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Livedo reticularis
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On the transplant list 11m
I am on the UKELD score, but not too severe at present. I am doing everything I am supposed to. My cirrhosis is as a result of NAFLD. I have had some bleeding varices-- 3y ago, and about 7 more banded more recently. I have also had some ascites, which was treated with pills, though these are affecting
I am on the UKELD score, but not too severe at present. I am doing everything I am supposed to. My cirrhosis is as a result of NAFLD. I have had some bleeding varices-- 3y ago, and about 7 more banded more recently. I have also had some ascites, which was treated with pills, though these are affecting
taar
in
British Liver Trust
2 years ago
NAFLD
Hi all, I am type 2 diabetic and overweight at 20st. I have been told my liver is fatty from an ultrasound. I had a fibroscan and was told the normal range was 2.5-7.5 and my score was 18. I was told by a letter that I may have cirrhosis. When I saw the liver specialist she said I definitely have a fatty
Hi all, I am type 2 diabetic and overweight at 20st. I have been told my liver is fatty from an ultrasound. I had a fibroscan and was told the normal range was 2.5-7.5 and my score was 18. I was told by a letter that I may have cirrhosis. When I saw the liver specialist she said I definitely have a fatty
Homebird1
in
British Liver Trust
2 years ago
Can drinking 10 liters of water a day reverse cirrhosis?
If water is flushing out toxins, a toxin-free state can give the liver time to repair itself. I could not find any studies belonging to cirrhosis. Only those who drank a lot of water showed less fatty liver disease. Do you know a scientist who has tried this?
If water is flushing out toxins, a toxin-free state can give the liver time to repair itself. I could not find any studies belonging to cirrhosis. Only those who drank a lot of water showed less fatty liver disease. Do you know a scientist who has tried this?
tryhealourliver
in
British Liver Trust
2 years ago
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PD induced COPD
does anyone here have parkinsons induced COPD? Im in PD induced chronic respiratory failure Gold Stage 3........GOLD-3: One of the stages of chronic obstructive lung disease (COPD), according to the Global Initiative for Chronic Obstructive Lung Disease (GOLD). GOLD-3 is stage III in the GOLD classification
does anyone here have parkinsons induced COPD? Im in PD induced chronic respiratory failure Gold Stage 3........GOLD-3: One of the stages of chronic obstructive lung disease (COPD), according to the Global Initiative for Chronic Obstructive Lung Disease (GOLD). GOLD-3 is stage III in the GOLD classification
beehive23
in
Cure Parkinson's
2 years ago
Relationship with alcohol
I was reading through some posts and answers and got thinking. Is the saying ‘once an alcoholic always an alcoholic’, really true. I certainly had a problem with alcohol. I drunk far too much of it and it became far too big a part of my life. To a point where I got very unwell. I was terrified during
I was reading through some posts and answers and got thinking. Is the saying ‘once an alcoholic always an alcoholic’, really true. I certainly had a problem with alcohol. I drunk far too much of it and it became far too big a part of my life. To a point where I got very unwell. I was terrified during
Aotea2012
in
British Liver Trust
2 years ago
Once a month and really, once a month
Hello I have been diagnosed with Fibrosis Stage 3 but they are treaing me as though I have early Cirrohsis. I've been told to abstain alcohol forever. Now if I truly have the willpower to treat myself on one day a month to a few drinks and it is only one day a month, would it really do any harm ? I guess
Hello I have been diagnosed with Fibrosis Stage 3 but they are treaing me as though I have early Cirrohsis. I've been told to abstain alcohol forever. Now if I truly have the willpower to treat myself on one day a month to a few drinks and it is only one day a month, would it really do any harm ? I guess
LACLAC1972
in
British Liver Trust
2 years ago
I found another
If you read “my story” my last post you already know the story but I found another. This woman’s mother was on urso for 5 years and her insurance did not pay so once a month they made a run to Mexico to buy her drugs. She stayed on liver diet and took drugs as directed and when md… liver specialist here
If you read “my story” my last post you already know the story but I found another. This woman’s mother was on urso for 5 years and her insurance did not pay so once a month they made a run to Mexico to buy her drugs. She stayed on liver diet and took drugs as directed and when md… liver specialist here
Pamela4475
in
PBC Foundation
2 years ago
Fatty liver anxiety
Hi, newcomers here, ive been diagnosed with fatty liver (early stage), blood test shows high ALT (144), and AST(54) but GGT and alkali phospate still in normal range, will i be okay? Can i live longer? And how to dea with fatty liver? This anxiety is killing me :( Thanks
Hi, newcomers here, ive been diagnosed with fatty liver (early stage), blood test shows high ALT (144), and AST(54) but GGT and alkali phospate still in normal range, will i be okay? Can i live longer? And how to dea with fatty liver? This anxiety is killing me :( Thanks
Javier89
in
British Liver Trust
2 years ago
Some advice please
Hi I have joined as my brother has end stage cirrhosis of the liver along with ascites & other complications due to very heavy drinking over many years. He is now at the stage where he can’t walk & refuses to let me contact his gp or any other health professional. Any offers of advice would be extremely
Hi I have joined as my brother has end stage cirrhosis of the liver along with ascites & other complications due to very heavy drinking over many years. He is now at the stage where he can’t walk & refuses to let me contact his gp or any other health professional. Any offers of advice would be extremely
JimmyMartin
in
British Liver Trust
2 years ago
Muscle tension
Hi, Have been suffering from severe anxiety for a little while. My main symptom is chronic and painful muscle tension throughout my whole body and dizziness. It never leaves me and makes it hard to relax or do anything normal. Any tips gratefully received.
Hi, Have been suffering from severe anxiety for a little while. My main symptom is chronic and painful muscle tension throughout my whole body and dizziness. It never leaves me and makes it hard to relax or do anything normal. Any tips gratefully received.
WBC61
in
Anxiety Support
2 years ago
Have diagnosis now
Got a letter from consultant now and it is confirmed that I have alcohol related cirrhosis. Consultant said "The key here though is not so much how much scarring there is in the liver, but how the liver is functioning, and on your liver blood tests your liver is functioning pretty well at present.
Got a letter from consultant now and it is confirmed that I have alcohol related cirrhosis. Consultant said "The key here though is not so much how much scarring there is in the liver, but how the liver is functioning, and on your liver blood tests your liver is functioning pretty well at present.
eileenet49
in
British Liver Trust
2 years ago
Functional Recovery from Human Induced Pluripotent Stem Cell-Derived Dopamine Neuron Grafts is Dependent on Neurite Outgrowth
Summary Transplantation of human pluripotent stem cell-derived dopaminergic (DA) neurons is an emerging therapeutic strategy for Parkinson’s disease (PD). In this study, we demonstrate, for the first time, that that functional recovery after DA neuron transplant is critically dependent on graft-host
Summary Transplantation of human pluripotent stem cell-derived dopaminergic (DA) neurons is an emerging therapeutic strategy for Parkinson’s disease (PD). In this study, we demonstrate, for the first time, that that functional recovery after DA neuron transplant is critically dependent on graft-host
Farooqji
in
Cure Parkinson's
2 years ago
Thank You
I’ve been a ‘lurker’ here on the forum, writing very few posts but very much learning about liver disease, it’s complications and it’s effects on the patient, but also on those who care. I wanted to thank both the British Liver Trust for a fantastic resource of information on the liver and it’s complications
I’ve been a ‘lurker’ here on the forum, writing very few posts but very much learning about liver disease, it’s complications and it’s effects on the patient, but also on those who care. I wanted to thank both the British Liver Trust for a fantastic resource of information on the liver and it’s complications
Murfee
in
British Liver Trust
2 years ago
Fibrolamellor disease
Hello, I had a tumor rupture in Oct 2021 and then was diagnosed with HCC. Scans first clear, then in Jan 2022 found liver reoccurrence and mets to stomach lining. Started immunotherapy, at 3 month scan and was told liver and upper stomach stable and lower tumors had increased. At this scan it was
Hello, I had a tumor rupture in Oct 2021 and then was diagnosed with HCC. Scans first clear, then in Jan 2022 found liver reoccurrence and mets to stomach lining. Started immunotherapy, at 3 month scan and was told liver and upper stomach stable and lower tumors had increased. At this scan it was
liverlover0
in
Blue Faery Liver Cancer
2 years ago
Statins and liver disease
Hi looking for some advice , I recently saw my alpha 1 liver specialist recently I have liver cirrhosis and he has recommended a liver biopsy, pre diabetes check and possible statins to help with weight loss he also thinks I have metabolic syndrome any ideas why he’s suggesting statins ? Cheers
Hi looking for some advice , I recently saw my alpha 1 liver specialist recently I have liver cirrhosis and he has recommended a liver biopsy, pre diabetes check and possible statins to help with weight loss he also thinks I have metabolic syndrome any ideas why he’s suggesting statins ? Cheers
Marleydog116
in
British Liver Trust
2 years ago
PBC care in the US/ Transplant times/ success rates
So… when I was diagnosed we lived in Indiana and I was getting care at IU (misdiagnosed as AIH/PBC overlap) but we were obviously scared/ sought a second opinion at the Mayo Clinic in Jacksonville, FL. 45 days later we were moving to Central Florida after purchasing a house we had never set foot in.
So… when I was diagnosed we lived in Indiana and I was getting care at IU (misdiagnosed as AIH/PBC overlap) but we were obviously scared/ sought a second opinion at the Mayo Clinic in Jacksonville, FL. 45 days later we were moving to Central Florida after purchasing a house we had never set foot in.
IAmTheGlue
in
PBC Foundation
2 years ago
Alpha fetoprotein test for cirrhosis patients??
Hi, is it standard for this test to be done every 6 months with the liver scan? I've just had my bloods done (post liver scan and pre consultant appointment) and spotted that I have been tested for this for the first time and the results are hidden from my Patient Knows Best account ... should I be worried
Hi, is it standard for this test to be done every 6 months with the liver scan? I've just had my bloods done (post liver scan and pre consultant appointment) and spotted that I have been tested for this for the first time and the results are hidden from my Patient Knows Best account ... should I be worried
teale100
in
British Liver Trust
2 years ago
Low platelets
My platelets range from 20,000 to 50,000 the kasg 7 years. My spleen is 2x the size if my liver. I also have advanced cirrhosis which has been stable. Hematologist tried ivig therapy which got me to 50,000 for 2 to 3 weeks, but that did not last long. Any suggestions on any natural ways to raise or at
My platelets range from 20,000 to 50,000 the kasg 7 years. My spleen is 2x the size if my liver. I also have advanced cirrhosis which has been stable. Hematologist tried ivig therapy which got me to 50,000 for 2 to 3 weeks, but that did not last long. Any suggestions on any natural ways to raise or at
AlleyBoy
in
CLL Support
2 years ago
Feel a little lost :(
Hi there lovely people.. I was just wondering what support there is for loved ones of someone who has Decompensated Alcoholic Cirrhosis.. My husband is desperate ill after being in hospital for 3 weeks and nearly dying due to bleeding. and so on, Now he's home he's in bed all day while I have to look
Hi there lovely people.. I was just wondering what support there is for loved ones of someone who has Decompensated Alcoholic Cirrhosis.. My husband is desperate ill after being in hospital for 3 weeks and nearly dying due to bleeding. and so on, Now he's home he's in bed all day while I have to look
Blossom0410
in
British Liver Trust
2 years ago
Becoming a burden to my family
Hi I have cirrhosis and liver cancer and would be interested in talking to other older people like myself who feel that they are undecided about there future. The experts all seem to give the same advice. My worry is are they just keeping you alive regardless of your quality of life and the heartache
Hi I have cirrhosis and liver cancer and would be interested in talking to other older people like myself who feel that they are undecided about there future. The experts all seem to give the same advice. My worry is are they just keeping you alive regardless of your quality of life and the heartache
oap74
in
British Liver Trust
2 years ago
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