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Kidney diseases in childhood
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Update- Moderna Spikevax
Just to update. Received blood result and all within rang with the exception of Lymphocyte count which 3.1 only slightly over range. CPR 4 g/L, ESR 2. Which rules out PMR flare. So onwards and upwards, definitely downwards with Pred.-so pleased. I am now wondering whether the muscle paralysis I had
Just to update. Received blood result and all within rang with the exception of Lymphocyte count which 3.1 only slightly over range. CPR 4 g/L, ESR 2. Which rules out PMR flare. So onwards and upwards, definitely downwards with Pred.-so pleased. I am now wondering whether the muscle paralysis I had
Pebblegod
in
PMRGCAuk
3 months ago
Cynthia Delgado and Neil Powe Named to TIME100 Health List For Fighting Kidney Transplant Bias
TIME named the National Kidney Foundation/American Society of Nephrology Task Force on Reassessing the Inclusion of Race in Diagnosing Kidney Diseases, and its chair persons Cynthia Delgado, MD, FASN and Neil Powe, MD, MPH, MBA to the list of 100 individuals who most influenced global health this year
TIME named the National Kidney Foundation/American Society of Nephrology Task Force on Reassessing the Inclusion of Race in Diagnosing Kidney Diseases, and its chair persons Cynthia Delgado, MD, FASN and Neil Powe, MD, MPH, MBA to the list of 100 individuals who most influenced global health this year
JackieJ_NKF
Partner
in
Kidney Transplant
3 months ago
Peginterferon
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
caroline_284
in
MPN Voice
10 months ago
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And again news about clinical trials
Clinical trial tests creatine monohydrate and exercise to preserve muscle mass in prostate cancer
https://www.news-medical.net/news/20231011/Clinical-trial-tests-creatine-monohydrate-and-exercise-to-preserve-muscle-mass-in-prostate-cancer-patients.aspx (hint: been a natural bodybuilder from
Clinical trial tests creatine monohydrate and exercise to preserve muscle mass in prostate cancer
https://www.news-medical.net/news/20231011/Clinical-trial-tests-creatine-monohydrate-and-exercise-to-preserve-muscle-mass-in-prostate-cancer-patients.aspx (hint: been a natural bodybuilder from
Maxone73
in
Advanced Prostate Cancer
10 months ago
Reflections on a 10 day vipassana silent meditation residential
Silence…. Note: This is a prelude to Part 2 ‘Reflections on an 8-day silent zazen meditation retreat’. I found myself reflecting on this in relationship to a first residential silent meditation experience, 10 years ago. Offering you space and fodder to consider both and what may call you to the deeper
Silence…. Note: This is a prelude to Part 2 ‘Reflections on an 8-day silent zazen meditation retreat’. I found myself reflecting on this in relationship to a first residential silent meditation experience, 10 years ago. Offering you space and fodder to consider both and what may call you to the deeper
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
3 months ago
GFR question
Hi everyone, I'm a 59 year old male. I have high blood pressure and diabetes. A few years ago my GP said that I was dehydrated and need to drink more water. Didn't look at my test results other than to keep taking my meds for high blood pressure and diabetes. Fast forward to around 6 months ago I
Hi everyone, I'm a 59 year old male. I have high blood pressure and diabetes. A few years ago my GP said that I was dehydrated and need to drink more water. Didn't look at my test results other than to keep taking my meds for high blood pressure and diabetes. Fast forward to around 6 months ago I
tatarsalad
in
Early CKD Support
10 months ago
Very worried about Mom
Hello everyone - wish you all a healthy path.My Mother was admitted to the hospital Monday morning and we found out she had urinary infection that went to her kidney and then blood. She had stopped taking venetoclax since Sunday. They are giving her antibiotics but her blood counts are out of whack.
Hello everyone - wish you all a healthy path.My Mother was admitted to the hospital Monday morning and we found out she had urinary infection that went to her kidney and then blood. She had stopped taking venetoclax since Sunday. They are giving her antibiotics but her blood counts are out of whack.
Hidden
in
CLL Support
4 months ago
Hemodialysis Technician Teacher Turned TikTok Star
Lamarr Holland is not only an incredible dialysis educator, but also a TikTok star! Hear how his skills are allowing him to spread information on CKD and dialysis to patients world wide. Learn more at: https://www.kidney.org/newsletter/hemodialysis-technician-teacher-turned-tiktok-star
Lamarr Holland is not only an incredible dialysis educator, but also a TikTok star! Hear how his skills are allowing him to spread information on CKD and dialysis to patients world wide. Learn more at: https://www.kidney.org/newsletter/hemodialysis-technician-teacher-turned-tiktok-star
JackieJ_NKF
Partner
in
Kidney Dialysis
10 months ago
my dental pain
ive been on metronidazole for 5 days x 3 doses a day , now my pain is back , i cant take most other antibioitics , will ring dentist in the morning . metronidazole wasnt nice made me feel bad but while taking seemed too work . help please ! i have had a bowel infection before this
ive been on metronidazole for 5 days x 3 doses a day , now my pain is back , i cant take most other antibioitics , will ring dentist in the morning . metronidazole wasnt nice made me feel bad but while taking seemed too work . help please ! i have had a bowel infection before this
peterfromlondon
in
Pain Concern
4 months ago
Lab work
Got my labs yesterday and. Was happy to see how well they were. ALB is still low but coming up. Kt/v was 2.41 not sure how they do that on hemo but I’ll take it. Potassium and phosphorus are in range as is hemoglobin. My PTH was low so I need to stop the calciteol. Since my BP at dialysis on Thursday
Got my labs yesterday and. Was happy to see how well they were. ALB is still low but coming up. Kt/v was 2.41 not sure how they do that on hemo but I’ll take it. Potassium and phosphorus are in range as is hemoglobin. My PTH was low so I need to stop the calciteol. Since my BP at dialysis on Thursday
horsie63
in
Kidney Dialysis
10 months ago
Finasteride: "Miracle drug" regrows hair, heals prostate, and also boosts heart health ByEric Ralls Earth.com
I am now thinking to add Finasteride to Bicalutamide plus degarelix injections. Would/could it help me if on the psma pet scan my only visible cancer is in my prostate? I had radiation therapy to my prostate but my prostate cancer is back and looks like that the radiation therapy failed and the most
I am now thinking to add Finasteride to Bicalutamide plus degarelix injections. Would/could it help me if on the psma pet scan my only visible cancer is in my prostate? I had radiation therapy to my prostate but my prostate cancer is back and looks like that the radiation therapy failed and the most
Seasid
in
Advanced Prostate Cancer
6 months ago
Constipation
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Groda
in
PMRGCAuk
11 months ago
Possible urinary biomarkers of lupus nephritis identified in study
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 months ago
Breastfeeding, skin on skin and contractions (c-section)
Hey everyone, I gave birth about 10 days ago (emergency c section at 29+3 due to HELLP/Pre eclampsia/slowinf fetus heart) and I now have 2 kids in NICU. They encourage us to do skin on skin and after I started doing that, I have been having severe contractions even when I am very far from them; i am
Hey everyone, I gave birth about 10 days ago (emergency c section at 29+3 due to HELLP/Pre eclampsia/slowinf fetus heart) and I now have 2 kids in NICU. They encourage us to do skin on skin and after I started doing that, I have been having severe contractions even when I am very far from them; i am
Tryinglate
in
Pregnancy and Parenting Support
4 months ago
Confused again 😕
How do you know if your intrinsic factor antibody blood test is good or bad?
How do you know if your intrinsic factor antibody blood test is good or bad?
Popcorn12345
in
Pernicious Anaemia Society
6 months ago
Provenge criteria necessary for acceptance.
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
Apparently Medicare will pay for Provenge provided we are castrate resistant and metastatic. But are there other requirements like certain PSA parameters and lower testosterone levels? Do we have to remain on ADT while being treated with Provenge?
SViking
in
Advanced Prostate Cancer
11 months ago
Going back to work
I’m 6 weeks post kidney transplant. I’ve been given 8 weeks to return to work from my doctor. I was surprised at the limited time I had. I never really talked about going back till 12 weeks through my FMLA, but he thinks 8 weeks is enough. I work in a clinic with over 30 people and I’m concerned with
I’m 6 weeks post kidney transplant. I’ve been given 8 weeks to return to work from my doctor. I was surprised at the limited time I had. I never really talked about going back till 12 weeks through my FMLA, but he thinks 8 weeks is enough. I work in a clinic with over 30 people and I’m concerned with
Wondr1
in
Kidney Transplant
4 months ago
Persistent gout in renal transplant.
Hi, As I understand it many of us will have had gout, I have for 30 years since my transplant. The last 3 years it has been relentless and the past few months: constant. I have been given colchicine and allupurinol but it's not seeming to help any longer. The situation is quite serious as I'm unable
Hi, As I understand it many of us will have had gout, I have for 30 years since my transplant. The last 3 years it has been relentless and the past few months: constant. I have been given colchicine and allupurinol but it's not seeming to help any longer. The situation is quite serious as I'm unable
lkni
in
Kidney Transplant
4 months ago
here we go again!
As the experts predicted I now have my 3rd uti. I rang my surgery yesterday on the off chance I could get a repeat script but I don’t why I bothered because I just got the usual response of - no chance were fully booked- ring 111. So I rang at about 4-30 pm -and 111 was also fully booked I think because
As the experts predicted I now have my 3rd uti. I rang my surgery yesterday on the off chance I could get a repeat script but I don’t why I bothered because I just got the usual response of - no chance were fully booked- ring 111. So I rang at about 4-30 pm -and 111 was also fully booked I think because
AnniesRyder5
in
PMRGCAuk
11 months ago
Annual Thyroid Palaver NHS
I checked my medical record online yesterday and I've been summoned by letter for annual NHS thyroid check (yay) but they've also requested electrolytes and GFR blood tests. I dont have kidney problems and had GFR done last year which was fine so am wondering is this something they now include for
I checked my medical record online yesterday and I've been summoned by letter for annual NHS thyroid check (yay) but they've also requested electrolytes and GFR blood tests. I dont have kidney problems and had GFR done last year which was fine so am wondering is this something they now include for
Sparklingsunshine
in
Thyroid UK
11 months ago
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