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Mast cell activation syndrome (MCAS)
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Has Anyone Tried Hyperbaric Oxygen Therapy (HBOT) - for expedited healing from radiation induced bone fractures & unhealing wounds?
I understand that Hyperbaric Oxygen Therapy (HBOT) helps tremendously with jaw bone death caused by Xgeva type drugs & radiation induced bone problems. It is FDA approved therapy for radiation induced injuries. There are no contraindications for people with active cancer. I’m considering HBOT (defined
I understand that Hyperbaric Oxygen Therapy (HBOT) helps tremendously with jaw bone death caused by Xgeva type drugs & radiation induced bone problems. It is FDA approved therapy for radiation induced injuries. There are no contraindications for people with active cancer. I’m considering HBOT (defined
hopenowandtomorrow
in
SHARE Metastatic Breast Cancer
1 year ago
Paying for Horizant
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
Arbor Pharmaceuticals, the maker of Horizant, has a patient assistance program. If you're in the US you could be paying $55 a month (plus shipping) by applying to them directly. You can be on Medicare and still get this benefit. None of the cost is reimbursable by Medicare or any other insurance program
grassgree
in
Restless Legs Syndrome
1 year ago
higher risk of Down’s syndrome
After going through three rounds of ivf with pgd for a genetic condition I have we got our risk for downs back after combined test Nt = 1.5 (normal) Papp-a = 0.86 mom ( normal) Free beta hcg = 6.9 mom (elevated) Risk = 1:51 Anyone also had normal measurements other than the hcg? And what was the
After going through three rounds of ivf with pgd for a genetic condition I have we got our risk for downs back after combined test Nt = 1.5 (normal) Papp-a = 0.86 mom ( normal) Free beta hcg = 6.9 mom (elevated) Risk = 1:51 Anyone also had normal measurements other than the hcg? And what was the
sj482
in
Pregnancy and Parenting Support
1 year ago
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Perspective: The High-Folate–Low-Vitamin B-12 Interaction Is a Novel Cause of Vitamin B-12 Depletion with a Specific Etiology—A Hypothesis
Note: This paper is presented by its own authors as a [u]hypothesis[/u] rather than a wholly proved and accepted theory. However, excess folic acid has been identified as an issue many times. Typically, a GP prescribes 5 milligram doses, every day, and the patient continues taking that indefinitely
Note: This paper is presented by its own authors as a [u]hypothesis[/u] rather than a wholly proved and accepted theory. However, excess folic acid has been identified as an issue many times. Typically, a GP prescribes 5 milligram doses, every day, and the patient continues taking that indefinitely
helvella
Thyroid UK
in
Thyroid UK
1 year ago
Ropinirole and Pregablin
Hi first post I am so glad I have found this site it has helped me in a big way in my fight against RLS. My doctor has very limited knowledge of RLS At one time I was on 8 mg of Ropinirole extended release with no pregabalin, my doctor knew this was over the recommended dose of 6 mg but decided
Hi first post I am so glad I have found this site it has helped me in a big way in my fight against RLS. My doctor has very limited knowledge of RLS At one time I was on 8 mg of Ropinirole extended release with no pregabalin, my doctor knew this was over the recommended dose of 6 mg but decided
jmnw15359
in
Restless Legs Syndrome
1 year ago
Buprenorphine Naloxone dose
Hello again! I have had RLS for most of my life. I was taking 6mg Pramipexol per day until given better advice here on the site. I used 100 MG of Tramadol per day and in 18 months managed to cut down to .25mg Pramipexol. Then I got stuck and couldn't cut down any more. I found a Neurologist who prescribed
Hello again! I have had RLS for most of my life. I was taking 6mg Pramipexol per day until given better advice here on the site. I used 100 MG of Tramadol per day and in 18 months managed to cut down to .25mg Pramipexol. Then I got stuck and couldn't cut down any more. I found a Neurologist who prescribed
welschrispy
in
Restless Legs Syndrome
1 year ago
Levo doses and side effects
Hi everyone, I've had hypothyroidism (Hashimotos) for several years now and never felt 'well' that whole time, but at times have been able to cope and others (like now) absolutely can't. It seems to be constant and I wanted some advice/thoughts from what seems to be a very knowledgeable group who can
Hi everyone, I've had hypothyroidism (Hashimotos) for several years now and never felt 'well' that whole time, but at times have been able to cope and others (like now) absolutely can't. It seems to be constant and I wanted some advice/thoughts from what seems to be a very knowledgeable group who can
Stevensnj87
in
Thyroid UK
1 year ago
Carnivore diet and ketogenic diet is reportedly reversing many conditions. Can we heal our bodies with our diets.
I do not know if I actually have restless legs syn drome, but for years I have had involuntary leg movements every day, all day. I have jerking and muscle tension that is very uncomfortable and exhausting. I am not certain if it is the side effects of restoril, I take to sleep, or temazapam, that was
I do not know if I actually have restless legs syn drome, but for years I have had involuntary leg movements every day, all day. I have jerking and muscle tension that is very uncomfortable and exhausting. I am not certain if it is the side effects of restoril, I take to sleep, or temazapam, that was
Yecam1949
in
Restless Legs Syndrome
1 year ago
Allogenic Stem Cell Transplant
I [i]received a Stem cell transplant six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia. As of today I’m still in remission, showing 97% chimerism
I [i]received a Stem cell transplant six months ago. My decision was based on the availability of a suitable donor and being able to get to remission through aggressive chemotherapy. Other treatments had no effect on my rapidly growing leukemia. As of today I’m still in remission, showing 97% chimerism
GarciaB
in
MPN Voice
1 year ago
Bone marrow transplant
Hi, I am being offered a bone marrow transplant and wonder if anyone can offer me positive advice. Obviously the process is quite scary, but would like to think I'm doing the right thing. Thank you George
Hi, I am being offered a bone marrow transplant and wonder if anyone can offer me positive advice. Obviously the process is quite scary, but would like to think I'm doing the right thing. Thank you George
Georgehb
in
MPN Voice
1 year ago
Mother-in-law with EDS has very low Potassium readings
We thought Mum had dementia and the EDS (diagnosed) means she lives with pain and is unsteady. It just transpired that she has had a long term kidney infection and really low Potassium and has been hospitalised and put on a drip for this twice this week, its possible that this and not just the EDS has
We thought Mum had dementia and the EDS (diagnosed) means she lives with pain and is unsteady. It just transpired that she has had a long term kidney infection and really low Potassium and has been hospitalised and put on a drip for this twice this week, its possible that this and not just the EDS has
liverish
in
Ehlers-Danlos Support UK
1 year ago
COPD and RLS
I have emphysema and have tried many inhalers and every one of them aggravated the restless legs. I am on Ropinirole, but still and all it got impossible for me to take. Are there any inhalers for COPD that would not aggravate the legs. My doctor feels it necessary to use inhalers, but I refuse as
I have emphysema and have tried many inhalers and every one of them aggravated the restless legs. I am on Ropinirole, but still and all it got impossible for me to take. Are there any inhalers for COPD that would not aggravate the legs. My doctor feels it necessary to use inhalers, but I refuse as
hscarangella
in
Restless Legs Syndrome
1 year ago
Polyhydramnios. Blood test fine, GTT fine. What will happen with my baby?
Everything looks fine. Told I have polyhydramnios. What will happend with my baby?
Everything looks fine. Told I have polyhydramnios. What will happend with my baby?
Hidden
in
Pregnancy and Parenting Support
1 year ago
discomfort but only at night
using Fybergel and one small scoop of flaxseed daily has cured my constipation But I still have stomach discomfort but only ever at night, never daytime, I have cut out gas making foods but the problems persist any one suffered this way and solved the problem?
using Fybergel and one small scoop of flaxseed daily has cured my constipation But I still have stomach discomfort but only ever at night, never daytime, I have cut out gas making foods but the problems persist any one suffered this way and solved the problem?
brown1688
in
IBS Network
1 year ago
Restless Leg Syndrome
Restless leg syndrome. I have found 75mg pregabalin works (mostly) for twitches but still the nerve endings 'crawling' in my lower left leg that can reach a painful peak..
Restless leg syndrome. I have found 75mg pregabalin works (mostly) for twitches but still the nerve endings 'crawling' in my lower left leg that can reach a painful peak..
fr3dd13
in
Restless Legs Syndrome
1 year ago
Burnt tongue sensation
Hi guys..I have hashimoto's and I'm on Thyroid S. For quite a while now I've had this burnt tongue sensation and I think it's linked to the NDt but not certain. Some days it's much worse than others . Has anyone else had the same "reaction" ? Perhaps it's not the NDt at all but none of my other
Hi guys..I have hashimoto's and I'm on Thyroid S. For quite a while now I've had this burnt tongue sensation and I think it's linked to the NDt but not certain. Some days it's much worse than others . Has anyone else had the same "reaction" ? Perhaps it's not the NDt at all but none of my other
Mitch27
in
Thyroid UK
1 year ago
What to take after Methadone
I have been on Methadone for about 3 years and though it works well the constipation was so bad, I finally came off of Methadone and want to go on a drug that isn't an opiod. Does anyone have any suggestion. Been on requip, Mirapex, gabapentin and wondering what will work? I just cracked my femur
I have been on Methadone for about 3 years and though it works well the constipation was so bad, I finally came off of Methadone and want to go on a drug that isn't an opiod. Does anyone have any suggestion. Been on requip, Mirapex, gabapentin and wondering what will work? I just cracked my femur
McClintok
in
Restless Legs Syndrome
1 year ago
Methadone vs buprenorphine/naloxone
Hello all. I am in the "fortunate" position of being offered either methadone or Suboxone (buprenorphine/naloxone) for my refractory RLS. I have been taking a very low dose of methadone --1/4 of a 5mg tab once daily--for only 3-1/2 weeks and I fall asleep quickly and sleep uninterrupted about 5
Hello all. I am in the "fortunate" position of being offered either methadone or Suboxone (buprenorphine/naloxone) for my refractory RLS. I have been taking a very low dose of methadone --1/4 of a 5mg tab once daily--for only 3-1/2 weeks and I fall asleep quickly and sleep uninterrupted about 5
Doctorplacebo
in
Restless Legs Syndrome
1 year ago
I added Mucinex to my list of DO NOT TAKE over the counter meds.
Well, I finally got IT... yes, covid. My husband came home with it and four days later I came down with it. I was trying to get ahead of it by taking Mucinex the second night so I could prevent it spreading into my lungs as much as possible. My whole body jerked and thrashed all night long plus I
Well, I finally got IT... yes, covid. My husband came home with it and four days later I came down with it. I was trying to get ahead of it by taking Mucinex the second night so I could prevent it spreading into my lungs as much as possible. My whole body jerked and thrashed all night long plus I
Reb0013
in
Restless Legs Syndrome
1 year ago
Great RLS & Augmentation Articles (all available as PDFs)
I thought I’d share several articles that give, as far as I can tell, the best, evidence-based guidance for RLS and PLMD treatment + augmentation info. which can all be invaluable tools for understanding RLS, PLMD and augmentation. Note some of the authors names. 1)
Guidelines for the first-line
I thought I’d share several articles that give, as far as I can tell, the best, evidence-based guidance for RLS and PLMD treatment + augmentation info. which can all be invaluable tools for understanding RLS, PLMD and augmentation. Note some of the authors names. 1)
Guidelines for the first-line
ircam2112
in
Restless Legs Syndrome
1 year ago
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