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Kidney diseases in childhood
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HRT anyone?
Hi all, I was diagnosed with Lupus last June. Luckily my symptoms are mild - and my rhumatologist agreed that i didn't need to start hydroxyholorquine if I didn't want to. I'm definitely peri-menopausal and a lot of "symptoms" of lupus overlap with perimenopause and my rhumatologist agreed it's
Hi all, I was diagnosed with Lupus last June. Luckily my symptoms are mild - and my rhumatologist agreed that i didn't need to start hydroxyholorquine if I didn't want to. I'm definitely peri-menopausal and a lot of "symptoms" of lupus overlap with perimenopause and my rhumatologist agreed it's
NewLupusdiag
in
LUPUS UK
4 months ago
B12 result after 6 months…
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Hi, So initially in October I was diagnosed with what they suspect to be pernicious anaemia, I had a negative IF test but due to me having diabetes and no other factors which could indicate why I was so low in B12 they put it down to me having pernicious anaemia. I had 6 loading doses after which my
Nikkim236
in
Pernicious Anaemia Society
4 months ago
B12 prescription cancelled by pharmacist
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Hello - I was diagnosed with B12 deficiency around 15 years ago. My GP at the time said that I had Pernicious Anaemia and was unable to absorb B12 from my food. Apart from a gap in 2016 when my then GP said that I had too much B12 in my system, withdrew the injections for a year which resulted in my
Willow404
in
Pernicious Anaemia Society
4 months ago
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overlap RA, medication?
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
I was Dx with overlap rheumatoid arthritis. I have had PBC for 15 years, controlled well by URSO. In terms of RA, rheumatologist says this really limits medications given so many of the standard RA medications can damage the liver. For now I am on steroids. Can anyone else in the PBC community speak
CeeCee101
in
PBC Foundation
4 months ago
Kidney transplant
Hi Everyone, I just joined. My kidneys are at 10-12 EGFR and I am striving to find a living donor. I have some resources to do so, but I am wondering what others have done to search for a living donor. I also wonder what others in this situation have done for transportation to a major transplant
Hi Everyone, I just joined. My kidneys are at 10-12 EGFR and I am striving to find a living donor. I have some resources to do so, but I am wondering what others have done to search for a living donor. I also wonder what others in this situation have done for transportation to a major transplant
Lee75glom
in
Kidney Disease
9 months ago
Help me understand
I’m 32 next and since I was 25 I have had terrible joint pain and flare ups with terrible painful stiffness and swelling. Always in both my knees sometimes both my elbows all at the same time, I feel and ache all over with fatigue! I’ve been to the drs numerous times over the years with no help when
I’m 32 next and since I was 25 I have had terrible joint pain and flare ups with terrible painful stiffness and swelling. Always in both my knees sometimes both my elbows all at the same time, I feel and ache all over with fatigue! I’ve been to the drs numerous times over the years with no help when
Crazycatlady_101
in
NRAS
4 months ago
Vasculitis Awarenes Month
May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammation of the small and sometimes medium sized blood vessels. It usually affects the renal function and/or lungs. Get a glimpse of Gemma's journey with MPA vasculitis. If you would like to donate to Vasculitis UK, please
May is vasculitis awareness month. Microscopic Polyangiitis (MPA) is inflammation of the small and sometimes medium sized blood vessels. It usually affects the renal function and/or lungs. Get a glimpse of Gemma's journey with MPA vasculitis. If you would like to donate to Vasculitis UK, please
zoe69
Vasculitis UK
in
Vasculitis UK
3 months ago
Bloody diarrhea black clots
I started 6/1 With very very bloody diarrhea, lasted 2 days old blood it appeared to be.. now have thick stool with blood and is hard to clean myself because it just sticks to me. Have Dr appointment today, but I'm weak feeling, lower back pain and inner thighs hurt... My Daddy passed away in 09'
I started 6/1 With very very bloody diarrhea, lasted 2 days old blood it appeared to be.. now have thick stool with blood and is hard to clean myself because it just sticks to me. Have Dr appointment today, but I'm weak feeling, lower back pain and inner thighs hurt... My Daddy passed away in 09'
Mbgardner6
in
Colon Cancer Connected
1 year ago
Stress and thyroid disease
I have an treated underactive thyroid and i’m on levothyroxine. I’ve had hypothyroidism for 35 years, I’m now 61.. I’m finding that any stressful situation makes me feel very odd, all over the place, and feeling lime Ive drunk 30 cups of coffee. Awful.. Can that happen with thyroid disease. Any advice
I have an treated underactive thyroid and i’m on levothyroxine. I’ve had hypothyroidism for 35 years, I’m now 61.. I’m finding that any stressful situation makes me feel very odd, all over the place, and feeling lime Ive drunk 30 cups of coffee. Awful.. Can that happen with thyroid disease. Any advice
Atma123
in
Thyroid UK
4 months ago
pernicious anaemia
Hi I had the results of my intrinsic test and I have pernicious anaemia I start loading doses on Monday ,Do you think it is likely to affect my INR and if so up or down Thanks
Hi I had the results of my intrinsic test and I have pernicious anaemia I start loading doses on Monday ,Do you think it is likely to affect my INR and if so up or down Thanks
mully
in
Hughes Syndrome APS Forum
4 months ago
Statins with an under active thyroid.
Hi everyone. I've recently found out that my thyroid is under active. Because my LDL is elevated, the doctor decided I needed to see a specialist. They won't give me an appointment and have said I need to take a statin while they get to me. The NHS website says you don't give statins to people with an
Hi everyone. I've recently found out that my thyroid is under active. Because my LDL is elevated, the doctor decided I needed to see a specialist. They won't give me an appointment and have said I need to take a statin while they get to me. The NHS website says you don't give statins to people with an
MauveMouse
in
Thyroid UK
4 months ago
Request for advice looking for possible new diagnosis
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia and Lupus communities.I don't want to write too long a post so will try and keep the background brief. Basically
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia and Lupus communities.I don't want to write too long a post so will try and keep the background brief. Basically
Wispymisty
in
NRAS
4 months ago
Request for advice looking for possible new diagnosis
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia/Rheumatoid Arthritis communities.I don't want to write too long a post so will try and keep the background brief
Hi, this is my first time back on the forum after a few years break just bimbling along whilst struggling as we all do. But I've really hit a wall. I've also posted this on the Fibromyalgia/Rheumatoid Arthritis communities.I don't want to write too long a post so will try and keep the background brief
Wispymisty
in
LUPUS UK
4 months ago
Updated diagnosis of autoimmune thyroid disorder
Just an update. Unsurprisingly with elevated thyroid antibodies I have been diagnosed with an autoimmune thyroid disorder. As I currently have some hyper symptoms as well as hypo ones, the private GO who’s diagnosed me very sensibly, imo, wants to test again to ensure she gets the diagnosis and treatment
Just an update. Unsurprisingly with elevated thyroid antibodies I have been diagnosed with an autoimmune thyroid disorder. As I currently have some hyper symptoms as well as hypo ones, the private GO who’s diagnosed me very sensibly, imo, wants to test again to ensure she gets the diagnosis and treatment
Fizzwhizz
in
Thyroid UK
4 months ago
Gut analysis
I recently provided a sample for analysis and received the results last week. I had a follow up appointment with Gemma my Funtional Health Practitioner (in training) yesterday. I wanted to share some of the info I have learned here. I have Helicobacter Pylori, unsurprising as around 50% of the population
I recently provided a sample for analysis and received the results last week. I had a follow up appointment with Gemma my Funtional Health Practitioner (in training) yesterday. I wanted to share some of the info I have learned here. I have Helicobacter Pylori, unsurprising as around 50% of the population
IdasMum
in
PMRGCAuk
4 months ago
⁹Newbie: can anybody help with local support to me? Surrey/Sussex/South London
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Hello! I was diagnosed with UCTD 3 years ago after contracting awful covid. However during routine check-up bloods last month, for the first time, my Rheu picked up positive Lupus screen, ANA, rheumatoid factor alongside others i cant remember. (I have always had a negative autoimmune panel, but high
Gm131987
in
LUPUS UK
4 months ago
Thyroid blood test results
I have been on thyroxine since 2017 to treat my underactive thyroid (confirmed Hashimotos).My bloods from this week are in the attached screenshot. I haven't felt like me for many years. I wondered what peples thoughts were on my results?
I have been on thyroxine since 2017 to treat my underactive thyroid (confirmed Hashimotos).My bloods from this week are in the attached screenshot. I haven't felt like me for many years. I wondered what peples thoughts were on my results?
SusieR68
in
Thyroid UK
4 months ago
IVF - After a Miscarriage
Hi All I’ve had SLE since 2014, and I had a miscarriage in my first trimester in Jan 24. Since, I’ve been referred for IVF and in parallel I am trying to get a referral to a Lupus In Pregnancy clinic so both the fertility and lupus clinic that specialises in pregnancy can help build a plan for me.
Hi All I’ve had SLE since 2014, and I had a miscarriage in my first trimester in Jan 24. Since, I’ve been referred for IVF and in parallel I am trying to get a referral to a Lupus In Pregnancy clinic so both the fertility and lupus clinic that specialises in pregnancy can help build a plan for me.
Heal-
in
LUPUS UK
1 month ago
New NICE guidelines
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
helvella
Thyroid UK
in
Thyroid UK
4 months ago
NICE guideline on B12 Deficiency diagnosis and monitoring in over 16s
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
The Vitamin B12 Deficiency Guideline in Over 16's has been published.
What does this mean for those with Pernicious Anaemia whether formally diagnosed or not?
What does it mean with those struggling to get sufficiently frequent treatment for their B12 deficiency?
What does
PAScomms
in
Pernicious Anaemia Society
4 months ago
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