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Kidney failure
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Another EGFR Formula "flaw"
My doctors all (5 different specialties) tell me to monitor my Creatinine and not my egfr as the egfr formula is not a great reflections of actual kidney function (it does not consider other medical conditions, other medications, one or two kidneys, labels people as having CKD while their Creatinine
My doctors all (5 different specialties) tell me to monitor my Creatinine and not my egfr as the egfr formula is not a great reflections of actual kidney function (it does not consider other medical conditions, other medications, one or two kidneys, labels people as having CKD while their Creatinine
RickHow
in
Early CKD Support
3 years ago
First setback...W7R1
Hi Couch to 5K community...this is my first post after having followed the group for quite some time. This is an incredibly helpful community, thanks everyone for sharing! So I started the program a few weeks ago and I enjoy every run. I am taking my dog Ella with me who is an incredible companion. Alongside
Hi Couch to 5K community...this is my first post after having followed the group for quite some time. This is an incredibly helpful community, thanks everyone for sharing! So I started the program a few weeks ago and I enjoy every run. I am taking my dog Ella with me who is an incredible companion. Alongside
NESTR
in
Couch to 5K
3 years ago
How we grow and empathise through shared story
It's UK Kidney Week #UKKW2021 which really means there happens to be a big virtual conference happening in the renal community this week. I'm thrilled to be part of the conversation in self care with a brilliant human chairing, Dr Kate Bramham, on Friday. Kate was the on ward consultant last September
It's UK Kidney Week #UKKW2021 which really means there happens to be a big virtual conference happening in the renal community this week. I'm thrilled to be part of the conversation in self care with a brilliant human chairing, Dr Kate Bramham, on Friday. Kate was the on ward consultant last September
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
3 years ago
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gfr results
Last year I received a telephone call from my GP advising me I had stage 2 CKD and was told to carry on my normal diet and have another blood test in one year. My GFR results were around the mid 50's for 3 years previous although nothing was mentioned to me by my GP. No other information was given
Last year I received a telephone call from my GP advising me I had stage 2 CKD and was told to carry on my normal diet and have another blood test in one year. My GFR results were around the mid 50's for 3 years previous although nothing was mentioned to me by my GP. No other information was given
barneyfrances
in
Early CKD Support
3 years ago
Hospital acquired pneumonia…😰
Not having much luck this past week. First they detect diastolic dysfunction in my ticket which needs sorting before any transplant can happen NOW they tell me i acquired pneumonia in hospital. Tried phoning the samaritans but they hung up..😂😂😂😂 Stay safe everyone.. xx
Not having much luck this past week. First they detect diastolic dysfunction in my ticket which needs sorting before any transplant can happen NOW they tell me i acquired pneumonia in hospital. Tried phoning the samaritans but they hung up..😂😂😂😂 Stay safe everyone.. xx
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
Bio-artificial kidney
Hello everyone I hope you're doing good. 😊 Do you think this permanent cure (bio-artificial kidney) is possible anytime soon? It's supposed to replace dialysis and even kidney transplant. I know the concept has been around for a few years now and didn't get anywhere for various reasons, but it seems
Hello everyone I hope you're doing good. 😊 Do you think this permanent cure (bio-artificial kidney) is possible anytime soon? It's supposed to replace dialysis and even kidney transplant. I know the concept has been around for a few years now and didn't get anywhere for various reasons, but it seems
Sharam
in
Kidney Disease
3 years ago
Alcoholic experiencing liver tenderness and random pains yet ultrasound and bloods do not indicate cirrhosis.
I’ve had shoulder pain, random liver pains and occasionally my lower right rib cage is tender to even touch. I explained my concerns to my doctor, had blood screening and full abdominal ultrasound, gallbladder, liver, kidneys, aorta etc we’re all within the norm, the spleen slightly on the large side
I’ve had shoulder pain, random liver pains and occasionally my lower right rib cage is tender to even touch. I explained my concerns to my doctor, had blood screening and full abdominal ultrasound, gallbladder, liver, kidneys, aorta etc we’re all within the norm, the spleen slightly on the large side
Marleythecat
in
British Liver Trust
3 years ago
I graduated on Sunday!
Finally! For me, this is actually the second time I graduated. I started during the first lockdown last year. I then got Covid, so had to stop, then restart. Spring 2020 also coincided with my moving to a different area, so with all the prepping for moving, I did not complete it until after the move.
Finally! For me, this is actually the second time I graduated. I started during the first lockdown last year. I then got Covid, so had to stop, then restart. Spring 2020 also coincided with my moving to a different area, so with all the prepping for moving, I did not complete it until after the move.
doonhamer74
in
Couch to 5K
3 years ago
Discussed water consumption with my kidney doctor
I'm 72, stage 3 (sometimes a, sometimes b). I see my kidney doctor every few months. Not much purpose to see more often as there really are no medications, tests, etc., that are going to change anything. She just likes to test my urine and blood every few months to see how things are going. This
I'm 72, stage 3 (sometimes a, sometimes b). I see my kidney doctor every few months. Not much purpose to see more often as there really are no medications, tests, etc., that are going to change anything. She just likes to test my urine and blood every few months to see how things are going. This
RickHow
in
Early CKD Support
3 years ago
Acute kidney injury , worried!!
Hi all, my brother has been found to have thromobotic microangiopathy (on kidney biopsy) secondary to APS and likely complement dysregulation. He is on dialysis and plasma exchange. Doctors are saying the kidney injury is reversible but will take time. Anyone can throw some light on what to expect as
Hi all, my brother has been found to have thromobotic microangiopathy (on kidney biopsy) secondary to APS and likely complement dysregulation. He is on dialysis and plasma exchange. Doctors are saying the kidney injury is reversible but will take time. Anyone can throw some light on what to expect as
Akam
in
Kidney Dialysis
3 years ago
Low pressure during Dialysis
I am on dialysis for almost 11 years. My blood pressure is falling during dialysis and can not fullfill the ultrafiltration target and reach my dry weght. My pressure remain normal troughout the week 120/80.. Do any one tell me why this is happening? Is it any symptom of any heart problem (though my
I am on dialysis for almost 11 years. My blood pressure is falling during dialysis and can not fullfill the ultrafiltration target and reach my dry weght. My pressure remain normal troughout the week 120/80.. Do any one tell me why this is happening? Is it any symptom of any heart problem (though my
Sabuj
in
Dialysis Support
3 years ago
Issues with elevated blood markers
Anyone else having issues after kidney transplant and with their Creatine being elevated and blood work off. Had vaccine plus booster. 4 months post op
Anyone else having issues after kidney transplant and with their Creatine being elevated and blood work off. Had vaccine plus booster. 4 months post op
Lm371260
in
Kidney Transplant
3 years ago
how long between ocrevus
I have been so busy,my husband has been a very sick boy,he has to have heart valve repair work done, he is on dialysis 3 days a week and they are pulling 4 to 5 # of fluid off time 3 days a week.he has heart
failure
and
kidney
failure.can't do heart surgery until he is stable.soooo my 6 month appt for
I have been so busy,my husband has been a very sick boy,he has to have heart valve repair work done, he is on dialysis 3 days a week and they are pulling 4 to 5 # of fluid off time 3 days a week.he has heart
failure
and
kidney
failure.can't do heart surgery until he is stable.soooo my 6 month appt for
pamgarner
in
My MSAA Community
3 years ago
Richter transformation of CLL: a British Society for Haematology Good Practice Paper
This best practice paper, written by some of the best and most respected CLL experts in the UK and published on 4th October 2021 following a review of all the evidence and clinical trials available, should form the basis for the treatment of Richter's Syndrome in hospitals in the UK. Details here:
This best practice paper, written by some of the best and most respected CLL experts in the UK and published on 4th October 2021 following a review of all the evidence and clinical trials available, should form the basis for the treatment of Richter's Syndrome in hospitals in the UK. Details here:
Jm954
Administrator
in
CLL Support
3 years ago
Bowel and leg/stomach pain
Any one suffering with toilet troubles - even when not on period or due on. suffering with really heavy legs and sore stomach aches when either constipated or the other way. (sorry for TMI) its becoming more of a regular pain now nearly almost daily. not sure if it is related or anyone else is suffering
Any one suffering with toilet troubles - even when not on period or due on. suffering with really heavy legs and sore stomach aches when either constipated or the other way. (sorry for TMI) its becoming more of a regular pain now nearly almost daily. not sure if it is related or anyone else is suffering
EQAC
in
Endometriosis UK
3 years ago
liver scan today
Well after being told last year I have NAFLD and further blood tests this year saying it has gone from moderate to severe ! The scan today shows I do not have a fatty liver ? Has anyone had this before ?? I obviously need to go back to GP to understand why my blood show differently
Well after being told last year I have NAFLD and further blood tests this year saying it has gone from moderate to severe ! The scan today shows I do not have a fatty liver ? Has anyone had this before ?? I obviously need to go back to GP to understand why my blood show differently
Tiaday
in
British Liver Trust
3 years ago
Tacrolimus side effects
Hello I was diagnosed with membranous nephropathy which causes protein leackage through urine. I was wondering about your experience with common side effects of this medication. I am very worried because I am a phd student in my final year and need to work very hard on my studies
Hello I was diagnosed with membranous nephropathy which causes protein leackage through urine. I was wondering about your experience with common side effects of this medication. I am very worried because I am a phd student in my final year and need to work very hard on my studies
Jabrahk
in
LUPUS UK
3 years ago
Update on just when you think things could not get any worse
My husband crashed this afternoon while I was there. They got him back and he on the way to St Thomas’s his kidney has started to fail. He has pneumonia. I am cross at the moment because if he been treated with antibiotics sooner none of this would have happened x
My husband crashed this afternoon while I was there. They got him back and he on the way to St Thomas’s his kidney has started to fail. He has pneumonia. I am cross at the moment because if he been treated with antibiotics sooner none of this would have happened x
alyvonne
in
Lung Conditions Community Forum
3 years ago
Parathyroidectomy
My pth was 1500 and calcium 11.5 Sergon could only remove one parathyroid gland. After limited parathyroidectomy My pth is still 1500 but calcium reduced to 7.2 What should i do now?
My pth was 1500 and calcium 11.5 Sergon could only remove one parathyroid gland. After limited parathyroidectomy My pth is still 1500 but calcium reduced to 7.2 What should i do now?
Sabuj
in
Dialysis Support
3 years ago
Drugs
Is there a drug for a. fib , heart
failure
and chronic
kidney
disease that doesn't damage the kidneys. I have done endless searches and cannot find one. It seems what is good for a.fib and the heart damages the kidneys.
Is there a drug for a. fib , heart
failure
and chronic
kidney
disease that doesn't damage the kidneys. I have done endless searches and cannot find one. It seems what is good for a.fib and the heart damages the kidneys.
Dollcollector
in
AF Association
3 years ago
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