Annual Thyroid Palaver NHS: I checked my medical... - Thyroid UK

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Annual Thyroid Palaver NHS

Sparklingsunshine profile image

I checked my medical record online yesterday and I've been summoned by letter for annual NHS thyroid check (yay) but they've also requested electrolytes and GFR blood tests.

I dont have kidney problems and had GFR done last year which was fine so am wondering is this something they now include for thyroid patients or whether to query it?

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Sparklingsunshine profile image
Sparklingsunshine
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38 Replies
QUE6T-33 profile image
QUE6T-33

I’m being dumb, but what’s a GFR test ?

helvella profile image
helvellaAdministrator in reply toQUE6T-33

eGFR - estimated Creatinine Clearance

Formal Name

Estimated Glomerular Filtration Rate

labtestsonline.org.uk/tests...

Jaydee1507 profile image
Jaydee1507Administrator

These seem to be standard tests done on an annual basis as routine. I had mine done in July and it included an eGFR test. I dont have kidney issues.

Sparklingsunshine profile image
Sparklingsunshine in reply toJaydee1507

Thanks for replying. I 've never had it done annually before so was rather bemused.

Jaydee1507 profile image
Jaydee1507Administrator in reply toSparklingsunshine

For myself they tested thyroid, Urea & electrolytes, cholesterol, liver function & HbA1c. I'm sure the same will be repeated next year. :)

QUE6T-33 profile image
QUE6T-33 in reply toSparklingsunshine

Yes, I’ve not heard of NHS required annual testing. Is there a specific list of tests they require ?

Sparklingsunshine profile image
Sparklingsunshine in reply toQUE6T-33

I find the NHS very odd about testing, they seem to randomly pluck tests out of the air to inflict on patients whilst they are captive in the phlebotomy chair yet trying to get them to do tests they really should, like vitamin D or FT3 they dont see as important or relevant.

I've had to point out to my surgery several times that they are wasting my time and theirs by repeating tests that come back as normal several weeks later. I've also had to really push for tests to be repeated that came back as abnormal but which werent followed through.

BlueMoon65 profile image
BlueMoon65 in reply toSparklingsunshine

I agree… 5 years ago a temporary GP did a FBC on me ( crazy reduction of Levo resulted but it was useful afterwards to see how many areas of potential concern were ignored!) Yet last year when I was ‘summoned’, and asked for Vit D and B vits checks, they only tested T4 and TSH…no logic, no continuity, and only worsening issues for patient and wasted resources IMHO…

Hedgeree profile image
Hedgeree in reply toQUE6T-33

Same here! Any tests I've managed to get is if I've requested them and say I've got an endo appointment coming up.

SlowDragon profile image
SlowDragonAdministrator

I think that’s progress……

perhaps they have finally realised low GFR linked to low Ft3

ncbi.nlm.nih.gov/pmc/articl...

The GFR is reversibly reduced (by about 40%) in more than 55% of adults with hypothyroidism[40] due to several reasons.

BlueMoon65 profile image
BlueMoon65 in reply toSlowDragon

Thank you SO much for this info. I had a Stage 2 CKD label on me 5 years back, with no mention or advice. So there’s the context. It’s puzzling that the resources are used to test, yet a simple phone call to explain outcomes doesn’t result.

SlowDragon profile image
SlowDragonAdministrator in reply toBlueMoon65

Vast majority of GP’s probably have little idea that being hypothyroid is linked poor kidney function or that it will kidney function will recover as levothyroxine dose is increased and thyroid levels improve

Griffo_ profile image
Griffo_

My NHS GP yesterday said she likes to test kidneys when doing thyroid bloods. She didn’t say why. Shame it’s only TSH and kidneys!

SlowDragon profile image
SlowDragonAdministrator in reply toGriffo_

That’s a positive result 👏

asiatic profile image
asiatic

At my annual appraisal they include HA1c in spite of evidence showing it is not a reliable test for prediabetes in patients with hypothyroidism or taking Levothyroxine thyroid.org/patient-thyroid...

As you say they miss doing ones like Vit D or B12 which are more likely to be of use to us.

Bearo profile image
Bearo in reply toasiatic

Thanks for posting that link. I took it to mean that being untreated hypothyroid raises HbA1c but when treated it drops down again - but that’s just the test levels - in reality the blood sugar doesn’t really change? I didn’t quite get it. I want to understand it as I’m in the pre diabetic range.

asiatic profile image
asiatic in reply toBearo

As you are interested in this I will post some references I have kept on the subject. If you have questions after reading them I suggest you post under a new heading

Although the study commented on people with untreated hypothyroidism but healthy blood glucose levels it explains that distortion arises because of the effect of hypothyroidism and levo on the turnover of red blood cells. The HBA1c tests the amount of glycogen attached to old blood cells. The basis of the test doesn't work with hypothyroidism or treated hypothyroidism and so it not accurate full stop.. pubmed.ncbi.nlm.nih.gov/264...

wellnessresources.com/news/...

healthcentral.com/condition...

restartmed.com/hypothyroidi...

Hedgeree profile image
Hedgeree

I've never had an annual request for any testing. Is this thyroid or age dependent? I don't even get reviewed for the medication I've been on regularly for many years; maybe it's done without my knowledge?

Only been on levo for a year though 🤷🏼‍♂️

Sparklingsunshine profile image
Sparklingsunshine in reply toHedgeree

I last had NHS testing for thyroid in June 2022. I think you are supposed to have an annual blood test if you're on Levo via your GP.

Hedgeree profile image
Hedgeree in reply toSparklingsunshine

Thanks. I'll have to mention that to my surgery.

Sparklingsunshine profile image
Sparklingsunshine in reply toHedgeree

Unless you feel unwell or want a dose reduction I'd keep schtum lol. I dread their interference. I was hoping they'd forgotten about me.

Sparklingsunshine profile image
Sparklingsunshine in reply toSparklingsunshine

I'm going to drag my heels and put it off as long as possible 😂

Hedgeree profile image
Hedgeree in reply toSparklingsunshine

Ah yes true. I was declared euthroid by my GP last week with FT4 12.3 (range 12-22) so not easily expecting to get an increase in my levo dose 🤔

Sparklingsunshine profile image
Sparklingsunshine in reply toHedgeree

Hallelujah you are healed 🤗

Hedgeree profile image
Hedgeree in reply toSparklingsunshine

Ha ha 🤣🤸🏻‍♂️Yes I did roll my eyes when he said it. Luckily it was a phone consultation 😊

Sparklingsunshine profile image
Sparklingsunshine in reply toHedgeree

I've learnt far more since being on the forum than I ever did from doctors, frankly I think most of us can manage our thyroid condition much more successfully with the right supplements, home testing, dose tweaking and lifestyle changes.

Without GP's clutching their pearls at low TSH and immediately reducing our dose. I often wish I wasn't beholden to the NHS for Levo.

Hedgeree profile image
Hedgeree in reply toSparklingsunshine

Yes I believe so too. Even though I'm fairly new to all things thyroid I'm learning a lot from the reading of the posts on the forum. It does appear for many here that they can manage their thyroid issues well without any GP interference.

I've now been invited for a face to face consultation 😐so wish me luck!

BlueMoon65 profile image
BlueMoon65 in reply toSparklingsunshine

Totally agree. If this forum weren’t available, I seriously doubt I’d still be here. Because of an irrational and very sudden reduction of my Levo back in 2018, I was in real trouble.

Sparklingsunshine profile image
Sparklingsunshine in reply toHedgeree

You'll probably be flagged up and hauled in for one in the not too distant future. I'm actually due to test mine via MMH next week so at least I'll be prepared for the inevitable tussle with GP about low TSH. And I'll know about the important FT4 and 3.

Feuerfrei profile image
Feuerfrei

Oddly, I've not been called for an annual anything for a couple of years now. I do my own testing and have a private NDT prescription but local surgery seems happy to ignore me. At least it avoids the annual fight over very slightly raised cholesterol ha ha

BlueMoon65 profile image
BlueMoon65 in reply toFeuerfrei

I suspect sudden attention to annual review may be linked to NHS target revival, practice refocus, or maybe a new member of GP admin staff being given a job to run through patient lists. I am keeping my head down…I know from working in A and E forty years ago that doctors do sometimes attach ‘typology’ labels to patients ( I think that’s common knowledge!). As I’ve refused statins and beta blockers ‘offered’ by hospital in the past, I think I’m an AOB! 😂

Feuerfrei profile image
Feuerfrei in reply toBlueMoon65

The look on their faces when you won't consider them 😂 I suspect a sudden interest in getting a set of tests now I've requested my exemption card renewal

helvella profile image
helvellaAdministrator

My GP surgery seems always to add Liver Function Tests because they associate thyroid disorders with liver issues.

We have seen a lot of members with kidney and/or liver tests that indicate something going wrong. In general, it's possibly a good thing to have these tested rather than not. So long as they are not used as a proxy to change thyroid doses.

serenfach profile image
serenfach

I have never been called for an appointment and I have had Hashi's for 17 years. I have had bloods for other things when I have seen a GP for something, and occasionally they stick in a thyroid test and a kidney test. My creatinine levels are way above the range, but a specialist told me to start worrying when it hits 200! The range goes to around 80.

I am pretty sure the GP just glance at the results to see if any are flagged up. They dont look for near the bottom or top of the range.

Bearo profile image
Bearo in reply toserenfach

No, they don’t look to see if anything is flagged - or if they do they quickly disregard it. My red blood markers are always above and below range but they have never commented, repeated a test or been concerned in the slightest. When I queried an under range marker I was told , “ oh, but you’re a woman! That’s actually quite good for a woman”

Dancer57 profile image
Dancer57

Gold Star⭐awarded to your GP for inviting you for annual Thyroid check. Shows you are on their radar!!

I never hear a peep out of mine. 🤣

Hope your test goes ok. 👍

Sparklingsunshine profile image
Sparklingsunshine in reply toDancer57

I'd rather be off their radar and away from their interference 😒

Dancer57 profile image
Dancer57 in reply toSparklingsunshine

Oh I see!!!! Like that is it. My surgery is complete opposite.

Hope all goes well.

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