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Mast cell activation syndrome (MCAS)
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transition from pramipexole to gabapentin
My GP initially prescribed me pramipexole which I have been taking for the last two months (one 88 microgram tablet) around 10 pm. This successfully stop my restless legs but, through this forum, I learned of the danger of augmentation. Having drawn this to the attention of my GP he agreed to switch
My GP initially prescribed me pramipexole which I have been taking for the last two months (one 88 microgram tablet) around 10 pm. This successfully stop my restless legs but, through this forum, I learned of the danger of augmentation. Having drawn this to the attention of my GP he agreed to switch
countryboy111
in
Restless Legs Syndrome
11 months ago
Paleontology Diet – By Dr Barry Durrant-Peatfield
Excerpt from the transcript of a talk given by the late Dr Barry Durrant-Peatfield at one of TPA's Annual Conferences several years ago.
I'm posting this here because we've recently had a few questions/posts about extreme diets such as the carnivor diet. Personally, I think what Dr Peatfield
Excerpt from the transcript of a talk given by the late Dr Barry Durrant-Peatfield at one of TPA's Annual Conferences several years ago.
I'm posting this here because we've recently had a few questions/posts about extreme diets such as the carnivor diet. Personally, I think what Dr Peatfield
RedApple
Administrator
in
Thyroid UK
11 months ago
Ropinirole, Pramipexole and etc
Hi community, It's been years since I last wrote here as my RLS is quite mild. Few years ago it was quite under control even mild episodes. I used to take 0.25mg of Ropinirole (Adartel) in case of episode and it would work very well. I moved from London to Finland few years ago, and last year I started
Hi community, It's been years since I last wrote here as my RLS is quite mild. Few years ago it was quite under control even mild episodes. I used to take 0.25mg of Ropinirole (Adartel) in case of episode and it would work very well. I moved from London to Finland few years ago, and last year I started
kika82
in
Restless Legs Syndrome
11 months ago
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HCG Levels Taken on 11dp5dt
Update Beta HCG: 11dp5dt - 486 18dp5dt - 5,199 Hi Guys So my blood test taken on Monday, 11dp5dt came back as 486. I think this is a really good number. What are your thoughts? What were your HCG numbers at this stage ? Will now wait for other result to ensure its doubling and increasing as it
Update Beta HCG: 11dp5dt - 486 18dp5dt - 5,199 Hi Guys So my blood test taken on Monday, 11dp5dt came back as 486. I think this is a really good number. What are your thoughts? What were your HCG numbers at this stage ? Will now wait for other result to ensure its doubling and increasing as it
OurMiracleBabies
in
Fertility Network UK
1 year ago
Test Result Guidance Please 🙏
To the wise oricles and sages in the group, please could you guide me with my Atrophic Autoimmune Thyroiditis. Despite waiting soooo long to get a private test result, I had been preparing myself for "within range" results. (How sad is that?) I know I probably should be happier with the results, but
To the wise oricles and sages in the group, please could you guide me with my Atrophic Autoimmune Thyroiditis. Despite waiting soooo long to get a private test result, I had been preparing myself for "within range" results. (How sad is that?) I know I probably should be happier with the results, but
SarahFrmKent
in
Thyroid UK
11 months ago
please share your thoughts
I am - 54 year old post-menopausal woman who has have been suffering from RLS for approximately 18 months and it is becoming more severe. I weaned myself off of Lexapro, exercise daily, have almost eliminated caffeine and sugar, take magnesium and soak my feet in a magnesium salt bath at bedtime. Most
I am - 54 year old post-menopausal woman who has have been suffering from RLS for approximately 18 months and it is becoming more severe. I weaned myself off of Lexapro, exercise daily, have almost eliminated caffeine and sugar, take magnesium and soak my feet in a magnesium salt bath at bedtime. Most
Lluvinlife
in
Restless Legs Syndrome
11 months ago
Tooth extraction and tocilizumab
Hi I am going to have to have a tooth extraction....dentist says chance of jaw necrosis from tocilizumab and I wonder if anyone has had this ....I know from here that it is only a small chance but its scary ! Also will I need to come off medications (tocilizumab and methotrexate) first? Advice appreciated
Hi I am going to have to have a tooth extraction....dentist says chance of jaw necrosis from tocilizumab and I wonder if anyone has had this ....I know from here that it is only a small chance but its scary ! Also will I need to come off medications (tocilizumab and methotrexate) first? Advice appreciated
WaltzG
in
PMRGCAuk
10 months ago
Buprenorphine
see a neurologist Wednesday and I'm going to talk about this medication currently I'm on 150mg pregabalin and 30mg codeine phosphate at lunch time and 300mgs plus 2 x 30mgs of codeine phosphate at bed time if the neurologist agrees has any one got thoughts on dates I should be dropping etc
see a neurologist Wednesday and I'm going to talk about this medication currently I'm on 150mg pregabalin and 30mg codeine phosphate at lunch time and 300mgs plus 2 x 30mgs of codeine phosphate at bed time if the neurologist agrees has any one got thoughts on dates I should be dropping etc
nick-the-turk
in
Restless Legs Syndrome
11 months ago
Cognitive behavioural therapy
Hi, I've posted here before so just a quick update - RLS for 47 years, tried DAs, Gabapentin, Pregabalin and on Tramadol at the moment. I've been through augmentation. Tramadol is helping a bit but my sleep pattern is all over the place and I keep falling asleep in the afternoon. My daughter has had
Hi, I've posted here before so just a quick update - RLS for 47 years, tried DAs, Gabapentin, Pregabalin and on Tramadol at the moment. I've been through augmentation. Tramadol is helping a bit but my sleep pattern is all over the place and I keep falling asleep in the afternoon. My daughter has had
restlessinlondon
in
Restless Legs Syndrome
11 months ago
does an rls friendly diuretic exist?
I have bad swollen legs which my GP thinks is caused by excess fluid It probably comes from a combination of my RLS medicines ( Pregabalin 250 mg and 2mg Neupro patch) plus a recent knee replacement operation. To get rid of this excess fluid my GP upped my normal 50mg Spironolactone dose to 75 mg.
I have bad swollen legs which my GP thinks is caused by excess fluid It probably comes from a combination of my RLS medicines ( Pregabalin 250 mg and 2mg Neupro patch) plus a recent knee replacement operation. To get rid of this excess fluid my GP upped my normal 50mg Spironolactone dose to 75 mg.
thorp
in
Restless Legs Syndrome
11 months ago
More Methadone?
I have had RLS for decades with real relief pretty well only from the now - forbidden Pramipexole. I have been on Methadone 15 mg at bedtime for about 2 years now which has been pretty good, allowing me approximately 5 hours of sleep some nights. Recently it has worked less well. I’ve been up frequently
I have had RLS for decades with real relief pretty well only from the now - forbidden Pramipexole. I have been on Methadone 15 mg at bedtime for about 2 years now which has been pretty good, allowing me approximately 5 hours of sleep some nights. Recently it has worked less well. I’ve been up frequently
wairoa36
in
Restless Legs Syndrome
11 months ago
Start of my stem cell journey 0.3.1 ambulatory care
I have been offered Ambulatory Care (treatment in a specialised day unit) for my stem cell transplant has anyone else gone through this process?
I have been offered Ambulatory Care (treatment in a specialised day unit) for my stem cell transplant has anyone else gone through this process?
Grizly
in
MPN Voice
9 months ago
Start of my Stem Cell Journey 0.3
Well, where do I start. The transplant team wanted to increase my Rux to 10 mgs which has been really good for me. So much energy hardly any symptoms and overall feeling better. The fly in the ointment is my blood levels are dropping red cells were 80 and my platelets were in the 30’s. My Haematologist
Well, where do I start. The transplant team wanted to increase my Rux to 10 mgs which has been really good for me. So much energy hardly any symptoms and overall feeling better. The fly in the ointment is my blood levels are dropping red cells were 80 and my platelets were in the 30’s. My Haematologist
Grizly
in
MPN Voice
9 months ago
Apomorphine Pump
Has anyone had experience with the Apomorphine Pump? I was dianosed with Idiopathic Parkinson's Disease 18 years ago (2005) and have many add-on problems that have a great influence on my daily life. (Orthostatic hypotention, ruptured major iliopsoas tendon, burning mouth and tongue syndrome
Has anyone had experience with the Apomorphine Pump? I was dianosed with Idiopathic Parkinson's Disease 18 years ago (2005) and have many add-on problems that have a great influence on my daily life. (Orthostatic hypotention, ruptured major iliopsoas tendon, burning mouth and tongue syndrome
puckylucky
in
Cure Parkinson's
1 year ago
Autoimmune Registry
I didn't know there was an Autoimmune Registry. However polymyalgia rheumatica is not found through their opening page search although it is on the list as a vascular disease, as is giant cell arteritis. Maybe their search function is as useful as HU's (used to be)? :D Or maybe they just haven't got
I didn't know there was an Autoimmune Registry. However polymyalgia rheumatica is not found through their opening page search although it is on the list as a vascular disease, as is giant cell arteritis. Maybe their search function is as useful as HU's (used to be)? :D Or maybe they just haven't got
HeronNS
in
PMRGCAuk
10 months ago
Ubiquinol
Hello ladies, so I should hopefully be starting my first round of IVF next week staring with a AFC scan as soon as AF arrives. Do you think it would be worth upping my dosage of ubiquinol CoQ10 between now and egg collection? Not sure if it might be too late. I’m currently taking 100mg a day. Thanks
Hello ladies, so I should hopefully be starting my first round of IVF next week staring with a AFC scan as soon as AF arrives. Do you think it would be worth upping my dosage of ubiquinol CoQ10 between now and egg collection? Not sure if it might be too late. I’m currently taking 100mg a day. Thanks
mumma_in_the_making
in
Fertility Network UK
1 year ago
Personal Sleep PR
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
This is the first time I have passed 8 hours of sleep in the almost 8 years of keeping track. I usually score 80 or 81. 89 is an all time record for me. So what happened. First off, I could feel my RLS earlier in the evening. Little things were beginning to trigger my RLS, nothing strong but
WideBody
in
Restless Legs Syndrome
10 months ago
Seeking advice for London private fertility clinics
Hi everyone, I’m now 36, living in NW London. Previously diagnosed abroad with PCOS and prescribed oral clomiphene citrate with an unsatisfactory result. Only conducted basic tests and screening requested by GP for the sake of secondary care referral in NHS. While waiting for my first appointment at
Hi everyone, I’m now 36, living in NW London. Previously diagnosed abroad with PCOS and prescribed oral clomiphene citrate with an unsatisfactory result. Only conducted basic tests and screening requested by GP for the sake of secondary care referral in NHS. While waiting for my first appointment at
fupafupa
in
Fertility Network UK
1 year ago
3pd5t and cabergoline for prolactin
hello everyone! Hope u are all doing great. Today is day 3 of my frozen embryo transfer and because i have hyperprolactinemia i have being taken cabergoline weekly. So im supposed to take my weekly dosage (cabergoline 0.5) today but i was sceptical though my Dr said i can take it, i took it but im so
hello everyone! Hope u are all doing great. Today is day 3 of my frozen embryo transfer and because i have hyperprolactinemia i have being taken cabergoline weekly. So im supposed to take my weekly dosage (cabergoline 0.5) today but i was sceptical though my Dr said i can take it, i took it but im so
Babygirllllll
in
Fertility Network UK
1 year ago
Methadone withdrawal?
I am asking for a member on the fb page i am co-admin of. This lady is having a methadone drug holiday as instructed by her doctor. Her methadone isn’t working after being on it for several years. She is weaning off it but nothing she has tried to help with withdrawals is helping including medicinal
I am asking for a member on the fb page i am co-admin of. This lady is having a methadone drug holiday as instructed by her doctor. Her methadone isn’t working after being on it for several years. She is weaning off it but nothing she has tried to help with withdrawals is helping including medicinal
Hidden
in
Restless Legs Syndrome
1 year ago
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