I successfully completed my induction cycles for treatment of my Multiple Myeloma. Mayo Clinic confirmed I am in remission from MM. I completed collection of my stem cells for future transplant if needed. 9 days down there - 21 appointments. The Bone Marrow Transplant Center at the Mayo, does not mess around.
See my Bio or the details as I have modified this initial post to where others responded.
I am still in remission from PCA.
Life is good
I was not aware that MM shows up on a PSMA PET. Can you get an FDG PET scan, which I think is more likely to show MM than PCa. Maybe get a second radiology opinion from Andrei Iagaru at Stanford.
yeah TA thanks. I did a little (very little) research on it and lytic lesions can show up regardless of cause. In any event, treatment is the same and a biopsy will prove it out. I stayed HS for 8 years. Like Mick Jagger says, You can't always get what you want.
Yep, you can't always get what you want........ I had a pronounced lisp as a young kid..... so when I told my Dad I wanted a large penis my father bought me a grand piano.
Good Luck, Good Health and Good Humor.
j-o-h-n Saturday 11/25/2023 2:52 PM EST
"But if you try sometimes, you get what you need."
You're right........ I got larger fingers playing the piano....... but not my 11th digit..................and my blow up doll doesn't mind (except for her moaning now and then I never heard her say a word about it) .
Good Luck, Good Health and Good Humor.
j-o-h-n Saturday 11/25/2023 3:20 PM EST
OK well that didn't go well and I'll never know for certain. I was unable to schedule a biopsy. Referred to several hospitals, not one called back. Had my scan re-evaluated by two more radiologists and they are of the belief it is MM. They even convinced my oncologist too, but at this point I no longer care. I visited a radio oncologist and they will apply STRT to both the lesion on my sternum and the one on my T6. Both will require 3 fractions.
I got truly, and for the first time since my fucking journey began, depressed when I saw the size of the holes in my bones. I felt like giving up. I am not one for psychology and this group is the extent of my support outside of my wife and my 8 year old grandson. I left the doctors and picked up my grandson from school. 5 minutes with him will usually pull me out of my funk. So back at it. I will get my first fraction on 12/14.
Regarding my MM induction therapy, they added another cycle, likely due to the sudden appearance of the lesion on my vertebrae. I start my bone marrow collect and draw on January 9 down at Mayo bone marrow transplant center.
So to summarize, docs still think I'm castrate sensitive. Next lesion, maybe I get a biopsy and prove it out. life goes on. No physical pain.
Woo Hoo!
Durable remission? This is from 2014 and I feel like this Dr. From the Mayo Clinic is "ahead" of my Oncologist(s)
Does IP6 Have New Support from A Mayo Physician Report?
Risk of cardiovascular events in men treated for PCa.
Two for Chemotherapy, Both My Wife and I, Her with TNBC and Myself now with PCA Liver Mets 
VIROTHERAPY - very interesting!
