Successfully treated my Multiple Myeloma and now in remission from both MM and PCA

[swwags]

I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess around.

See my Bio or the details as I have modified this initial post to where others responded.

I am still in remission from PCA.

Life is good

[Tall_Allen]

I was not aware that MM shows up on a PSMA PET. Can you get an FDG PET scan, which I think is more likely to show MM than PCa. Maybe get a second radiology opinion from Andrei Iagaru at Stanford.

[swwags in reply to Tall_Allen]

yeah TA thanks. I did a little (very little) research on it and lytic lesions can show up regardless of cause. In any event, treatment is the same and a biopsy will prove it out. I stayed HS for 8 years. Like Mick Jagger says, You can't always get what you want.

[j-o-h-n in reply to swwags]

Yep, you can't always get what you want........ I had a pronounced lisp as a young kid..... so when I told my Dad I wanted a large penis my father bought me a grand piano.

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/25/2023 2:52 PM EST

[swwags in reply to j-o-h-n]

"But if you try sometimes, you get what you need."

[j-o-h-n in reply to swwags]

You're right........ I got larger fingers playing the piano....... but not my 11th digit..................and my blow up doll doesn't mind (except for her moaning now and then I never heard her say a word about it) .

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 11/25/2023 3:20 PM EST

[swwags]

OK well that didn't go well and I'll never know for certain. I was unable to schedule a biopsy. Referred to several hospitals, not one called back. Had my scan re-evaluated by two more radiologists and they are of the belief it is MM. They even convinced my oncologist too, but at this point I no longer care. I visited a radio oncologist and they will apply STRT to both the lesion on my sternum and the one on my T6. Both will require 3 fractions.

I got truly, and for the first time since my fucking journey began, depressed when I saw the size of the holes in my bones. I felt like giving up. I am not one for psychology and this group is the extent of my support outside of my wife and my 8 year old grandson. I left the doctors and picked up my grandson from school. 5 minutes with him will usually pull me out of my funk. So back at it. I will get my first fraction on 12/14.

Regarding my MM induction therapy, they added another cycle, likely due to the sudden appearance of the lesion on my vertebrae. I start my bone marrow collect and draw on January 9 down at Mayo bone marrow transplant center.

So to summarize, docs still think I'm castrate sensitive. Next lesion, maybe I get a biopsy and prove it out. life goes on. No physical pain.

[swwags]

Woo Hoo!