I had another visit to the Rheumy today. I could hardly walk due to severe pain and stiffness in my knees and felt dreadful too - you know when your RA is bad and you feel like you have flu and want to hurl etc? Yeah that.
Anyway he had a prod at my joints and told me I must still stay off the Humira until he has talked to the Neurologist again. Even though he emphasised the spots that indicated bleed damage were tiny and may be very old. I think they are communicating via message tortoise.
So I'm back on Prednisolone, which is a relief and scary at the same time, but at the end of the day severe joint inflammation and pain or the risk of thinning bones and other steroid side effects? I choose steroids, they do seem to work really well for me.
I have to see him in four or five weeks, he said he may keep me on 10mg Pred more long term. It seems to be the only drug out of the many I have tried that has had any effect at all on my RA. Shame I can't find something long-term that works as well.
Rheumy was rather mournful of the fact I had tried and failed at so many drugs. I hope I don't turn into one of those patients that make a doctor's heart sink when they walk through the door! There are some things I wish I had asked him now, will have to write them down next time.
I came home, took 20mg of Pred and some co-codamol and had a sleep. Woke up feeling massively better than I felt in a while. I should be able to cope with the last two weeks of work now, I was dreading it as my knees made it almost impossible to walk. I nearly fainted walking to work on Friday, the road and pavement were spinning and I started to go but managed to hold it off. and get there.
Hope everyone is doing as well as they can,