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Interesting transplant discussion tomorrow night
Sharing that I am hosting what I hope will be a great Zoom discussion tomorrow Jan. 23 featuring Robert Kolker ("Hidden Valley Road"), a New York Times Best-Selling author and Oprah's Book Club pick and the author of the viral 2021 New York Times Magazine article, "Who is the Bad Art Friend" (https:/
Sharing that I am hosting what I hope will be a great Zoom discussion tomorrow Jan. 23 featuring Robert Kolker ("Hidden Valley Road"), a New York Times Best-Selling author and Oprah's Book Club pick and the author of the viral 2021 New York Times Magazine article, "Who is the Bad Art Friend" (https:/
EmilyKidney
in
PKD Charity for Autosomal Dominant PKD
1 year ago
interesting tweet on Lu-177
cycle 17 of Lu-177 in Australia and still benefitting! Like the socks too! Normal bloods and renal function too wow shows ‘one size fits all’ decision making on treatment protocols has to be challenged imo
cycle 17 of Lu-177 in Australia and still benefitting! Like the socks too! Normal bloods and renal function too wow shows ‘one size fits all’ decision making on treatment protocols has to be challenged imo
Brysonal
in
Fight Prostate Cancer
1 year ago
5 Ways to Help Your Friend or Family Member with Kidney Failure
Learn how you can lend a helping hand to a loved one with CKD. https://www.kidney.org/newsletter/5-ways-to-help-your-friend-or-family-member-
kidney
-
failure
Learn how you can lend a helping hand to a loved one with CKD. https://www.kidney.org/newsletter/5-ways-to-help-your-friend-or-family-member-
kidney
-
failure
JackieJ_NKF
Partner
in
Kidney Donation
2 years ago
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MY DIAGNOSIS FROM TODAY'S VISIT
UPDATE FROM TODAYS APPOINMENT WITH KIDNEY DR. Chronic kidney disease, stage IV (severe) (HCC) - Primary Essential hypertension Hypervolemia associated with renal insufficiency Anemia of chronic renal failure, unspecified CKD stage Other iron deficiency anemias Secondary hyperparathyroidism (HCC
UPDATE FROM TODAYS APPOINMENT WITH KIDNEY DR. Chronic kidney disease, stage IV (severe) (HCC) - Primary Essential hypertension Hypervolemia associated with renal insufficiency Anemia of chronic renal failure, unspecified CKD stage Other iron deficiency anemias Secondary hyperparathyroidism (HCC
MSTAUF
in
Early CKD Support
1 year ago
now joining the blood pressure meds gang
I’ll be 71 in May so think I’ve done extremely well to avoid having to go onto BP medication until now! I’ve been prescribed Indapamide & been told to have bloods redone in 2 weeks time to make sure it hasn’t affected my kidneys. ✌️It doesn’t as my kidney function is currently fine. My cholesterol
I’ll be 71 in May so think I’ve done extremely well to avoid having to go onto BP medication until now! I’ve been prescribed Indapamide & been told to have bloods redone in 2 weeks time to make sure it hasn’t affected my kidneys. ✌️It doesn’t as my kidney function is currently fine. My cholesterol
Doraflora
in
PMRGCAuk
1 year ago
GFR levels post transplant
hi, anyone got any idea as to what their GFR level, or creatinine or urea levels in blood were 2 years onwards post Tx. I was shocked today to find my GFR is 32 and until now no one has ever uttered chronic liver disease Stage 3b. That can’t just happen over night and GFR results hasn’t been listed
hi, anyone got any idea as to what their GFR level, or creatinine or urea levels in blood were 2 years onwards post Tx. I was shocked today to find my GFR is 32 and until now no one has ever uttered chronic liver disease Stage 3b. That can’t just happen over night and GFR results hasn’t been listed
Braveheart65
in
British Liver Trust
1 year ago
4-th line of chemo
Hello brave ladies. I would appreciate your experience concerning chemo protocol: Gemzar+ Oxaliplatine. Unefortunately and despite the inhibitor PARP (NIraparib) taken from 7 weeks now, my marker goes up rapidly and I will be facing the 4-th round of chemo called "gemox". At the same time I've developped
Hello brave ladies. I would appreciate your experience concerning chemo protocol: Gemzar+ Oxaliplatine. Unefortunately and despite the inhibitor PARP (NIraparib) taken from 7 weeks now, my marker goes up rapidly and I will be facing the 4-th round of chemo called "gemox". At the same time I've developped
Reksio77
in
My Ovacome
1 year ago
Preventative Antibiotics
Hi all, I've been a GCA patient since AUG 2022 and am currently on 40 MG PRED (down from 60, then 50). My rheumy is concerned about my immune system and has prescribed a preventative course of atovaquone to protect me from pneumonia -- even though I've recently had the pneumonia vaccine, He prescribed
Hi all, I've been a GCA patient since AUG 2022 and am currently on 40 MG PRED (down from 60, then 50). My rheumy is concerned about my immune system and has prescribed a preventative course of atovaquone to protect me from pneumonia -- even though I've recently had the pneumonia vaccine, He prescribed
montebello
in
PMRGCAuk
1 year ago
What do I ask kidney Dr. on next appointment ?
HI I see my kidney DR. again this Friday Jan 12 th. I had the lab work last Friday , I read the results on my chart on line today. I see many flags in the tests . I need to be asking questons what they all mean. My hemoglobin came up to 11,5 it is flaged ,creatinine external 37 mg . creatinine
HI I see my kidney DR. again this Friday Jan 12 th. I had the lab work last Friday , I read the results on my chart on line today. I see many flags in the tests . I need to be asking questons what they all mean. My hemoglobin came up to 11,5 it is flaged ,creatinine external 37 mg . creatinine
MSTAUF
in
Early CKD Support
2 years ago
Memory loss
Hiya, To give you some background. 6 years ago my husband was put into a coma with liver,
kidney
and lung
failure
. He was diagnosed with Chirrosis and stopped drinking for 6 months after his 4 month stint in hospital . He has been in denial about his illness.
Hiya, To give you some background. 6 years ago my husband was put into a coma with liver,
kidney
and lung
failure
. He was diagnosed with Chirrosis and stopped drinking for 6 months after his 4 month stint in hospital . He has been in denial about his illness.
dizti
in
British Liver Trust
1 year ago
More shocking news
Latest diagnosis. After been diagnosed with A fib after an emergency visit to hospital 6 weeks ago I was put on beta blockers and blood anticoagulant. After experiencing months of breathlessness. Thought I had a chest infection. No improvement! This appointment with the cardiologist I had an echocardiogram
Latest diagnosis. After been diagnosed with A fib after an emergency visit to hospital 6 weeks ago I was put on beta blockers and blood anticoagulant. After experiencing months of breathlessness. Thought I had a chest infection. No improvement! This appointment with the cardiologist I had an echocardiogram
Poorlizzie
in
AF Association
2 years ago
Catheter
good day to all you wonderful ladies I hope the sun is shining on you all My question is I have been having ureteric stents for the past 5yrs two weeks ago I had my stent changed to a Memokath stent (metal) others were plastic the metal stent lasts up to 10yrs where as the plastic need changing every
good day to all you wonderful ladies I hope the sun is shining on you all My question is I have been having ureteric stents for the past 5yrs two weeks ago I had my stent changed to a Memokath stent (metal) others were plastic the metal stent lasts up to 10yrs where as the plastic need changing every
1946val
in
My Ovacome
2 years ago
stopping mycophenalate when you are unwell?
hi all i’ve got lupus nephritis, sle and lupus profundus. I’ve been advised to stop mycophenalate by rheum for 7 days due to gastro problem. I should also have Antonio but they are out of stock at the moment, Stopping mycophenalate feels very scary as have never done this. Have you ever had to stop mycophenalate
hi all i’ve got lupus nephritis, sle and lupus profundus. I’ve been advised to stop mycophenalate by rheum for 7 days due to gastro problem. I should also have Antonio but they are out of stock at the moment, Stopping mycophenalate feels very scary as have never done this. Have you ever had to stop mycophenalate
Andfiona
in
LUPUS UK
2 years ago
Mitochondrial failing due to T3 problems
• Parathyroid
failure
• Diabetes • Liver
failure
• Cardiomyopathy •
Kidney
disease - I had a stone • Dementia • Gastrointestinal conditions • Drooping eyelid (ptosis) I have many of these symptoms.
• Parathyroid
failure
• Diabetes • Liver
failure
• Cardiomyopathy •
Kidney
disease - I had a stone • Dementia • Gastrointestinal conditions • Drooping eyelid (ptosis) I have many of these symptoms.
Simonron
in
Thyroid UK
1 year ago
Prolia
Hi Has anyone taken Prolia shots for osteoporosis after kidney transplant ?
Hi Has anyone taken Prolia shots for osteoporosis after kidney transplant ?
Hidden
in
Kidney Transplant
2 years ago
Is there anything I can take to lower antibodies
hi everyone, is there a way that I can lower my antibodies? Got my results back for kidney doctor (nephrologist) , all my bloods came back better GFR of 85 (so she was happy with that), and scan was good, but she said my antibodies were high which I knew eBay from my thyroid l. So she said she
hi everyone, is there a way that I can lower my antibodies? Got my results back for kidney doctor (nephrologist) , all my bloods came back better GFR of 85 (so she was happy with that), and scan was good, but she said my antibodies were high which I knew eBay from my thyroid l. So she said she
Thyroid36
in
Thyroid UK
2 years ago
Urine Calcium Test tips?
As my GP has me down as a hypochondriac malingerer I need some evidence to force testing of calcium properly. I can’t afford a £150 6 hour round trip London clinic test so some internet research led me to a £25 set of 10 dipsticks. I’m ready for the ‘waste of time’ responses and see an endo responses
As my GP has me down as a hypochondriac malingerer I need some evidence to force testing of calcium properly. I can’t afford a £150 6 hour round trip London clinic test so some internet research led me to a £25 set of 10 dipsticks. I’m ready for the ‘waste of time’ responses and see an endo responses
Regenallotment
in
Thyroid UK
2 years ago
undecided should I ask for a second opinion
March 22 had surgery to remove nodules in pelvis area.of first diagnosed September 2013 surgery and chemo. This is treated as a recurrence. At the same time as recurrence CT showed mass on left kidney by urethra described now as chronic kidney disease. . As gynae department have the lead I have lost
March 22 had surgery to remove nodules in pelvis area.of first diagnosed September 2013 surgery and chemo. This is treated as a recurrence. At the same time as recurrence CT showed mass on left kidney by urethra described now as chronic kidney disease. . As gynae department have the lead I have lost
Deesales
in
My Ovacome
2 years ago
Fed Up with everything.
I have been on haemodialysis since May. Having completed all the tests etc at the beginning of November, I was just waiting to go live in the transplant list. My previous consultant, who is now on maternity leave, said my results were good and she even said, I would probably receive a new kidney before
I have been on haemodialysis since May. Having completed all the tests etc at the beginning of November, I was just waiting to go live in the transplant list. My previous consultant, who is now on maternity leave, said my results were good and she even said, I would probably receive a new kidney before
Ziggydoodah
in
Kidney Dialysis
2 years ago
I would like to build a website to help people on dialysis. But since there are so many factors to consider, I'm hoping to get insights
What kind of website do you think will be most beneficial in helping people on dialysis? a social website that people can connect and share their experience online? maybe share information to better educate patients? Perhaps a website that allows people to share their feelings? pain, frustration? Please
What kind of website do you think will be most beneficial in helping people on dialysis? a social website that people can connect and share their experience online? maybe share information to better educate patients? Perhaps a website that allows people to share their feelings? pain, frustration? Please
mambata
in
Kidney Dialysis
2 years ago
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