Manganese levels

[Lifehappened123]

hi everyone

so I’ve come on here to pick peoples brains because I am completely at a loss of what to do.

I was recently seen by my consultant and he said everything is going really well, and my bloods are normal so even though I have cirrhosis my liver is working.

I’ve been referred to a neurologist regarding my high levels of Manganese. I didn’t really know or understand much until I went, but basically the neurologist was quite blunt and said to me there is nothing that he can do for me.

I’m only 41 and I have two young children

I live a healthy life and have not drank for 3 1/2 years now, and never will ever again.

the neurologist said that it is extremely rare that I have such high levels in my bloods and unfortunately the only option would be a liver transplant. he said if not, the levels will keep building in your body and because your Liver can’t for some reason, fill it out eventually and he doesn’t know how long either Parkinson’s sets in.

He said there’s not much known about it, and therefore he can’t help any further so he’s referred me back to my consultant.

Because it’s so rare, someone young and my levels are so high, I wondered if anyone knew of any top doctors that are researching this kind of thing in the UK and maybe could help me or give me any advice.

I just feel like I managed to get over so many hurdles, and then another one gets thrown at me.

The thought of starting with tremor and Parkington petrifies me

However I know there is definitely something wrong because I am struggling to do really simple tasks like dates and times I can’t organise things and it’s affecting my life. The neurologist said this is what manganese does to the body and the brain.

He also said diet is the key however, Maneese is in everything when I have googled it

I’m trying to find a dietician as well, but could maybe help me, but no one seems to be trained enough to know what manganese is.

I’m just trying to use every possible I can to get help so if anybody out there knows anything or anyone that could help me I’d really appreciate your advice.

Thank you so much for reading my message

You are all so lovely on here, and it’s so comforting to know that this is a place where you can come and feel not alone.

[sophiaS1980]

I am in the US and can't give an referral , however, i do know they use diuertics, and Intravenous Calcium in the US to lower levels Good luck, hope someone is able to help you with an referral in the UK.

[Lifehappened123 in reply to sophiaS1980]

thank you so much Sophia I really appreciate your reply, I will look into this ASAP 🙏🏻

[FlippinOut]

Reserpine, a medication used to treat high blood pressure, may lower manganese levels in the body.