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Mast cell activation syndrome (MCAS)
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Tocilizumab
I have had a BCC removed from the side of my nose. One of my rheumatology nurses told me that there is an incidence of Tocilizumab causing cancerous growths. It did pop up out of nowhere and I was shocked when the dermatologist told me that it was a slow growing cancer. Has anyone heard of this link?
I have had a BCC removed from the side of my nose. One of my rheumatology nurses told me that there is an incidence of Tocilizumab causing cancerous growths. It did pop up out of nowhere and I was shocked when the dermatologist told me that it was a slow growing cancer. Has anyone heard of this link?
Noni71
in
PMRGCAuk
8 months ago
coming off Pramipexole
my doctor has ordered me the amount of Pramipexole he wants me to take to stop completely Pramipexole. Right now .75 mg of Pramipexole at night, with Gabapentin 300 mg. He wants me to cut out a 1/3 of my Pramipexole weekly over 3 weeks and said he may would increase the Gabapentin as needed which will
my doctor has ordered me the amount of Pramipexole he wants me to take to stop completely Pramipexole. Right now .75 mg of Pramipexole at night, with Gabapentin 300 mg. He wants me to cut out a 1/3 of my Pramipexole weekly over 3 weeks and said he may would increase the Gabapentin as needed which will
Moretravel1
in
Restless Legs Syndrome
9 months ago
Results of test with a history of ME/CFS
First of all I have a history of ME/CFS not hypothyroidism. I feel well and have either recovered from ME/CFS or it is in remission, and wanted to get tests while feeling well. My only symptom is tinnitus. I have no fatigue or neurological complaints otherwise at present although i have had lots of fatigue
First of all I have a history of ME/CFS not hypothyroidism. I feel well and have either recovered from ME/CFS or it is in remission, and wanted to get tests while feeling well. My only symptom is tinnitus. I have no fatigue or neurological complaints otherwise at present although i have had lots of fatigue
MEguy
in
Thyroid UK
9 months ago
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Help ! 1 week post circumcision sensitivity
Hey guys. i got my circumcision done 7 days before. I had a very severe phimosis which i never seen my glance in my life as the foreskin is never retracted back. In terms of pain it’s very mild. But i am very very hypersensitive in the glance whenever i feel a touch down there . Even a small touch is
Hey guys. i got my circumcision done 7 days before. I had a very severe phimosis which i never seen my glance in my life as the foreskin is never retracted back. In terms of pain it’s very mild. But i am very very hypersensitive in the glance whenever i feel a touch down there . Even a small touch is
Megatron2000
in
Sexual Health India
1 year ago
Supplements to reduce glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
I was inspired by Widebody's comments on taurine and glycine to look into supplements that reduce glutamate. I found the following on an autism website that I cannot vouch for, but here is the list: (those of us taking gabapentin, pregabalin, horizont are taking medicine that is reducing brain glutamate
wantokporo
in
Restless Legs Syndrome
10 months ago
Restless legs medication
I have had restless legs for many years and was taking mirtazapine but it is no longer working. I have tried pramipexole but have had awful headaches. I’m now having awful insomnia which combined with RL means I am getting 2-3 hours sleep each night. What medications have you used that have helped
I have had restless legs for many years and was taking mirtazapine but it is no longer working. I have tried pramipexole but have had awful headaches. I’m now having awful insomnia which combined with RL means I am getting 2-3 hours sleep each night. What medications have you used that have helped
Lin58
in
Restless Legs Syndrome
10 months ago
Ropinirole to Pregabalin
Good Morning RLS team! :) I'm new to this group - very thankful to have found it and the fantastic information that's here. Hurrah for you! Last October I started taking Ropinirole for RLS but have decided I don't want to stay on it any further - I've augmented on that and I have edema in my arms
Good Morning RLS team! :) I'm new to this group - very thankful to have found it and the fantastic information that's here. Hurrah for you! Last October I started taking Ropinirole for RLS but have decided I don't want to stay on it any further - I've augmented on that and I have edema in my arms
missrees
in
Restless Legs Syndrome
10 months ago
have you had trouble getting approved for stem cell transplant?
I have had a wild ride last year beginning with a sudden decline in weight from 240 lbs - 165 lbs. accompanying the weight loss has also been an alarming increase in fatigue, cognitive ability, pain in my arms and legs, some times to the point where I can hardly feel my legs not to mention the
I have had a wild ride last year beginning with a sudden decline in weight from 240 lbs - 165 lbs. accompanying the weight loss has also been an alarming increase in fatigue, cognitive ability, pain in my arms and legs, some times to the point where I can hardly feel my legs not to mention the
Plasmapool
in
MPN Voice
6 months ago
Iron test results advise please!
Hi, Thanks for the great advice on my last post. Latest Thyroid results: TSH 0.824 (0.27 - 4.2) FT3 4.2 (3.1 - 6.8) FT4 15.2 (12 -22) TPA antibodies 13.1 (0 -34) Thyroglobulin antibodies 285 (0 -115) HIGH Since my last post I have seen a private thyroid GP and have been prescribed T3 I took
Hi, Thanks for the great advice on my last post. Latest Thyroid results: TSH 0.824 (0.27 - 4.2) FT3 4.2 (3.1 - 6.8) FT4 15.2 (12 -22) TPA antibodies 13.1 (0 -34) Thyroglobulin antibodies 285 (0 -115) HIGH Since my last post I have seen a private thyroid GP and have been prescribed T3 I took
Bluecat77
in
Thyroid UK
9 months ago
Update on rls
Hello everyone, just an update to let you know how I have been getting on since coming off the dopamine agonist. It's around 3 months now since I took my last tiny piece of pramipexole, after a pretty rough time of crawling legs, arms, shoulder shivers, I'm finally getting better!!! While coming off
Hello everyone, just an update to let you know how I have been getting on since coming off the dopamine agonist. It's around 3 months now since I took my last tiny piece of pramipexole, after a pretty rough time of crawling legs, arms, shoulder shivers, I'm finally getting better!!! While coming off
Loopylegs
in
Restless Legs Syndrome
10 months ago
LDN and Primary Sclerosing Cholangitis?
So my husband’s Hepatologist said his MRI looks like PSC. We know he has parasites because he’s been flushing them out like crazy. So we aren’t sure which came first. Anyone know if LDN can help?
So my husband’s Hepatologist said his MRI looks like PSC. We know he has parasites because he’s been flushing them out like crazy. So we aren’t sure which came first. Anyone know if LDN can help?
TruthWillSetUFree
in
LDN Research Trust
1 year ago
gabapentin side effects
I’ve been on gabaoentin approximately 16 weeks, I’m on 2 tablets 3 times a day, my restless legs are much better and am able to get some sleep. Unfortunately I cannot cope with the bad side effects, I have rung the doctor and am still waiting for a reply, I want to reduce the amount of tablets to see
I’ve been on gabaoentin approximately 16 weeks, I’m on 2 tablets 3 times a day, my restless legs are much better and am able to get some sleep. Unfortunately I cannot cope with the bad side effects, I have rung the doctor and am still waiting for a reply, I want to reduce the amount of tablets to see
Hublot
in
Restless Legs Syndrome
10 months ago
Tocilizumab in the UK
I thought it may be helpful to share my Rheumy appointment yesterday. I have GCA and PMR and due to various reasons cannot tolerate Steriods. Instead I am treated with Methotrexate and tocilizumab which I received for a year as in standard in the UK. I was worried about what would happen when year expired
I thought it may be helpful to share my Rheumy appointment yesterday. I have GCA and PMR and due to various reasons cannot tolerate Steriods. Instead I am treated with Methotrexate and tocilizumab which I received for a year as in standard in the UK. I was worried about what would happen when year expired
WaltzG
in
PMRGCAuk
8 months ago
ibuprofen & Pramipexole
Nearly 3am and wondering why the Pramipexole is not working. Have just discovered that Ibuprofen renders Pramipexole ineffective and I took a couple of Ibuprofen as a pain killer. Will I ever get to sleep? Does the Ibuprofen wear off.? If/when it does, will the the pramipexole kick in or do I have to
Nearly 3am and wondering why the Pramipexole is not working. Have just discovered that Ibuprofen renders Pramipexole ineffective and I took a couple of Ibuprofen as a pain killer. Will I ever get to sleep? Does the Ibuprofen wear off.? If/when it does, will the the pramipexole kick in or do I have to
Millersman
in
Restless Legs Syndrome
10 months ago
Should I switch SSRIs?
Hi all, I’ve been on sertraline for around 14 years on varying dosages. Most recently I was on 150mg, but over the past few weeks I’ve been coming down and I’m now on 50mg, in preparation for a switch to Paroxetine. I take sertraline as I was originally diagnosed with OCD and also had an eating disorder
Hi all, I’ve been on sertraline for around 14 years on varying dosages. Most recently I was on 150mg, but over the past few weeks I’ve been coming down and I’m now on 50mg, in preparation for a switch to Paroxetine. I take sertraline as I was originally diagnosed with OCD and also had an eating disorder
Griffo_
in
Thyroid UK
11 months ago
Torturous world of RLS
I have no words, I have been to see 2 pain specialists, 2 neurologists for ongoing nerve damage pain, back pain and restless leg pain and symptoms..e.g continual torturing tugging, electric prod like pain and jerking of whole limb. I discovered when I had my last spinal operation that the Buprenorphine
I have no words, I have been to see 2 pain specialists, 2 neurologists for ongoing nerve damage pain, back pain and restless leg pain and symptoms..e.g continual torturing tugging, electric prod like pain and jerking of whole limb. I discovered when I had my last spinal operation that the Buprenorphine
Hidden
in
Restless Legs Syndrome
10 months ago
RLS medication side effects
Good Morning. I've suffered with restless legs for the best part of 50 years without wanting to boar anyone press-ups used to be my go to cure. But as I've got older they no longer work. I've been on Gabapentin for three or more years, initially it worked fine, I take a 100mg at noon a 300mg early evening
Good Morning. I've suffered with restless legs for the best part of 50 years without wanting to boar anyone press-ups used to be my go to cure. But as I've got older they no longer work. I've been on Gabapentin for three or more years, initially it worked fine, I take a 100mg at noon a 300mg early evening
whitney2044
in
Restless Legs Syndrome
10 months ago
Ropinirole should be banned.
I suffer from severe RLS. It started around 2010, once or twice a week. Within the past two years it has gotten worse. Now it is every night and sometimes starts when I am just sitting in the early evening. The first medication I was prescribed was Ropinirole. It reduced the symptoms for about three
I suffer from severe RLS. It started around 2010, once or twice a week. Within the past two years it has gotten worse. Now it is every night and sometimes starts when I am just sitting in the early evening. The first medication I was prescribed was Ropinirole. It reduced the symptoms for about three
DCM556
in
Restless Legs Syndrome
10 months ago
Rls living hell
Hi I've been suffering from rls badly for around 5 years and have been very low and depressed because of this condition, I mainly suffer very bad at night with the crawling feeling and the constant need to move my limbs, thus started in my legs but now has moved to my arms. I just pray for something
Hi I've been suffering from rls badly for around 5 years and have been very low and depressed because of this condition, I mainly suffer very bad at night with the crawling feeling and the constant need to move my limbs, thus started in my legs but now has moved to my arms. I just pray for something
Rangers52
in
Restless Legs Syndrome
10 months ago
Adrenals
Morning everyone. This is my first post on here. I was diagnosed with GCA in August 2022 and have been tapering down the Prednisolone to 5mg. I also take Tocilizumab and Methotrexate as I’ve had a difficult time with the Prednisolone so many side effects. How do I know if my adrenal glands are working
Morning everyone. This is my first post on here. I was diagnosed with GCA in August 2022 and have been tapering down the Prednisolone to 5mg. I also take Tocilizumab and Methotrexate as I’ve had a difficult time with the Prednisolone so many side effects. How do I know if my adrenal glands are working
Noni71
in
PMRGCAuk
9 months ago
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