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Mast cell activation syndrome (MCAS)
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Cabergoline after egg collection. Very confused. Help!
Hi ladies. Did anyone get prescribed a Cabergoline after the Egg collection? Had my egg collection today, doctor said I may be at risk of overstimulating, so was prescribed these pills. 1 pill per day. However on the information leaflet says ' you should take care not to become pregnant for at least
Hi ladies. Did anyone get prescribed a Cabergoline after the Egg collection? Had my egg collection today, doctor said I may be at risk of overstimulating, so was prescribed these pills. 1 pill per day. However on the information leaflet says ' you should take care not to become pregnant for at least
Hope823
in
Fertility Network UK
3 years ago
I think I have EDS and pots
Hello everyone I am new here but I’m pretty sure that I have a form of EDS. I am not hyper mobile but never tolerated anesthesia, have blue sclera, and recently started to have joint unstableness and I started a bruising easily. I think my skin is thinner, I do not heal quickly and I’ve also noticed
Hello everyone I am new here but I’m pretty sure that I have a form of EDS. I am not hyper mobile but never tolerated anesthesia, have blue sclera, and recently started to have joint unstableness and I started a bruising easily. I think my skin is thinner, I do not heal quickly and I’ve also noticed
Katie2333
in
Ehlers-Danlos Support UK
2 years ago
NHS app health record says my GCA is minor!
I've just downloaded the NHS app and looked at my health record. I am somewhat disturbed to see this: 29 October 2021 Giant cell arteritis without polymyalgia rheumatica Significance: Minor Status: Active I was diagnosed around 4th October after a diagnosis of PMR a week earlier. This entry is after
I've just downloaded the NHS app and looked at my health record. I am somewhat disturbed to see this: 29 October 2021 Giant cell arteritis without polymyalgia rheumatica Significance: Minor Status: Active I was diagnosed around 4th October after a diagnosis of PMR a week earlier. This entry is after
Broseley
in
PMRGCAuk
2 years ago
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Latest Test results. What to try next.....
I've been on Levo for 12 months. I will be talking to my GP next week who will probably say my results are fine. My main problem is digestive and lower abdominal bloating with constipation a major factor. GP test results(only tests TSH and T4, tested 20th Oct) TSH1.29 range (0.27-4.2) T4 18.1 range
I've been on Levo for 12 months. I will be talking to my GP next week who will probably say my results are fine. My main problem is digestive and lower abdominal bloating with constipation a major factor. GP test results(only tests TSH and T4, tested 20th Oct) TSH1.29 range (0.27-4.2) T4 18.1 range
rick2525
in
Thyroid UK
3 years ago
Pfizer Pill
I received this news via the New York Times which, if true, will be helpful as we learn to live with this wretched disease. A Covid pill developed by Pfizer cuts the risk of hospitalisation or death in vulnerable adults by 89 per cent, according to a clinical trial carried out by the US company. Incidentally
I received this news via the New York Times which, if true, will be helpful as we learn to live with this wretched disease. A Covid pill developed by Pfizer cuts the risk of hospitalisation or death in vulnerable adults by 89 per cent, according to a clinical trial carried out by the US company. Incidentally
Thelmarina
in
PMRGCAuk
2 years ago
my dopamine levels are not coming back to normal
Rls stopped taking ropinirole 3 months ago because of augmentation the good side my RLS has almost stopped and under control no medications been on ropinirole for 10 years but it seems my dopamine levels are not coming back and making me fall a sleep / fatigue /no drive all blood test normal Any
Rls stopped taking ropinirole 3 months ago because of augmentation the good side my RLS has almost stopped and under control no medications been on ropinirole for 10 years but it seems my dopamine levels are not coming back and making me fall a sleep / fatigue /no drive all blood test normal Any
Browne1212
in
Restless Legs Syndrome
3 years ago
Atorvastatin
Does anyone know if this medicine to reduce cholesterol has any effect on RSL by making the symptoms worse? I'm wary now of taking any medicine that could worsen RLS as I took Nytol once that sent my RLS ballistic so I need to check this Atorvastatin out before taking it.
Does anyone know if this medicine to reduce cholesterol has any effect on RSL by making the symptoms worse? I'm wary now of taking any medicine that could worsen RLS as I took Nytol once that sent my RLS ballistic so I need to check this Atorvastatin out before taking it.
dahon
in
Restless Legs Syndrome
3 years ago
polyhydramnios.
I'm 31 weeks pregnant and have just been diagnosed with significant polyhydramnios. Does anyone know anything about this condition?
I'm 31 weeks pregnant and have just been diagnosed with significant polyhydramnios. Does anyone know anything about this condition?
Danielle1989
in
Pregnancy and Parenting Support
3 years ago
Advice on thyroid and adrenals with Fibromyalgia invited please
My Partner has Fibromyalgia age 65, otherwise healthy, on HRT ie estrogen, prog, testosterone,DHEA, melatonin but nothing yet for thyroid or adrenals. Here are her labs and temps, labs done 8.45am fasting. TSH 2.32 range 0.27-4.2 When done in June TSH was 3.69 ,same range and lab but she had SIBO at
My Partner has Fibromyalgia age 65, otherwise healthy, on HRT ie estrogen, prog, testosterone,DHEA, melatonin but nothing yet for thyroid or adrenals. Here are her labs and temps, labs done 8.45am fasting. TSH 2.32 range 0.27-4.2 When done in June TSH was 3.69 ,same range and lab but she had SIBO at
ainslie
in
Thyroid UK
3 years ago
Thyroid interaction
I started feeling unwell with weird.thyroid symptoms. It was happening every other night it started after I was using a new serum retinol I then discovered this on internet has this happened to anyone elsr
I started feeling unwell with weird.thyroid symptoms. It was happening every other night it started after I was using a new serum retinol I then discovered this on internet has this happened to anyone elsr
ninja1
in
Thyroid UK
3 years ago
Vitamin E for Restless Legs
Vitamin E for Restless Legs Please poke around on the Internet; i.e. do your own research. Good search term is perhaps: Vitamin E Restless legs Have been taking a number of Quality Supplements for years for good health. I take Vitamin E 800ug daily (2 ea Nature's Way 400ug Occasionally do NOT take
Vitamin E for Restless Legs Please poke around on the Internet; i.e. do your own research. Good search term is perhaps: Vitamin E Restless legs Have been taking a number of Quality Supplements for years for good health. I take Vitamin E 800ug daily (2 ea Nature's Way 400ug Occasionally do NOT take
johnnorthwest
in
Restless Legs Syndrome
3 years ago
A bit lost and looking for help
Hello everyone, I am not new here but have not posted before. Firstly, thanks for this great resource I dip in and out all the time. A little background, roughly 6 years ago diagnosed borderline hypo, been taking 50 levo since then with blood test indicating no increase needed. Roll on to last Spring
Hello everyone, I am not new here but have not posted before. Firstly, thanks for this great resource I dip in and out all the time. A little background, roughly 6 years ago diagnosed borderline hypo, been taking 50 levo since then with blood test indicating no increase needed. Roll on to last Spring
Pippydoo
in
Thyroid UK
3 years ago
Flecainide with Afib and LBBB?
Hello, In a bid to stop me going into Afib my electrophysiologist has stopped my very low dose of bisop for what I think says Diltiazen ER and flecainide 100mg bd. I was previously told by my cardiologist I should not take flecainide due to my LBBB. I did mention this to the EP, who said my heart function
Hello, In a bid to stop me going into Afib my electrophysiologist has stopped my very low dose of bisop for what I think says Diltiazen ER and flecainide 100mg bd. I was previously told by my cardiologist I should not take flecainide due to my LBBB. I did mention this to the EP, who said my heart function
IsobelBrown54
in
Atrial Fibrillation Support
3 years ago
12 week scan. High risk for Edward's and Patau's syndromes. Any positive stories?
Hello, I had my 12 week scan (at 13 weeks) on Monday. The Nuchal Translucency was high 6.4 mm and combined with the blood test our risk of Down Syndrome is low 1:10000 but our risk of Patau's or Edward's is as high as it could be 1:2. I am 37 years old, so I realise I am at increased risk. Has anyone
Hello, I had my 12 week scan (at 13 weeks) on Monday. The Nuchal Translucency was high 6.4 mm and combined with the blood test our risk of Down Syndrome is low 1:10000 but our risk of Patau's or Edward's is as high as it could be 1:2. I am 37 years old, so I realise I am at increased risk. Has anyone
AracLl
in
Fertility Network UK
3 years ago
Gastrointestinal inflammation with PMR
Hi, I am getting rather worried as I have developed gastrointestinal inflammation. I have polymyalgia rheumatica & have been taking prednisolone since Aug 2020 starting at 15mg & now tapered to 6mg. Anyone else haven’t have had the same problem?
Hi, I am getting rather worried as I have developed gastrointestinal inflammation. I have polymyalgia rheumatica & have been taking prednisolone since Aug 2020 starting at 15mg & now tapered to 6mg. Anyone else haven’t have had the same problem?
Hidden
in
PMRGCAuk
3 years ago
Fatigue
Hi I have been suffering from depression, mood disorder and chronic fatigue. I did blood tests lately but all is fine so Dr confirmed that its fibro. I sleep 8 to 9 hours but I wake up tired like I want to sleep again. This happens on a daily basis and is affecting my routine because I don't have the
Hi I have been suffering from depression, mood disorder and chronic fatigue. I did blood tests lately but all is fine so Dr confirmed that its fibro. I sleep 8 to 9 hours but I wake up tired like I want to sleep again. This happens on a daily basis and is affecting my routine because I don't have the
Annalisea
in
Fibromyalgia Action UK
3 years ago
Venetoclax and Stelara
Hello everyone, hope all is well? Just putting it out there if anyone has been on Venetoclax for their CLL and Stelara for Ulcerative Colitis at the sametime? Or can anyone recommend medication for Ulcerative Colitis while taking Venetoclax?
Hello everyone, hope all is well? Just putting it out there if anyone has been on Venetoclax for their CLL and Stelara for Ulcerative Colitis at the sametime? Or can anyone recommend medication for Ulcerative Colitis while taking Venetoclax?
Driverps1
in
CLL Support
3 years ago
INF+ ATO Study, "A knockout combination for MPN stem cells"
Some have likely seen this study. I looked into it some more today and realize it's a neat pre-clinical result. This is just FYI right now but it's an example of potential good things to come. (I just noticed Manouche posted on this last year, anyway maybe some new details here) "JAK2V617F myeloproliferative
Some have likely seen this study. I looked into it some more today and realize it's a neat pre-clinical result. This is just FYI right now but it's an example of potential good things to come. (I just noticed Manouche posted on this last year, anyway maybe some new details here) "JAK2V617F myeloproliferative
EPguy
in
MPN Voice
3 years ago
8+4 Late Dose of Progynova
Hi everyone, I'm currently 8 weeks 4 days pregnant, and due to my incompetent GP surgery mucking up my prescription, I have taken my progynova nearly 6 hours late today. Has anyone else done this before and their pregnancy has continued ok? I contacted my clinic, but their response was "We cannot say
Hi everyone, I'm currently 8 weeks 4 days pregnant, and due to my incompetent GP surgery mucking up my prescription, I have taken my progynova nearly 6 hours late today. Has anyone else done this before and their pregnancy has continued ok? I contacted my clinic, but their response was "We cannot say
JustJennay28
in
Fertility Network UK
3 years ago
Alex TLC Digital Community Weekend
The agenda for our weekend is available to view: https://www.alextlc.org/digital-community-weekend-2021/ On Saturday, the Science Day, we have presentations about the new NHS Inherited White Matter Disorders Patient Registry and research updates on the following Leukodystrophies: - AMN & ALD - Alexander's
The agenda for our weekend is available to view: https://www.alextlc.org/digital-community-weekend-2021/ On Saturday, the Science Day, we have presentations about the new NHS Inherited White Matter Disorders Patient Registry and research updates on the following Leukodystrophies: - AMN & ALD - Alexander's
Hidden
Partner
in
Leukodystrophy Support
3 years ago
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