Search
Search
About
Log in
Join
Experiences with
Kidney diseases in childhood
Posts
Communities
61,066 public posts
Filter results
From Childhood Kidney Disease Diagnosis to Kidney Doctor
Dr. Ken Sutha's kidney disease journey began at the age of ten. His experiences navigating kidney disease, undergoing multiple kidney transplants, and dedicating time to volunteer with children facing similar challenges shaped his career path as a pediatric nephrologist and fueled his advocacy efforts
Dr. Ken Sutha's kidney disease journey began at the age of ten. His experiences navigating kidney disease, undergoing multiple kidney transplants, and dedicating time to volunteer with children facing similar challenges shaped his career path as a pediatric nephrologist and fueled his advocacy efforts
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
11 days ago
Intro
Hi everyone I'm Happy2bHardcore I've just joined as I've got aortic valve regurgitation serve which was caused by doing hemo dialysis while I waited for a kidney transplant and I'm absolutely devastated by this news going through this now I'm 37 and I'm really lonely and isolated.I'm so scared and worried
Hi everyone I'm Happy2bHardcore I've just joined as I've got aortic valve regurgitation serve which was caused by doing hemo dialysis while I waited for a kidney transplant and I'm absolutely devastated by this news going through this now I'm 37 and I'm really lonely and isolated.I'm so scared and worried
Happy2BHardcore
in
British Heart Foundation
13 days ago
Nitrofurantoin - good or bad?
Not sure that this is posted in the best place, but I don't seem to be able to access any other links atm. I have been prescribed this antibiotic for traces of blood in urine just over 2 days ago. 50mg to be taken at night. Only on the third dose so it's early days, but had quick urine test done
Not sure that this is posted in the best place, but I don't seem to be able to access any other links atm. I have been prescribed this antibiotic for traces of blood in urine just over 2 days ago. 50mg to be taken at night. Only on the third dose so it's early days, but had quick urine test done
gillsky8
in
PMRGCAuk
14 days ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Kidney Transplant
Hi everyone… I’m 36 years old male from Australia and have kidney failure last month. I’m currently on dialysis. The average wait time for kidney transplant in Australia is 2 to 7 years. My doctor told me i can get transplant early due to age factor. My question is that can someone explain their transplant
Hi everyone… I’m 36 years old male from Australia and have kidney failure last month. I’m currently on dialysis. The average wait time for kidney transplant in Australia is 2 to 7 years. My doctor told me i can get transplant early due to age factor. My question is that can someone explain their transplant
K4kamran
in
Kidney Disease
14 days ago
seeking a kidney donor
My name is Deepti and I am 35 years old . In April 2024, I was diagnosed with End-Stage Renal Disease and now rely on peritoneal dialysis (PD) 7 days a week. Dialysis is exhausting and restricts my daily activities . I hold a Masters degree from Purdue and work as a Data engineer in Silicon Valley
My name is Deepti and I am 35 years old . In April 2024, I was diagnosed with End-Stage Renal Disease and now rely on peritoneal dialysis (PD) 7 days a week. Dialysis is exhausting and restricts my daily activities . I hold a Masters degree from Purdue and work as a Data engineer in Silicon Valley
Deeptibahel
in
Kidney Donation
16 days ago
Debbie
Recently come out of hospital after 3 months following an unexpected bowel operation (fortunately not cancer related)Just wanted to big up the NHS. The hospital I was in liaised so well with my main hospital regarding my APS and renal transplant and kept me informed of any recommended changes and especially
Recently come out of hospital after 3 months following an unexpected bowel operation (fortunately not cancer related)Just wanted to big up the NHS. The hospital I was in liaised so well with my main hospital regarding my APS and renal transplant and kept me informed of any recommended changes and especially
Womanfriday
in
Hughes Syndrome APS Forum
20 days ago
Continued Journey
I still have some hurdles to overcome but great news. On Monday of this week I had labs drawn, clinic (see the PA or Dr) to discuss. Then I also had a Bone Marrow draw ( biopsy). Wednesday more labs, clinic. Most numbers have been entering normal range except platelets and Red bloods cells ( normally
I still have some hurdles to overcome but great news. On Monday of this week I had labs drawn, clinic (see the PA or Dr) to discuss. Then I also had a Bone Marrow draw ( biopsy). Wednesday more labs, clinic. Most numbers have been entering normal range except platelets and Red bloods cells ( normally
FiArt12X
in
CLL Support
21 days ago
UTI experiences,what are they? Appetite lost?
My spouse received his kidney transplant 5.5 years ago and this week has his first UTI infection and is on "Cipro" antibiotic 5 days with a refill if needed. About 2 days prior he lost his appetite and foods tasted "off". He is diabetic on insulin before every meal and at night before bed too. Curious
My spouse received his kidney transplant 5.5 years ago and this week has his first UTI infection and is on "Cipro" antibiotic 5 days with a refill if needed. About 2 days prior he lost his appetite and foods tasted "off". He is diabetic on insulin before every meal and at night before bed too. Curious
GardnerADK
in
Kidney Transplant
21 days ago
More Questions about Post Transplant Life
I again appreciate all the replies to my post. Some of you took the time to write detailed responses. I have a question concerning taking trips, especially by plane. I probably would only take a plane to visit my nephews, who live 600 miles away. The plane is with a regional airline and is narrow
I again appreciate all the replies to my post. Some of you took the time to write detailed responses. I have a question concerning taking trips, especially by plane. I probably would only take a plane to visit my nephews, who live 600 miles away. The plane is with a regional airline and is narrow
Lee75glom
in
Kidney Transplant
21 days ago
Deciding on dialysis vs. deceased kidney transplant at 76 years old
I will attain 76 years in August, 2024. I have been on hemodialysis since early May 2024. At one point I was eligible for only a living kidney. Now it looks like the transplant center will approve my placement on an urgent protocol so I can wait 3 years for a deceased kidney. I could live 10years
I will attain 76 years in August, 2024. I have been on hemodialysis since early May 2024. At one point I was eligible for only a living kidney. Now it looks like the transplant center will approve my placement on an urgent protocol so I can wait 3 years for a deceased kidney. I could live 10years
Lee75glom
in
Kidney Transplant
28 days ago
One year, one month post transplant
Hello. I post sometimes but apparently have not “officially” introduced myself. I received a deceased donor kidney transplant on June 11, 2023. I was incredibly lucky. I begged my family and friends to donate to me, but they all refused except one friend who got tested and his function was not good enough
Hello. I post sometimes but apparently have not “officially” introduced myself. I received a deceased donor kidney transplant on June 11, 2023. I was incredibly lucky. I begged my family and friends to donate to me, but they all refused except one friend who got tested and his function was not good enough
ShyeLoverDoctor
in
Kidney Transplant
29 days ago
Worse after an UTI and Covid
Good afternoon. About five weeks ago I developed an UTI for which I took three separate courses of antibiotics as it wouldn't clear. In the same period I contracted Covid which didn't affect me much. I only found out that I had it because a friend who I'd spent time with had done a Covid test and it
Good afternoon. About five weeks ago I developed an UTI for which I took three separate courses of antibiotics as it wouldn't clear. In the same period I contracted Covid which didn't affect me much. I only found out that I had it because a friend who I'd spent time with had done a Covid test and it
Siena62
in
PMRGCAuk
1 month ago
Using AI to understand what is the best treatment for each patient
https://www.urologytimes.com/view/study-applies-ai-tool-to-stampede-data-in-prostate-cancer "We already know that there are various variables that get reported as part of routine histology reporting, which have a degree of prognostic impact, particularly in the early stage of the disease. But these
https://www.urologytimes.com/view/study-applies-ai-tool-to-stampede-data-in-prostate-cancer "We already know that there are various variables that get reported as part of routine histology reporting, which have a degree of prognostic impact, particularly in the early stage of the disease. But these
Maxone73
in
Advanced Prostate Cancer
10 months ago
Hi Everyone, I am a 42 year old man and I had a kidney transplant 1 year ago.
Hi, as stated above I had a kidney transplant last year. It has been very successful. Having said that I do have some anxiety because I have been drinking quite a lot of black tea this past couple of months. Stopped drinking it early part of the week. I am having irregular heart beats and some dizzy
Hi, as stated above I had a kidney transplant last year. It has been very successful. Having said that I do have some anxiety because I have been drinking quite a lot of black tea this past couple of months. Stopped drinking it early part of the week. I am having irregular heart beats and some dizzy
Paddie8254
in
Kidney Disease
1 month ago
working out / personal trainer
I'm 14 and half months post kidney transplant and my new kidney is in the right lower quadrant. I am going to start working out with a personal trainer. I wondered if anyone else has had work with a trainer and are there exercises to stay away from during this time? I was thinking like "crunches"
I'm 14 and half months post kidney transplant and my new kidney is in the right lower quadrant. I am going to start working out with a personal trainer. I wondered if anyone else has had work with a trainer and are there exercises to stay away from during this time? I was thinking like "crunches"
Tankjsl
in
Kidney Transplant
1 month ago
UTI experience with Imbruvica
hello, when I was on Imbruvica I had many UTI. This is side effects of Imbruvica. I asked my doctor to switch me for another medication and now they m on Venclecta. This is even worse. I do not have UTI anymore , but I’m already sick for Ramsay Hunt this is like Bels Pasley. All these pills for CLL have
hello, when I was on Imbruvica I had many UTI. This is side effects of Imbruvica. I asked my doctor to switch me for another medication and now they m on Venclecta. This is even worse. I do not have UTI anymore , but I’m already sick for Ramsay Hunt this is like Bels Pasley. All these pills for CLL have
farber
in
CLL Support
1 month ago
Treatment update-is SBRT missing the lesions ?
PET scan 8/21 following PSA 54.5 showed numerous bone lesions. Zytiga, prednisone, Eligard knocked PSA to <.064 until 1/23 PET showed new small lesion in left hip. Radiation 35 Gray 5/5 completed 3/15/23 with PSA drop then bounce from 0.24 to 5.9 triggered another PET on 9/6/23 which showed a new metastasis
PET scan 8/21 following PSA 54.5 showed numerous bone lesions. Zytiga, prednisone, Eligard knocked PSA to <.064 until 1/23 PET showed new small lesion in left hip. Radiation 35 Gray 5/5 completed 3/15/23 with PSA drop then bounce from 0.24 to 5.9 triggered another PET on 9/6/23 which showed a new metastasis
alperk
in
Advanced Prostate Cancer
1 month ago
Ear piercing
Has anybody had their ears pierced after their kidney transplant did you need antibiotics prior or after anything like that or any special precautions
Has anybody had their ears pierced after their kidney transplant did you need antibiotics prior or after anything like that or any special precautions
Parkerbarker
in
Kidney Transplant
1 month ago
A Tale of Two Kidney Transplants: Family Saves the Day
Every year, millions of people get a health diagnosis that changes the course of their lives forever. For Nichole, this moment came in 2007. A few months after graduating high school, a routine physical for college revealed a devastating truth–Nichole’s kidneys were not functioning correctly. Learn more
Every year, millions of people get a health diagnosis that changes the course of their lives forever. For Nichole, this moment came in 2007. A few months after graduating high school, a routine physical for college revealed a devastating truth–Nichole’s kidneys were not functioning correctly. Learn more
JackieJ_NKF
Partner
in
Kidney Transplant
2 months ago
KIDNEY TRANSPLANT AFTER CARE
Anyone have a kidney transplant complete,, please how to take care patient?
Anyone have a kidney transplant complete,, please how to take care patient?
niyajul1111
in
Kidney Transplant
2 months ago
1
...
9
10
11
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
13273 results
Thyroid UK
6027 results
British Liver Trust
4556 results
View top 10 communities
Sort by
Most Relevant
Newest