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Experiences with
Livedo reticularis
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Fluid retention
I have ecld and severe HE I've been refused a transplant. My gp cut my spironolactone down from 100mg to 50mg, I started noticing a full feeling and put on 5 pounds in a week, I got out the shower today and noticed my left ankle is swelling, I've never had this before, any advice please
I have ecld and severe HE I've been refused a transplant. My gp cut my spironolactone down from 100mg to 50mg, I started noticing a full feeling and put on 5 pounds in a week, I got out the shower today and noticed my left ankle is swelling, I've never had this before, any advice please
Hidden
in
British Liver Trust
2 years ago
PBC/AIH
I’ve been diagnosed with pbc crossed over with AIH … caused cirrhosis. People keep posting about all their blood numbers and figures . I’ve not had theses , nor do i understand them … any advice please 😬 North East England
I’ve been diagnosed with pbc crossed over with AIH … caused cirrhosis. People keep posting about all their blood numbers and figures . I’ve not had theses , nor do i understand them … any advice please 😬 North East England
She-66
in
British Liver Trust
3 years ago
Options for PBC Itch?
Hello, I have had PBC for years with progressive itch. I am an "incomplete" responder to Urso and Ocaliva (on both). I take Cholestyramine but in the past year the itching has gotten significantly worse where I scratch all night, am scaring up my arms and legs and tear the dead dry skin off the soles
Hello, I have had PBC for years with progressive itch. I am an "incomplete" responder to Urso and Ocaliva (on both). I take Cholestyramine but in the past year the itching has gotten significantly worse where I scratch all night, am scaring up my arms and legs and tear the dead dry skin off the soles
Q8Cooper
in
PBC Foundation
3 years ago
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Husband recently diagnosed with decompensated cirrosis of the liver
Hi, Im new to this forum, and hoping for some support as I feel a little lost! My husband was admitted to hospital at the beginning of December 2021 with gross asceties and jaundice. It was a battle to get him to even see a Dr and I had to lock him in the house and force him to get help, as he was dying
Hi, Im new to this forum, and hoping for some support as I feel a little lost! My husband was admitted to hospital at the beginning of December 2021 with gross asceties and jaundice. It was a battle to get him to even see a Dr and I had to lock him in the house and force him to get help, as he was dying
Rockyroo28
in
British Liver Trust
3 years ago
Has anyone had a HIDA scan on their gallbladder?
Hi there, I had a HIDA scan on my gallbladder on Monday. They give you an injection of radioactive dye and scan you for an hour. Apparently you pee and poop that out. Then they give you a really fatty milkshake to stimulate the gallbladder and continue the scan for another hour. I was fully expecting
Hi there, I had a HIDA scan on my gallbladder on Monday. They give you an injection of radioactive dye and scan you for an hour. Apparently you pee and poop that out. Then they give you a really fatty milkshake to stimulate the gallbladder and continue the scan for another hour. I was fully expecting
weegmack
in
IBS Network
3 years ago
Cod liver oil
I want to take cod liver oil to help my arthritis but am worried it might affect my acid reflux. Has anyone taken it and had any positive or negative effects on their acid reflux?
I want to take cod liver oil to help my arthritis but am worried it might affect my acid reflux. Has anyone taken it and had any positive or negative effects on their acid reflux?
dinahdough
in
Acid Reflux Support
3 years ago
Researchers report third case of HIV remission after stem cell transplant using umbilical cord blood
A US woman has become the third known person who's gone into HIV remission, and the first mixed-race woman, thanks to a transplant of stem cells from umbilical cord blood, according to research presented at a conference Tuesday. https://edition.cnn.com/2022/02/15/health/hiv-third-person-remission/index.html
A US woman has become the third known person who's gone into HIV remission, and the first mixed-race woman, thanks to a transplant of stem cells from umbilical cord blood, according to research presented at a conference Tuesday. https://edition.cnn.com/2022/02/15/health/hiv-third-person-remission/index.html
Farooqji
in
Cure Parkinson's
3 years ago
Any Suggestions?
Hi everyone Just wonder if anyone has similar experience. I have had a phone appiontment with my liver specialist and I feel like I am in the film Groundhog day. When I was 13 I had extreme itching with no rash and went yellow. I was diagnosed with hepatitis A and jaundice. 1 have 4 grown up children
Hi everyone Just wonder if anyone has similar experience. I have had a phone appiontment with my liver specialist and I feel like I am in the film Groundhog day. When I was 13 I had extreme itching with no rash and went yellow. I was diagnosed with hepatitis A and jaundice. 1 have 4 grown up children
eightofthem
in
British Liver Trust
3 years ago
What is normal?
Hi, I was diagnosed with cirrhosis last month and I’ve received my first blood test results from the hospital. They say some are raised, some are normal and some improved but give no indication of what normal should be. Does anyone know what the optimum levels should be for ALT. ALP, AST, bilirubin,
Hi, I was diagnosed with cirrhosis last month and I’ve received my first blood test results from the hospital. They say some are raised, some are normal and some improved but give no indication of what normal should be. Does anyone know what the optimum levels should be for ALT. ALP, AST, bilirubin,
Veata
in
British Liver Trust
3 years ago
Holiday Insurance
Hello, I am looking to get holiday insurance to Greece following a liver transplant in September 2020. I have contacted a number of recommended insurers and am shocked at the variation in price for similar cover. For a 10 day cover, this has ranged from £550 to £1300! I am happy to give anyone who is
Hello, I am looking to get holiday insurance to Greece following a liver transplant in September 2020. I have contacted a number of recommended insurers and am shocked at the variation in price for similar cover. For a 10 day cover, this has ranged from £550 to £1300! I am happy to give anyone who is
Chasdog
in
British Liver Trust
3 years ago
Monday morning breakfast 😊
Hey liver sufferers and cirrhosis haters! Beat that 🤪 for healthy..🤣. What a mixed day I have a phone call appointment with the consultant about some issues with my liver. I need to grab some copper tube to install a first fix for a shower and try to find a cricket ball for my nephew. Beat that as
Hey liver sufferers and cirrhosis haters! Beat that 🤪 for healthy..🤣. What a mixed day I have a phone call appointment with the consultant about some issues with my liver. I need to grab some copper tube to install a first fix for a shower and try to find a cricket ball for my nephew. Beat that as
Zukosmile07
in
British Liver Trust
3 years ago
Liver Pain...after Dry
Hi, First Post. Abstained for Jan. Previously diagnosed with fatty liver. Felt very healthy, good low blood pressure and sleeping well. In early Feb, resumed moderate drinking. Went away last week and drank approx 7 units each day, 2 pints of beer, 2 to 3 glasses of wine, for 4 nights. I now have a chronic
Hi, First Post. Abstained for Jan. Previously diagnosed with fatty liver. Felt very healthy, good low blood pressure and sleeping well. In early Feb, resumed moderate drinking. Went away last week and drank approx 7 units each day, 2 pints of beer, 2 to 3 glasses of wine, for 4 nights. I now have a chronic
LillieLiver
in
British Liver Trust
3 years ago
Love Your Liver Livecast Event
Learn how to Love Your Liver Join Blue Faery: The Adrienne Wilson Liver Cancer Association for an exciting live event. Help us spread awareness and increase the prevention of liver cancer and disease. Special guests include +Maranda Curtis, gospel singer and campaign spokesperson, will debut her
Learn how to Love Your Liver Join Blue Faery: The Adrienne Wilson Liver Cancer Association for an exciting live event. Help us spread awareness and increase the prevention of liver cancer and disease. Special guests include +Maranda Curtis, gospel singer and campaign spokesperson, will debut her
AndreaWilson_Founder
Caregiver
in
Blue Faery Liver Cancer
3 years ago
LIVER PAIN?
I'm getting weird dull aches under my ribs on the right side. I read that liver doesnt have nerves so you cant get pain from it. Is that true? Could the ache be my inflamed liver pushing against my ribs or damage like fibrosis from inside my liver. I'm sorry to bother you with it but you all seem to
I'm getting weird dull aches under my ribs on the right side. I read that liver doesnt have nerves so you cant get pain from it. Is that true? Could the ache be my inflamed liver pushing against my ribs or damage like fibrosis from inside my liver. I'm sorry to bother you with it but you all seem to
Bigbluemonkey
in
British Liver Trust
3 years ago
Alpha1 Antitrypsin Deficiency and liver fibrosis
My daughter was diagnosed with Alpha1 Antitrypsin deficiency at 8 weeks old she is now 6 and was doing really well until her most recent appointment, we have been told that she now has fibrosis of the Liver. We are just awaiting her blood results for a plan to be put in place. I was just wondering if
My daughter was diagnosed with Alpha1 Antitrypsin deficiency at 8 weeks old she is now 6 and was doing really well until her most recent appointment, we have been told that she now has fibrosis of the Liver. We are just awaiting her blood results for a plan to be put in place. I was just wondering if
Kat-1986
in
Children's Liver Disease Foundation
3 years ago
Normal scans, mostly normal blood tests. Can you still have HE?
I have had abnormal LFTs for 2.5 years (that I know of - no tests before). Normal ultrasounds x4, normal HIDA, normal CT scan, normal fibroscans x2 showing F0 and approx 240 CAP. An MRCP showed sludge when I was pregnant. I went and got my gallbladder out which showed chronic cholestasis but nothing
I have had abnormal LFTs for 2.5 years (that I know of - no tests before). Normal ultrasounds x4, normal HIDA, normal CT scan, normal fibroscans x2 showing F0 and approx 240 CAP. An MRCP showed sludge when I was pregnant. I went and got my gallbladder out which showed chronic cholestasis but nothing
LFTmystery
in
British Liver Trust
3 years ago
Post Hep C treatment .. what next?
Hi guys , Just wondering if anyone has any advice . I’m currently down to my last 5 days of zepatier treatment for hep C , bloods come back all good and in range and generally feeling much better . But the last few days I’ve been extra tired and no idea why. I’ve not touched alcohol since the day of
Hi guys , Just wondering if anyone has any advice . I’m currently down to my last 5 days of zepatier treatment for hep C , bloods come back all good and in range and generally feeling much better . But the last few days I’ve been extra tired and no idea why. I’ve not touched alcohol since the day of
MikeS-71
in
British Liver Trust
3 years ago
Appointment
My hubby has just got his first appointment through after being referred he has decompansated liver disease what happens at your first appointment with consultant it will be 6 months since diagnosis and 7 months alcohol free
My hubby has just got his first appointment through after being referred he has decompansated liver disease what happens at your first appointment with consultant it will be 6 months since diagnosis and 7 months alcohol free
Lippy42
in
British Liver Trust
3 years ago
AIH LIVER DAMAGE
I had a DILI episode Dec 2020. Overnight in hospital. ALTs 2162. ALTs dropped to 135 & was normalising but went up to 372 in Mar 2021. Care was great. Got transferred to con who is vile. He arranged a biopsy. Said I had sero negative AIH. Refused to show me any results or give me any info (???). Hes
I had a DILI episode Dec 2020. Overnight in hospital. ALTs 2162. ALTs dropped to 135 & was normalising but went up to 372 in Mar 2021. Care was great. Got transferred to con who is vile. He arranged a biopsy. Said I had sero negative AIH. Refused to show me any results or give me any info (???). Hes
Bigbluemonkey
in
British Liver Trust
3 years ago
I have just been diagnosed with Autoimmune Hepatitis . Why do I feel so ill?
I was admitted to hospital middle of December. Bloods all over the place. Liver biopsy confirmed AH my ultrasound showed dense liver and swollen on examination I'm scared I don't know what it all means I don't know why I feel so ill? I'm on steriods and immunosuppresants I also have MS
I was admitted to hospital middle of December. Bloods all over the place. Liver biopsy confirmed AH my ultrasound showed dense liver and swollen on examination I'm scared I don't know what it all means I don't know why I feel so ill? I'm on steriods and immunosuppresants I also have MS
Royal-vale
in
British Liver Trust
3 years ago
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