Compensated liver

[Oasisman]

I have went from ddcompensatd to compensated liver disease since being diagnosed in August 2023. I keep seeing prognosis is 9 to 12 years. Is this correct or can you live past 12 years. I haven't had any alcohol since diagnosed

[bintcliffe]

Hi There

I have also gone from decompensated to compensated over a 6 year period.

A friend has gone through the above and he his still here 15 years later and still living his life so anything is possible.

Hayley 😊

[golly123]

Hi. I'm in the same situation as you. I'm not sure either. I'm 61 next month and was diagnosed in August 2021. Now teetotal. I saw my hepatic consultant in November 2021 (3 months after being told I was decompensated) and she said my liver was compensated. This is 3 months after being told decompensated. Mine was complicated as I had Covid and had been in intensive care in a coma after a femur fracture. In November 2021 my consultant said I'd probably live to see 80. It's all very confusing. I've read 12 years so, if this is the case, I have up to 10 years left. I did have a fibroscan in August this year which said I was F3/F4 between the two. My CAP was 316 which means I have a very fatty liver. KpA of 16. So my cihrossis caused by drinking is irreversible. I'm on a diet but have only lost 2lbs. Diet is very important. So I don't have an answer either. I just find it all very confusing. Sorry I haven't helped. Good luck with everything.. Best wishes Golly

[Oasisman in reply to golly123]

Hi, thanks for your reply.

I also had complications as contracted septic shock and was on a ventilator for 10/11 days. I am not sure what my F score is as was lite up orange but I think it was 7.o or 79. The nurse just advise that it was cirrhosis. My fatty liver was good the nurse advise under they numbers for fatty liver. I think it was 209. Thanks for your help

[Greengal314]

hi Oasisman, cute name.😊

From what I have read, i believe that the 10-12 year number represents the “median.” Meaning that 50 % are larger and 50% are smaller than this (but including this, since it is a set of numbers 😀).

The median is typically the middle number (not the average) but for something this complex with a wide variety and factors, they prob figured a “median range” would be more suitable.

FYI- They are updating information as treatment methods and new data available is getting up to speed.

I read on the Cleveland clinic’s website (which was recently updated ) that if your liver is compensated and you are able to stop further damage, it potentially may not progress to decompensated.

I hope this helps. Welcome to the land of confusion. 😂 Always try and find the bright side. 😁

[Oasisman in reply to Greengal314]

Thanks for your reply.I couldn't understand the date range median makes sense as I am sure other medical issues along with cirrhosis would effect the prognosis. I know my fatty liver is okay but not sure of fibrosis score. Maybe 7.9. Nurse said will probably be a year until.the next fibrosis scan so that is a positive and AST enzymes are back to normal and so far the other blood tests moving the right way with bilirubin at 30 from 36 from October to November.

I was in hospital for 6 weeks due to septic shock caught in the hospital on admission and I am sure I would have received the best treatment available for both the sepsis and cirrhosis.

Thanks for the reply and the nice mention of my username. Guess who was on YouTube when I was registering for the forum(first forum I have ever joined)

[Pie-eater]

Diagnosed with enlarged liver in 1995, confirmed as cirrhosis a few years later. Developed cancer in 2020 and had transplant last year. Good luck.

[Dogbot]

Hi I was taken into hospital and put on drips and kept in when the doctor came back in the morning and said I didn’t expect to see you alive this morning. Because my liver had been so bad lots of hospital stays and medication, here I am a lucky person with a liver transplant that I got this March. This story started 20 years ago all I had to do was no alcohol 👍good luck.

Stay safe All

Dogbot 🐶🌈Dave

[juneblue]

I’m a little ahead of you. Diagnosed at 56. With diet and exercise went from decompensated to compensated. Feel better than I did before diagnosed.

The way the estimation of life was explained to me was that you could be tested again in five years and you may have an estimation of 9-12 years to live.

Try not to worry as much about dying. Focus more on how your living. God Bless.