Experiences with

Mast cell activation syndrome (MCAS)

I’ve been looking into this the last couple of days, and I think I may have this. I definitely have a histamine intolerance as it has reared its ugly head before. I think this may be the cause of my recent symptoms and I think the Covid and flu vaccines triggered a reaction. Especially as I had the over

Low-Dose Naltrexone is used off-label and has helped with mast cell activation syndrome, long Covid, MS, IBS, fibromyalgia and RLS, just to name a few. I'm trying to talk my doctor into letting me try it. I might have to bring the article along with me to my appointment.

Do I have mast cell activation syndrome? https://londonclinicofnutrition.co.uk/nutrition-articles/do-i-have-mast-cell-activation-syndrome/#:~:text=In%20our%20clinical%20experience%2C%20mould,of%2090%25%20of%20MCAS%20cases. “What are the symptoms of mast cell activation syndrome?

I’ve also developed the symptoms of mast cell activation syndrome (MCAS) so I’m not sure what is causing what, as apparently both can cause significant daytime sleepiness.

Our team has been obsessed with the sensory system, and especially the impact for people with zebra conditions (conditions like Ehlers Danlos Syndrome (EDS), postural orthostatic tachycardia syndrome (POTS) and Mast cell activation syndrome (MCAS) and other similar conditions. So join me and Dr.

But recently as I have learned about MCAS (mast cell activation syndrome) it has made tremendous sense to me what has happened over the last 20 years. Intensity comes and goes and has to do with foods I react to, that I never had a problem with pre-mold exposure.

I am now convinced I have PA, because I have so many symptoms, for quite a number of years, although the last 6 years I put them down to the diagnosis of hEhlers Danlos Syndrome and Mast Cell Activation Syndrome (and apparently PA is very common with this disorder)…… so many years wasted not getting

After months of pain and inconclusive diagnosis by various doctors, I have discovered that those with MCAS (Mast Cell Activation Syndrome) as well as those with Hypermobility, get hugely affected by covid infections.

I have Hashimoto’s and another immune-related condition called Mast Cell Activation Syndrome, which is quite rare but super involved - the short version is that I’m allergic to many things and have to be super careful to manage food, sleep, stress, exercise, work, avoid perfumes/chemicals etc.

Hello, I had my beta HCG blood tests results back today and it was really low at 20 😔 I’ve another blood test on Monday (24th) but feel so deflated that this could be a chemical pregnancy. Anyone had similar results but a positive outcome?

hi, after 4 failed FETs including one pgta euploid 5AA embryo I’ve been diagnosed with recurrent implantation failure. The plan for the next FET is to include innohep, low dose aspirin and low dose steroid. Has anyone tried this? And what were the results? I’m age 40 and have 2 euploid embryos left.

Hi, my name is Deb and I’m hoping to find some answers about proper medication for Burning Mouth Syndrome which would help to relieve the pain and discomfort. I am using a natural toothpaste, as suggested by my dental expert and I’ve dried Dexamethasone rinse which hasn’t really helped as well as a salve

I was interested to read PMRpro's comment within a recent post concerning how Panadol interacts with Pred during metabolism. I am trying to find that comment and would ask PMRpro for any further information and reference to more fully understand the process please. My background is PMR 10 yrs/GCA 6 yrs

hi everyone, woykd you please be able to share your betahcg levels on your blood test day and share whether you transferred 1 or 2 embryos and whether the pregnancy was successful / viable ? Ths question comes often so I thought it would be nice to gather all the data in one place. :-) thanks everyone

has anyone with findings on their biopsy with Nodular regenerative hyperplasia? I hope I spelt it right…. If anyone can tell me what happens after it is found ( tests. Monitoring)I’d be grateful. Thank you!

I've avoided taking alendronate due to being high risk of stomach and throat cancer. My doctor wants me to try risedronate. Has anyone any experience of taking this?

Hi all. I want to record my many test results in a tracker to show current status and trends over time - I'm hoping this will help the right Doctor find the root cause of my issues. Does anybody have a good blank tracker that's already made that they'd be willing to share please? I'm good with excel

Hi everyone The question of oe or de is still tbc but id love your thoughts on pgta If we do go straight to DE our Dr in Spain said they don’t pgta test as the donor is younger than me (I’m 45) but the donor age is 35 and below. I won’t get told until day of transfer what their age is. This has left

basic info: 69 yr old female, Parkinson’s diagnosis Jan 2010. The first 7 yrs I lived close to OHSU in Portland OR and received excellent care. Then moved to a remote area 900 miles away with limited choice for PD care. A neurologist here but no movement specialist. The local hospital performs

happy to report that after all the stress & worry over hubby over the last few months re his spinal stenosis, and then all the hassle with the travel insurers last week, we’ve arrived at our gorgeous Singapore hotel en route for Melbourne and he’s doing really well! Well, he was, until he broke