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'Not tonight Dear, It might give me a headache!' Or, Stuff PMR/ GCA! It's the Big O headache that makes Doctors sit up and take notice.
ALERT!! Despite the humour in this post , this form of HEADACHE can be experienced by WOMEN and MEN TOO , it is SERIOUS and if you are regularly suffering with them you should TELL YOUR DOCTOR IMMEDIATELY ! Don't be embarrassed . Now for the fun. Anyone who read my previous post about my test for Cryoglobulinemia
ALERT!! Despite the humour in this post , this form of HEADACHE can be experienced by WOMEN and MEN TOO , it is SERIOUS and if you are regularly suffering with them you should TELL YOUR DOCTOR IMMEDIATELY ! Don't be embarrassed . Now for the fun. Anyone who read my previous post about my test for Cryoglobulinemia
Blearyeyed
in
PMRGCAuk
6 years ago
Neurology, Oxycodone, and only two days until I finally give up Ropinirole!
Hello all I’ve not been able to post earlier as I was without Internet access for three weeks – what did we do before we had it!!! I am now down to 0.25mg Ropinirole. I’m glad I didn’t keep reducing when I was coming up to the concert (which went well enough!). But reduced that night and again six
Hello all I’ve not been able to post earlier as I was without Internet access for three weeks – what did we do before we had it!!! I am now down to 0.25mg Ropinirole. I’m glad I didn’t keep reducing when I was coming up to the concert (which went well enough!). But reduced that night and again six
RosieRow
in
Restless Legs Syndrome
6 years ago
Alternative treatments for RLS.
Hi mtm19,Tim61, I posted recently about withdrawing from Pramipexole, which I’m doing at the moment, not very nice. My GP eventually discovered I was suffering with myoclonic jerks, not restless leg syndrome. I saw him yesterday’ & he has agreed to try keppra ( levetiracetam) 250mg at night. I took
Hi mtm19,Tim61, I posted recently about withdrawing from Pramipexole, which I’m doing at the moment, not very nice. My GP eventually discovered I was suffering with myoclonic jerks, not restless leg syndrome. I saw him yesterday’ & he has agreed to try keppra ( levetiracetam) 250mg at night. I took
Tim61
in
Restless Legs Syndrome
6 years ago
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Anyone tried baking soda mouth rinse to relieve pain from BD mouth ulcer flares?
I've heard of rinsing with baking soda before but never used it. I get particularly sore ulcers on the very tip of the tongue, which impacts my ability to eat, drink, and speak. Appreciate any tips from people who've used a baking soda mixture, or indeed anything else they've found to work!
I've heard of rinsing with baking soda before but never used it. I get particularly sore ulcers on the very tip of the tongue, which impacts my ability to eat, drink, and speak. Appreciate any tips from people who've used a baking soda mixture, or indeed anything else they've found to work!
Dub123
in
Behçet's UK
6 years ago
Cellulitis question...
I have primary LE in my lower right leg. I was diagnosed Tuesday with cellulitis in it and also a kidney infection. I've never had it nor have I ever had pain in that leg. Only mild aching discomfort after a lot of walking. What's new, redness, a disperse rash on the inner part of the lower leg from
I have primary LE in my lower right leg. I was diagnosed Tuesday with cellulitis in it and also a kidney infection. I've never had it nor have I ever had pain in that leg. Only mild aching discomfort after a lot of walking. What's new, redness, a disperse rash on the inner part of the lower leg from
Lm92
in
LSN
6 years ago
Restless sleep
Does anyone else experience restless sleep and take any supplements or natural rememdies to counteract it? By restless I mean that I toss and turn quite a bit and kick my legs. It doesn’t really wake me but it disturbs my partner. I’m going to up my dosage of CBD oil to a full dropper per night rather
Does anyone else experience restless sleep and take any supplements or natural rememdies to counteract it? By restless I mean that I toss and turn quite a bit and kick my legs. It doesn’t really wake me but it disturbs my partner. I’m going to up my dosage of CBD oil to a full dropper per night rather
C2a2o2
in
Ataxia UK
6 years ago
Mucuna Puriens
Was just reading a post from the Parkinsons Movement side of Health Unlocked regarding the use of Mucuna root. I took myself off of Mirapex and use Mucuna Puriens for my dopamine needs, Valerian Root and melatonin for sleep. Anyone else using supplements rather than pharma y?
Was just reading a post from the Parkinsons Movement side of Health Unlocked regarding the use of Mucuna root. I took myself off of Mirapex and use Mucuna Puriens for my dopamine needs, Valerian Root and melatonin for sleep. Anyone else using supplements rather than pharma y?
eglimark
in
Restless Legs Syndrome
6 years ago
White tongue
Hi I am on Humira and Metoject. 2 weeks ago I'd the flu jab ever since my IBS is bad and my mouth is covered inside my lips with cold sores, so I looked inside and to my horror my tongue was heavily coated in yellowy white and mouth ulcers. Rheumy nurse said buy nysatin but does it work and what will
Hi I am on Humira and Metoject. 2 weeks ago I'd the flu jab ever since my IBS is bad and my mouth is covered inside my lips with cold sores, so I looked inside and to my horror my tongue was heavily coated in yellowy white and mouth ulcers. Rheumy nurse said buy nysatin but does it work and what will
IV-cross
in
NRAS
6 years ago
Very frustrated with thyroid medication
Hi everyone. I’m new here, just discovered this site earlier today. I had total thyroidectom 15 months ago, haven’t been well since surgery. Difficulty regulating Levothyroxine. Gained 10 pounds since surgery, retaining lots of fluids, especially around abdominal region. I have Lyme disease and is thinking
Hi everyone. I’m new here, just discovered this site earlier today. I had total thyroidectom 15 months ago, haven’t been well since surgery. Difficulty regulating Levothyroxine. Gained 10 pounds since surgery, retaining lots of fluids, especially around abdominal region. I have Lyme disease and is thinking
Rosebud1955
in
Thyroid UK
6 years ago
Flying after suffering a brain abscess
I suffered a left temporal brain abscess about 18 months ago. I've had set backs with my recovering but now feel fit enough to go on holiday. We've booked and will be going in a few days but it's a 5 hour flight and I'm worried about how it might effect me. Has anyone got any advise for me?
I suffered a left temporal brain abscess about 18 months ago. I've had set backs with my recovering but now feel fit enough to go on holiday. We've booked and will be going in a few days but it's a 5 hour flight and I'm worried about how it might effect me. Has anyone got any advise for me?
LittleDiddle
in
Headway
6 years ago
Which therapy helped you the most?
Can people say which of these helped them the most? I don't think there's an option for adding a poll. Dopamine agonists: These are most often the first medicines used to treat RLS. These drugs, including pramipexole (Mirapex), rotigotine (Neupro), and ropinirole (Requip), act like the neurotransmitter
Can people say which of these helped them the most? I don't think there's an option for adding a poll. Dopamine agonists: These are most often the first medicines used to treat RLS. These drugs, including pramipexole (Mirapex), rotigotine (Neupro), and ropinirole (Requip), act like the neurotransmitter
Hgaguk89
in
Restless Legs Syndrome
6 years ago
Sore mouth
Can anyone who’s had mouth ulcers tell me how long they last, I’ve had them about 10 days and don’t seem to be getting any better, I’ve been using difflam 3 times a day. Only got them after the 5th chemo of carbo/caylex
Can anyone who’s had mouth ulcers tell me how long they last, I’ve had them about 10 days and don’t seem to be getting any better, I’ve been using difflam 3 times a day. Only got them after the 5th chemo of carbo/caylex
Elfed
in
My Ovacome
6 years ago
No PA or B12 deficiency but I am still going to supplement with oral B12 - should i get any other tests before this to rule out for sure?
As part of my wider investigations, Ive been looking at possibility of PA but from most of my results, i dont think I have this. Tests done incl. Active B12, Folate, Intrinsic Factor, Methylmalonic Acid (urine). All acceptable results but B12 on the low side, so i think i might as well supplement. The
As part of my wider investigations, Ive been looking at possibility of PA but from most of my results, i dont think I have this. Tests done incl. Active B12, Folate, Intrinsic Factor, Methylmalonic Acid (urine). All acceptable results but B12 on the low side, so i think i might as well supplement. The
GoingthruTreacle
in
Pernicious Anaemia Society
6 years ago
Chicken Pox
Hi, I have emphysema and practically no immune system , I am going to the pictures tomorrow with a friend who was looking after her grandson the last couple of days and yesterday she phoned to say the little fella has chicken pox and overnight had come out with loads of spots. Do you think I am in any
Hi, I have emphysema and practically no immune system , I am going to the pictures tomorrow with a friend who was looking after her grandson the last couple of days and yesterday she phoned to say the little fella has chicken pox and overnight had come out with loads of spots. Do you think I am in any
tallmama
in
Lung Conditions Community Forum
6 years ago
Higher the ANA more likely it’s Lupus?
I have gone from being treated for Lyme disease to being referred to a Rheumatologist because my ANA is 1:1280. When i’ve read up about Lupus it’s such a strong possibility. With a level this high is it more likely to be Lupus? Anyone else with ANA at this level i’d be interested in your stories. Thank
I have gone from being treated for Lyme disease to being referred to a Rheumatologist because my ANA is 1:1280. When i’ve read up about Lupus it’s such a strong possibility. With a level this high is it more likely to be Lupus? Anyone else with ANA at this level i’d be interested in your stories. Thank
Hursty77
in
LUPUS UK
6 years ago
Slowing down on Ropinirole withdrawal
Sorry not to have posted my report on withdrawing from Ropinirole at the beginning of the week but a) things weren’t that great and b) I was so busy that I didn’t have a spare minute before needing to be away for meetings for three days. Things haven’t been great as Tramadol, on the three occasions
Sorry not to have posted my report on withdrawing from Ropinirole at the beginning of the week but a) things weren’t that great and b) I was so busy that I didn’t have a spare minute before needing to be away for meetings for three days. Things haven’t been great as Tramadol, on the three occasions
RosieRow
in
Restless Legs Syndrome
6 years ago
Could this solve recurring UTIs that many of us suffer with?
Saw a lovely new GP today who may have struck gold re why I have been thwarted with recurrent UTIs for three years. Sometimes, even though there is blood in urine, results show no presence of UTI. So I was fast tracked for cancer tests, however all came back negative - thank goodness. So went to see
Saw a lovely new GP today who may have struck gold re why I have been thwarted with recurrent UTIs for three years. Sometimes, even though there is blood in urine, results show no presence of UTI. So I was fast tracked for cancer tests, however all came back negative - thank goodness. So went to see
Marilyn1959
in
PMRGCAuk
6 years ago
My dad fought to the end 💔
Yesterday, November 20th, Heaven gained an angel and we lost the most precious, loving, strongest, most irreplaceable man in my and my mom’s life. I am drowning in a sea of emotions. Am I angry? Yes. Am I sad? That doesn’t even begin to describe it. The blessing is we were with him at the hospital
Yesterday, November 20th, Heaven gained an angel and we lost the most precious, loving, strongest, most irreplaceable man in my and my mom’s life. I am drowning in a sea of emotions. Am I angry? Yes. Am I sad? That doesn’t even begin to describe it. The blessing is we were with him at the hospital
Lisam81
in
Lung Cancer Support
6 years ago
Hand foot and mouth in babies
Hello So my 7 month old baby girl has woke up with hand foot and mouth is in a terrible way. Just wanted to know if anyone else little ones have had this? And how long it took to clear up? Also did they non stop cry from it? Thankyou
Hello So my 7 month old baby girl has woke up with hand foot and mouth is in a terrible way. Just wanted to know if anyone else little ones have had this? And how long it took to clear up? Also did they non stop cry from it? Thankyou
jupiter1234
in
Pregnancy and Parenting Support
6 years ago
Thanksgiving and a Question
I thank God for this website every day since I found it. I was at my lowest of low points with RLS this summer. I had to take a leave of absence from my teaching job. I was going through augmentation and withdrawl from requip at the same time.My doctors at Johns Hopkins were not helping. They didnt
I thank God for this website every day since I found it. I was at my lowest of low points with RLS this summer. I had to take a leave of absence from my teaching job. I was going through augmentation and withdrawl from requip at the same time.My doctors at Johns Hopkins were not helping. They didnt
Jrskyhook32
in
Restless Legs Syndrome
6 years ago
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