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Livedo reticularis
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I'm so scared....could someone please help?
Hi. I'm so glad I stumbled on this site and I'm hoping that someone could be kind enough to reach out to me? I'm so very, very scared, and it's all my own fault. I have suffered from an anxiety disorder for 15 - 20 years and used wine to cope....and lots of it. I was diagnosed with compensated cirrhosis
Hi. I'm so glad I stumbled on this site and I'm hoping that someone could be kind enough to reach out to me? I'm so very, very scared, and it's all my own fault. I have suffered from an anxiety disorder for 15 - 20 years and used wine to cope....and lots of it. I was diagnosed with compensated cirrhosis
puddy68
in
British Liver Trust
4 months ago
Radio Frequency oral therapy for liver cancer
New FDA approved home therapy for liver growths; small antenna that is kept in the mouth for 1 hour daily. The science is radio frequencies that interact with cancer cells and keep them controlled.
New FDA approved home therapy for liver growths; small antenna that is kept in the mouth for 1 hour daily. The science is radio frequencies that interact with cancer cells and keep them controlled.
Preetham
in
Blue Faery Liver Cancer
4 months ago
High ELF score
Hi there, I’m Liz and this is my first post. I have recently had an ELF score of 9.9. My GP didn’t request this test - I requested it myself because I just wanted to know if my liver was in good condition and healthy. I have had an ELF test In the past which was raised but not unduly so and over the
Hi there, I’m Liz and this is my first post. I have recently had an ELF score of 9.9. My GP didn’t request this test - I requested it myself because I just wanted to know if my liver was in good condition and healthy. I have had an ELF test In the past which was raised but not unduly so and over the
Nellieblue
in
British Liver Trust
4 months ago
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Stage 1 Compensated Cirrhosis
Hi This is my first post since being diagnosed with the above condition. I have now stopped drinking. I am confused with the staging element. I would be grateful for clarification in layman terms. I am awaiting an MRI of my liver and heart. I have also recently been diagnosed with dilated cardiomyopathy
Hi This is my first post since being diagnosed with the above condition. I have now stopped drinking. I am confused with the staging element. I would be grateful for clarification in layman terms. I am awaiting an MRI of my liver and heart. I have also recently been diagnosed with dilated cardiomyopathy
Vindhot-65
in
British Liver Trust
4 months ago
Lft test confusion
Hi, Not my test but my brothers for family court.He's passed all his hair tests and blood tests. He's had issues with drink but has slowed down to mainly binge drinking for the last few years. He last had spirits 3 weeks before the tests were taken, his cdt came back within range at 1.4 however his lft
Hi, Not my test but my brothers for family court.He's passed all his hair tests and blood tests. He's had issues with drink but has slowed down to mainly binge drinking for the last few years. He last had spirits 3 weeks before the tests were taken, his cdt came back within range at 1.4 however his lft
Dolly101010
in
British Liver Trust
4 months ago
liver function tests
sorry ignore my last post Can someone explain why my bilirubin went from 41 to 48 in one month and should I be worried. Pic from previous post is not clear
sorry ignore my last post Can someone explain why my bilirubin went from 41 to 48 in one month and should I be worried. Pic from previous post is not clear
Meanies
in
British Liver Trust
4 months ago
Fibroscan score of 17.2 (NAFLD)
Hi everyone, back in December I saw my GP and had blood tests done for a different health issue (cardiology referral), and he phoned me up to say that my liver emzymes were high and he was putting in for an emergency referral to hepatology and a liver scan. Next week I was asked to come in for a second
Hi everyone, back in December I saw my GP and had blood tests done for a different health issue (cardiology referral), and he phoned me up to say that my liver emzymes were high and he was putting in for an emergency referral to hepatology and a liver scan. Next week I was asked to come in for a second
Peachy_keen
in
British Liver Trust
4 months ago
Alcoholic cirrhosis Hepatic encephalopathy
Partner is currently coming round from being sedated due to Hepatic encephalopathy. The doctors say he is also withdrawing from alcohol. The upsetting thing is one of the first words he said to me when I went to visit was to tell me to f off.. I've since been back to visit and it's mostly abuse I get
Partner is currently coming round from being sedated due to Hepatic encephalopathy. The doctors say he is also withdrawing from alcohol. The upsetting thing is one of the first words he said to me when I went to visit was to tell me to f off.. I've since been back to visit and it's mostly abuse I get
jeanie123
in
British Liver Trust
4 months ago
Dr. Jones' Knowledge
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
Several times a week I want to share some of Dr. Jones' statements regarding PBC These are all taken from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis. I [/i][/u]think it's important to share some of the basics of this complicated disease. If you have any questions
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
Looking for advice to deal with pain and stiffness related to AIH.
I was recently signposted as this may be my diagnosis by a GP and I'm awaiting a consultant appointment with Rheumatology as appose to a liver specialist despite me questioning this. I have no inflammation markers on my bloods but I do on my antibodies and smooth muscle blood counts which his why it's
I was recently signposted as this may be my diagnosis by a GP and I'm awaiting a consultant appointment with Rheumatology as appose to a liver specialist despite me questioning this. I have no inflammation markers on my bloods but I do on my antibodies and smooth muscle blood counts which his why it's
PeterStewart
in
British Liver Trust
4 months ago
Liver Cancer
I was diagnosed with liver cancer by my consultant yesterday (Friday 31st May 2024). They are going to take a liver biopsy in a couple of weeks as I am going on holiday next Monday. Then once this is done I will be having radiography. I am going to be positive and hopefully fight this all the way
I was diagnosed with liver cancer by my consultant yesterday (Friday 31st May 2024). They are going to take a liver biopsy in a couple of weeks as I am going on holiday next Monday. Then once this is done I will be having radiography. I am going to be positive and hopefully fight this all the way
Mick1414
in
British Liver Trust
4 months ago
discomfort under ribs
I feel fine, then I get pain around liver area and get stomach cramps which I end up having to poo the colour is quite yellowish (sorry for details!) once I have been feel much better this has been going on for some weeks now it is definitely worse if I were to eat food with fats in, any ideas please
I feel fine, then I get pain around liver area and get stomach cramps which I end up having to poo the colour is quite yellowish (sorry for details!) once I have been feel much better this has been going on for some weeks now it is definitely worse if I were to eat food with fats in, any ideas please
Suecong
in
British Liver Trust
4 months ago
pain in left side
Hi have Chorrosis of the liver and have been good up until today. I have felt discomfort in my left side and it goes up the left side of my back to my neck. I did contact my local gp who is going to do bloods on Tuesday as there extremely busy. Will it have something to do with my diagnosis? Or anyone
Hi have Chorrosis of the liver and have been good up until today. I have felt discomfort in my left side and it goes up the left side of my back to my neck. I did contact my local gp who is going to do bloods on Tuesday as there extremely busy. Will it have something to do with my diagnosis? Or anyone
Meanies
in
British Liver Trust
4 months ago
Nicotine…… a complete no-brainer.
Update most don’t know about nicotine, you should. Read my previous post if you’re wondering about it. I’ll soon be off c/l. I have experimented with nicotine and it seems to work better than the meds. My sense of smell is returning. I’m smelling things that I wish I couldn’t smell, lol. I forgotten
Update most don’t know about nicotine, you should. Read my previous post if you’re wondering about it. I’ll soon be off c/l. I have experimented with nicotine and it seems to work better than the meds. My sense of smell is returning. I’m smelling things that I wish I couldn’t smell, lol. I forgotten
38yroldmale
in
Cure Parkinson's
4 months ago
worries
Here again. I am just so worried still. My liver enzymes were high. Managed to stay off the booze. Alt gone down slightly but ggt gone up a lot. Iron is low. My g p keeps saying it’s mental health issues but surely that cannot make my bloods deranged. She did an e consult to hepology and he said I
Here again. I am just so worried still. My liver enzymes were high. Managed to stay off the booze. Alt gone down slightly but ggt gone up a lot. Iron is low. My g p keeps saying it’s mental health issues but surely that cannot make my bloods deranged. She did an e consult to hepology and he said I
Curryblue
in
British Liver Trust
4 months ago
getting help with care
I posted before about hoping to take my partner on holiday - which is looking unlikely and also irresponsible. He has cirrhosis which is fairly stable, having paracentesis again soon - but he’s tried and weak and pretty much not able to do much. The trouble is that he insists he is fine, can look after
I posted before about hoping to take my partner on holiday - which is looking unlikely and also irresponsible. He has cirrhosis which is fairly stable, having paracentesis again soon - but he’s tried and weak and pretty much not able to do much. The trouble is that he insists he is fine, can look after
Ladypinkdoor
in
British Liver Trust
4 months ago
Two updates in the Guidelines for PBC
PRACTICE GUIDANCE Primary biliary cholangitis: 2021 practice guidance update from the American Association for the Study of Liver Diseases Lindor, Keith D.*,1; Bowlus, Christopher L.2; Boyer, James3; Levy, Cynthia4; Mayo, Marlyn5 Author Information Hepatology 75(4):p 1012-1013, April 2022. | DOI
PRACTICE GUIDANCE Primary biliary cholangitis: 2021 practice guidance update from the American Association for the Study of Liver Diseases Lindor, Keith D.*,1; Bowlus, Christopher L.2; Boyer, James3; Levy, Cynthia4; Mayo, Marlyn5 Author Information Hepatology 75(4):p 1012-1013, April 2022. | DOI
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
hepatic Encephalopathy
morning, can anyone advice me about hepatic Encephalopathy ? I have stage 4 liver desease and was feeling so confused last night with things like time and thinking lights were off but were on is this the start of it? Last time I was like this was last march when I had my diagnoses, I take lactose which
morning, can anyone advice me about hepatic Encephalopathy ? I have stage 4 liver desease and was feeling so confused last night with things like time and thinking lights were off but were on is this the start of it? Last time I was like this was last march when I had my diagnoses, I take lactose which
Kingbilly3
in
British Liver Trust
4 months ago
Anyone been recruited into Pearl study?
Has anyone on here been recruited on to the Pearl study and if so how did they get signed up? Pearl is an acronym of - Prospective Cohort for Early Detection of Liver Cancer The Pearl study aims to recruit 3000 people with liver cirrhosis caused by one of the underlying conditions of HCV, HBV, alcohol-related
Has anyone on here been recruited on to the Pearl study and if so how did they get signed up? Pearl is an acronym of - Prospective Cohort for Early Detection of Liver Cancer The Pearl study aims to recruit 3000 people with liver cirrhosis caused by one of the underlying conditions of HCV, HBV, alcohol-related
Tiger800xrt
in
British Liver Trust
4 months ago
for our 'newest' members....
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
4 months ago
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