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Kidney diseases in childhood
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There's Hope
Being a dialysis patient can have its difficulty, but when you have dual diagnosis like being a diabetic sometimes it feels like all he'll breaks through. But I decided to reach out to my medical team and I got the support I needed as well as understanding my situation. I have a plan that I and my
Being a dialysis patient can have its difficulty, but when you have dual diagnosis like being a diabetic sometimes it feels like all he'll breaks through. But I decided to reach out to my medical team and I got the support I needed as well as understanding my situation. I have a plan that I and my
Quita55
in
Kidney Dialysis
8 hours ago
Considering a change of dialysis centers
So, my nephrologist just up and left. I'm sure there was more going on behind the scenes than I'm aware of, but it was so sudden for me. He was also the consulting MD at the dialysis clinic. I'm not worried about finding another nephro, though. The nephrology department I deal with is a crack team
So, my nephrologist just up and left. I'm sure there was more going on behind the scenes than I'm aware of, but it was so sudden for me. He was also the consulting MD at the dialysis clinic. I'm not worried about finding another nephro, though. The nephrology department I deal with is a crack team
PeaB4YouGo
in
Kidney Dialysis
18 hours ago
results of nail biopsy
At the end of last week I got my results of my nail biopsies. It is no fungus, no infection and best of all no cancer. They do not know what it actually is despite using numerous tests. A very happy outcome, as all medics seen in the process suspected subungual melanoma. I can live with not knowing
At the end of last week I got my results of my nail biopsies. It is no fungus, no infection and best of all no cancer. They do not know what it actually is despite using numerous tests. A very happy outcome, as all medics seen in the process suspected subungual melanoma. I can live with not knowing
artydutch
in
MPN Voice
2 days ago
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Pluvicto and Renal Issues
I have had normal physical impact from my 4 previous Pluvicto injections: fatigue, reduced appitite, and additional sleep requirements. My fifth injection, 10 days ago, however, resulted in me being bedridden most of the time, no appetite, excessive sleep, stomach pain, and, and what I believe, severe
I have had normal physical impact from my 4 previous Pluvicto injections: fatigue, reduced appitite, and additional sleep requirements. My fifth injection, 10 days ago, however, resulted in me being bedridden most of the time, no appetite, excessive sleep, stomach pain, and, and what I believe, severe
GDG1
in
Advanced Prostate Cancer
3 days ago
LVV Relapse Update
Good news … after 2 weeks at 25mgs pred, my markers are back to “normal”, ie CRP at 2 and ESR is 8. I have had two TCZ jabs a week apart, so could this have already created the masking effect, which had waned with the 4 weekly jabs? Now to begin the taper: 20mgs for 2 weeks and then 17.5 x 2 etc.
Good news … after 2 weeks at 25mgs pred, my markers are back to “normal”, ie CRP at 2 and ESR is 8. I have had two TCZ jabs a week apart, so could this have already created the masking effect, which had waned with the 4 weekly jabs? Now to begin the taper: 20mgs for 2 weeks and then 17.5 x 2 etc.
LemonZest11
in
PMRGCAuk
6 days ago
Finally found some relief for IC
Hi everyone, I’m 48 & was diagnosed with IC & Hunners ulcers after having a bladder lift in 2005 & having the mesh fall apart & get stuck in my pelvic floor wall. The mesh was of course toxic and did a number on my bladder as well. I tried EVERYTHING you could imagine & kept track of when pain would
Hi everyone, I’m 48 & was diagnosed with IC & Hunners ulcers after having a bladder lift in 2005 & having the mesh fall apart & get stuck in my pelvic floor wall. The mesh was of course toxic and did a number on my bladder as well. I tried EVERYTHING you could imagine & kept track of when pain would
Ali_rivers
in
Pelvic Pain Support Network
7 days ago
electric toothbrush, and Trigeminal Neuralgia
hello everyone, does anyone use an electric toothbrush and they also have trigeminal neuralgia?, I stopped using my electric toothbrush in fear of the pressure causing/triggering the pain. Now I feel as though my teeth are not as clean.
hello everyone, does anyone use an electric toothbrush and they also have trigeminal neuralgia?, I stopped using my electric toothbrush in fear of the pressure causing/triggering the pain. Now I feel as though my teeth are not as clean.
MSbeGone
in
My MSAA Community
9 days ago
Soy Lecithin protien powder ?
I am on a low calorie high protien diet, and have been using protien powder to supplement my diet. However I have become aware of articles saying that one of the ingredients ( Soy Lecithen ) is believed to interfere with thyroid hormone production ! What are people's thoughts on this, as I am very
I am on a low calorie high protien diet, and have been using protien powder to supplement my diet. However I have become aware of articles saying that one of the ingredients ( Soy Lecithen ) is believed to interfere with thyroid hormone production ! What are people's thoughts on this, as I am very
Bigsi
in
Thyroid UK
10 days ago
worrying results but not yet diagnosed
hi all I had some blood tests for something unrelated which showed high creatinine and a low egfr. Then I had a urine test which showed high albumin levels. Last week I had an ultrasound which showed normal size kidneys but inflammation. Does all this mean I have kidney disease? My appt to see a
hi all I had some blood tests for something unrelated which showed high creatinine and a low egfr. Then I had a urine test which showed high albumin levels. Last week I had an ultrasound which showed normal size kidneys but inflammation. Does all this mean I have kidney disease? My appt to see a
Meagain24
in
Early CKD Support
11 days ago
What would cause spontaneous prostate stimulation?
What would cause spontaneous prostate stimulation while lying on my back? When I lie down, in a few seconds it feels like someone is manually stimulating my prostate. This lasts for hours at a time and I cannot sleep. This started immediately after a nocturnal emission, and I haven't had one since, even
What would cause spontaneous prostate stimulation while lying on my back? When I lie down, in a few seconds it feels like someone is manually stimulating my prostate. This lasts for hours at a time and I cannot sleep. This started immediately after a nocturnal emission, and I haven't had one since, even
Hidden
in
Men's Health Forum
17 days ago
Protein in urine
I have protein in my urine so where on my blood results would this show up would it be under Albumin level
I have protein in my urine so where on my blood results would this show up would it be under Albumin level
bevgt
in
Early CKD Support
18 days ago
Continued Journey
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
I’ve had the Bone Marrow Transplant!!! That was actually the easiest part. 5 hours of fluids leading up to the BMT and the previous 5 days of chemo infusions (day5 was the worst) were much harder. Chemo: Fladarabine -6 thru-2 with addition of Melphalan on day-2. When you start treatment (chemo) for
FiArt12X
in
CLL Support
19 days ago
LasVegasLover
I have been in stage 4 with CKD for about 3 years. So far, my numbers are remaining stable...which I am grateful for. Not sure if I need to be on this site yet, but I have a few questions. Can anyone tell me the average time from CKD diagnosis to starting dialysis or signing up for a transplant? Thank
I have been in stage 4 with CKD for about 3 years. So far, my numbers are remaining stable...which I am grateful for. Not sure if I need to be on this site yet, but I have a few questions. Can anyone tell me the average time from CKD diagnosis to starting dialysis or signing up for a transplant? Thank
LasVegasLover
in
Kidney Dialysis
19 days ago
Just a quick question.
Hi everyone and thanks for all your help so far. As the chemo has now stopped working for Martin we are looking for any other options that might be available to give him more time. His MO has organised a liquid biopsy to see if there are any mutations that could be treated, which might help. We
Hi everyone and thanks for all your help so far. As the chemo has now stopped working for Martin we are looking for any other options that might be available to give him more time. His MO has organised a liquid biopsy to see if there are any mutations that could be treated, which might help. We
Believeit
in
Advanced Prostate Cancer
30 days ago
My first post concerning APC
Hello everyone. I have just found this site, so unfamiliar with posting protocol. Briefly. I was diagnosed with advanced metastatic prostate cancer (bones) in January, 2023 (thought I just needed to stock up on antacids). February, 2023 prescribed Apalutamide plus Trelstar. Ceased being effective April
Hello everyone. I have just found this site, so unfamiliar with posting protocol. Briefly. I was diagnosed with advanced metastatic prostate cancer (bones) in January, 2023 (thought I just needed to stock up on antacids). February, 2023 prescribed Apalutamide plus Trelstar. Ceased being effective April
VisorF9
in
Advanced Prostate Cancer
1 month ago
Brief history and where I am now. My first post.
Diagnosed metastatic prostate cancer in January, 2023. Prescribed Apalutamide plus Trelstar in February, 2023. Ceased being effective in April, 2024. Recently began Radium223 (Xofigo) treatment. Not sure if I will continue with Xofigo.
Diagnosed metastatic prostate cancer in January, 2023. Prescribed Apalutamide plus Trelstar in February, 2023. Ceased being effective in April, 2024. Recently began Radium223 (Xofigo) treatment. Not sure if I will continue with Xofigo.
VisorF9
in
Advanced Prostate Cancer
1 month ago
Low Potassium/High Calcium Caution
Hi Guys I had a mineral check via a hair test and a DNA Methylation report via a mouth swab (corrected 16 June as I had them the wrong way round) as suggested by a nutritionist who has been helping me sort my gut and auto-immune issues. I wasn't expecting much ... but how lovely to be pleasantly surprised
Hi Guys I had a mineral check via a hair test and a DNA Methylation report via a mouth swab (corrected 16 June as I had them the wrong way round) as suggested by a nutritionist who has been helping me sort my gut and auto-immune issues. I wasn't expecting much ... but how lovely to be pleasantly surprised
Wwwdot
in
Pernicious Anaemia Society
1 month ago
Does anyone take this supplement?
I have been doing a lot of research on how to fix cramping. Let me first say, no pickle juice does not work. I also do not have fluid taken off during dialysis. I add 400ml of saline each treatment. I also have no fluid restrictions and so I do drink a lot of water. And none of my mineral labs indicate
I have been doing a lot of research on how to fix cramping. Let me first say, no pickle juice does not work. I also do not have fluid taken off during dialysis. I add 400ml of saline each treatment. I also have no fluid restrictions and so I do drink a lot of water. And none of my mineral labs indicate
Bassetmommer
in
Kidney Dialysis
1 month ago
Low phosphate levels linked to hypothyroidism?
Hi all, I am under close monitoring for my kidneys by a renal consultant. I had severe acute kidney injury (AKI) caused by sepsis last year and am very slowly improving. At my recent six monthly blood test, my phosphate levels had dropped and they are now below range. The trend for this has been dropping
Hi all, I am under close monitoring for my kidneys by a renal consultant. I had severe acute kidney injury (AKI) caused by sepsis last year and am very slowly improving. At my recent six monthly blood test, my phosphate levels had dropped and they are now below range. The trend for this has been dropping
helen_m
in
Thyroid UK
1 month ago
infusion
Hi, I am currently on 40mg of Adalimumab every 2 weeks but it is not working, the hospital have decided that an infusion of Rituximab is the next step, has anybody else had this treatment and did it work?
Hi, I am currently on 40mg of Adalimumab every 2 weeks but it is not working, the hospital have decided that an infusion of Rituximab is the next step, has anybody else had this treatment and did it work?
LTC1607
in
NRAS
1 month ago
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