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Mast cell activation syndrome (MCAS)
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COVID update: Who remains at higher risk? by LLS.org
COVID update: Who remains at higher risk? https://www.lls.org/covid-19-resources Almost exactly three years ago on December 12, 2019, we received the first reports of a cluster of patients in China with symptoms of what turned out to be COVID-19. Vaccines and COVID-19 treatments have dramatically
COVID update: Who remains at higher risk? https://www.lls.org/covid-19-resources Almost exactly three years ago on December 12, 2019, we received the first reports of a cluster of patients in China with symptoms of what turned out to be COVID-19. Vaccines and COVID-19 treatments have dramatically
lankisterguy
Volunteer
in
CLL Support
2 years ago
pregabelin side effects
I explained to my dr that sertraline had caused my restless leg to return. Previously it was under control with iron. She put me on a low dose of pregabelin, 25mg to take at night and continue with sertraline in the morning. The first night was ok…ish. I did sleep much better. but the second night
I explained to my dr that sertraline had caused my restless leg to return. Previously it was under control with iron. She put me on a low dose of pregabelin, 25mg to take at night and continue with sertraline in the morning. The first night was ok…ish. I did sleep much better. but the second night
NJB71
in
Restless Legs Syndrome
2 years ago
Flying / anxiety / stress / Insurance / Critically sick brother
But I had a referral for
Mast
Cell
Activation
Syndrome
sent to Guys and St Thomas on the 30th March - they have never received it. With insurance any outstanding investigations / tests - they cannot insure you.
But I had a referral for
Mast
Cell
Activation
Syndrome
sent to Guys and St Thomas on the 30th March - they have never received it. With insurance any outstanding investigations / tests - they cannot insure you.
Slosh
in
PMRGCAuk
2 years ago
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Back to square one but grateful
Hello friends, having already reported that I’d attempted to reduce my Ropinirole medication prior to my visit to see the GP one back on 6mg tablets spread throughout the day and night, Sue agreed that it was probably the best course of action and I’m again getting some much needed sleep and the pains
Hello friends, having already reported that I’d attempted to reduce my Ropinirole medication prior to my visit to see the GP one back on 6mg tablets spread throughout the day and night, Sue agreed that it was probably the best course of action and I’m again getting some much needed sleep and the pains
HipHop1972
in
Restless Legs Syndrome
2 years ago
Today I feel great!
Yesterday I had some minor surgery but under general anaesthetic. I don’t know if it is the anaesthetic, the oramorph glug I had post op or the day of complete rest, but today, I feel like I did before FMS, RLS and PLMD came to stay! I even slept completely between wee breaks! Long may it last!!!
Yesterday I had some minor surgery but under general anaesthetic. I don’t know if it is the anaesthetic, the oramorph glug I had post op or the day of complete rest, but today, I feel like I did before FMS, RLS and PLMD came to stay! I even slept completely between wee breaks! Long may it last!!!
Theonlypetied
in
Restless Legs Syndrome
2 years ago
ropinirole
I have been taking ropinirole for more than 40 years. 1 mg at night. It works for me but now I am terrified because apparently it has been withdrawn and I can’t get it in any of the farmacias in the Valencia region. I tried gabapentin - no effect at wll. I gave just been prescribed pregabalin and didn
I have been taking ropinirole for more than 40 years. 1 mg at night. It works for me but now I am terrified because apparently it has been withdrawn and I can’t get it in any of the farmacias in the Valencia region. I tried gabapentin - no effect at wll. I gave just been prescribed pregabalin and didn
Pensionistaspain
in
Restless Legs Syndrome
2 years ago
DET fail, 6th transfer attempt - what now?
Help! I have just found out my sixth transfer of my 7th and 8th embryos has failed. I have had one pregnancy that ended in miscarriage at 7 weeks and the rest have all been failed implantations. For the last two transfers i have been on an immune protocol so doctor thinks we have that side covered.
Help! I have just found out my sixth transfer of my 7th and 8th embryos has failed. I have had one pregnancy that ended in miscarriage at 7 weeks and the rest have all been failed implantations. For the last two transfers i have been on an immune protocol so doctor thinks we have that side covered.
darkbuthappyplace
in
Fertility Network UK
2 years ago
Tocilizumab
Do other people find the injector pens are painful, intense stinging. Is there anything that can help this. Thank you.
Do other people find the injector pens are painful, intense stinging. Is there anything that can help this. Thank you.
Hidden
in
PMRGCAuk
2 years ago
Now on Gabapentin, not sure about it.
I have had rls for over 30 years, and many years ago I was given Pramipexole. I refused to increase the dose, so my GP begrudgingly gave me Tramadol. Like the Prami it worked for a while, then stopped working. GP offered my Ropinerole, I declined, he said there was no other option. Long story short
I have had rls for over 30 years, and many years ago I was given Pramipexole. I refused to increase the dose, so my GP begrudgingly gave me Tramadol. Like the Prami it worked for a while, then stopped working. GP offered my Ropinerole, I declined, he said there was no other option. Long story short
Gmc54
in
Restless Legs Syndrome
2 years ago
sjogrens
Hi, I have RA. and Sjögren’s syndrome was wondering if anyone is taking any medication for this, mainly dry mouth , I read somewhere that Hydroxychloroquine helps, any advise would be grateful , thankyou x
Hi, I have RA. and Sjögren’s syndrome was wondering if anyone is taking any medication for this, mainly dry mouth , I read somewhere that Hydroxychloroquine helps, any advise would be grateful , thankyou x
Swanfull
in
NRAS
2 years ago
Acai, Quercetin, and Ashwagandha promote Nrf2. Do Not Overdose!
Acai has received a positive report, in a study using a mouse model of Parkinson's: Açai Berry Mitigates Parkinson’s Disease Progression Showing Dopaminergic Neuroprotection via Nrf2 HO1 Pathways https://link.springer.com/content/pdf/10.1007/s12035-022-02982-5.pdf In this study, treatment with açai
Acai has received a positive report, in a study using a mouse model of Parkinson's: Açai Berry Mitigates Parkinson’s Disease Progression Showing Dopaminergic Neuroprotection via Nrf2 HO1 Pathways https://link.springer.com/content/pdf/10.1007/s12035-022-02982-5.pdf In this study, treatment with açai
park_bear
in
Cure Parkinson's
2 years ago
symptoms of pmr returning have managed on 2mg for 2 months have asked for gp phone consultation tomorrow just wanted to talk to you folks fi
Hi I have had pmr for nearly 2 years . Because inflammation was high initially gp put me on 30 mg . I was able to reduce to lower quite quickly and felt well though experienced side effects of poor sleep being hot , being very active probably a bit elated, constipated and my face made me look in my
Hi I have had pmr for nearly 2 years . Because inflammation was high initially gp put me on 30 mg . I was able to reduce to lower quite quickly and felt well though experienced side effects of poor sleep being hot , being very active probably a bit elated, constipated and my face made me look in my
Mofred
in
PMRGCAuk
2 years ago
Who here have the same problems with their legs?
More than 20 years ago I was awakened by the worst pain I have ever had and it’s been hell ever since then. As long as I’m standing, I’m fine. But as soon as I lay down it feels like I’m laying next to the devil. To give you an idea how intense the pain is, it will wake me up even if I’m sedated.
More than 20 years ago I was awakened by the worst pain I have ever had and it’s been hell ever since then. As long as I’m standing, I’m fine. But as soon as I lay down it feels like I’m laying next to the devil. To give you an idea how intense the pain is, it will wake me up even if I’m sedated.
Pain_in_the_legs
in
Restless Legs Syndrome
2 years ago
Restless legs or Periodic limb movement
Hi everyone , I think I have restless legs but not been diagnosed, doctor has treated it as restless legs , my legs don’t just move around they intensely kick or jerk out at force in the air , but I do have the sensation before that happens , like my leg is getting ready to fire! Which it does then builds
Hi everyone , I think I have restless legs but not been diagnosed, doctor has treated it as restless legs , my legs don’t just move around they intensely kick or jerk out at force in the air , but I do have the sensation before that happens , like my leg is getting ready to fire! Which it does then builds
Catslover-1
in
Restless Legs Syndrome
2 years ago
GP suggesting alternative to citalopram to reduce PMR pain??
My GP has just suggested that I consider changing from 20mg daily citalopram (that I’ve been taking for last 3.5 years to combat menopause symptoms) to Duloxerine because “it will help reduce some of PMR pain”. I’m confused. I know she is concerned because I’m having trouble reducing from 17-20mg
My GP has just suggested that I consider changing from 20mg daily citalopram (that I’ve been taking for last 3.5 years to combat menopause symptoms) to Duloxerine because “it will help reduce some of PMR pain”. I’m confused. I know she is concerned because I’m having trouble reducing from 17-20mg
Lyra42
in
PMRGCAuk
2 years ago
Gabapentin for RLS
I was diagnosed with RLS around three weeks ago and have now been prescribed Gabapentin by my GP having rejected his initial prescription of Ropinirole. My RLS symptoms were initially very severe at night but I was generally symptom free during the day. This has now altered and I am now experiencing
I was diagnosed with RLS around three weeks ago and have now been prescribed Gabapentin by my GP having rejected his initial prescription of Ropinirole. My RLS symptoms were initially very severe at night but I was generally symptom free during the day. This has now altered and I am now experiencing
DonWilliams
in
Restless Legs Syndrome
2 years ago
Tocilizumab
I have GCA and PMR. I am on 40mg Pred. The inflammation markers have normalised, but I still have headaches. Doctors want to reduce Pred because of the side effects I am experiencing. I started Methotrexate injections, but they were paused for the last two weeks to see if they were causing the headaches
I have GCA and PMR. I am on 40mg Pred. The inflammation markers have normalised, but I still have headaches. Doctors want to reduce Pred because of the side effects I am experiencing. I started Methotrexate injections, but they were paused for the last two weeks to see if they were causing the headaches
PQXZT
in
PMRGCAuk
2 years ago
anxious
hi all Im looking for stories of people who took ages to get pregnant but then had a normal pregnancy and birth please. From their first bfp. I’ve finally (after 5 long years) got my first ever BFP. (Could barely believe it but nearly 2 weeks and 5 tests later it’s slowly sinking in) I just can’
hi all Im looking for stories of people who took ages to get pregnant but then had a normal pregnancy and birth please. From their first bfp. I’ve finally (after 5 long years) got my first ever BFP. (Could barely believe it but nearly 2 weeks and 5 tests later it’s slowly sinking in) I just can’
Lily4yrttc
in
Fertility Network UK
2 years ago
Depressed, hopeless and sleep deprived with RLS. HELP??
I’ve had RLS for 40 years and have been on almost every medicine out there. I’ve been in Requip for 6 years - 2 mg XL, 2 2mg Requip along with clonopin & methadone. My neurologist of 15 years has given up on me. I saw another one a few weeks ago and she said everything she’d prescribe, I’ve already
I’ve had RLS for 40 years and have been on almost every medicine out there. I’ve been in Requip for 6 years - 2 mg XL, 2 2mg Requip along with clonopin & methadone. My neurologist of 15 years has given up on me. I saw another one a few weeks ago and she said everything she’d prescribe, I’ve already
SleeplessinDenver
in
Restless Legs Syndrome
2 years ago
Joining the Group
Hi, Folks. I am joining as a newly diagnosed SLL patient, currently under treatment with BTKi and Gazyva. So far, I have read through many posts and have been comforted by your experiences and ways of coping with our ongoing immunity issues. I honestly feel very confident that these new treatments
Hi, Folks. I am joining as a newly diagnosed SLL patient, currently under treatment with BTKi and Gazyva. So far, I have read through many posts and have been comforted by your experiences and ways of coping with our ongoing immunity issues. I honestly feel very confident that these new treatments
tleachhsv
in
CLL America Support
2 years ago
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