Tapering while new issues

[arvine]

well I have told my story pretty well all along, including some family serious illnesses . In previous comments, I have mentioned my son, who has fought a battle actually since June 2017, beingdiagnosed with multiple myeloma, having stem cell transplant in Jan 2018, as a mom, this was very hard to see happen to him, my late husband, His STEPFATHER, passed from that disease in 1999, at any rate, he got thru the stem cell transpland, and did well until last May, when diagnosed with leukemia, was admitted to Princess Margaret in June, and the did get in remission by first part of July last summer,then was told, he would be a candidate for a bone marrow transplant, which he had, Oct 6 2022, which was going well, having checkups every 2 weeks after discharged, still on several med,s ofcourse, but just about 3 weeks ago, got another setback, was pretty shocking, as the regular bloodtest, showed some leukemia cells discovered again, so hard to accept, as was doing so well, next line of treatment, where he is right now IN PMH, getting immunotherapy, that is a treatment, a med by IV, whereby boosting his own immune cells, will attack the leukemia cells, and this treatment is in hospital for number of days, then if tolerated and working will continue at home with this treatment by IV. Sorry for long drawn out story, but although he remains positive, and I am fighting to do that too, however, losing some ground, nerves are fragile through this, and to add, I myself have had a 3 week episode of severe pain , back and front thigh. Had MRI done a week ago, showing disc extrusion and impingement on L2 nerve root, so painful! no painkillers are relieving pain, sometimes slight relief, have appts coming up now, see what needs, to be done, decompression, back surgeon, cortisone injection etc, so along with my mental worry about my son,s disease, which has to take priority, I find myself having some meltdowns, where mental pain, and physical pain causing me to cave ,, really feel like getting to end of my rope, but have to be strong for my son, and don,t want him to be worred about me, doesn,t need any stress right now, this has just been a venting session for me, so thank you for listening, and appreciate any words of encouragement, have to keep going on and be positive

[Madlegs1]

You have an awful lot to have to cope with.

I hope you can keep strong enough to get through and be a support to those around you.

Thinking of you, and best wishes.

[arvine in reply to Madlegs1]

thank you

[MSTKing]

Thinking of you - I hope you can get some help with your back. Although you have others to think about - it’s important you are able to look after your own health too.

[arvine in reply to MSTKing]

thank you

[Izabella12]

prayers for you and your son

[arvine in reply to Izabella12]

thank you

[Mummymoi]

Hi. I had an emergency operation for spinal decompression 6yrs ago and just wanted to assure you that although it's a serious op to have and feels frightening to think about mine was very successful and really a 'doddle'. I was up walking to the loo a few hours after (although I don't think I was meant to) and home after just 3 days, able to walk much easier than before and without the pain. I'm so sorry for you and your son and what you've both gone through and hope his current treatment will deal with his leukaemia once and for all. Take care xx