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Mast cell activation syndrome (MCAS)
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GP refusing to offer IFAB Test
I recently requested and Intrinsic Factor Antibody test with my GP and was told there's no need to do this test if my Parietal Cell antibody test was negative/normal. The Parietal Cell test was done in Jan 2021 and I assumed the IFAB was done at the same time and also came back normal. (I was unaware
I recently requested and Intrinsic Factor Antibody test with my GP and was told there's no need to do this test if my Parietal Cell antibody test was negative/normal. The Parietal Cell test was done in Jan 2021 and I assumed the IFAB was done at the same time and also came back normal. (I was unaware
cloudspotting
in
Pernicious Anaemia Society
2 years ago
T3 Trial Test results Advice Please
I'm a regular on here. But just to recap for you good people. Diagnosed hypo with Hasimoto 2 years ago. Gluten free for 1 year +. Blood tests always fasting before 9am and no meds from previous day prior to test. Currently on 100 mg Levo accord and 20 mg T3 daily. Commenced T3 trial on 30th August and
I'm a regular on here. But just to recap for you good people. Diagnosed hypo with Hasimoto 2 years ago. Gluten free for 1 year +. Blood tests always fasting before 9am and no meds from previous day prior to test. Currently on 100 mg Levo accord and 20 mg T3 daily. Commenced T3 trial on 30th August and
rick2525
in
Thyroid UK
2 years ago
Antidepressant recommendations
Well, my anxiety and depression just keep getting worse. Nearly unbearable now.What types of antidepressants have any of you had experience/success with during the transition off of the DAs? I have not been able to conclusively blame my symptoms on either the lack of dopamine or the soboxone. For those
Well, my anxiety and depression just keep getting worse. Nearly unbearable now.What types of antidepressants have any of you had experience/success with during the transition off of the DAs? I have not been able to conclusively blame my symptoms on either the lack of dopamine or the soboxone. For those
climber54
in
Restless Legs Syndrome
2 years ago
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Lining update!
Just a quick update for those of you with lining issues 😆. I've managed to get to 6.6 today on my first scan which is a record for me on the first scan! Just waiting to see whether we will go ahead with an FET or they want to see me again in a few days. I've been taking 4x progynova, 1 x patch every
Just a quick update for those of you with lining issues 😆. I've managed to get to 6.6 today on my first scan which is a record for me on the first scan! Just waiting to see whether we will go ahead with an FET or they want to see me again in a few days. I've been taking 4x progynova, 1 x patch every
Pebbles345
in
Fertility Network UK
2 years ago
Ashwaganda?
I just saw someone posting on another site that Ashwaganda has really helped their RLS. Does anyone have any thoughts on this please? I currently take Tramadol but only when desperate as I don't really want to be dependent on any drug if I can avoid it. However I have had to appreciate that I am taking
I just saw someone posting on another site that Ashwaganda has really helped their RLS. Does anyone have any thoughts on this please? I currently take Tramadol but only when desperate as I don't really want to be dependent on any drug if I can avoid it. However I have had to appreciate that I am taking
Seaview20
in
Restless Legs Syndrome
2 years ago
Help with Results Please
I am currently taking 60mg of Thyroid-S from Thailand. I have been for around a year and not tested in this time, until now. I am wondering if I need to increase my dose slightly? Would love some advice. With regards to symptoms, cold hands and feet are the main ones. My results have come back as:
I am currently taking 60mg of Thyroid-S from Thailand. I have been for around a year and not tested in this time, until now. I am wondering if I need to increase my dose slightly? Would love some advice. With regards to symptoms, cold hands and feet are the main ones. My results have come back as:
HarrietJW
in
Thyroid UK
2 years ago
Do you want you doctor to prescribe an opioid instead of DA ?John Hopkins statistics on both.
This may help you when requesting an opioid verses the doctor wishing to prescribe DA https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/treatment.html I am typing this information direct from John hopkins treatment article. An estimated 85%
This may help you when requesting an opioid verses the doctor wishing to prescribe DA https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/treatment.html I am typing this information direct from John hopkins treatment article. An estimated 85%
Shumbah
in
Restless Legs Syndrome
2 years ago
Herbal remedies
Hi All, has anyone had any feedback or tried various natural remedies. A friend of mine recommended Muccuna l dopa capsules and Tumeric root extract capsules to help with rls. Only started taking these for a few weeks so no real progress yet. Just want to come off the prescribed medication. Currently
Hi All, has anyone had any feedback or tried various natural remedies. A friend of mine recommended Muccuna l dopa capsules and Tumeric root extract capsules to help with rls. Only started taking these for a few weeks so no real progress yet. Just want to come off the prescribed medication. Currently
Sailingdude
in
Restless Legs Syndrome
2 years ago
Stem Cell Transplant (stc) after care
Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the transplant centre so the hospital is providing us with a flat in Bristol where my husband will be my carer. I know the early days he'll need to
Can someone who has been through a sct, or their carer, give me info about the time after hospital discharge please? We live more than 30 minutes from the transplant centre so the hospital is providing us with a flat in Bristol where my husband will be my carer. I know the early days he'll need to
Scaredy_cat
in
MPN Voice
2 years ago
Restless Legs using sleeping pill
I have had RLS for years. It started getting irritating in my 40's and continued to get worst. I am now 85 and on Methadone, trying to withdraw from it because it is hard to get in Las Vegas. I am down to .5mg at night. I gave up my noon pill because of constipation.. I was getting very little sleep
I have had RLS for years. It started getting irritating in my 40's and continued to get worst. I am now 85 and on Methadone, trying to withdraw from it because it is hard to get in Las Vegas. I am down to .5mg at night. I gave up my noon pill because of constipation.. I was getting very little sleep
McClintok
in
Restless Legs Syndrome
2 years ago
Sertraline
I think I know what everyone is going to say but does anyone have anything positive to say about sertraline and restless legs? If anybody followed my previous post I have stage 4 breast cancer and need a mild antidepressant to help me cope. Having chatted with my GP we both feel I would benefit more
I think I know what everyone is going to say but does anyone have anything positive to say about sertraline and restless legs? If anybody followed my previous post I have stage 4 breast cancer and need a mild antidepressant to help me cope. Having chatted with my GP we both feel I would benefit more
Pam34
in
Restless Legs Syndrome
2 years ago
Neupro patch stopped working
I have been on a 2mg Neupro patch for the last few years, I have had good success with it and it has given me great relief in the past. In the last few weeks they have stopped working and I now find I have to take an opiate every night to get any sleep I can.I am thinking of trying Buprenorphine ....
I have been on a 2mg Neupro patch for the last few years, I have had good success with it and it has given me great relief in the past. In the last few weeks they have stopped working and I now find I have to take an opiate every night to get any sleep I can.I am thinking of trying Buprenorphine ....
banjololapoppy
in
Restless Legs Syndrome
2 years ago
Asking if anyone can recommend a topical Magnesium spray for legs. Thanks!
I get temporary relief from hot epsom salts baths so thought I'd try a topical spray for the in between times . Thanks!
I get temporary relief from hot epsom salts baths so thought I'd try a topical spray for the in between times . Thanks!
Reb0013
in
Restless Legs Syndrome
2 years ago
Quinidine Sulphate
About 11 years ago I was diagnosed with Brugada Syndrome and had a de-fib fitted as well as prescibed Quinidine and Bisoloprol which I have taken ever since. 4 years ago my de-fib activated so my Consultant increased the levles of Quinidine. However I am told by my Consultant & Pharmacy that they cannot
About 11 years ago I was diagnosed with Brugada Syndrome and had a de-fib fitted as well as prescibed Quinidine and Bisoloprol which I have taken ever since. 4 years ago my de-fib activated so my Consultant increased the levles of Quinidine. However I am told by my Consultant & Pharmacy that they cannot
LeeLowry1
in
Arrhythmia Alliance
2 years ago
Great news. Bone biopsy negative. Back to just dealing with GCA which seems a blessing now!
Just wanted to let everyone know that my bone biopsy and bone scan were negative and the lesions visualized on my spine are not malignant. Thank the Lord! Now I can go back to just dealing with the GCA and MS. Seems like a blessing to me! Thank you all for your good thoughts and wishes which meant a
Just wanted to let everyone know that my bone biopsy and bone scan were negative and the lesions visualized on my spine are not malignant. Thank the Lord! Now I can go back to just dealing with the GCA and MS. Seems like a blessing to me! Thank you all for your good thoughts and wishes which meant a
Kt1943
in
PMRGCAuk
2 years ago
UK CBD GOOD NEWS
I saw this post and took a screen shot for the good people of the UK Earlier this year I was on holidays in Amsterdam , I was in desperate need of pain relief my lower back needs a 3 level fusion bones are crumbling so fusion is not an option. I bought good quality CBD oil the man who sold it to me
I saw this post and took a screen shot for the good people of the UK Earlier this year I was on holidays in Amsterdam , I was in desperate need of pain relief my lower back needs a 3 level fusion bones are crumbling so fusion is not an option. I bought good quality CBD oil the man who sold it to me
Shumbah
in
Restless Legs Syndrome
2 years ago
Pregabalin + Ropinirole or Opioids
After a recent post from Amrob explaining that they add 0.125mg or 0.25mg Clonazepam to 300 mg Pregabalin when the Pregabalin does not cut ... I do the same with Ropinirole, adding 0.125mg nightly to 300 mg Pregabalin, because I will never get to sleep otherwise ..... I wonder what the thoughts are
After a recent post from Amrob explaining that they add 0.125mg or 0.25mg Clonazepam to 300 mg Pregabalin when the Pregabalin does not cut ... I do the same with Ropinirole, adding 0.125mg nightly to 300 mg Pregabalin, because I will never get to sleep otherwise ..... I wonder what the thoughts are
67Waterman
in
Restless Legs Syndrome
2 years ago
COVID: Staying Safe As The Virus Evolves - LLS Podcast / CLL Society’s COVID-19 Update December 5th, 2022 / Dec 15 2022 end Antibody Study
The Bloodline with LLS has a new episode!
https://thebloodline.org/TBL/132e134/?c_src=email&c_src2=sfmc&utm_source=sfmc&utm_medium=email&utm_campaign=Podcast+Episode+Announcement+-+COVID+-+December2022&utm_term COVID: Staying Safe As The Virus Evolves Join us as we speak to Dr. Lee Greenberger
The Bloodline with LLS has a new episode!
https://thebloodline.org/TBL/132e134/?c_src=email&c_src2=sfmc&utm_source=sfmc&utm_medium=email&utm_campaign=Podcast+Episode+Announcement+-+COVID+-+December2022&utm_term COVID: Staying Safe As The Virus Evolves Join us as we speak to Dr. Lee Greenberger
lankisterguy
Volunteer
in
CLL Support
2 years ago
Dopamine agonists
Why does https://www.rls-uk.org/faqs still say under Treatments for RLS "Dopamine agonists are often recommended for people with more frequent symptoms. These include ropinirole, pramipexole and rotigotine." No mention in that answer of problems with augmentation and that Gabapentin/ Pregabalin is the
Why does https://www.rls-uk.org/faqs still say under Treatments for RLS "Dopamine agonists are often recommended for people with more frequent symptoms. These include ropinirole, pramipexole and rotigotine." No mention in that answer of problems with augmentation and that Gabapentin/ Pregabalin is the
ChrisColumbus
in
Restless Legs Syndrome
2 years ago
2022 American College of Rheumatology Classification Criteria for Giant Cell Arteritis
This came to my attention in the Lancet: ‘Better tools required for biopsy negative giant cell Arteritis’ https://click.notification.elsevier.com/CL0/https:%2F%2Fwww.thelancet.com%2Fjournals%2Flanrhe%2Farticle%2FPIIS2665-9913(22)00252-1%2Ffulltext%3Fdgcid=raven_jbs_aip_email/1/01000184993a7770-46052eb1
This came to my attention in the Lancet: ‘Better tools required for biopsy negative giant cell Arteritis’ https://click.notification.elsevier.com/CL0/https:%2F%2Fwww.thelancet.com%2Fjournals%2Flanrhe%2Farticle%2FPIIS2665-9913(22)00252-1%2Ffulltext%3Fdgcid=raven_jbs_aip_email/1/01000184993a7770-46052eb1
Exflex
in
PMRGCAuk
2 years ago
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