ago
Bowel problems
Almost a year since ltx, bile duct blockage so another mri. My question to all you warriors is, has anyone having bowel problems?
Almost a year since ltx, bile duct blockage so another mri. My question to all you warriors is, has anyone having bowel problems?
Yuiop
in
British Liver Trust
4 years ago
Update Dr Winkleman- Buprenorphine
Hi Everyone My appointment with Dr Winkleman update Just saying I would recommend a 7 day trail to anyone interested in Buprenorphine you can start and stop with no issues . I side stepped the 6 month wait at the Massachusetts General Hospital. I saw him as a private patient at his home $1000 cash
Hi Everyone My appointment with Dr Winkleman update Just saying I would recommend a 7 day trail to anyone interested in Buprenorphine you can start and stop with no issues . I side stepped the 6 month wait at the Massachusetts General Hospital. I saw him as a private patient at his home $1000 cash
Shumbah
in
Restless Legs Syndrome
4 years ago
Stuck on ropinirole
Hi everyone it’s been a while since I was last on here, if anyone can remember I was taking 3 2mg Ropinirole in 24 hours and I tried my best to come off them! It was torture. Anyway I had a week where I got fed up with everything and I stopped all my medication apart from ropinirole, I discovered stopping
Hi everyone it’s been a while since I was last on here, if anyone can remember I was taking 3 2mg Ropinirole in 24 hours and I tried my best to come off them! It was torture. Anyway I had a week where I got fed up with everything and I stopped all my medication apart from ropinirole, I discovered stopping
Rish
in
Restless Legs Syndrome
4 years ago
Help and advice needed please
Hi UK here, I’ve had RLS for as long as I can remember, but it has been severe for about eight to ten years, I was an RN, but had to give up because of lack of sleep, I’m in my early sixties I’ve been on various medication including Ropinirole, Carbergoline, Pregabalin, Gabapentin, now on Pramipexole
Hi UK here, I’ve had RLS for as long as I can remember, but it has been severe for about eight to ten years, I was an RN, but had to give up because of lack of sleep, I’m in my early sixties I’ve been on various medication including Ropinirole, Carbergoline, Pregabalin, Gabapentin, now on Pramipexole
Shelag
in
Restless Legs Syndrome
4 years ago
CBD oil over $80 an ounce each week is worth it to me to stop RLS.
My cousin gives me a discount on my .3% THC CBD oil at $80 an ounce that last about a week or so for me. I'd say 5% is a lot! By the time I used CBD oil I was so miserable with RLS that I would have made any sacrifice to get relief. I pray u find a cheaper solution. I tried gabapentin, Requip, pamelor
My cousin gives me a discount on my .3% THC CBD oil at $80 an ounce that last about a week or so for me. I'd say 5% is a lot! By the time I used CBD oil I was so miserable with RLS that I would have made any sacrifice to get relief. I pray u find a cheaper solution. I tried gabapentin, Requip, pamelor
Reader5
in
Restless Legs Syndrome
4 years ago
Do other dopamine boosters also cause augmentation?
I’m experiencing really bad RLS augmentation from supplementing with L-Dopa for three months, but wondering if I switch to other dopamine boosters such as Chlonine, Uridine, L-theanine, will the effect be the same? For context, this is what they specifically do: https://www.mindlabpro.com/blogs/nootropics
I’m experiencing really bad RLS augmentation from supplementing with L-Dopa for three months, but wondering if I switch to other dopamine boosters such as Chlonine, Uridine, L-theanine, will the effect be the same? For context, this is what they specifically do: https://www.mindlabpro.com/blogs/nootropics
RoDomHarr
in
Restless Legs Syndrome
4 years ago
Cancer Fatigue and Getting Through the Holidays
The Leukemia & Lymphoma Society is offering a Free Telephone Support Program for Patients Families and Caregivers. - Click this link to register: https://pburkhard.wufoo.com/forms/qrfew60160p1a4/ or http://bit.ly/DecLnL. Cancer Fatigue and Getting Through the Holidays When: Wednesday
The Leukemia & Lymphoma Society is offering a Free Telephone Support Program for Patients Families and Caregivers. - Click this link to register: https://pburkhard.wufoo.com/forms/qrfew60160p1a4/ or http://bit.ly/DecLnL. Cancer Fatigue and Getting Through the Holidays When: Wednesday
lankisterguy
Volunteer
in
CLL Support
4 years ago
Should I fill the ropinirole prescription??
Went to neurologist yesterday to have epilepsy ruled out. (It was.) Mentioned I had RLS. Told him I was taking .5 milligrams of Valium every third day or so to keep the monster at bay. Mentioned that hydrocodone really helps me (But prescriptions are getting harder to get in the US. Mention the word
Went to neurologist yesterday to have epilepsy ruled out. (It was.) Mentioned I had RLS. Told him I was taking .5 milligrams of Valium every third day or so to keep the monster at bay. Mentioned that hydrocodone really helps me (But prescriptions are getting harder to get in the US. Mention the word
Marlayna67
in
Restless Legs Syndrome
4 years ago
FET Cycle starting tomorrow
I start buserelin tomorrow for downregulation and am also having an endometrial scratch in preparation for frozen embryo transfer next month. This is our only embryo but we do have another round of NHS IVF if this transfer isn't successful which I'm hoping we won't need 🙏 Trying to stay positive but
I start buserelin tomorrow for downregulation and am also having an endometrial scratch in preparation for frozen embryo transfer next month. This is our only embryo but we do have another round of NHS IVF if this transfer isn't successful which I'm hoping we won't need 🙏 Trying to stay positive but
Sarah_a_2018
in
Fertility Network UK
5 years ago
Buserelin Spray leak
Hi, This is a completely random question but does anyone know if you can absorb Buserelin spray through your skin? Reason I am asking is that I had my full bottle of spray in my pocket whilst at work and it has managed to unscrew it’s self and leak. I have about 1/4 left of a full bottle before I
Hi, This is a completely random question but does anyone know if you can absorb Buserelin spray through your skin? Reason I am asking is that I had my full bottle of spray in my pocket whilst at work and it has managed to unscrew it’s self and leak. I have about 1/4 left of a full bottle before I
Iamtrying150
in
Fertility Network UK
5 years ago
Decision time for Multiple Myeloma
I have been fighting PC for 23 years and six months ago I was told I had MM. Had treatments for MM and was told that I had an excellent response was a perfect candidate for Stem Cell Transplant even though I was 78 years old and have comorbidities. After going through what seemed like a thousand tests
I have been fighting PC for 23 years and six months ago I was told I had MM. Had treatments for MM and was told that I had an excellent response was a perfect candidate for Stem Cell Transplant even though I was 78 years old and have comorbidities. After going through what seemed like a thousand tests
mcp1941
in
Advanced Prostate Cancer
4 years ago
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