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Mast cell activation syndrome (MCAS)
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Gabapentin
I am currently taking 5 300mg Gabapentin a day. I'm also taking 0.5 mg of pramipexole 5 times a day and hydrocodone 3 times a day which helps. Gabapentin alone didn't help me but I hope it does you.
I am currently taking 5 300mg Gabapentin a day. I'm also taking 0.5 mg of pramipexole 5 times a day and hydrocodone 3 times a day which helps. Gabapentin alone didn't help me but I hope it does you.
Blu34
in
Restless Legs Syndrome
1 year ago
Any substitute for Bupropion?
Hi All. I was on Citalopram for depression, but that made my RLS worse. So Professor Walker at Queens Square suggested Bupropion as a substitute. I have just found out from my Pharmacy that Bupropion is no longer manufactured (so they say). I e-mailed Professor Walker yesterday for another substitute
Hi All. I was on Citalopram for depression, but that made my RLS worse. So Professor Walker at Queens Square suggested Bupropion as a substitute. I have just found out from my Pharmacy that Bupropion is no longer manufactured (so they say). I e-mailed Professor Walker yesterday for another substitute
67Waterman
in
Restless Legs Syndrome
1 year ago
Seeking advice for changing from Temgesic to Gabapentin for treating my refractory RLS.
I have moved to a new area and need to change Doctor. I had a double appt last week and the new Doctor refused to prescribe Temgesic. I have been taking tbis medication successfully for 2 years now. I am having my medical records sent through to the new medical practice. I thought I should look into
I have moved to a new area and need to change Doctor. I had a double appt last week and the new Doctor refused to prescribe Temgesic. I have been taking tbis medication successfully for 2 years now. I am having my medical records sent through to the new medical practice. I thought I should look into
Jules1953
in
Restless Legs Syndrome
1 year ago
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Ropinirole
Hi Guys, I'm in the process of reducing my dosage of Ropinirole. I was taking 4mg a night but after a few months Im down to 2mg. My Doctor has prescribed Gabapentin and told me while Im reducing the Ropinirole to introduce the Gabapentin. Im now taking 2mg of Ropinirole and 1200mg of Gabapentin. Does
Hi Guys, I'm in the process of reducing my dosage of Ropinirole. I was taking 4mg a night but after a few months Im down to 2mg. My Doctor has prescribed Gabapentin and told me while Im reducing the Ropinirole to introduce the Gabapentin. Im now taking 2mg of Ropinirole and 1200mg of Gabapentin. Does
Kjh100
in
Restless Legs Syndrome
1 year ago
magnesium
just a quick query I take a blood thinner Apixaban for Arterial fibromyalgia would it be safe to take a form of Magnesium?
just a quick query I take a blood thinner Apixaban for Arterial fibromyalgia would it be safe to take a form of Magnesium?
Hoochybaby
in
Restless Legs Syndrome
1 year ago
Restless leg cure
Well I hope it is for some of you. I've been down all the various medication routes and magnesium cream and jels and nothing still the same getting worse by the week. Until someone suggested what worked for them and it's worked for me, I'll also add I've suffered with constipation for decades and nothing
Well I hope it is for some of you. I've been down all the various medication routes and magnesium cream and jels and nothing still the same getting worse by the week. Until someone suggested what worked for them and it's worked for me, I'll also add I've suffered with constipation for decades and nothing
Cottylotty
in
Restless Legs Syndrome
1 year ago
How long shall I trial codeine before giving up on it?
Hi all RLers, I started codeine beginning of April. First 8mg slowly to 30mg, which made me sick but I got 6hrs without RL and slept. Down to 16mg, back to 30mg without side effects this time. The trouble is I only get 1 good night on the increased dose before the RL is back as usual. I am hoping
Hi all RLers, I started codeine beginning of April. First 8mg slowly to 30mg, which made me sick but I got 6hrs without RL and slept. Down to 16mg, back to 30mg without side effects this time. The trouble is I only get 1 good night on the increased dose before the RL is back as usual. I am hoping
Raimi
in
Restless Legs Syndrome
1 year ago
Sobriety and preparing withdrawal from Pramipexole
Hi RLSers, I have been struggling with RLS, first when I was around twenty years old and now as I am well into my middle age. I have been sober for 23 years, but a few years back I started taking Pramipexole. This drug has created more problems for me than it has solved. At the beginning it works
Hi RLSers, I have been struggling with RLS, first when I was around twenty years old and now as I am well into my middle age. I have been sober for 23 years, but a few years back I started taking Pramipexole. This drug has created more problems for me than it has solved. At the beginning it works
sigurdur
in
Restless Legs Syndrome
1 year ago
Constipation
Hi I was recently prescribed lactulose for my constipation/bulking problem having had ibs for years but only officially diagnosed 6 months ago. I have symptoms very day which gives me anxiety as to how my day will go. First 5 days taking lactulose wasn't bad, symptoms much less toilet better. Last few
Hi I was recently prescribed lactulose for my constipation/bulking problem having had ibs for years but only officially diagnosed 6 months ago. I have symptoms very day which gives me anxiety as to how my day will go. First 5 days taking lactulose wasn't bad, symptoms much less toilet better. Last few
ruskin10
in
IBS Network
1 year ago
RLS amino acids
Hi, I don't have RLS since taking Amino Acids. If I leave them off 2 nights running it comes back as bad as before. I don't know if they do me any harm but it's better than the torture every night. I take Glutamine, Ornithine and Lyseine. If anyone tries this please let me know how it goes. I have
Hi, I don't have RLS since taking Amino Acids. If I leave them off 2 nights running it comes back as bad as before. I don't know if they do me any harm but it's better than the torture every night. I take Glutamine, Ornithine and Lyseine. If anyone tries this please let me know how it goes. I have
1jeremiah1
in
Restless Legs Syndrome
1 year ago
Back in the thyroid zone!
Been a while but I’ve been over on another site PMRGCAUK, jeez these autoimmune diseases , the gift that keeps on giving ! Long story but on Pred for that , tapering into my 10th month. Fabulous group, as is this, but taken my eye off the ball with the thyroid lately! Anyway availed of the Blue Horizon
Been a while but I’ve been over on another site PMRGCAUK, jeez these autoimmune diseases , the gift that keeps on giving ! Long story but on Pred for that , tapering into my 10th month. Fabulous group, as is this, but taken my eye off the ball with the thyroid lately! Anyway availed of the Blue Horizon
Romilly2
in
Thyroid UK
1 year ago
Re oxycodone
Hi. Also have periodic limb movement disorder and restless legs. 45 years now. I take oxycodone hydrochloride at bedtime and during the day. 5 ml. Combined with gabapentin and ropinirole I sleep very well. 8 hours and somtimes longer. I also have a spinal stenosis. This is the second one. Op last year
Hi. Also have periodic limb movement disorder and restless legs. 45 years now. I take oxycodone hydrochloride at bedtime and during the day. 5 ml. Combined with gabapentin and ropinirole I sleep very well. 8 hours and somtimes longer. I also have a spinal stenosis. This is the second one. Op last year
slim1953
in
Restless Legs Syndrome
1 year ago
questions before private endo
Recent blood tests have revealed the following. Blood test taken without medication and food at 9 am, followed protocol re avoiding biotin before etc. Medication 100 mg levothyroxine ( accord) CRP - 0.14 < 3 Ferritin 23 (30 - 150) B Active 73 (37.5 - 188) Folate Serum 31.9 (8.83 - 60.8) Vit D
Recent blood tests have revealed the following. Blood test taken without medication and food at 9 am, followed protocol re avoiding biotin before etc. Medication 100 mg levothyroxine ( accord) CRP - 0.14 < 3 Ferritin 23 (30 - 150) B Active 73 (37.5 - 188) Folate Serum 31.9 (8.83 - 60.8) Vit D
Hopeful129
in
Thyroid UK
1 year ago
Oxycodone, RLS
Morning everyone, another sleepless night. Where do we go from here? Now taking Oxycodone - 5mg in morning, 10mg at 9pm and another 5mg about 3am as well as 1400mg Gabapentin spread over evening. Nothing working. Cannot get Buprenorphine in our area because it is on red list. Really feel like we have
Morning everyone, another sleepless night. Where do we go from here? Now taking Oxycodone - 5mg in morning, 10mg at 9pm and another 5mg about 3am as well as 1400mg Gabapentin spread over evening. Nothing working. Cannot get Buprenorphine in our area because it is on red list. Really feel like we have
Ephemera
in
Restless Legs Syndrome
1 year ago
Pramipexole update
After eight weeks of cutting back, I have finally done three nights without any pramipexole. Immediately I suffered a return to restless legs, but taking some CBD gummies has helped. Mentally, I feel much better knowing that I am no longer dependent on the tablets. Physically, I feel weird but I suppose
After eight weeks of cutting back, I have finally done three nights without any pramipexole. Immediately I suffered a return to restless legs, but taking some CBD gummies has helped. Mentally, I feel much better knowing that I am no longer dependent on the tablets. Physically, I feel weird but I suppose
Lineker
in
Restless Legs Syndrome
1 year ago
Stem cell transplant starts on Monday
A bit of background - In October 2021 I had a rapid and florid relapse following the end of my Ibrutinib treatment in FLAIR so I was started on Acalabrutinib with no effect and also had investigations for Richter's. Tests showed that I was resistant to the currently available BTKi's (two synergistic
A bit of background - In October 2021 I had a rapid and florid relapse following the end of my Ibrutinib treatment in FLAIR so I was started on Acalabrutinib with no effect and also had investigations for Richter's. Tests showed that I was resistant to the currently available BTKi's (two synergistic
Jm954
Administrator
in
CLL Support
1 year ago
Newswire Spring 2023 - my thoughts
I just finally got round to reading this and am left feeling more inspired and positive on the whole. There is still a long way to go and so much to learn about the baffling diseases of PMR and GCA but when I think back to when I was first diagnosed and struggling between 2012 and 2015, there are definite
I just finally got round to reading this and am left feeling more inspired and positive on the whole. There is still a long way to go and so much to learn about the baffling diseases of PMR and GCA but when I think back to when I was first diagnosed and struggling between 2012 and 2015, there are definite
tangocharlie
in
PMRGCAuk
1 year ago
Methane Overgrowth
I have IBS M and have done for a while (used to be D but now changed to M). I came back from Brazil and had horrendous diarrhea for almost 3 weeks. All tests with the GP came back clear. I started the fodmap elimination as well as going on sertraline and taking 1 tbsp of a linseed mix wiith my breakfast
I have IBS M and have done for a while (used to be D but now changed to M). I came back from Brazil and had horrendous diarrhea for almost 3 weeks. All tests with the GP came back clear. I started the fodmap elimination as well as going on sertraline and taking 1 tbsp of a linseed mix wiith my breakfast
JT1992
in
IBS Network
1 year ago
Coping strategies
I have recently had a relative that has been placed in ICU . I am finding it very stressful and worrying with all the ups and downs. Are there any tips of how to cope with the situation ?
I have recently had a relative that has been placed in ICU . I am finding it very stressful and worrying with all the ups and downs. Are there any tips of how to cope with the situation ?
Ashfilm
in
ICUsteps
1 year ago
pramipexole shortage
I have taken pramipexole for RLS over 15 years. Before that I took Ropinirole, which lost its effectiveness. There is hardly any 0.18 mg (180 mcg) left in any Leeds pharmacies . I got just half my prescribed amount today. Without it I shall never sleep again, but be a writhing mess. One reads in the
I have taken pramipexole for RLS over 15 years. Before that I took Ropinirole, which lost its effectiveness. There is hardly any 0.18 mg (180 mcg) left in any Leeds pharmacies . I got just half my prescribed amount today. Without it I shall never sleep again, but be a writhing mess. One reads in the
Grumpdad
in
Restless Legs Syndrome
1 year ago
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