blood test bingo!: I've just been to Bristol stem... - MPN Voice

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blood test bingo!

Scaredy_cat profile image
23 Replies

I've just been to Bristol stem cell department in preparation for a possible Stem cell transplant. I had to have 14 phials of blood taken for tests. Is this a record at one sitting? !!

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Scaredy_cat profile image
Scaredy_cat
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23 Replies
Cat1001954 profile image
Cat1001954

wow you poor thing Iv just had one done to be discussed at next week’s appointment

Flyingsteamer profile image
Flyingsteamer

Wow, that's a lot but you're in good company, a couple of weeks ago I had 16, part of those for the clinical trial and part for local hospital records and some for transfusion. I feel for you.

MFBMT2011 profile image
MFBMT2011

Think I had the same for my first check. In Tonny Hancock parlance that’s a whole armful.

Chris

Wyebird profile image
Wyebird

Good luck with the SCT.

lizzziep profile image
lizzziep

Wow, that’s a lot! Hope all goes well for you.

Jazzyb50 profile image
Jazzyb50

Wow! I hope they gave you fluids to make up for that amount. Good luck with the SCT xx

Grizly profile image
Grizly

not boasting but I had 16 phials but after she took the needle out she apologised and said she needed to take another sample lol.

Anag profile image
Anag in reply to Grizly

😝

Anag profile image
Anag in reply to Anag

poor you!

bruddery profile image
bruddery

nope I had twenty at one time in 2004, prior to my MPN diagnosis. the hospital knew something was amiss and were trying everything to find out! Even the nurse taking the samples couldn’t believe it and had to keep checking her book to see what coloured lid was required for what test, incidentally I didn’t get diagnosed with an MPN until 2007… bruddery

Scaredy_cat profile image
Scaredy_cat in reply to bruddery

Bruddery in current first place, Grisly second

tracey13 profile image
tracey13

Hope they can find you a match.

My husband had prep work done three years ago they took plenty of blood .

His sister's weren't a match but they came back with 9 10/10 matches on the dkms website we were amazed.

My husband isn't having a stem cell transplant he's doing well on ruxolitnib.

If he needs a transplant in the future at least we have some hope of a donor .

Good luck

Tracey

MFBMT2011 profile image
MFBMT2011

Did you watch the SCT webinar on Tuesday? It was excellent and a great introduction to you challenge. One of my buddies had her SCT in Bristol and was very happy there.

Scaredy_cat profile image
Scaredy_cat in reply to MFBMT2011

Yes we saw the talk. It was excellent. Hope your friend is now ok

MFBMT2011 profile image
MFBMT2011 in reply to Scaredy_cat

Now eight years out she did a patient presentation at one of the MPNVoice patient days. 😀

Good luck with your treatment.

Chris

SRH55 profile image
SRH55

That is a lot. I’m having tests at the moment for a possible transplant.

Sending best wishes.

GarciaB profile image
GarciaB

I’ve had many blood draws in the past year. Usually 12-14 vials. Sometimes more. They are checking my levels of medications, for infections, bacteria and how my body is reacting to my bmt. I was diagnosed with AML in October of 2021

Anag profile image
Anag

Scaredy-cat, you have a good humor. I’ve had 16. My daughter 18 with salmonella (3 were huge!) I think the record has my hubby. Cancer 2 years after our wedding. They took 13 phials, then a few hours later, after testing, they realised that it wasn’t his blood. There was another man, 30 years older, with the same rare name, on the same hospital floor! They took 13 again. So….26 phials!! 🙄 he was also one you would faint at every sight of a needle. In the meantime, he had to get over that phobia. 😉 that was 2001 and he is thank God, very well.

Scaredy_cat profile image
Scaredy_cat in reply to Anag

I wasn't too good having blood taken in the past and the idea of being a blood donor was too scary to contemplate. Now it would be fine but I don't suppose they want it now!

Anag profile image
Anag in reply to Scaredy_cat

😂

my 93 yr old mother-in-law didn’t have enough thrombocytes and I wanted to giver her mine. I thought: Win-Win. 😉

The doctors didn’t allow that. They said that there are a lot of them, but they are not good. Also, I have a genetic anemia, typical of the Mediterranean cultures.

Be well! Anag

Otterfield profile image
Otterfield

I stopped counting after the first few!

KLCTJC profile image
KLCTJC

I think my first visit to MD Anderson I had about that much and then phlebotomy. Stinks but hope all goes well!

Bluetop profile image
Bluetop

I hope you could walk out after all those pials! Good luck with the process.

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