Search
Search
About
Log in
Join
Experiences with
Mast cell activation syndrome (MCAS)
Posts
Communities
4,470 public posts
Filter results
Dihydrocodeine (sp)
Hi since coming off pramipexole i have been struggling to get any sleep at night. One doctor prescribed codeine it’s not strong enough. Doctor i spoke with this morning is going to prescribe dihydrocodeine sorry if that’s not the right spelling i am pretty brain dead from sleep deprivation. Anyone
Hi since coming off pramipexole i have been struggling to get any sleep at night. One doctor prescribed codeine it’s not strong enough. Doctor i spoke with this morning is going to prescribe dihydrocodeine sorry if that’s not the right spelling i am pretty brain dead from sleep deprivation. Anyone
Hidden
in
Restless Legs Syndrome
11 months ago
moving to Eastern Europe
I’m wondering what meditation is available for restless legs in Europe and how enlightened Eastern Europe may be as to the use of Belbuca. I’m currently on 2 mg Neupro and 800 mg of Gabapentin. But I have used both Belbuca and Methadone in the past. I know there is a clinic on the coast in Kotor Montenegro
I’m wondering what meditation is available for restless legs in Europe and how enlightened Eastern Europe may be as to the use of Belbuca. I’m currently on 2 mg Neupro and 800 mg of Gabapentin. But I have used both Belbuca and Methadone in the past. I know there is a clinic on the coast in Kotor Montenegro
Jrskyhook32
in
Restless Legs Syndrome
11 months ago
Horizitom
Transitioning off of Pramipexole and onto Horiziton/Gabapentin. 600 no of Gabapentin and results have been so so. Take it a 5 pm and ot seems I start getting the symptoms a bit and other nights not. Taking 12.5 mg Ambien trying to sleep and last night was not good. Buzzing toes , fingers and extremities
Transitioning off of Pramipexole and onto Horiziton/Gabapentin. 600 no of Gabapentin and results have been so so. Take it a 5 pm and ot seems I start getting the symptoms a bit and other nights not. Taking 12.5 mg Ambien trying to sleep and last night was not good. Buzzing toes , fingers and extremities
tuckerdog109
in
Restless Legs Syndrome
11 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
flare?
Hello all, I’m just entering my second year of PMR and I’m now down to 7.5 mgs of Prednisolone but the last week I have felt awful. Very tired, my body aches, no energy. I had a total knee replacement 3 months ago and I’m due to go back to part time work next weds. Should I increase my pred for a couple
Hello all, I’m just entering my second year of PMR and I’m now down to 7.5 mgs of Prednisolone but the last week I have felt awful. Very tired, my body aches, no energy. I had a total knee replacement 3 months ago and I’m due to go back to part time work next weds. Should I increase my pred for a couple
kentish61
in
PMRGCAuk
11 months ago
Benefits of knowing your illness/condition/disease to help others as well as yourself
It’s about time I posted that a couple of months ago my husband was diagnosed with Giant Cell Arteritis. I was somewhat overwhelmed by the diagnosis having had PMR, GCA/LVV myself over the past 5 and a half years and haven’t, until now, felt ready to share his story on the forum.
It’s about time I posted that a couple of months ago my husband was diagnosed with Giant Cell Arteritis. I was somewhat overwhelmed by the diagnosis having had PMR, GCA/LVV myself over the past 5 and a half years and haven’t, until now, felt ready to share his story on the forum.
123-go
in
PMRGCAuk
9 months ago
Successfully treated my Multiple Myeloma and now in remission from both MM and PCA
I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess
I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess
swwags
in
Advanced Prostate Cancer
8 months ago
RLS Lymphodema and MLD
I have severe RLS and severe PLMD I am currently on 0.5 clonazepam,250 pregabalin and 2mg neupro patches In march i had a knee replacement operation and after this my leg swelled up and I have been diagnosed with lymphodema. I have been prescribed Manual Lymphatic Drainage (MLD) massage therapy I
I have severe RLS and severe PLMD I am currently on 0.5 clonazepam,250 pregabalin and 2mg neupro patches In march i had a knee replacement operation and after this my leg swelled up and I have been diagnosed with lymphodema. I have been prescribed Manual Lymphatic Drainage (MLD) massage therapy I
thorp
in
Restless Legs Syndrome
11 months ago
new meds
i have severe RLS and i take Methadone daily for this. I have recently been put on Eliquis and Spironolactone . Would either of these aggravate my RLS? Thanks for your help.
i have severe RLS and i take Methadone daily for this. I have recently been put on Eliquis and Spironolactone . Would either of these aggravate my RLS? Thanks for your help.
wairoa36
in
Restless Legs Syndrome
11 months ago
Restless Legs Syndrome
I have RLS and take codeine 15mg at night. My ferritin level got too high last year so no longer on iron supplements. Wondering how successful ALA is and if it is what dose and what time to take it. Thanks in advance
I have RLS and take codeine 15mg at night. My ferritin level got too high last year so no longer on iron supplements. Wondering how successful ALA is and if it is what dose and what time to take it. Thanks in advance
Longwaytoofar
in
Restless Legs Syndrome
11 months ago
Dialysis / RLS
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
Wow, this sub is a lot more active than the Kidney Disease sub, one would think it would be the other way around. I guess RLS is a lot more prevalent than people think? I never experienced or even heard of RLS before starting dialysis but boy did it hit me hard. It's already hard to sleep while doing
bumblebee_tuna
in
Restless Legs Syndrome
11 months ago
Link between dry eyes and throat and PMRGCA? Any ideas?
This is my first post, so it’s a bit long-winded, as I’ve included some context and background. Context: • About 20 years ago, when I was in my mid-50s, I developed dry eyes and dry throat. This was eventually diagnosed as ‘dry eye/dry throat syndrome’. I had my tear ducts plugged to minimise loss
This is my first post, so it’s a bit long-winded, as I’ve included some context and background. Context: • About 20 years ago, when I was in my mid-50s, I developed dry eyes and dry throat. This was eventually diagnosed as ‘dry eye/dry throat syndrome’. I had my tear ducts plugged to minimise loss
allofaquandry
in
PMRGCAuk
11 months ago
CARBIDOPA 25/LEVODOPA 100MG TAB For RLS
I know this drug was talked about in relation to Parkinson's. My doctor has prescribed it for my RLS when I travel in an airplane. I am only to take no more than 3 tablets per week. Has anyone used this for traveling? Any help? Side effects? Comments, please.
I know this drug was talked about in relation to Parkinson's. My doctor has prescribed it for my RLS when I travel in an airplane. I am only to take no more than 3 tablets per week. Has anyone used this for traveling? Any help? Side effects? Comments, please.
DogBella
in
Restless Legs Syndrome
11 months ago
Ropinirole withdrawal
Hi all, newbie here. I was prescribed Ropinirole about 6 months ago, in May my ankles started to swell and got burning sensation in my feet. Saw GP again and he said it is probably diabetic neuropathy but my sugars are well controlled, anyway he put me on amitriptyline. Either of these meds was making
Hi all, newbie here. I was prescribed Ropinirole about 6 months ago, in May my ankles started to swell and got burning sensation in my feet. Saw GP again and he said it is probably diabetic neuropathy but my sugars are well controlled, anyway he put me on amitriptyline. Either of these meds was making
Mikamydog
in
Restless Legs Syndrome
11 months ago
A case study post bariatric surgery
For anyone who has access to twitter, this case study posted yesterday might be of some interest. Probably as much for the discussion as the original case. (Don't get too excited! It is just another case where the origination of the problem doesn't get blamed. As I see it, the cause was iatrogenic and
For anyone who has access to twitter, this case study posted yesterday might be of some interest. Probably as much for the discussion as the original case. (Don't get too excited! It is just another case where the origination of the problem doesn't get blamed. As I see it, the cause was iatrogenic and
helvella
in
Pernicious Anaemia Society
1 year ago
Ovestin and ivf?
Ok, so I had an ectopic from ivf which resulted in removal of part of one of my ovaries. I have been prescribed with Ovestin (estrogen cream) as a result as I am very dry and itchy down below. I know I need to stop this before my next transfer but want to take it until the latest possible date before
Ok, so I had an ectopic from ivf which resulted in removal of part of one of my ovaries. I have been prescribed with Ovestin (estrogen cream) as a result as I am very dry and itchy down below. I know I need to stop this before my next transfer but want to take it until the latest possible date before
Rainbowretrieval
in
Fertility Network UK
1 year ago
Switch to Mucuna
Apologies if this has been asked and answered earlier. I am looking for a guide to switch from C/L to Green tea/Mucuna. Is there a method to calculate green tea against equivalent carbidopa doses? Is brewed green tea better or green tea extract capsule? Is there any interaction between green tea and
Apologies if this has been asked and answered earlier. I am looking for a guide to switch from C/L to Green tea/Mucuna. Is there a method to calculate green tea against equivalent carbidopa doses? Is brewed green tea better or green tea extract capsule? Is there any interaction between green tea and
JayPwP
in
Cure Parkinson's
1 year ago
Immune Responses + Autoimmune Myelofibrosis
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
LongETinUS
in
MPN Voice
8 months ago
Can you help with understanding pain-meds doctor?
Can you help with? Understanding doctor needed! Please private message me (PM) here on this site if you know the name of a doctor in London who is considerate of strong pain medication… Hello all, I find it so comforting to check in and read how others are finding their journey re. pain. Mine goes up
Can you help with? Understanding doctor needed! Please private message me (PM) here on this site if you know the name of a doctor in London who is considerate of strong pain medication… Hello all, I find it so comforting to check in and read how others are finding their journey re. pain. Mine goes up
Byron5757
in
Pain Concern
1 year ago
Changing brands
My Pharmacy has been messing around with my ropinirole. The last batch I collected was in a small round container and the pills were so tiny. I take 0.5mg x 5 tablets per night (total 2.5g) the normal round pills worked just fine. Now these weeny little ones are making my rls bad again, I fail to
My Pharmacy has been messing around with my ropinirole. The last batch I collected was in a small round container and the pills were so tiny. I take 0.5mg x 5 tablets per night (total 2.5g) the normal round pills worked just fine. Now these weeny little ones are making my rls bad again, I fail to
mickeyrose
in
Restless Legs Syndrome
11 months ago
DBS in restless legs syndrome: a new therapeutic approach
has anyone any information on Deep Brain Stimulation (DBS) and RLS? This is the title of a short case study in Sleep Medicine 2020 by Casoni et al Might it help some of us ?
has anyone any information on Deep Brain Stimulation (DBS) and RLS? This is the title of a short case study in Sleep Medicine 2020 by Casoni et al Might it help some of us ?
thorp
in
Restless Legs Syndrome
11 months ago
1
...
21
22
23
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Restless Legs Syndrome
1433 results
Fertility Network UK
360 results
Thyroid UK
351 results
View top 10 communities
Sort by
Most Relevant
Newest