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Kidney diseases in childhood
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Chronic kidney disease
My recent GP-ordered blood tests have revealed chronic kidney disease. I have been told that an appointment will not be necessary. My creatine count is very high this time but B12 etc. are fine. Should I worry; everything online says this is serious.
My recent GP-ordered blood tests have revealed chronic kidney disease. I have been told that an appointment will not be necessary. My creatine count is very high this time but B12 etc. are fine. Should I worry; everything online says this is serious.
MaggieSylvie
in
MPN Voice
10 months ago
Doctors perform kidney transplant on awake patient
Doctors at Northwestern Memorial Hospital in Chicago have performed a kidney transplant on a patient who was awake the whole time. They say the technique used updated anesthesia methods which may now be used for more patients who would be considered too risky to go fully under, which is the standard
Doctors at Northwestern Memorial Hospital in Chicago have performed a kidney transplant on a patient who was awake the whole time. They say the technique used updated anesthesia methods which may now be used for more patients who would be considered too risky to go fully under, which is the standard
bbeba103
in
Kidney Disease
2 months ago
metastasised kidney cancer led to Nivolab immunotherapy
Writing for my husband, in brief: Had kidney out due to cancer Metastasised to both lungs and thorax. Five years of scans. Now on his spine, shown on pet scan Started immunotherapy, Nivolab and daily tablet. Had four sessions ,become really really ill. Tired, sick feeling, dizzy, unsteady on feet
Writing for my husband, in brief: Had kidney out due to cancer Metastasised to both lungs and thorax. Five years of scans. Now on his spine, shown on pet scan Started immunotherapy, Nivolab and daily tablet. Had four sessions ,become really really ill. Tired, sick feeling, dizzy, unsteady on feet
MydogBrandy
in
Advanced Prostate Cancer
2 months ago
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Polycystic Liver Disease
I have PKD and had a kidney transplant 5 years ago - everything has been great I was also subsequently diagnosed with polycystic liver disease. Although my liver is enormous and filled with innumerable cysts, I was asymptomatic until recently and the cysts are now beginning to cause pain. I will,
I have PKD and had a kidney transplant 5 years ago - everything has been great I was also subsequently diagnosed with polycystic liver disease. Although my liver is enormous and filled with innumerable cysts, I was asymptomatic until recently and the cysts are now beginning to cause pain. I will,
Transplant2018
in
Kidney Transplant
2 months ago
interstitial cystitis
Hi all So lovely to be part of this community I have had lots of very good advice over the years ! was just wondering does anyone suffer from this with IBS as it’s very difficult to decipher whether you have a kidney infection or this interstitial cystitis ! I have had several attacks over the last
Hi all So lovely to be part of this community I have had lots of very good advice over the years ! was just wondering does anyone suffer from this with IBS as it’s very difficult to decipher whether you have a kidney infection or this interstitial cystitis ! I have had several attacks over the last
Mascot68
in
IBS Network
2 months ago
Post Kidney Transplant
I had a kidney transplant 1 1/2 years ago it took over a year for all my numbers to stabilize to normal. Now I have achy joints and muscles everyday mostly shoulders. Don’t know if it’s the anti rejection drugs or just old age. Never had these issues prior to transplant. I’m an active 64 year old male
I had a kidney transplant 1 1/2 years ago it took over a year for all my numbers to stabilize to normal. Now I have achy joints and muscles everyday mostly shoulders. Don’t know if it’s the anti rejection drugs or just old age. Never had these issues prior to transplant. I’m an active 64 year old male
Zbiguy
in
Kidney Disease
2 months ago
Kidney transplant 23 years my gfr now is 13 percent but I want no dialysis.
Hi everyone I hope everyone is doing well . I writing to you guys for some advice on what should I do. Anyhow, my kidney transplant is 23 years old it's been a nice ride so thankful , but in this pass 2 years it has lost fuction due because of the years. I have a donor already my husband but we are waiting
Hi everyone I hope everyone is doing well . I writing to you guys for some advice on what should I do. Anyhow, my kidney transplant is 23 years old it's been a nice ride so thankful , but in this pass 2 years it has lost fuction due because of the years. I have a donor already my husband but we are waiting
jennifer24
in
Kidney Transplant
2 months ago
psoriasis flair and adalimumab
hi all, I am looking for some advice. I had severe psoriasis which was almost gone thanks to adalimumab. I saw my dermatology team back in April for my 6 monthly check where my psoriasis was flairing up. so I had an adalimumab blood test to see if it was meant to work. I got the results back a
hi all, I am looking for some advice. I had severe psoriasis which was almost gone thanks to adalimumab. I saw my dermatology team back in April for my 6 monthly check where my psoriasis was flairing up. so I had an adalimumab blood test to see if it was meant to work. I got the results back a
katienewland
in
Beyond Psoriasis
2 months ago
perineal myxoid pseudotumor of fat
I have had CKD3B for 7 years. I am 76 years old. I suffered from end stage interstitial cystitis After battling it for 5 years. My ureters would back up fluid into the kidney and cause UTIs and hydrophynosis, landing me in the hospital on IV antibiotics for 5-6 days, 6 times that year. My urologist
I have had CKD3B for 7 years. I am 76 years old. I suffered from end stage interstitial cystitis After battling it for 5 years. My ureters would back up fluid into the kidney and cause UTIs and hydrophynosis, landing me in the hospital on IV antibiotics for 5-6 days, 6 times that year. My urologist
snoochy
in
Kidney Disease
2 months ago
My Story and Info if You Are Considering Home Hemodialysis!
My name is Rachel and at the age of 12, I was diagnosed with an autoimmune disease called nephrotic syndrome. I began dialysis at 19 years old and went through many hardships, including having a major nerve condition called chronic inflammatory demyelinating polyneuropathy (CIDP). I lost my ability to
My name is Rachel and at the age of 12, I was diagnosed with an autoimmune disease called nephrotic syndrome. I began dialysis at 19 years old and went through many hardships, including having a major nerve condition called chronic inflammatory demyelinating polyneuropathy (CIDP). I lost my ability to
Dialysis_Overcomer
in
Kidney Disease
2 months ago
NCGS/Celiac disease
Hello, I am looking for anyone who has developed NCGS or Celiac disease since having kidney transplant. I am three years post-transplant and have been suffering GI side effects since 6 months post-surgery. The immunosuppressants I have been taking are Tacrolimus and Myfortic. The transplant center
Hello, I am looking for anyone who has developed NCGS or Celiac disease since having kidney transplant. I am three years post-transplant and have been suffering GI side effects since 6 months post-surgery. The immunosuppressants I have been taking are Tacrolimus and Myfortic. The transplant center
6821green
in
Kidney Transplant
3 months ago
Proctitis ? 🙏
Good morning, I am French and I come here on English-speaking forums to be able to find answers to my questions 😁 Has anyone here ever been diagnosed with proctitis? or inflammation of the intestines without pain? Thank you in advance have a good evening
Good morning, I am French and I come here on English-speaking forums to be able to find answers to my questions 😁 Has anyone here ever been diagnosed with proctitis? or inflammation of the intestines without pain? Thank you in advance have a good evening
Carl33150
in
Colon Cancer Connected
10 months ago
First dialysis.... not for a wuss
As I promised, I am going to document my journey as I have done before. Now it is hemodialysis. Holy mackerel. Anyone who thinks this is easy, let them sit in the chair for a turn and see what they think. My husband came with me and will be attending the training with me for the next five weeks. I am
As I promised, I am going to document my journey as I have done before. Now it is hemodialysis. Holy mackerel. Anyone who thinks this is easy, let them sit in the chair for a turn and see what they think. My husband came with me and will be attending the training with me for the next five weeks. I am
Bassetmommer
in
Kidney Dialysis
10 months ago
Leukocytes, protein and blood.
Hi all, my urine samples have started showing leukocytes protein and blood. I have GPA which mainly affects my lungs and now sinuses. I guess I just want to know if having these in my urine with no actual urine infection could mean that there's possibly now kidney involvement too?. Hope you're all keeping
Hi all, my urine samples have started showing leukocytes protein and blood. I have GPA which mainly affects my lungs and now sinuses. I guess I just want to know if having these in my urine with no actual urine infection could mean that there's possibly now kidney involvement too?. Hope you're all keeping
Vqueen
in
Vasculitis UK
3 months ago
Weight gain - how to control it.
I'm now 13 months post kidney transplant. Since the transplant I have put on at least 15 pounds but it keeps going up - I was only 4-5 pounds and then it went up to about 10 pounds and then 15 pounds. Even though I try to exercise and I do watch what I eat too (my wife's a nurse so I rarely get by
I'm now 13 months post kidney transplant. Since the transplant I have put on at least 15 pounds but it keeps going up - I was only 4-5 pounds and then it went up to about 10 pounds and then 15 pounds. Even though I try to exercise and I do watch what I eat too (my wife's a nurse so I rarely get by
Tankjsl
in
Kidney Transplant
3 months ago
Vasculitis in the pancreas?
Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened
Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened
Sandalsforever
in
Vasculitis UK
3 months ago
Has anyone taken Perdnisone or Prednisolone with Warfarin ?
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
Hello everyone, Just wondering if anyone has taken Perdnisone or Prednisolone with Warfarin ? Experienced any drug interactions ? Many thanks, Rosegardens
rosegardens
in
Hughes Syndrome APS Forum
5 months ago
Creatine and Whey protein
I was diagnosed with Parkinson's in July 2020. In the last year I have lost weight by around 3.5 kg I went to a nutritionist because of the weight loss and, in particular, the loss of muscle mass.In addition to a diet and the recommendation to continue going to the gym twice a week for bodybuilding,
I was diagnosed with Parkinson's in July 2020. In the last year I have lost weight by around 3.5 kg I went to a nutritionist because of the weight loss and, in particular, the loss of muscle mass.In addition to a diet and the recommendation to continue going to the gym twice a week for bodybuilding,
Crepe
in
Cure Parkinson's
5 months ago
Liver transplant vs kidney transplant
For those who have had both, could you let me know if one was "better" or "worse" than the other? I had my liver transplant Sept 22, and though initially recovering well, had a bout of CMV which went on for a long time, and over the last year struggling with poor kidney function, which is currently
For those who have had both, could you let me know if one was "better" or "worse" than the other? I had my liver transplant Sept 22, and though initially recovering well, had a bout of CMV which went on for a long time, and over the last year struggling with poor kidney function, which is currently
taar
in
Kidney Transplant
3 months ago
A sad passing....
The gentleman with the first pig kidney transplant has passed away. https://www.theguardian.com/science/article/2024/may/12/pig-kidney-xenotransplant-patient-dies-two-months-later In better news there has been a second pig kidney transplant! https://www.theguardian.com/us-news/2024/apr/24/new-jersey-woman-pig-kidney-transplant
The gentleman with the first pig kidney transplant has passed away. https://www.theguardian.com/science/article/2024/may/12/pig-kidney-xenotransplant-patient-dies-two-months-later In better news there has been a second pig kidney transplant! https://www.theguardian.com/us-news/2024/apr/24/new-jersey-woman-pig-kidney-transplant
Earther
in
Kidney Transplant
3 months ago
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