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End stage liver disease
Hi everyone, My husband was diagnosed in January with hepatic encephalopathy he has end stage liver disease. To cut along story short he was told by the consultant in Feb about having a discussion on the next appointment about a transplant, so the that next appointment came and we has to ask her about
Hi everyone, My husband was diagnosed in January with hepatic encephalopathy he has end stage liver disease. To cut along story short he was told by the consultant in Feb about having a discussion on the next appointment about a transplant, so the that next appointment came and we has to ask her about
Janey1309
in
British Liver Trust
1 month ago
Is it possible for me to get back to skateboard with autoimmune disease ever?Or do I need to give it up forever?
Hi everyone I have an autoimmune disease they say it might be lupus and myosis and Systemic Sclerosis. I don't even now which one it is or if it's all of them combined. I got diagnosed in 2022 and at this point all exercise and sports declined to none. I used to skate board, do boxing and play basketball
Hi everyone I have an autoimmune disease they say it might be lupus and myosis and Systemic Sclerosis. I don't even now which one it is or if it's all of them combined. I got diagnosed in 2022 and at this point all exercise and sports declined to none. I used to skate board, do boxing and play basketball
Crow9
in
LUPUS UK
6 months ago
A few Things ….
1. I had an ACTH test yesterday as my recent cortisol level was low. I was told my TSH would be tested but not T4 and T3. However when I got there, it was a full thyroid profile being done. I had breakfast in the morning but no caffeine. I had a small bowl of plain porridge and nothing else, except water
1. I had an ACTH test yesterday as my recent cortisol level was low. I was told my TSH would be tested but not T4 and T3. However when I got there, it was a full thyroid profile being done. I had breakfast in the morning but no caffeine. I had a small bowl of plain porridge and nothing else, except water
AppleOrchard
in
Thyroid UK
1 month ago
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Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
Hi - and welcome! My name is Donna - I facilitate this support group for The PBC Foundation - Health Unlocked. If you are new to your diagnosis, first of all, take a breath. It’s ok. We all, myself included, have been exactly where you are right now…. scared, unsure, mad, sad, and so much more. Stop
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Discomfort
Hi all. I'm getting discomfort in my upper abdomen. It's not pain exactly but it's uncomfortable. It's like IBS, which I suffer with, but can't take peppermint oil anymore. Has anyone else experienced this? Is it normal? It's not bloated like I had when I was diagnosed with cirrhosis. Apart from this
Hi all. I'm getting discomfort in my upper abdomen. It's not pain exactly but it's uncomfortable. It's like IBS, which I suffer with, but can't take peppermint oil anymore. Has anyone else experienced this? Is it normal? It's not bloated like I had when I was diagnosed with cirrhosis. Apart from this
Littlelizzy11
in
British Liver Trust
1 month ago
Unleashing the Power of Intensive Brain Training in Parkinson's: Promising Findings
Discover the captivating effects of intensive brain training in Parkinson's disease. This study focused on a group of individuals recently diagnosed with Parkinson's and in relatively good condition. Over a six-month period, they engaged in a rigorous training program under supervision. The intensive
Discover the captivating effects of intensive brain training in Parkinson's disease. This study focused on a group of individuals recently diagnosed with Parkinson's and in relatively good condition. Over a six-month period, they engaged in a rigorous training program under supervision. The intensive
Esperanto
in
Cure Parkinson's
1 month ago
Wednesday's Word
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol. They are not yet approved by
[u]
PP
[/u][u][i]
AR drugs
[/i][/u] - This is a class of drugs used as second line treatment in Urso non responders. These drugs have long been used as a lipid lowering drugs - although now statins are more widely used for this purpose of lowering cholesterol. They are not yet approved by
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
PSA down with Enzalutamide 160 and Wysolone 5 mg
My father has had a relapse of long controlled PSA in 2022 and his PSA levels went upto 10.58; abieraterone didn't work ; he was also put on Docetaxal, he could tolerate one dose of it only and was stopped on this...he is on Enzalutamide 160 along with Wysolone 5 mg for the last 4 months...with his
My father has had a relapse of long controlled PSA in 2022 and his PSA levels went upto 10.58; abieraterone didn't work ; he was also put on Docetaxal, he could tolerate one dose of it only and was stopped on this...he is on Enzalutamide 160 along with Wysolone 5 mg for the last 4 months...with his
Ij2023
in
Advanced Prostate Cancer
1 month ago
Gasoline?
A question for anyone who has found an answer... From 2018, when diagnosed, I have been told by doctors, urologists and oncologists that; "Testosterone, in prostate cancer, is like gasoline on a fire!" When I first heard this it seemed dubious since what I "knew" about PCa was that young men with
A question for anyone who has found an answer... From 2018, when diagnosed, I have been told by doctors, urologists and oncologists that; "Testosterone, in prostate cancer, is like gasoline on a fire!" When I first heard this it seemed dubious since what I "knew" about PCa was that young men with
VoxHope
in
Advanced Prostate Cancer
1 month ago
Clarity Update: Complete response in first patient ever treated with 2 doses of Cu-67 SAR-bisPSMA at 8GBq
Highlights A complete response, based on Response Evaluation Criteria In Solid Tumours (RECIST v1.1) assessment, has been reported from the first patient with metastatic castrate-resistant prostate cancer (mCRPC) to ever receive two cycles of Clarity’s 67Cu-SAR-bisPSMA at the 8GBq dose level. The patient
Highlights A complete response, based on Response Evaluation Criteria In Solid Tumours (RECIST v1.1) assessment, has been reported from the first patient with metastatic castrate-resistant prostate cancer (mCRPC) to ever receive two cycles of Clarity’s 67Cu-SAR-bisPSMA at the 8GBq dose level. The patient
God_Loves_Me
in
Advanced Prostate Cancer
1 month ago
PSA test
my husband had a PSA done and it raised from 0,5 to 0,7. He finished proton radiation las year January, the PSA went down to 0,5. is this normal, or should he take any action? He will be 81 years old this coming September, would it be okay to let it go. Has anybody have this experience? Thank you for
my husband had a PSA done and it raised from 0,5 to 0,7. He finished proton radiation las year January, the PSA went down to 0,5. is this normal, or should he take any action? He will be 81 years old this coming September, would it be okay to let it go. Has anybody have this experience? Thank you for
Grommi
in
Advanced Prostate Cancer
1 month ago
Pregabalin and Linaclotide
There's a bit out there in the posts but it would be good to hear from anyone with experience of either of these. GP can't prescribe me linaclotide: blocked due to a record of IBD (i.e. Crohn's that I have/had -no physical signs, long story). So I get the P and a followup visit to see if that works and
There's a bit out there in the posts but it would be good to hear from anyone with experience of either of these. GP can't prescribe me linaclotide: blocked due to a record of IBD (i.e. Crohn's that I have/had -no physical signs, long story). So I get the P and a followup visit to see if that works and
XDjames
in
IBS Network
1 month ago
rising PSA and 'light' advancement of mets in hip bones. Diagnosed stage 4 in March 2021.
Greetings! My husband was diagnosed with stage 4 prostate cancer in March 2021. ADT dropped the PSA quite a bit. We started seeing Dr. George at Duke March of 2023 and he had my husband on a round of docetaxel. After that the many bone mets and some on lungs 'disappeared'. Now it looks like they
Greetings! My husband was diagnosed with stage 4 prostate cancer in March 2021. ADT dropped the PSA quite a bit. We started seeing Dr. George at Duke March of 2023 and he had my husband on a round of docetaxel. After that the many bone mets and some on lungs 'disappeared'. Now it looks like they
Newdiag-NC
in
Advanced Prostate Cancer
1 month ago
Synacthen test results
Update on Synacthen test results from 26/4/24. Thought this may be of interest. 9.20 cortisol blood test - 220 (better than cortisol test on 26/3/24 - 131) Post Synacthen test bloods - 362 Below normal (420) but ok. Must stay on 3mg pred. Endocrinology nurse rang today (29/4 - so speedy) to discuss
Update on Synacthen test results from 26/4/24. Thought this may be of interest. 9.20 cortisol blood test - 220 (better than cortisol test on 26/3/24 - 131) Post Synacthen test bloods - 362 Below normal (420) but ok. Must stay on 3mg pred. Endocrinology nurse rang today (29/4 - so speedy) to discuss
Bluey-1
in
PMRGCAuk
1 month ago
Cardio and thyroidism
5and a half years ago I suffered a heart attack. I had a stent implanted and went to cardio rehab. I have noticed over the last year I get tired quickly and have shortage of breath. I was shocked to be told by my new doctor that I have an underactive thyroid. My question is this! Is my heart contributing
5and a half years ago I suffered a heart attack. I had a stent implanted and went to cardio rehab. I have noticed over the last year I get tired quickly and have shortage of breath. I was shocked to be told by my new doctor that I have an underactive thyroid. My question is this! Is my heart contributing
gunnerred67
in
Thyroid UK
6 months ago
Sleep
Hi my hubby has stage 4 kidney failure.hes not started his dialysis yer but all he want to do is sleep he's no energy at all goes light headed at the least little thing , any advice please
Hi my hubby has stage 4 kidney failure.hes not started his dialysis yer but all he want to do is sleep he's no energy at all goes light headed at the least little thing , any advice please
heartgirlx4
in
Kidney Dialysis
1 year ago
Understand Your Blood Work
this is from a Canadian PBC Society PBC FACT SHEET (09/02/16) (may vary by lab) ALP Alkaline Phosphatase This enzyme occurs mainly in liver cells next to bile ducts, and in bone. The blood level is raised in PBC and is the main enzyme that is checked to see if you have a response to treatment
this is from a Canadian PBC Society PBC FACT SHEET (09/02/16) (may vary by lab) ALP Alkaline Phosphatase This enzyme occurs mainly in liver cells next to bile ducts, and in bone. The blood level is raised in PBC and is the main enzyme that is checked to see if you have a response to treatment
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Retinal thickness predicts worsening of Parkinson’s disease
The results showed that the retinal layer noticeably loses weight in patients with Parkinson’s disease. It was also noted that in the initial stages of the disease It is in the retina that the greatest neurodegeneration is found. and from a certain point, when the layer is already very thin, a kind of
The results showed that the retinal layer noticeably loses weight in patients with Parkinson’s disease. It was also noted that in the initial stages of the disease It is in the retina that the greatest neurodegeneration is found. and from a certain point, when the layer is already very thin, a kind of
Farooqji
in
Cure Parkinson's
1 month ago
I Had A Stroke
Last week I had an ischemic stroke. It affected my right leg and right arm/hand. I woke up to a heavy arm and heavy leg but my face, smile, and speech were unaffected. It got progressively worse throughout the day and I went to the ER 9 hours after I woke up. I should have gone to the ER right after
Last week I had an ischemic stroke. It affected my right leg and right arm/hand. I woke up to a heavy arm and heavy leg but my face, smile, and speech were unaffected. It got progressively worse throughout the day and I went to the ER 9 hours after I woke up. I should have gone to the ER right after
OFPF16
in
Advanced Prostate Cancer
1 month ago
Watching and waiting
My 78 year old husband was diagnosed with prostate cancer Gleason 8 two years ago. ( Urologist noticed a very slight rise in psa and located a tumor after dre. Biopsy showed cancerous cells in Only in three cores. Bone scan clean. Subsequently had 28 rounds of radiation and three rounds of CyberKnife
My 78 year old husband was diagnosed with prostate cancer Gleason 8 two years ago. ( Urologist noticed a very slight rise in psa and located a tumor after dre. Biopsy showed cancerous cells in Only in three cores. Bone scan clean. Subsequently had 28 rounds of radiation and three rounds of CyberKnife
Pastaking
in
Advanced Prostate Cancer
1 month ago
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