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Kidney failure
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There Is Hope For CKD — My Story
I wanted to share my experience and journey with CKD with you all. I was diagnosed with CKD stage 3 about four years ago when my eGFR went to 57. I saw two nephrologists over the course of four years and had many renal tests done as well as blood work every six months. My eGFR numbers kept decreasing
I wanted to share my experience and journey with CKD with you all. I was diagnosed with CKD stage 3 about four years ago when my eGFR went to 57. I saw two nephrologists over the course of four years and had many renal tests done as well as blood work every six months. My eGFR numbers kept decreasing
HisLittleOne
in
Early CKD Support
2 years ago
provenge in the metastatic hormone sensitive PCa patient
Provenge has been flagged to me on more than one occasion now so thanks to those. I was wondering if anyone could point to clinical trials in its use for the metastatic hormone sensitive APCa patient such as me. Considering all options for whilst PSA now undetectable ( third month) on ADT and Apa combo
Provenge has been flagged to me on more than one occasion now so thanks to those. I was wondering if anyone could point to clinical trials in its use for the metastatic hormone sensitive APCa patient such as me. Considering all options for whilst PSA now undetectable ( third month) on ADT and Apa combo
Brysonal
in
Advanced Prostate Cancer
2 years ago
Increase in creatinine at the beginning of the use of tolvaptan ?
Hi, I'm Piotr from Poland. Please write how your blood creatinine increased after starting Tolvaptan treatment? I have been taking tolvaptan for less than two months. when I started my creatinine was 1.7 mg / dl and now it is 1.94 mg / dl. In the meantime, I did tests 3 times and there was a creatinine
Hi, I'm Piotr from Poland. Please write how your blood creatinine increased after starting Tolvaptan treatment? I have been taking tolvaptan for less than two months. when I started my creatinine was 1.7 mg / dl and now it is 1.94 mg / dl. In the meantime, I did tests 3 times and there was a creatinine
gorczes
in
PKD Charity for Autosomal Dominant PKD
2 years ago
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Peritoneal Carcinomatosis
Spent two days in the hospital. CT A/P mod volume Ascites. Had 4700ml of bloody fluid drained from abdomen. New peritoneal carcinomatosis. Last round of chemo Jan./22, PSA 1.1, now 557. Tried Nubequa, no help. Started Keytruda 8/17, second infusion postponed. If you access my history, you will see
Spent two days in the hospital. CT A/P mod volume Ascites. Had 4700ml of bloody fluid drained from abdomen. New peritoneal carcinomatosis. Last round of chemo Jan./22, PSA 1.1, now 557. Tried Nubequa, no help. Started Keytruda 8/17, second infusion postponed. If you access my history, you will see
SF22
in
Advanced Prostate Cancer
2 years ago
Post-Transplant Arterial Line Bruise
Has anyone else experienced inside arm bruises after kidney transplant surgery like this? Very painful, Tylenol won't touch it and they don't want to prescribe anything stronger.
Has anyone else experienced inside arm bruises after kidney transplant surgery like this? Very painful, Tylenol won't touch it and they don't want to prescribe anything stronger.
frebusmaxwell
in
Kidney Transplant
2 years ago
travel insurance - am I in remission
The sticky question for me attempting to book travel insurance is “ Am I in remission?” I had GPA diagnosed 8years ago and was extremely unwell initially. Poor renal function then but no dialyses and GFR normal for my age now. I am 73. I am very well usually. I have continued on treatment but unable
The sticky question for me attempting to book travel insurance is “ Am I in remission?” I had GPA diagnosed 8years ago and was extremely unwell initially. Poor renal function then but no dialyses and GFR normal for my age now. I am 73. I am very well usually. I have continued on treatment but unable
Rodelinda
in
Vasculitis UK
2 years ago
Explore NKF’s Kidney Learning Center!
Are you interested in learning more about kidney transplant? Check out our free, self-paced guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses/resource
Are you interested in learning more about kidney transplant? Check out our free, self-paced guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses/resource
KateyC_NKF
Partner
in
Kidney Transplant
2 years ago
Explore NKF’s Kidney Learning Center!
Are you interested in learning about kidney transplant for your child? Check out our free, self-paced beginner’s guide to kidney transplant and getting on the waitlist. Get started on your transplant journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org
Are you interested in learning about kidney transplant for your child? Check out our free, self-paced beginner’s guide to kidney transplant and getting on the waitlist. Get started on your transplant journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org
KateyC_NKF
Partner
in
Parents of Children with Kidney Disease
2 years ago
Explore NKF’s Kidney Learning Center!
Are you interested in learning more about kidney transplant? Check out our free, self-paced beginner’s guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses
Are you interested in learning more about kidney transplant? Check out our free, self-paced beginner’s guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses
KateyC_NKF
Partner
in
Kidney Disease
2 years ago
Kidney transplant at 60 plus stories please
My kidneys are 33% now. IgA patient. I want to know how long a kidney lasts if received at age of 55 or 60. What is chance of body accepting new kidney at that age? In uk does every recepient of kidney also need to donate a relatives kidney?? I want to hear real stories please. Consultant has no interest
My kidneys are 33% now. IgA patient. I want to know how long a kidney lasts if received at age of 55 or 60. What is chance of body accepting new kidney at that age? In uk does every recepient of kidney also need to donate a relatives kidney?? I want to hear real stories please. Consultant has no interest
Chawal2
in
Kidney Transplant
2 years ago
diabetes and dialysis
hello, the other day i was scrolling on here and seen a post about someone being diabetic and they can’t make it the full session with not eating but the nurses are giving them a hard time i was going to suggest a boost or ensure as well as eating right before you go … i try to eat at least 10-
hello, the other day i was scrolling on here and seen a post about someone being diabetic and they can’t make it the full session with not eating but the nurses are giving them a hard time i was going to suggest a boost or ensure as well as eating right before you go … i try to eat at least 10-
renalrose
in
Kidney Dialysis
2 years ago
Seeking advice for father (71) recently diagnosed with stage 4 PC.
Hi everyone, My father (71) was recently diagnosed with stage 4 PC, so far a single met to the Lung and 3 to the Kidney (2 nodes and 1 larger 3.5cm lesion) discovered. Nothing in the bones, lymph nodes or elsewhere discovered (yet). A little bit of history: - 7 months ago had a normal PSA test.
Hi everyone, My father (71) was recently diagnosed with stage 4 PC, so far a single met to the Lung and 3 to the Kidney (2 nodes and 1 larger 3.5cm lesion) discovered. Nothing in the bones, lymph nodes or elsewhere discovered (yet). A little bit of history: - 7 months ago had a normal PSA test.
MJSAZA
in
Advanced Prostate Cancer
2 years ago
UTI
that my little brother died of Hydronephrosis
kidney
failure
as the
kidney
was deformed but they still didnt listen so l and my Son are very lucky to be here no thanks to the bloody doctors who kept telling me and my mum that there was " NOTHING WRONG WITH ME THAT I WAS LOOKING FOR ATTENTION" I now
that my little brother died of Hydronephrosis
kidney
failure
as the
kidney
was deformed but they still didnt listen so l and my Son are very lucky to be here no thanks to the bloody doctors who kept telling me and my mum that there was " NOTHING WRONG WITH ME THAT I WAS LOOKING FOR ATTENTION" I now
Shellymay21
in
NRAS
2 years ago
A Simple explanation of the inaccuracies of eGFR
Please note I don’t condone what they are preaching just hope this better explains why, as so many have wondered. Estimated GFR: time for a critical appraisalEsteban Porrini et al. Nat Rev Nephrol. 2019 Mar. Show details Abstract PubMed PMID Full text linksCiteErratum inAuthor Correction
Please note I don’t condone what they are preaching just hope this better explains why, as so many have wondered. Estimated GFR: time for a critical appraisalEsteban Porrini et al. Nat Rev Nephrol. 2019 Mar. Show details Abstract PubMed PMID Full text linksCiteErratum inAuthor Correction
Blackknight1989
in
Kidney Disease
2 years ago
Finally an answer-Mucin 1 ADTKD
My family history(includes my dad, my grandfather, my uncle, my brother and my brother’s daughter) of kidney disease was a mystery that left my nephrologist scratching her head until my niece experienced pre-eclampsia during the delivery of her first child and experienced acute
kidney
failure
.
My family history(includes my dad, my grandfather, my uncle, my brother and my brother’s daughter) of kidney disease was a mystery that left my nephrologist scratching her head until my niece experienced pre-eclampsia during the delivery of her first child and experienced acute
kidney
failure
.
Jamok
in
Early CKD Support
2 years ago
update on test
yesterday I went back for testing as it was 37 before. It was 47 yesterday. I did tell him about The triamterene could give a false reading. He is aware of this and said he didn’t want to change any meds just yet. The diuretic in this keeps my l ankles From swelling. I drank a lot of water before
yesterday I went back for testing as it was 37 before. It was 47 yesterday. I did tell him about The triamterene could give a false reading. He is aware of this and said he didn’t want to change any meds just yet. The diuretic in this keeps my l ankles From swelling. I drank a lot of water before
Butchga62
in
Early CKD Support
2 years ago
Kidney pain
I’m panicking I have
kidney
failure
or something
I’m panicking I have
kidney
failure
or something
Lucky87
in
Endometriosis UK
2 years ago
Queen’s second try
I went to the second kidney transplant center. They were nice I learned a lot. The rooms were so tiny not made for a wheelchair for sure. I still made it. I have one worry. I only have one caregiver. I’m going to have to ask some friends to help me. The second center was nice, professional, and caring
I went to the second kidney transplant center. They were nice I learned a lot. The rooms were so tiny not made for a wheelchair for sure. I still made it. I have one worry. I only have one caregiver. I’m going to have to ask some friends to help me. The second center was nice, professional, and caring
HipHopQueen
in
Kidney Dialysis
2 years ago
still in the hospital…..
Joe is still abed in the hospital, although they have let him get up briefly. (I would have thought movement would help) Partner from onc practice stopped by to say he would get two more doses of chemo (his primary ordered 10, not 6 doses). This onc said that, since Joe developed pneumonia while on
Joe is still abed in the hospital, although they have let him get up briefly. (I would have thought movement would help) Partner from onc practice stopped by to say he would get two more doses of chemo (his primary ordered 10, not 6 doses). This onc said that, since Joe developed pneumonia while on
Cateydid
in
Advanced Prostate Cancer
2 years ago
Waters broken - 33 + 4 weeks
I’m 33+4 weeks pregnant and my waters broke today at 2am. I am feeling lots of pressure down below and lots of niggly pains - some contractions too but not really that frequent. How long did you go into labour after your waters broke? I do have Polyhydramnios so there is a lot of fluid!!! It’s my second
I’m 33+4 weeks pregnant and my waters broke today at 2am. I am feeling lots of pressure down below and lots of niggly pains - some contractions too but not really that frequent. How long did you go into labour after your waters broke? I do have Polyhydramnios so there is a lot of fluid!!! It’s my second
Laurahickman33
in
Pregnancy and Parenting Support
2 years ago
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