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140 mg imbruvica ,Lyme disease
Hello and merry Christmas to you all ! My wife is scheduled to start ibrutinib in January and really worried about side effects. Her health is pretty good. She’s 13q mutated 70 wbc and hemoglobin and paletets within normal range . What triggered treatment is the fact that lymph nodes in her neck are
Hello and merry Christmas to you all ! My wife is scheduled to start ibrutinib in January and really worried about side effects. Her health is pretty good. She’s 13q mutated 70 wbc and hemoglobin and paletets within normal range . What triggered treatment is the fact that lymph nodes in her neck are
Sergi
in
CLL Support
6 years ago
Are you still looking for help?
If you are wondering why you still can't get a diagnosis this may help you. Toxic Mold and Lyme Disease often go hand in hand and cause symptoms in all sorts of ways including those associated with thyroid problems. This may give you a few clues: https://toxicmoldproject.com/?idev_id=22&idev_username
If you are wondering why you still can't get a diagnosis this may help you. Toxic Mold and Lyme Disease often go hand in hand and cause symptoms in all sorts of ways including those associated with thyroid problems. This may give you a few clues: https://toxicmoldproject.com/?idev_id=22&idev_username
janeb15
in
Thyroid UK
6 years ago
Here we go again!
Another bad night with RL. I've been up and down for four hours and it looks like being a long night! I saw the doctor today and he was really positive about removing the pramipexole and agreed that it could be augmentation which have made my symptoms worse! I will decrease the p..ole and have the reboxetine
Another bad night with RL. I've been up and down for four hours and it looks like being a long night! I saw the doctor today and he was really positive about removing the pramipexole and agreed that it could be augmentation which have made my symptoms worse! I will decrease the p..ole and have the reboxetine
restlessstoz
in
Restless Legs Syndrome
6 years ago
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Exhausting! Recycling Cobblers! For a Pred Head.
Nothing joined up with this re-cyclying cobblers! As if I need to be preached at, growing up in the 50's! .. We boiled & ate our own socks (or someone else's) then! What a faff it is!..What a bloody mystery! ..Even the sodding Christmas cards which were taken down today! Bits of sparkle, tinsel & God
Nothing joined up with this re-cyclying cobblers! As if I need to be preached at, growing up in the 50's! .. We boiled & ate our own socks (or someone else's) then! What a faff it is!..What a bloody mystery! ..Even the sodding Christmas cards which were taken down today! Bits of sparkle, tinsel & God
Hidden
in
PMRGCAuk
6 years ago
Anyone with symptoms like mine?
It started with high fever, a recurring headache and red welts across my chest. I hate being ill - and hospitals - so begrudgingly went to the local hospital with my wife only to be told I had shingles and should be put in a ward immediately. However, that hospital did not a full-time skin doctor
It started with high fever, a recurring headache and red welts across my chest. I hate being ill - and hospitals - so begrudgingly went to the local hospital with my wife only to be told I had shingles and should be put in a ward immediately. However, that hospital did not a full-time skin doctor
Chopper201
in
Meningitis Now
6 years ago
Medically induced coma after cardiac arrest
This past Wednesday my dad suddenly collapsed at his friend’s house, with no previous history of any heart problem. His friend immediately started with CPR and called for help. It seems that some of his coronary arteries were blocked, which resulted in cardiac arrest. He was taken to the hospital and
This past Wednesday my dad suddenly collapsed at his friend’s house, with no previous history of any heart problem. His friend immediately started with CPR and called for help. It seems that some of his coronary arteries were blocked, which resulted in cardiac arrest. He was taken to the hospital and
FightingAngel13
in
ICUsteps
6 years ago
Shingles vaccine
My GP is recommending I get the shingles vaccine. I thought I had read that PMR (which I have) can be a side effect of the vaccine. I am asking what you think.
My GP is recommending I get the shingles vaccine. I thought I had read that PMR (which I have) can be a side effect of the vaccine. I am asking what you think.
barbthy
in
PMRGCAuk
6 years ago
Rls don’t give up
My wife has been through it all Elayne for 40 years liver transplant 19 yeArs ago, Mayo has basically given up on her, the liver gave her diabetes as it took out the pancreas, the nuclear option for her from Mayo was methadone, gabapentin which was a disaster we then went in U of M, St. Paul MN, they
My wife has been through it all Elayne for 40 years liver transplant 19 yeArs ago, Mayo has basically given up on her, the liver gave her diabetes as it took out the pancreas, the nuclear option for her from Mayo was methadone, gabapentin which was a disaster we then went in U of M, St. Paul MN, they
rdbyam
in
Restless Legs Syndrome
6 years ago
Ulcers ulcers ulcers
Bloody ulcers. Back of my nose, back of my mouth and in my throat. So sore, so painful. Tried difflam already and now some throat lozenges. Still sore. Hurts to swallow. Even just naturally without drinking. Miserable. Tell me something about your day. Thanks C
Bloody ulcers. Back of my nose, back of my mouth and in my throat. So sore, so painful. Tried difflam already and now some throat lozenges. Still sore. Hurts to swallow. Even just naturally without drinking. Miserable. Tell me something about your day. Thanks C
Papapickle
in
Behçet's UK
6 years ago
Twitching, muscle spasms and waking with whole body vibrating
I was diagnosed with Fibromyalgia a week ago after almost 2 months of severe anxiety and nervous breakdowns. I went to a neurologist, did an EEG, ECG and MRI and everything looked fine. I was prescribed Gabapentin and Amitriptyline. I'm still going through stressful days but im really concered about
I was diagnosed with Fibromyalgia a week ago after almost 2 months of severe anxiety and nervous breakdowns. I went to a neurologist, did an EEG, ECG and MRI and everything looked fine. I was prescribed Gabapentin and Amitriptyline. I'm still going through stressful days but im really concered about
SabrinaMadi
in
Living with Anxiety
6 years ago
Giving up
Okay .. so I’m going to rant. I haven’t been able to get any sleep lately and the only time I do is if I take a bunch of medication to sleep which isn’t good for me. I’m still taking the second lowest dose of mirapex and it’s not doing anything at all.. taking magnesium 200mg a night and cutting back
Okay .. so I’m going to rant. I haven’t been able to get any sleep lately and the only time I do is if I take a bunch of medication to sleep which isn’t good for me. I’m still taking the second lowest dose of mirapex and it’s not doing anything at all.. taking magnesium 200mg a night and cutting back
Kittykat1234
in
Restless Legs Syndrome
6 years ago
Pregabalin users
Hi I've just finished withdrawal from Pramipexole now I'm taking Pregabalin 75mg along with Targinact 5mg/1.25mg prolonged release. I have been taking Pregabalin for a month but they don't seem to be working, I'm trying to get an at for my doctor tomorrow, is there anything else I should be taken to
Hi I've just finished withdrawal from Pramipexole now I'm taking Pregabalin 75mg along with Targinact 5mg/1.25mg prolonged release. I have been taking Pregabalin for a month but they don't seem to be working, I'm trying to get an at for my doctor tomorrow, is there anything else I should be taken to
7681
in
Restless Legs Syndrome
6 years ago
Has anyone tried memantine for restless legs?
I don’t have RLS, but my husband does, and I feel like it is stealing our lives. It has caused mood dysregulation and fatigue. The pramipexole he has been taking is not as effective, and I’m searching for another answer. I’m very intrigued by the glutamate hypothesis and therefore am interested in
I don’t have RLS, but my husband does, and I feel like it is stealing our lives. It has caused mood dysregulation and fatigue. The pramipexole he has been taking is not as effective, and I’m searching for another answer. I’m very intrigued by the glutamate hypothesis and therefore am interested in
Cabaker
in
Restless Legs Syndrome
6 years ago
Spinal cord stimulator for RLS?
My pain doctor who is prescribing me my tramadol and Lyrica is considering a spinal cord stimulator as a possible way to control this. Does anybody know anything about using a spinal cord stimulator for RLS? I tried doing a search on here but nothing came up.
My pain doctor who is prescribing me my tramadol and Lyrica is considering a spinal cord stimulator as a possible way to control this. Does anybody know anything about using a spinal cord stimulator for RLS? I tried doing a search on here but nothing came up.
LanaCSR
in
Restless Legs Syndrome
6 years ago
No restless legs
Four weeks without restless leg! How amazing! I broke my femur and have been on morphine, but now my patch has run out and it’s back with avengeance! There must be a strong painkiller that’s not addictive?
Four weeks without restless leg! How amazing! I broke my femur and have been on morphine, but now my patch has run out and it’s back with avengeance! There must be a strong painkiller that’s not addictive?
Bee27
in
Restless Legs Syndrome
6 years ago
refractory RLS, taking morphine
I have been almost two weeks on time release morphine 30 mg, which I take about 7 PM, and it lasts 12 hours, to help me sleep. I tried 15 mg, which worked for about 6 nights, and then worked less and less until not working at all. (During the last three months, I got off 1 mg of pramipexole, and I
I have been almost two weeks on time release morphine 30 mg, which I take about 7 PM, and it lasts 12 hours, to help me sleep. I tried 15 mg, which worked for about 6 nights, and then worked less and less until not working at all. (During the last three months, I got off 1 mg of pramipexole, and I
byrnzy4
in
Restless Legs Syndrome
6 years ago
Restless Legs Medication
I have severe RLS and tried several dopamine type medicins. Unfortunately severe augemntation after several months. I needed more and more.. Consequences: RLS symptoms started during the day more severe and also in arms.. Thereafter I have been on Neupro and Lyrica. It seems that I get augmentation
I have severe RLS and tried several dopamine type medicins. Unfortunately severe augemntation after several months. I needed more and more.. Consequences: RLS symptoms started during the day more severe and also in arms.. Thereafter I have been on Neupro and Lyrica. It seems that I get augmentation
brt53
in
Restless Legs Syndrome
6 years ago
Hand Foot and mouth disease
Does anyone know if there are any problems with hand foot and mouth disease as a sufferer of MPO Vasculitis? My son has it (he works in schools). As my immunity is suppressed I am concerned of any complications if I catch it!! Any advice would be appreciated. Thank you.
Does anyone know if there are any problems with hand foot and mouth disease as a sufferer of MPO Vasculitis? My son has it (he works in schools). As my immunity is suppressed I am concerned of any complications if I catch it!! Any advice would be appreciated. Thank you.
Webbyj
in
Vasculitis UK
6 years ago
Swing and a Miss
I have FND. I have had it since I was a baby, or at least as far back as my mind can take me. I don't recall ever not having this condition now that I know what it is I should have been looking for to identify it. That said, I am getting worse. Much worse. Last March I was told my degenerating condition
I have FND. I have had it since I was a baby, or at least as far back as my mind can take me. I don't recall ever not having this condition now that I know what it is I should have been looking for to identify it. That said, I am getting worse. Much worse. Last March I was told my degenerating condition
Gud4Ewe
in
Functional Neurological Disorder - FND Hope
6 years ago
Made it through the "holiday" (many thanks for your support) - what now?
I am on day 40 of my rehab, first 15 days of a "holiday" from Pram (I hate the term because the experience is really is the torture of sleep deprivation, but I am thankful for the support I received from many of you), 25 days searching for a combination of meds and dosages to replace Pram. I live in
I am on day 40 of my rehab, first 15 days of a "holiday" from Pram (I hate the term because the experience is really is the torture of sleep deprivation, but I am thankful for the support I received from many of you), 25 days searching for a combination of meds and dosages to replace Pram. I live in
dontsleepmuch
in
Restless Legs Syndrome
6 years ago
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