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Livedo reticularis
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Palliative care survey for less survivable cancer patients & loved ones (UK)
š£ The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
š£ The Less Survivable Cancers Taskforce have launched a vital survey to amplify the voices of people affected by a diagnosis of liver cancer and the less survivable cancers. The survey aims to provide insights so they can lobby for improvements to palliative care services, and to highlight any good
BritishLiverTrust1
Partner
in
British Liver Trust
8 months ago
INVOLVEMENT OPPORTUNITY - Research (UK)
One of the NIHR liver partnership research teams in the UK is working on a study to encourage patients with a diagnosis of liver disease to regularly attend for cancer screening. There are many things that make this difficult for people, particularly if they are homeless or vulnerable. The researchers
One of the NIHR liver partnership research teams in the UK is working on a study to encourage patients with a diagnosis of liver disease to regularly attend for cancer screening. There are many things that make this difficult for people, particularly if they are homeless or vulnerable. The researchers
BritishLiverTrust1
Partner
in
British Liver Trust
8 months ago
Liver Biopsy Negative can it still be PBC?
I had elevated Alkaline Phosphate of 146, ALT (SOGT) of 45 and a positive ANA with a titer of 1:320 so my primary doctor sent me to a gastroenterologist. He thought I just had fatty liver but did more bloodwork and scheduled me for an ultrasound, He called when the labs came back and said he wanted tod
I had elevated Alkaline Phosphate of 146, ALT (SOGT) of 45 and a positive ANA with a titer of 1:320 so my primary doctor sent me to a gastroenterologist. He thought I just had fatty liver but did more bloodwork and scheduled me for an ultrasound, He called when the labs came back and said he wanted tod
Needmercy
in
PBC Foundation
8 months ago
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Serum gamma-glutamyl transferase level
I had a blood test conducted by my GP surgery. One of the test, not my normal profile, was this: Serum gamma-glutamyl transferase level (XaES3) 118 iu/L [reference range 0 - 59] I do understand that it's a liver test, and my other LFT's were normal. Any incite to the meaning of this test in respect
I had a blood test conducted by my GP surgery. One of the test, not my normal profile, was this: Serum gamma-glutamyl transferase level (XaES3) 118 iu/L [reference range 0 - 59] I do understand that it's a liver test, and my other LFT's were normal. Any incite to the meaning of this test in respect
RobertCLL
in
CLL Support
8 months ago
liver ast/alt
Good day, i recently got Bloodwork done. My billirubine was raised 71u/mol and AST 81. My ALT was 25, GGT normal and ALP also. I was a binge drinker for 15 years. Never drank daily. My fear is cirrhosis, with the ast alt ratio. Have had 2 ultrasounds that were complete normal and 1 MRI with out contrast
Good day, i recently got Bloodwork done. My billirubine was raised 71u/mol and AST 81. My ALT was 25, GGT normal and ALP also. I was a binge drinker for 15 years. Never drank daily. My fear is cirrhosis, with the ast alt ratio. Have had 2 ultrasounds that were complete normal and 1 MRI with out contrast
Che1985
in
British Liver Trust
8 months ago
A really long post, Iām sorry.
Hello, this might turn into a ramble, so apologies in advance. My husband was diagnosed with F3/F4 Bridging fibrosis about 6 weeks ago. Itās been a very emotional and scary few weeks made worse by lots of googling! I found this forum this week, and since reading, feel a lot more positive going forward
Hello, this might turn into a ramble, so apologies in advance. My husband was diagnosed with F3/F4 Bridging fibrosis about 6 weeks ago. Itās been a very emotional and scary few weeks made worse by lots of googling! I found this forum this week, and since reading, feel a lot more positive going forward
Booksand
in
British Liver Trust
8 months ago
Cirrhosis child a
Hi i had a fibroscan scan last week cap 162 and 14.2 last year cap 260 and 63 originally diagnosed with alchol hepatitis and cirrhosis bloods are normal now ultrasound sound recent one show ever so slightly iregular outline and mild mild cirrhosis thats the way she expressed it as its so mild she said
Hi i had a fibroscan scan last week cap 162 and 14.2 last year cap 260 and 63 originally diagnosed with alchol hepatitis and cirrhosis bloods are normal now ultrasound sound recent one show ever so slightly iregular outline and mild mild cirrhosis thats the way she expressed it as its so mild she said
D6C2L30E-48
in
British Liver Trust
8 months ago
Hi Taar
A couple of years ago when I was particularly unwell, my 1st paracentesis was scary, a bit unknown. The pain reducing injection was was a sharp sting, but nothing worse. Insertion of the the drain tube felt "uncomfortable" but nothing worse. During the drain over several hours they also replenished
A couple of years ago when I was particularly unwell, my 1st paracentesis was scary, a bit unknown. The pain reducing injection was was a sharp sting, but nothing worse. Insertion of the the drain tube felt "uncomfortable" but nothing worse. During the drain over several hours they also replenished
Trewargas
in
British Liver Trust
8 months ago
Some advice re draining fluid?
11m post transplant. Had a clinic at QE today. Not feeling too good, feeling tired, bloated etc. Have gained about 8-10kg since March. They (bless 'em) fitted me in for an ultrasound, and found "pockets of free fluid." Is this the same as ascites? Can you get ascites after transplant...? Didn't
11m post transplant. Had a clinic at QE today. Not feeling too good, feeling tired, bloated etc. Have gained about 8-10kg since March. They (bless 'em) fitted me in for an ultrasound, and found "pockets of free fluid." Is this the same as ascites? Can you get ascites after transplant...? Didn't
taar
in
British Liver Trust
9 months ago
Advice on medication
Over the last couple of weeks I have had pains in my stomach and for longer than that regular bladder problems. Always feeling I need to go to the toilet. I am on 3.5 mg of prednisolone and am wondering if it has anything to do with the other pills I am taking each day. 1 -20 mg omeprazole, 1 - 1000
Over the last couple of weeks I have had pains in my stomach and for longer than that regular bladder problems. Always feeling I need to go to the toilet. I am on 3.5 mg of prednisolone and am wondering if it has anything to do with the other pills I am taking each day. 1 -20 mg omeprazole, 1 - 1000
Callymac
in
PMRGCAuk
6 months ago
MRI results
had scan on 6th July. after many phone calls and forever listening to messages and options finally found out that my results had been sent to my GP. As I was ordering my repeats on patient access put a note on the bottom asking someone to tell me the outcome, within an hour had a call to say they had
had scan on 6th July. after many phone calls and forever listening to messages and options finally found out that my results had been sent to my GP. As I was ordering my repeats on patient access put a note on the bottom asking someone to tell me the outcome, within an hour had a call to say they had
oap74
in
British Liver Trust
9 months ago
pbc question
Hi all ! I have very high ANA , anti centromere , high AMA2 . Fibroscan F3 fibrosis. Have normal liver enzymes including ALP ! Many years ago I had severe itching on my legs but that has stopped .. now I have fatigue. Has anybody here had similar work up ? I am completely devastated and donāt know how
Hi all ! I have very high ANA , anti centromere , high AMA2 . Fibroscan F3 fibrosis. Have normal liver enzymes including ALP ! Many years ago I had severe itching on my legs but that has stopped .. now I have fatigue. Has anybody here had similar work up ? I am completely devastated and donāt know how
Mikaela2
in
PBC Foundation
9 months ago
Ultrasonographer said fatty liver and nothing sinister
He then said he couldn't say more and I had to discuss with my GP to decide if further tests were necessary. This arose because I have osteoporosis and my ALP was elevated at 198. They checked my GGT which was 54 and ALT 44. This was on 26th July. Checked again 9th August and ALP 196, ALT 40 and
He then said he couldn't say more and I had to discuss with my GP to decide if further tests were necessary. This arose because I have osteoporosis and my ALP was elevated at 198. They checked my GGT which was 54 and ALT 44. This was on 26th July. Checked again 9th August and ALP 196, ALT 40 and
PutneyGirl
in
British Liver Trust
9 months ago
latest news on liver transplants fo4 young people
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? Iāve just been given probably 5 years to live without a transplant, and some have been waiting for
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? Iāve just been given probably 5 years to live without a transplant, and some have been waiting for
Harriet-sarah
in
British Liver Trust
9 months ago
PBC or fatty liver
Does this sound like fatty liver or PBC? I was diagnosed 9 years ago with mild fatty liver. They were checking for PBC because I had a ama m2 of 69 and a mildly elevated Alt. I lost weight and my Alt came down. US showed an enlarged liver and biopsy showed only mild fatty liver. I went back to Hepa last
Does this sound like fatty liver or PBC? I was diagnosed 9 years ago with mild fatty liver. They were checking for PBC because I had a ama m2 of 69 and a mildly elevated Alt. I lost weight and my Alt came down. US showed an enlarged liver and biopsy showed only mild fatty liver. I went back to Hepa last
Zelda5
in
British Liver Trust
9 months ago
Wonderful News - portal hypertension reversal
I am filled with joy to let you know that I got my duplex vascular Doppler ultrasound results back and I do NOT have portal hypertension!!! š I have mild cirrhosis. Scarring/fibrosis. Everything after that is excellent news! Normal pancreas, gallbladder, kidney and SPLEEN! š„³ itās 11 cm. Not
I am filled with joy to let you know that I got my duplex vascular Doppler ultrasound results back and I do NOT have portal hypertension!!! š I have mild cirrhosis. Scarring/fibrosis. Everything after that is excellent news! Normal pancreas, gallbladder, kidney and SPLEEN! š„³ itās 11 cm. Not
Greengal314
in
British Liver Trust
9 months ago
CLL itching
I am convinced that my constant itching problem is a direct result of my condition. Itching has increased over the years and now constant . My only relief is alcohol and THC laced Gummies . All other suggestions would be appreciated .
I am convinced that my constant itching problem is a direct result of my condition. Itching has increased over the years and now constant . My only relief is alcohol and THC laced Gummies . All other suggestions would be appreciated .
Romeo22
in
CLL Support
9 months ago
Help with fibroscan results please
Hi I have had fatty liver for I long time but to be honest didn't really know how serious this could be as my GP never seemed to concerned ,my liver tests have been raised for a long time, only really discovering this now , was always told one test was slighty raised but now know it was three ,today
Hi I have had fatty liver for I long time but to be honest didn't really know how serious this could be as my GP never seemed to concerned ,my liver tests have been raised for a long time, only really discovering this now , was always told one test was slighty raised but now know it was three ,today
jamie18
in
British Liver Trust
9 months ago
So much confusion so much pain
I tell you I struggle every day. I look at pics of my wife from this time last year, 2 years ago 3 years ago. My wife was never a drinker. We had a glass of wine at Thanksgiving and Christmas. Every now and then, maybe once or twice a year. She would have a drink at our friends. When we moved
I tell you I struggle every day. I look at pics of my wife from this time last year, 2 years ago 3 years ago. My wife was never a drinker. We had a glass of wine at Thanksgiving and Christmas. Every now and then, maybe once or twice a year. She would have a drink at our friends. When we moved
Wolivere
in
British Liver Trust
9 months ago
Rash from Cirrhosis?
Anyone with cirrhosis have a rash other than jaundice or spider veins? I have little raised red bumps that get very itchy and scaly. Theyāre mostly on my legs and my back and some along my waistline.
Anyone with cirrhosis have a rash other than jaundice or spider veins? I have little raised red bumps that get very itchy and scaly. Theyāre mostly on my legs and my back and some along my waistline.
FlippinOut
in
British Liver Trust
9 months ago
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