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Kidney diseases in childhood
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Annual Thyroid Palaver NHS
I checked my medical record online yesterday and I've been summoned by letter for annual NHS thyroid check (yay) but they've also requested electrolytes and GFR blood tests. I dont have kidney problems and had GFR done last year which was fine so am wondering is this something they now include for
I checked my medical record online yesterday and I've been summoned by letter for annual NHS thyroid check (yay) but they've also requested electrolytes and GFR blood tests. I dont have kidney problems and had GFR done last year which was fine so am wondering is this something they now include for
Sparklingsunshine
in
Thyroid UK
11 months ago
going to be evaluated at another transplant center
My dialysis center sent a referral to VCU Richmond for a kidney transplant evaluation. I been on the waitlist at Sentara Norfolk for 3 years . Question how many of you were on more than one transplant list ? Could they use test they did at other center. Any of you had transplant at Vcu how was your
My dialysis center sent a referral to VCU Richmond for a kidney transplant evaluation. I been on the waitlist at Sentara Norfolk for 3 years . Question how many of you were on more than one transplant list ? Could they use test they did at other center. Any of you had transplant at Vcu how was your
Beachgirl32
in
Kidney Transplant
5 months ago
Fenofibrates
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
DonnaBoll
Administrator
in
PBC Foundation
6 months ago
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Stage 5 renal failure plus dialysis and cirrhosis of the liver
Wondering if anyone else in the world is dealing with these two together. My husband is, and we're scared. We're hopeful, but doctors don't know how this happened other than being diabetic for decades. Never a drop of alcohol, but a heavy meat eater. Diabetes is in control, A1C too, but hemodialysis
Wondering if anyone else in the world is dealing with these two together. My husband is, and we're scared. We're hopeful, but doctors don't know how this happened other than being diabetic for decades. Never a drop of alcohol, but a heavy meat eater. Diabetes is in control, A1C too, but hemodialysis
Cinderella60
in
British Liver Trust
11 months ago
New medication for boosting immunity against covid19
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Gardner-NY
in
Kidney Transplant
5 months ago
RITUXIMAB
HI I HAVE PMR AND MY ANTIBODIES ARE THROUGH THE ROOF. IT HAS CAUSED MY KIDNEY READING TO DROP TO 11% FUNCTION. THE KIDNEY CONSULTANT HAS DECIDED THAT MY IMMUNE SYSTEM NEEDS TO BE LOWERED TO AVOID TOTAL KIDNEY FAILURE BECAUSE IT HAS CAUSED VASCULITIS AND I AM TO START RITUXIMAB NEXT WEEK. I HAVE HAD
HI I HAVE PMR AND MY ANTIBODIES ARE THROUGH THE ROOF. IT HAS CAUSED MY KIDNEY READING TO DROP TO 11% FUNCTION. THE KIDNEY CONSULTANT HAS DECIDED THAT MY IMMUNE SYSTEM NEEDS TO BE LOWERED TO AVOID TOTAL KIDNEY FAILURE BECAUSE IT HAS CAUSED VASCULITIS AND I AM TO START RITUXIMAB NEXT WEEK. I HAVE HAD
eyeBRing
in
PMRGCAuk
11 months ago
B LARGE CELL DIFFUSE LYMPHOMA AFTER 5 YEAR OF POST KIDNEY TRANSPLANT
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
bal_123
in
Kidney Transplant Patient Support
5 months ago
Kidney Transplant & Primary Immune Deficiency
I'm looking to connect with some who have a Primary Immune deficiency and on immunoglobulin replacement. I have both and am having some issues specific to them.
I'm looking to connect with some who have a Primary Immune deficiency and on immunoglobulin replacement. I have both and am having some issues specific to them.
viviselphie
in
Kidney Disease
5 months ago
PSA to have stabilized after skyrocketing. What does this mean?
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
SViking
in
Advanced Prostate Cancer
7 months ago
Terrified - just dropped to stage 4 CKD
I’ve had my kidney transplant - living, from my mom, for 32 years. I know that’s amazing and I’ve been so incredibly fortunate thus far. But I think it’s starting to fail, my GFR just dropped to 29 which puts me in stage 4 ckd after being in 3a w/ a creatine hovering 1.5 for oh probably over 15 years
I’ve had my kidney transplant - living, from my mom, for 32 years. I know that’s amazing and I’ve been so incredibly fortunate thus far. But I think it’s starting to fail, my GFR just dropped to 29 which puts me in stage 4 ckd after being in 3a w/ a creatine hovering 1.5 for oh probably over 15 years
SOct91
in
Kidney Transplant
5 months ago
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with mycophenolate mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
Lupkinis plus MMF most effective in lupus nephritis; tacrolimus safest Researchers reviewed 17 randomized controlled trials of 2,890 people A combination of Lupkinis (viclosporin) with mycophenolate mofetil (MMF) was the most effective at managing lupus nephritis, according to a systematic review
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
7 months ago
New here
Hi everyone. I’m new here. 32 weeks pregnant and experiencing severe urethral pain for over a month. Doctors think the baby is on the nerves supplying the urethra. Cystoscopy was clear, no uti. Has anyone ever had this experience? Constant urge to pee and lightning bolts every few minutes shooting down
Hi everyone. I’m new here. 32 weeks pregnant and experiencing severe urethral pain for over a month. Doctors think the baby is on the nerves supplying the urethra. Cystoscopy was clear, no uti. Has anyone ever had this experience? Constant urge to pee and lightning bolts every few minutes shooting down
PrincessPeachPirate
in
Pelvic Pain Support Network
5 months ago
protein supplements: yes or no?
Since I just finished Viewray Tx at UCLA, I’m moving on to the diet & exercise research zone. I’d like input on what the latest research, if any, is RE protein supplements. Whey isolate vs. vegan protein supp? Does either one promote or suppress PCa after Tx? Also, what’s the latest on eggs? It seems
Since I just finished Viewray Tx at UCLA, I’m moving on to the diet & exercise research zone. I’d like input on what the latest research, if any, is RE protein supplements. Whey isolate vs. vegan protein supp? Does either one promote or suppress PCa after Tx? Also, what’s the latest on eggs? It seems
BL2023
in
Advanced Prostate Cancer
11 months ago
Stage 4 endo and trying for a baby
Just looking to see if anyone has been in a similar situation / look for some advise! I had surgery end of June where they found stage 4 endo, I had x2 large cysts in both ovaries and everything was fused together. My right side is blocked when he did the dye test. I was started on Decapytyl for 3
Just looking to see if anyone has been in a similar situation / look for some advise! I had surgery end of June where they found stage 4 endo, I had x2 large cysts in both ovaries and everything was fused together. My right side is blocked when he did the dye test. I was started on Decapytyl for 3
Amy2106
in
Endometriosis UK
11 months ago
Digestive symptoms post dialysis
my husband has been on center hemodialysis for about a year and a half. None of the medical staff seem to be able to understand or help with the extreme throat/esophageal discomfort he feels for close to 24 hours following dialysis., with no appetite. I wondered if anyone else has experienced this. He
my husband has been on center hemodialysis for about a year and a half. None of the medical staff seem to be able to understand or help with the extreme throat/esophageal discomfort he feels for close to 24 hours following dialysis., with no appetite. I wondered if anyone else has experienced this. He
22171
in
Kidney Dialysis
11 months ago
Any experience with pregnancy after kidney transplant?
hi everyone, I had my kidney transplant in April 2022 and have been given the green light by my nephrologist and transplant team that I am able to go ahead with a pregnancy. Having been through a lot medically including a bilateral nephrectomy prior to transplant, I am overwhelmed at the possibility
hi everyone, I had my kidney transplant in April 2022 and have been given the green light by my nephrologist and transplant team that I am able to go ahead with a pregnancy. Having been through a lot medically including a bilateral nephrectomy prior to transplant, I am overwhelmed at the possibility
Hazzbaz
in
Kidney Transplant
5 months ago
Dialysis, what are the cons?
I'm a way off from having to have dialysis but am wondering about the cons of it. I know the pros but would like to hear from dialysis patients what it's like, the cons, the diet, labs, etc. Not really sure but I have a feeling that it's not as cozy or as simple as it looks to be. Also, maybe from
I'm a way off from having to have dialysis but am wondering about the cons of it. I know the pros but would like to hear from dialysis patients what it's like, the cons, the diet, labs, etc. Not really sure but I have a feeling that it's not as cozy or as simple as it looks to be. Also, maybe from
jodaer
in
Kidney Dialysis
11 months ago
Failing kidney transplant
Has anyone over 70 had the experience of a long term transplant failing. What treatment were you offered and is it feasible to expect some form of dialysis?
Has anyone over 70 had the experience of a long term transplant failing. What treatment were you offered and is it feasible to expect some form of dialysis?
Nanatotwo
in
Kidney Transplant
6 months ago
Zicam post kidney transplant
I am a post kidney transplant patient. Does anyone know if Zicam homeopathic is safe to use? I was told a while back that zinc in a multivitamin was fine. But, most of the Zicam products now I’ve come across are homeopathic ingredients, not just zinc. Looking into for cold.
I am a post kidney transplant patient. Does anyone know if Zicam homeopathic is safe to use? I was told a while back that zinc in a multivitamin was fine. But, most of the Zicam products now I’ve come across are homeopathic ingredients, not just zinc. Looking into for cold.
Rocknlily
in
Kidney Transplant
6 months ago
PSADT question...plus Xofigo and comorbidities
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
Hello, I am new to the site. This is my first post. I am mCRPC since 4/2022, and on abi/pred since then. My PSADT is now 2 months (44.55 on 6/1 to 96.28 on 8/4). I am waiting to be placed on Xofigo. Should I be panicking about this PSADT? Also most folks seem to be otherwise healthy.....do any
WeatherLook
in
Advanced Prostate Cancer
11 months ago
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