I’ve not been able to post earlier as I was without Internet access for three weeks – what did we do before we had it!!!
I am now down to 0.25mg Ropinirole. I’m glad I didn’t keep reducing when I was coming up to the concert (which went well enough!). But reduced that night and again six days later and will stop after a further five days so the last dose is tomorrow night!.
I saw the neurologist. I was somewhat disappointed. His manner was not exactly warm or caring and, effectively, he implied that I knew all I needed to know and he could tell me nothing more.
The only strange comment (and I’m yet to receive his letter to know if I really did get this right) is that DAs are one thing but dopamine itself might help. Has anyone tried dopamine (Parkinson’s drug)?
However, he suggested that, as tramadol was not having the helpful effect I’d hoped for, I could use Oxycodone. I saw my GP and he prescribed both Shortec 5mg, the immediate release capsule lasting for 4 hours and Longtec, the prolonged release tablet to last 12 hours, commenting that people can react differently to them.
Longtec worked wonderfully the first night but, since then, only tends to last 5-6 hours. After a week I’ve settled down to taking a 5mg Shortec at night, plus 30mg codeine and this seems to be lasting through the night and giving me really good sleep. However the RLS now comes on in the afternoon if I’m not constantly active so yesterday I took a Longtec at 3pm and a Shortec plus 30mg codeine at 9.30pm and that worked really well. I don’t really want to get up early in the morning but, as I’m retired, I don't always have to do so!
My GP is still being fantastic. I still can’t decide whether to try Gabapentin or Pregabalin. I’d originally thought Pregabalin as I don't have pain but just the constant urge to move my legs, arms, body, but wonder if trying Gabapentin first might be better. Any thoughts?
Hope all your preparations for Christmas are going well.