Very frustrated with thyroid medication - Thyroid UK

Thyroid UK

140,281 members164,998 posts

Very frustrated with thyroid medication

Rosebud1955 profile image
2 Replies

Hi everyone. I’m new here, just discovered this site earlier today. I had total thyroidectom 15 months ago, haven’t been well since surgery. Difficulty regulating Levothyroxine. Gained 10 pounds since surgery, retaining lots of fluids, especially around abdominal region. I have Lyme disease and is thinking that this is interfering with the absorption of the med. tsh <0.01, t3 2.7, t4 16. Presently taking Levo 0.112 plus Cytomel 5mcg. Would appreciate some feedback. Anyone out ther with Lyme and thyroid issues? I’m desperate to get my life back.

Thanks, Rosebud1955.

Written by
Rosebud1955 profile image
Rosebud1955
To view profiles and participate in discussions please or .
Read more about...
2 Replies
greygoose profile image
greygoose

I'm afraid you're going to have to give us the ranges for those results, for anyone to understand them. Ranges vary from lab to lab. And, I don't understand your levo dose. Is that 112 mcg?

You're not on a very high dose. How do you take it? On an empty stomach, leaving at least one hour before eating or drinking anything other than water? Do you take any other medication at the same time? Do you take both your levo and T3 in the same way?

What time of day was that blood draw done? Was it early morning and fasting? TSH is highest early in the morning. :)

NealF profile image
NealF

Lyme or half a thyroid left, who knows what is making me ache so much.....

Not what you're looking for?

You may also like...

Lyme disease and Thyroid issues

Hi everyone havent posted on here for a while. I have hashimotos and now I have just had Lyme...

Thoughts on the underlying causes of Thyroid disease

I have had hypothyroidism only since having a major operation which triggered the illness. I later...

Thyroid and Lyme disease

Hi I have been receiving the Thyroid UK magazine for years now, and in the early days this support...

Thyroid medication

Hi Everyone I had a total thyroidectomy about 10 yrs ago and have been taking Synthroid (brand)...

Overactive thyroid medication

Hi just need some reassurance if I’m ok to continue what I’m doing. I’ve been diagnosed with an...