Search
Search
About
Log in
Join
Experiences with
Kidney diseases in childhood
Posts
Communities
60,268 public posts
Filter results
going to be evaluated at another transplant center
My dialysis center sent a referral to VCU Richmond for a kidney transplant evaluation. I been on the waitlist at Sentara Norfolk for 3 years . Question how many of you were on more than one transplant list ? Could they use test they did at other center. Any of you had transplant at Vcu how was your
My dialysis center sent a referral to VCU Richmond for a kidney transplant evaluation. I been on the waitlist at Sentara Norfolk for 3 years . Question how many of you were on more than one transplant list ? Could they use test they did at other center. Any of you had transplant at Vcu how was your
Beachgirl32
in
Kidney Transplant
2 months ago
Endo/cyst on the kidney after MRI - could this happen to you?
Hi ladies! The results came in for the first MRI (still waiting for the results of the second MRI). A cyst was spotted on one of my kidneys and the blood test indicated issues with my kidneys. I know this might indicate deep infiltrating endometriosis on the kidney/ureter or... I know that endo can lead
Hi ladies! The results came in for the first MRI (still waiting for the results of the second MRI). A cyst was spotted on one of my kidneys and the blood test indicated issues with my kidneys. I know this might indicate deep infiltrating endometriosis on the kidney/ureter or... I know that endo can lead
Endosufferer1
in
Endometriosis UK
10 months ago
New medication for boosting immunity against covid19
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Gardner-NY
in
Kidney Transplant
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
B LARGE CELL DIFFUSE LYMPHOMA AFTER 5 YEAR OF POST KIDNEY TRANSPLANT
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
bal_123
in
Kidney Transplant Patient Support
3 months ago
Kidney Transplant & Primary Immune Deficiency
I'm looking to connect with some who have a Primary Immune deficiency and on immunoglobulin replacement. I have both and am having some issues specific to them.
I'm looking to connect with some who have a Primary Immune deficiency and on immunoglobulin replacement. I have both and am having some issues specific to them.
viviselphie
in
Kidney Disease
3 months ago
Terrified - just dropped to stage 4 CKD
I’ve had my kidney transplant - living, from my mom, for 32 years. I know that’s amazing and I’ve been so incredibly fortunate thus far. But I think it’s starting to fail, my GFR just dropped to 29 which puts me in stage 4 ckd after being in 3a w/ a creatine hovering 1.5 for oh probably over 15 years
I’ve had my kidney transplant - living, from my mom, for 32 years. I know that’s amazing and I’ve been so incredibly fortunate thus far. But I think it’s starting to fail, my GFR just dropped to 29 which puts me in stage 4 ckd after being in 3a w/ a creatine hovering 1.5 for oh probably over 15 years
SOct91
in
Kidney Transplant
3 months ago
New here
Hi everyone. I’m new here. 32 weeks pregnant and experiencing severe urethral pain for over a month. Doctors think the baby is on the nerves supplying the urethra. Cystoscopy was clear, no uti. Has anyone ever had this experience? Constant urge to pee and lightning bolts every few minutes shooting down
Hi everyone. I’m new here. 32 weeks pregnant and experiencing severe urethral pain for over a month. Doctors think the baby is on the nerves supplying the urethra. Cystoscopy was clear, no uti. Has anyone ever had this experience? Constant urge to pee and lightning bolts every few minutes shooting down
PrincessPeachPirate
in
Pelvic Pain Support Network
3 months ago
how common is Hypoparathyroidism after TT
hi all. Back again 😬 my endo tells me this is really common and she sees it a lot with the surgeon I’m scheduled to see but that he’s a very good surgeon. Do I need to look into seeing someone else? My endo told me it happens in between 5 and 10 per cent of TTs. She never mentioned the possibility
hi all. Back again 😬 my endo tells me this is really common and she sees it a lot with the surgeon I’m scheduled to see but that he’s a very good surgeon. Do I need to look into seeing someone else? My endo told me it happens in between 5 and 10 per cent of TTs. She never mentioned the possibility
Rowan4
in
Thyroid UK
10 months ago
GREAT INFO FROM EXPERIENCED KIDNEY DOCTOR
I’d like you recommend this very informative video from Dadvice TV. The nephrologist gives explanation and advice for different stages of kidney disease, what is and what isn’t really kidney disease, appropriate treatments and diet, etc. I have seen this nephrologist several times online and he is
I’d like you recommend this very informative video from Dadvice TV. The nephrologist gives explanation and advice for different stages of kidney disease, what is and what isn’t really kidney disease, appropriate treatments and diet, etc. I have seen this nephrologist several times online and he is
HisLittleOne
in
Early CKD Support
10 months ago
Any experience with pregnancy after kidney transplant?
hi everyone, I had my kidney transplant in April 2022 and have been given the green light by my nephrologist and transplant team that I am able to go ahead with a pregnancy. Having been through a lot medically including a bilateral nephrectomy prior to transplant, I am overwhelmed at the possibility
hi everyone, I had my kidney transplant in April 2022 and have been given the green light by my nephrologist and transplant team that I am able to go ahead with a pregnancy. Having been through a lot medically including a bilateral nephrectomy prior to transplant, I am overwhelmed at the possibility
Hazzbaz
in
Kidney Transplant
3 months ago
Failing kidney transplant
Has anyone over 70 had the experience of a long term transplant failing. What treatment were you offered and is it feasible to expect some form of dialysis?
Has anyone over 70 had the experience of a long term transplant failing. What treatment were you offered and is it feasible to expect some form of dialysis?
Nanatotwo
in
Kidney Transplant
3 months ago
Zicam post kidney transplant
I am a post kidney transplant patient. Does anyone know if Zicam homeopathic is safe to use? I was told a while back that zinc in a multivitamin was fine. But, most of the Zicam products now I’ve come across are homeopathic ingredients, not just zinc. Looking into for cold.
I am a post kidney transplant patient. Does anyone know if Zicam homeopathic is safe to use? I was told a while back that zinc in a multivitamin was fine. But, most of the Zicam products now I’ve come across are homeopathic ingredients, not just zinc. Looking into for cold.
Rocknlily
in
Kidney Transplant
4 months ago
Kidney biopsy confirms active GPA
Hi, Thought I'd update what has happened since my last post. I have seen my rheumatologist twice now, given pred and was put forward for rituximab. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis
Hi, Thought I'd update what has happened since my last post. I have seen my rheumatologist twice now, given pred and was put forward for rituximab. Due to the blood and protein in my pee I was referred to renal and had a kidney biopsy on Wednesday of this week. It has been confirmed that my vasculitis
lollypocket
in
Vasculitis UK
5 months ago
Narirutin found in lemons, oranges, passion fruit, bergamot and grapefruit may be chemopreventive agent for hormone-resistant PC
Narirutin. A flavonoid found in citrus fruits modulates cell cycle phases and inhibits the proliferation of hormone-refractory prostate cancer cells by targeting hyaluronidase Author links open overlay panelShilpi Singh a b, Akhilesh Kumar Maurya c, Abha Meena a b, Nidhi Mishra c, Suaib Luqman a b
Narirutin. A flavonoid found in citrus fruits modulates cell cycle phases and inhibits the proliferation of hormone-refractory prostate cancer cells by targeting hyaluronidase Author links open overlay panelShilpi Singh a b, Akhilesh Kumar Maurya c, Abha Meena a b, Nidhi Mishra c, Suaib Luqman a b
Graham49
in
Advanced Prostate Cancer
10 months ago
Three Times Kidney Transplant Recipient: "Third time's the charm."
In 1995, Lisa Myers noticed a mysterious swelling in her feet and ankles. Little did she know that this symptom would mark the beginning of a challenging journey–one that led to a kidney disease diagnosis, ten years on dialysis, and two failed kidney transplants. This is her story as a three-time kidney
In 1995, Lisa Myers noticed a mysterious swelling in her feet and ankles. Little did she know that this symptom would mark the beginning of a challenging journey–one that led to a kidney disease diagnosis, ten years on dialysis, and two failed kidney transplants. This is her story as a three-time kidney
JackieJ_NKF
Partner
in
Kidney Transplant
4 months ago
Edema
Due to ADT, I have swelling of the stomach due to edema, i guess. Anybody have the same problem? Treatent I should go over with my doc? Also a bit of gynomastia. .
Due to ADT, I have swelling of the stomach due to edema, i guess. Anybody have the same problem? Treatent I should go over with my doc? Also a bit of gynomastia. .
gsun
in
Advanced Prostate Cancer
10 months ago
Hemorrhagic vasculitis treatment
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Hi My son 10 years, has been diagnosed Hemorrhagic vasculitis. We are searching for professionals for vasculitis treatment. Could you please advice any clinic and specialists who can help. We are outside the UK, but can come and spend needed time in UK for treatment.
Egorka
in
Vasculitis UK
5 months ago
No symptoms 5+4
Hello After 8 years in hell with a lot of treatment with donor egg and 3 losses im pregnant again and terrafied to loose again im 5+4 today and getting blood taken to check hcg for 3. Time Monday due to my history This time they give me dailiport something you give people Who had a kidney transplant
Hello After 8 years in hell with a lot of treatment with donor egg and 3 losses im pregnant again and terrafied to loose again im 5+4 today and getting blood taken to check hcg for 3. Time Monday due to my history This time they give me dailiport something you give people Who had a kidney transplant
Sheldonmycat
in
Fertility Network UK
4 months ago
de novo metastatic prostate cancer
hello, I was diagnosed in march with a very aggressive and advanced case, with many skeletal lesions - high volume/high risk. I’ve been on degarelix/Firmagon and Abiraterone for the past 3.5 months and it seems to be working well - just had my 3 month scans. And the terrible fatigue is under control
hello, I was diagnosed in march with a very aggressive and advanced case, with many skeletal lesions - high volume/high risk. I’ve been on degarelix/Firmagon and Abiraterone for the past 3.5 months and it seems to be working well - just had my 3 month scans. And the terrible fatigue is under control
NewGame
in
Advanced Prostate Cancer
11 months ago
How to improve your blood pressure
I have recently fallen in love. With capillaries. In his brilliant book, ‘The Secret Language of Cells’, Dr John Leif, physician and neuroscientist, dedicates a whole chapter to them, calling these tiny vessels, ‘brain centres’ of tissue development. With a yogic lens, this speaks to the body intelligence
I have recently fallen in love. With capillaries. In his brilliant book, ‘The Secret Language of Cells’, Dr John Leif, physician and neuroscientist, dedicates a whole chapter to them, calling these tiny vessels, ‘brain centres’ of tissue development. With a yogic lens, this speaks to the body intelligence
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
4 months ago
1
...
10
11
12
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
13098 results
Thyroid UK
5957 results
British Liver Trust
4482 results
View top 10 communities
Sort by
Most Relevant
Newest