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Mast cell activation syndrome (MCAS)
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Chronic Fatigue Syndrome
The largest ever DNA study of ME/CFS is available to register online. ME/CFS and FMS are similar in symptoms. Some people may suffer from both or all. This study is interesting to us Fibromyalgia individuals as the study looks at fatigue a major symptom of Fibro, the trial, Yes a trial! is looking at
The largest ever DNA study of ME/CFS is available to register online. ME/CFS and FMS are similar in symptoms. Some people may suffer from both or all. This study is interesting to us Fibromyalgia individuals as the study looks at fatigue a major symptom of Fibro, the trial, Yes a trial! is looking at
does-the-NHS-work
in
Fibromyalgia Action UK
2 years ago
Total knee replacement
Hi and good sunny morning to you all. 6 weeks ago I had a total knee replacement should have been a 3 day stay but I was in hospital for 3 weeks. I developed phumonia and a PE. I'm struggling to recover on top of that I've had no RA drugs for about 10 weeks and won't be allowed back on my biologic drug
Hi and good sunny morning to you all. 6 weeks ago I had a total knee replacement should have been a 3 day stay but I was in hospital for 3 weeks. I developed phumonia and a PE. I'm struggling to recover on top of that I've had no RA drugs for about 10 weeks and won't be allowed back on my biologic drug
Pasjc
in
NRAS
2 years ago
Hypnosis
Has anyone tried hypnosis? My RL started after a head injury. I think it affected my nervous system and brain, causing my restless leg problems. DR prescribed 1200 mg Gabapentin and 400 mg of Magnesium. I am uncomfortable as my RL occurrences are all over the place. Hence wondering if Hypnosis would
Has anyone tried hypnosis? My RL started after a head injury. I think it affected my nervous system and brain, causing my restless leg problems. DR prescribed 1200 mg Gabapentin and 400 mg of Magnesium. I am uncomfortable as my RL occurrences are all over the place. Hence wondering if Hypnosis would
C82021
in
Restless Legs Syndrome
2 years ago
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Augmentation & Tramadol? What next
Not sure what to do now. I came off 0.5mg Ropinirole about 4 years ago and found 100mg of Tramadol was sufficient to give me on most nights 8 hours sleep. But I seem now to be developing augmentation. I am writing this after 3 hours sleep! I have stretched my legs but still suffering. I am now wondering
Not sure what to do now. I came off 0.5mg Ropinirole about 4 years ago and found 100mg of Tramadol was sufficient to give me on most nights 8 hours sleep. But I seem now to be developing augmentation. I am writing this after 3 hours sleep! I have stretched my legs but still suffering. I am now wondering
m1946
in
Restless Legs Syndrome
2 years ago
My trial with sodium butyrate, a short chain fatty acid (scfa) and sodium propionate, also a SCFA
Trying, at least for one month, to supplement sodium butyrate. I have done some reading and although I don't understand everything, supplementing butyrate could be beneficial for me because of the, in my opinion, still existing dysbiosis, with all it's consequences for my health. I did have the Lactulose
Trying, at least for one month, to supplement sodium butyrate. I have done some reading and although I don't understand everything, supplementing butyrate could be beneficial for me because of the, in my opinion, still existing dysbiosis, with all it's consequences for my health. I did have the Lactulose
Meleber
in
IBS Network
2 years ago
Bone marrow transplant
Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I am wheelchair bound, but can still stand. My symptoms have been stable for many years. In a few weeks, I will be getting my first MRI in 30 years. I am afraid if the results are poor, I will have to get bone marrow transplant
Hello, I am 60 years old. I have been struggling with AMN for over 35 years. I am wheelchair bound, but can still stand. My symptoms have been stable for many years. In a few weeks, I will be getting my first MRI in 30 years. I am afraid if the results are poor, I will have to get bone marrow transplant
HenryW
in
AMN EASIER
2 years ago
Ropinirole - despair!
Following a diagnosis last year I've been on Ropinirole ever since. Unfortunately, my GP is one who thinks this is the best drug for RLS. I'm on the lowest dose, 0.5mg and the practice pharmacist says we should try to keep it as low as that if possible. However, it's not even touching the sides anymore
Following a diagnosis last year I've been on Ropinirole ever since. Unfortunately, my GP is one who thinks this is the best drug for RLS. I'm on the lowest dose, 0.5mg and the practice pharmacist says we should try to keep it as low as that if possible. However, it's not even touching the sides anymore
RVC_Hants
in
Restless Legs Syndrome
2 years ago
Map of Human Blood Stem Cell Development Created
ARTICLE https://www.insideprecisionmedicine.com/topics/precision-medicine-topic/stem-cells/map-of-human-blood-stem-cell-development-created/ : EXTRACTS Researchers at UCLA have created a detailed map of human blood cells and how they develop in an embryo, which could help improve treatments for blood-related
ARTICLE https://www.insideprecisionmedicine.com/topics/precision-medicine-topic/stem-cells/map-of-human-blood-stem-cell-development-created/ : EXTRACTS Researchers at UCLA have created a detailed map of human blood cells and how they develop in an embryo, which could help improve treatments for blood-related
bennevisplace
in
CLL Support
2 years ago
Covid and AF
I tested positive with Covid on Saturday and feeling ill. I’ve had AFfor 8 years but luckily only had three bad attacks in the last 6 months.Now I’m getting supraventricular ectopics in long runs which are scary and make me feel I’m going to faint, and then ramp up my heartbeat. The GP knew little aboutAF
I tested positive with Covid on Saturday and feeling ill. I’ve had AFfor 8 years but luckily only had three bad attacks in the last 6 months.Now I’m getting supraventricular ectopics in long runs which are scary and make me feel I’m going to faint, and then ramp up my heartbeat. The GP knew little aboutAF
Janna501
in
AF Association
2 years ago
Gralise/ gabapentin will cause augmentation?
I have had RLS since I was a child and is has periodically made my life unbearable. After having been through augmentation many times, I was assured this was a good option. I am on 1800 mg daily and it works fairly well (RLS 75% improved) though I was successfully on Neurontin, also gabapentin, for
I have had RLS since I was a child and is has periodically made my life unbearable. After having been through augmentation many times, I was assured this was a good option. I am on 1800 mg daily and it works fairly well (RLS 75% improved) though I was successfully on Neurontin, also gabapentin, for
Camry2020
in
Restless Legs Syndrome
2 years ago
What specialist do I see to remove Lipomas that are affecting my breathing?
I have lipomas that are blocking my lymphatic system in my scapula, shoulder near my armpit and it is causing me a lot of discomfort, swelling pressure, and labored breathing? Any help or advice is welcome. Thank you Nets67
I have lipomas that are blocking my lymphatic system in my scapula, shoulder near my armpit and it is causing me a lot of discomfort, swelling pressure, and labored breathing? Any help or advice is welcome. Thank you Nets67
Hidden
in
Asthma Community Forum
2 years ago
CAR T vaccine
GeoVax is conducting two Phase II COVID-19 vaccine clinical trials with its GEO-CMO4S1 vaccine. One of the trials is among immunocompromised patients who have been treated with CAR T therapy or have undergone bone marrow transplants. https://www.biospace.com/article/geovax-s-novel-vaccine-platform-induces-both-antibody-and-t-cell-responses
GeoVax is conducting two Phase II COVID-19 vaccine clinical trials with its GEO-CMO4S1 vaccine. One of the trials is among immunocompromised patients who have been treated with CAR T therapy or have undergone bone marrow transplants. https://www.biospace.com/article/geovax-s-novel-vaccine-platform-induces-both-antibody-and-t-cell-responses
Scout4answers
in
Advanced Prostate Cancer
2 years ago
What’s New in MS Research - March 2022
Thank you again to everyone who posted about and is discussing MSAA's latest edition of the "What's New in MS Research" report on our website! For those that don't know: this series of online articles is published periodically and features important information on topics ranging from highlights of major
Thank you again to everyone who posted about and is discussing MSAA's latest edition of the "What's New in MS Research" report on our website! For those that don't know: this series of online articles is published periodically and features important information on topics ranging from highlights of major
johnMSAA
Partner
in
My MSAA Community
2 years ago
Symptoms increasing ....latest test results
I am 18 months into Hasimoto underactive Thyroid. My symptoms are worsening particularly gut/bowel health.Excessive constipation and bloating. Extreme cold feet and hands. Pins and needles. Tinnitus. I have been on Accord Levo 125 mg daily for over 6 months. I also supplement with D3+k spray daily.
I am 18 months into Hasimoto underactive Thyroid. My symptoms are worsening particularly gut/bowel health.Excessive constipation and bloating. Extreme cold feet and hands. Pins and needles. Tinnitus. I have been on Accord Levo 125 mg daily for over 6 months. I also supplement with D3+k spray daily.
rick2525
in
Thyroid UK
2 years ago
withdrawal
Hi good people, coming off pramipexole down to o880mg at night with 2 tramadol get about 5 hours sleep then jerking legs for 4 hours before getting up do I need to increase the tramadol for it to work longer can cope during day but want to stop pramipexole next week then what . I am almost there I know
Hi good people, coming off pramipexole down to o880mg at night with 2 tramadol get about 5 hours sleep then jerking legs for 4 hours before getting up do I need to increase the tramadol for it to work longer can cope during day but want to stop pramipexole next week then what . I am almost there I know
auldreekie18
in
Restless Legs Syndrome
2 years ago
Polyhydramnios specifics
Hello, lovely lot. I'm new here. 33 weeks with baby number 4. I know there are a lot of posts about polyhydramnios, but I'm really looking for some specific details about your experiences if that's okay. As lots have said, the internet can be a bit scary and there I was at 4am googling frantically
Hello, lovely lot. I'm new here. 33 weeks with baby number 4. I know there are a lot of posts about polyhydramnios, but I'm really looking for some specific details about your experiences if that's okay. As lots have said, the internet can be a bit scary and there I was at 4am googling frantically
marlboroughmama
in
Pregnancy and Parenting Support
3 years ago
CD19 CAR-T cell therapy for B-ALL achieved remarkable efficacy with a complete remission of 70–90%
This looks interesting but way over my knowledge base. Perhaps some of you super brains can figure this out. In recent years, the increasing advancements and applications of cellular immunotherapy have enabled the use of chimeric antigen receptor (CAR) T cell therapy, and it has emerged as an efficacious
This looks interesting but way over my knowledge base. Perhaps some of you super brains can figure this out. In recent years, the increasing advancements and applications of cellular immunotherapy have enabled the use of chimeric antigen receptor (CAR) T cell therapy, and it has emerged as an efficacious
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Any gambling problems with Ropinirole
This is my first time posting and I'm curious to find out how many people have been effected by gambling problems associated with Ropinirole ( and other dopamine agonists ). My story: I've been on Ropinirole for approximately 18 years. Started on a low dose but eventually ended up on 12 mg extended release
This is my first time posting and I'm curious to find out how many people have been effected by gambling problems associated with Ropinirole ( and other dopamine agonists ). My story: I've been on Ropinirole for approximately 18 years. Started on a low dose but eventually ended up on 12 mg extended release
rlsgambler
in
Restless Legs Syndrome
2 years ago
Synarel is a troll! Anyone relate?
Hello likeminded travellers! I’m starting my 6th IVF cycle shortly. It’s been tough but I remain optimistic. Anyway, I’ve been snorting 4 shots daily of synarel for 2 months - now we’ve increased to 6 shots per day. I appreciate that it works - and it’s helping me to eventually / hopefully fall pregnant
Hello likeminded travellers! I’m starting my 6th IVF cycle shortly. It’s been tough but I remain optimistic. Anyway, I’ve been snorting 4 shots daily of synarel for 2 months - now we’ve increased to 6 shots per day. I appreciate that it works - and it’s helping me to eventually / hopefully fall pregnant
VMJ007
in
Fertility Network UK
3 years ago
Linseed for IBS
Hi...Everyone I have been told by a dietician that to treat IBS constipation i should have Milled Linseed starting with i tablespoon a day to increase over a period to three tablespoon a day. I have started to take this , but find my pain is increasing , the notes that came with the diet sheet say
Hi...Everyone I have been told by a dietician that to treat IBS constipation i should have Milled Linseed starting with i tablespoon a day to increase over a period to three tablespoon a day. I have started to take this , but find my pain is increasing , the notes that came with the diet sheet say
Fredof
in
IBS Network
2 years ago
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