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2 months down the line :-)
I thought I'd add an update on no confirmed diagnosis as yet, we're now another 2 months done the line and still no where near a diagnosis, apparently I'm a bit of a conundrum - well my Mother always said "Born bloody awkward, still bloody awkward" - and Addenbrooke's is talking about a grumbling vasculitis
I thought I'd add an update on no confirmed diagnosis as yet, we're now another 2 months done the line and still no where near a diagnosis, apparently I'm a bit of a conundrum - well my Mother always said "Born bloody awkward, still bloody awkward" - and Addenbrooke's is talking about a grumbling vasculitis
Sima1952
in
Vasculitis UK
11 years ago
Co drydamol??
I am taking co codamol 30/500mg four times per day depending on rate of pain, sometimes only three times. They do not seem to give as much pain relief as they used to. My daughter has suggested I ask my GP for co drydamol as they are much stronger. I have done a little research and it states they are
I am taking co codamol 30/500mg four times per day depending on rate of pain, sometimes only three times. They do not seem to give as much pain relief as they used to. My daughter has suggested I ask my GP for co drydamol as they are much stronger. I have done a little research and it states they are
superannie
in
Pain Concern
11 years ago
I had my coccyx removed in march 2012 after a fall onto my bottom in 2009.
i have been told that i should of recovered by now and been able to return back to work and should be able to lead a normal life.I wish this was the case.due to a stomach hernia i have been unable to take anti inflammatory tablets and have relied on co codamol 30/500 and tramadol taking both at the same
i have been told that i should of recovered by now and been able to return back to work and should be able to lead a normal life.I wish this was the case.due to a stomach hernia i have been unable to take anti inflammatory tablets and have relied on co codamol 30/500 and tramadol taking both at the same
nikki68
in
Pain Concern
11 years ago
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The vagueness intensifies!
I had another visit to the Rheumy today. I could hardly walk due to severe pain and stiffness in my knees and felt dreadful too - you know when your RA is bad and you feel like you have flu and want to hurl etc? Yeah that. Anyway he had a prod at my joints and told me I must still stay off the Humira
I had another visit to the Rheumy today. I could hardly walk due to severe pain and stiffness in my knees and felt dreadful too - you know when your RA is bad and you feel like you have flu and want to hurl etc? Yeah that. Anyway he had a prod at my joints and told me I must still stay off the Humira
Dogrose
in
NRAS
11 years ago
What (If any) pain medication works for you?
I take co-codamol and Naproxyn, I think the Naproxyn makes a slight difference but I still have lots of stiffness and pain, I want to see my GP to ask her to look at prescribing something more effective.....but what? So What works for you?
I take co-codamol and Naproxyn, I think the Naproxyn makes a slight difference but I still have lots of stiffness and pain, I want to see my GP to ask her to look at prescribing something more effective.....but what? So What works for you?
Kasha
in
Fibromyalgia Action UK
11 years ago
Does anyone suffer with itching inside and outside the ear and what is the best treatment to use?
I have read previously of a link to PBC of itching of the ear and this is what I have put it down to. I suffer intermittently with this problem so I suppose I am fortunate in a way that it does not happen all the time (every 3/4 months).... I don't get itching any where else. I get severe itching inside
I have read previously of a link to PBC of itching of the ear and this is what I have put it down to. I suffer intermittently with this problem so I suppose I am fortunate in a way that it does not happen all the time (every 3/4 months).... I don't get itching any where else. I get severe itching inside
mumofthree
in
PBC Foundation
11 years ago
Any tips for when applying for DLA?
I have applied for DLA before and got rejected. I didn't appeal because I didn't see the point. According to them I'm not disabled. Since then I have been seen by a pain management team, a cognitive behavioural therapist and an occupational therapist. Here's a list of my health problems.. Endo (non-active
I have applied for DLA before and got rejected. I didn't appeal because I didn't see the point. According to them I'm not disabled. Since then I have been seen by a pain management team, a cognitive behavioural therapist and an occupational therapist. Here's a list of my health problems.. Endo (non-active
missteal
in
Endometriosis UK
11 years ago
little victory
today I have done something I havent been able to do for nearly a year...... run. saw mike my g.p on wednesday and had my medications changed, little cocktail now of omeperazole, ibuprofen and also co codamol 15/500 and voila pain eased and then did 7 k on the tredmil. mixture of walk, jog, run and
today I have done something I havent been able to do for nearly a year...... run. saw mike my g.p on wednesday and had my medications changed, little cocktail now of omeperazole, ibuprofen and also co codamol 15/500 and voila pain eased and then did 7 k on the tredmil. mixture of walk, jog, run and
scoobydoo1
in
LUPUS UK
11 years ago
Numb face
Does anyone else get this in the morning? Numb but slightly tingly face, lips, mouth, cheeks. It's a bit like when you have had an injection at the dentist but twenty mins after procedure it starts to wear off and feel sort of 'spongy and tingly' I can't describe it better than that!!! It's also the
Does anyone else get this in the morning? Numb but slightly tingly face, lips, mouth, cheeks. It's a bit like when you have had an injection at the dentist but twenty mins after procedure it starts to wear off and feel sort of 'spongy and tingly' I can't describe it better than that!!! It's also the
spidey
in
Fibromyalgia Action UK
11 years ago
Please can you help?
Hi I'm 25 and just been diagnosed with severe endo after having a 15cm chocolate cyst out. I've suffered with lower back, hip and knee pain. The back pain is the worst reducing me to tears when walking or standing for more than 5 mins it feels like my bones are crushing. is this due to endo? And also
Hi I'm 25 and just been diagnosed with severe endo after having a 15cm chocolate cyst out. I've suffered with lower back, hip and knee pain. The back pain is the worst reducing me to tears when walking or standing for more than 5 mins it feels like my bones are crushing. is this due to endo? And also
cejay-wiffen
in
Endometriosis UK
11 years ago
A good night's sleep? Whaaaaaaaaaaat? An average morning on the life of a fibro fighter.
Asleep by twelve, snuggling down on my memory foam mattress, head on new fluffy pillows, Ahhhhhhhhhhhhh. Awake at sixam, seventhirtyam nineam, up at tenthirty. Should have gotten up at six thirty as I did not hurt, tramadol still working. Instead stayed stubbornly put till ten thirty by which time dog
Asleep by twelve, snuggling down on my memory foam mattress, head on new fluffy pillows, Ahhhhhhhhhhhhh. Awake at sixam, seventhirtyam nineam, up at tenthirty. Should have gotten up at six thirty as I did not hurt, tramadol still working. Instead stayed stubbornly put till ten thirty by which time dog
spidey
in
Fibromyalgia Action UK
11 years ago
Positive at last!
Hi Everyone. Just an update and some positive news. Some of you might remember from previous posts that I've seriously struggled for many years and had an absolutely awful time last year, I went to see the Prof D'cRUZ at St Thomas. After a nasty flare last year I never felt as if I fully recovered
Hi Everyone. Just an update and some positive news. Some of you might remember from previous posts that I've seriously struggled for many years and had an absolutely awful time last year, I went to see the Prof D'cRUZ at St Thomas. After a nasty flare last year I never felt as if I fully recovered
Dumpypug
in
LUPUS UK
11 years ago
My recent Thyroid function test results. Not improving apart from having lower TSH.
My recent test results from 22nd of March are as follow: ( I discontinued my NDT for 24 hours prior blood test, so not result are unlikely to be skewed this time) TSH - 1.7 ---------------- ref ( 0.3 - 5) LOW: Free T4 -11---------------- ref ( 9-22) Free T3 - 4.4--------------- ref( 3.5
My recent test results from 22nd of March are as follow: ( I discontinued my NDT for 24 hours prior blood test, so not result are unlikely to be skewed this time) TSH - 1.7 ---------------- ref ( 0.3 - 5) LOW: Free T4 -11---------------- ref ( 9-22) Free T3 - 4.4--------------- ref( 3.5
Hidden
in
Thyroid UK
11 years ago
Still in limbo..
And no, I'm not shimmying under poles, not any more :-/ I had a follow up with the opthamologist and need more steroid drops as the scleritis has come back. Finally have an appointment through to see my Rheumy, he has sent me another letter saying still stay off the Humira (he knows I have a fridge
And no, I'm not shimmying under poles, not any more :-/ I had a follow up with the opthamologist and need more steroid drops as the scleritis has come back. Finally have an appointment through to see my Rheumy, he has sent me another letter saying still stay off the Humira (he knows I have a fridge
Dogrose
in
NRAS
11 years ago
painful knee again :(
evening fellow loopies, as some of you know i have "knackered knees" (the technical term used by my lupus nurse!) caused by being a sporty girl at school (many moons ago now) and i now live with painful knees that ache in cold weather and high summer temps aswell. my knee caps pop sideways easily
evening fellow loopies, as some of you know i have "knackered knees" (the technical term used by my lupus nurse!) caused by being a sporty girl at school (many moons ago now) and i now live with painful knees that ache in cold weather and high summer temps aswell. my knee caps pop sideways easily
caninecrazy
in
LUPUS UK
11 years ago
Dare I add a modicum of realism here
I am NOT against supplements if we have been advised them by our GPs or tests show us to be lacking in something.... But if you look around there are millions of people out there without fibro whose diets are probably a lot worse than ours and they are having a much healthier time than we are with our
I am NOT against supplements if we have been advised them by our GPs or tests show us to be lacking in something.... But if you look around there are millions of people out there without fibro whose diets are probably a lot worse than ours and they are having a much healthier time than we are with our
Hidden
in
Fibromyalgia Action UK
11 years ago
My ankle hurts :(
Hello everyone, hope you're all well. I'm having a bit of a faff on with my ankle at the moment and it hurts, really hurts :( The arthrits in my ankle isn't RA anymore apparently. There's been so much damage that its turned to OA which frustrates me even more. The problem I find with OA is
Hello everyone, hope you're all well. I'm having a bit of a faff on with my ankle at the moment and it hurts, really hurts :( The arthrits in my ankle isn't RA anymore apparently. There's been so much damage that its turned to OA which frustrates me even more. The problem I find with OA is
little_em18
in
NRAS
11 years ago
How do you guys cope with headaches?
I am very lucky in that headache is not normally on my list of fibro fun. I know some of you suffer badly. Today though I have a doozy, first in a long time. Any tips? I have taken my usual one morning gabapentin and two co codamol but so far no luck. It's one of the 'alldown one side behind the ear
I am very lucky in that headache is not normally on my list of fibro fun. I know some of you suffer badly. Today though I have a doozy, first in a long time. Any tips? I have taken my usual one morning gabapentin and two co codamol but so far no luck. It's one of the 'alldown one side behind the ear
spidey
in
Fibromyalgia Action UK
11 years ago
Apparently people with lupus dont need painkillers!!
Hi everyone I wrote yesterday about going to see a neurologist and thought I would let you know how I got on. First of all it was a major drama trying to get to the hospital, I had to take the afternoon off work and had arranged for someone to cover me. The person who usually covers my lunch from
Hi everyone I wrote yesterday about going to see a neurologist and thought I would let you know how I got on. First of all it was a major drama trying to get to the hospital, I had to take the afternoon off work and had arranged for someone to cover me. The person who usually covers my lunch from
Dumpypug
in
LUPUS UK
11 years ago
Blurred vision
I have Fibro CF I take co codamol and the last two months 10mg nortryptaline. Last week my Dr upped it to 15mg, from this Monday I have been getting blurred vision and even more sensitive to light. I have took it down to 5mg, still off with the vision.And I am more unsteady on my feet then usual. Please
I have Fibro CF I take co codamol and the last two months 10mg nortryptaline. Last week my Dr upped it to 15mg, from this Monday I have been getting blurred vision and even more sensitive to light. I have took it down to 5mg, still off with the vision.And I am more unsteady on my feet then usual. Please
Tray
in
Fibromyalgia Action UK
11 years ago
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