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Me7 minutes ago Hope you're all ok, I haven't been on for a while. Been really struggling with my itp. I was on high dose predisolone which made me feel awful and I didn't respond to it, I was then given ivig to buy me some time. Basically it was all going pearshaped !! Anyway I was started on rituximab
Me7 minutes ago Hope you're all ok, I haven't been on for a while. Been really struggling with my itp. I was on high dose predisolone which made me feel awful and I didn't respond to it, I was then given ivig to buy me some time. Basically it was all going pearshaped !! Anyway I was started on rituximab
Olivia2812
in
ITP Support Association
7 years ago
I am sleepy every second of my life
Hello. I haven't been diagnosed with fibro, I'm just posting here because maybe someone can relate or help me. What could cause me to be sleepy every single second? I've got a positive rheumatoid factor of 450 and IgM of 3.1 and calprotectin of 90. I am going back and forth to the hospital for evaluation
Hello. I haven't been diagnosed with fibro, I'm just posting here because maybe someone can relate or help me. What could cause me to be sleepy every single second? I've got a positive rheumatoid factor of 450 and IgM of 3.1 and calprotectin of 90. I am going back and forth to the hospital for evaluation
WK1010
in
Fibromyalgia Action UK
7 years ago
Low IgG and low IgM
I have just been told I have the above. I'm hypothyroid on 100 of Levo. I'm sick with worry could there be a correlation? So grateful for any advice
I have just been told I have the above. I'm hypothyroid on 100 of Levo. I'm sick with worry could there be a correlation? So grateful for any advice
Cazzalouise
in
Thyroid UK
7 years ago
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Hi, 66 and diagnosed with Primary Immune Dificiency in past 18 months while in hospital for pnemonia. Fast forward, several more pneumonias, repeated bronchitis and now dx with, asthma, mild bronchiectasis and COPD. On IVIG infusions for immune disease, now bumped up to nebulizer 2 x day- budesonide
Hi, 66 and diagnosed with Primary Immune Dificiency in past 18 months while in hospital for pnemonia. Fast forward, several more pneumonias, repeated bronchitis and now dx with, asthma, mild bronchiectasis and COPD. On IVIG infusions for immune disease, now bumped up to nebulizer 2 x day- budesonide
Mahod
Asthma Captain
in
Living with Asthma
7 years ago
Azithromycin ECG
Hi I saw the chest consultant on Tuesday I have bronchiectasis and am having
immunoglobulin
replacement therapy. For the last 9 weeks I have picked up Haemophilus and have been treat with co-amoxylclav and doxycycline to no avail.
Hi I saw the chest consultant on Tuesday I have bronchiectasis and am having
immunoglobulin
replacement therapy. For the last 9 weeks I have picked up Haemophilus and have been treat with co-amoxylclav and doxycycline to no avail.
Armadillo57
in
Lung Conditions Community Forum
7 years ago
Questions about stopping Imbruvica due to infection
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of FCR which gave him a fantastic and healthy 10 years with no detectable cancer. About a year ago after struggling with a 6 month respiratory infections
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of FCR which gave him a fantastic and healthy 10 years with no detectable cancer. About a year ago after struggling with a 6 month respiratory infections
bellasmom
in
CLL Support
7 years ago
Just waiting blood test results very anxioud
Still waiting diagnosis . Saw professor Pinzani at the at the Royal free. He is so very kind and caring . He even stayed with me when my bloods were taken . He booked me in for a fibro scan then and there . I was the higher. end of normal . 6. 5 was mentioned and 12 . There is some moderate fibrosis
Still waiting diagnosis . Saw professor Pinzani at the at the Royal free. He is so very kind and caring . He even stayed with me when my bloods were taken . He booked me in for a fibro scan then and there . I was the higher. end of normal . 6. 5 was mentioned and 12 . There is some moderate fibrosis
Mirimaur
in
PBC Foundation
7 years ago
Blood results terrifying
Hi. Just got my blood test results back. So I have high PLT, Eosinophil, Alkaline Phosphatase, Alanine Transaminase, and Igm. I don't understand any of this. Are these connected to PBC?
Hi. Just got my blood test results back. So I have high PLT, Eosinophil, Alkaline Phosphatase, Alanine Transaminase, and Igm. I don't understand any of this. Are these connected to PBC?
SharonM69
in
PBC Foundation
7 years ago
Lupus? ITP?
I was diagnosed with ITP on August 4th. I was given 3 dosages of IVIG through August. I started steroids yesterday, 150 mg/4 days. I got tested for lupus because my joints hurt and I crack a lot. He thinks it's just ITP but I'm so scared! Prednisone is the steroid i'm on. No bad reactions yet. He also
I was diagnosed with ITP on August 4th. I was given 3 dosages of IVIG through August. I started steroids yesterday, 150 mg/4 days. I got tested for lupus because my joints hurt and I crack a lot. He thinks it's just ITP but I'm so scared! Prednisone is the steroid i'm on. No bad reactions yet. He also
16ITP
in
ITP Support Association
7 years ago
I have some Blood Test Results- 1st post
Here's the blood work my Endo ordered for me last Friday: TSH 11.56 .45-5.10 Thyroid Stimulating
Immunoglobulin
10.30 <.10 T4, Free .60 .6-1.6 My Endo emailed me to tell me she wants me to start with 100mcg if Levothyroxine, but I haven't rec'd the prescription for it yet.
Here's the blood work my Endo ordered for me last Friday: TSH 11.56 .45-5.10 Thyroid Stimulating
Immunoglobulin
10.30 <.10 T4, Free .60 .6-1.6 My Endo emailed me to tell me she wants me to start with 100mcg if Levothyroxine, but I haven't rec'd the prescription for it yet.
Rkstarkey
in
Thyroid UK
7 years ago
Blood Test Results
Hi! I'm a Hippo. I mean Hypo 😉 but I do feel like a hippo lol. My doctor sent off for 3 blood tests:- - Protein Electrophoresis Serum - Immunoglobulins - Liver function I've checked online and there are only the results for Liver and Immunoglobulins A, G and M. Nothing for Protein Electrophoresis Serum
Hi! I'm a Hippo. I mean Hypo 😉 but I do feel like a hippo lol. My doctor sent off for 3 blood tests:- - Protein Electrophoresis Serum - Immunoglobulins - Liver function I've checked online and there are only the results for Liver and Immunoglobulins A, G and M. Nothing for Protein Electrophoresis Serum
beckss38
in
Thyroid UK
7 years ago
Recent Diagnosis
I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after my 16th birthday on August 3rd. Though, I knew something was wrong for months before that. In the beginning of July, I got a terrible stomach flu. I thought it was a hangover because of the Canada Day drinking I did with
I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after my 16th birthday on August 3rd. Though, I knew something was wrong for months before that. In the beginning of July, I got a terrible stomach flu. I thought it was a hangover because of the Canada Day drinking I did with
16ITP
in
ITP Support Association
7 years ago
FCR 18 months later
I finished up 4 rounds of FCR in March of 2015. I realize it is not always suggested for unmutated patients, but I had it anyway. I am Zap 70, trisomy 12, CD 38 positive. Except for infection issues, for which I receive IVIG, I am doing great. I am wondering if anyone else who is unmutated received
I finished up 4 rounds of FCR in March of 2015. I realize it is not always suggested for unmutated patients, but I had it anyway. I am Zap 70, trisomy 12, CD 38 positive. Except for infection issues, for which I receive IVIG, I am doing great. I am wondering if anyone else who is unmutated received
beanlake14
in
CLL Support
7 years ago
very confused..
As you all know im going to see dr kaul at the london bridge lupus centre the end of this month. Well i have requested a letter and old bloods from my nhs rhumy and recieved them on friday - The letter he has wrote for me to take i wont be giving the new hospital as his basically saying he doesnt want
As you all know im going to see dr kaul at the london bridge lupus centre the end of this month. Well i have requested a letter and old bloods from my nhs rhumy and recieved them on friday - The letter he has wrote for me to take i wont be giving the new hospital as his basically saying he doesnt want
Hidden
in
LUPUS UK
7 years ago
PLEASE HELP!!!!
Hi can any one please help interpret the tests below.... I've been feeling unwell for a while in fact since I was diagnosed I take 25mg of levothyroxine luckily i saw a locum Dr who agreed to do the bloodtest as my regular Dr said there's no need and my symptoms don't necessarily mean it's thyroid related
Hi can any one please help interpret the tests below.... I've been feeling unwell for a while in fact since I was diagnosed I take 25mg of levothyroxine luckily i saw a locum Dr who agreed to do the bloodtest as my regular Dr said there's no need and my symptoms don't necessarily mean it's thyroid related
Debs1960
in
Thyroid UK
7 years ago
Autoimmune hepatitis scare
I'm new to this forum and think it's great. My problem: My GP just told me I probably have autoimmune hepatitis as my GGT is 107, IgM is 5.55, Mitochondrial Ab is positive, and Mitochondrial Ab Titre 1:640. She gave me the impression that I have a much shortened lifespan and will spend the rest of what
I'm new to this forum and think it's great. My problem: My GP just told me I probably have autoimmune hepatitis as my GGT is 107, IgM is 5.55, Mitochondrial Ab is positive, and Mitochondrial Ab Titre 1:640. She gave me the impression that I have a much shortened lifespan and will spend the rest of what
Carly92
in
British Liver Trust
7 years ago
Stay positive x
Hi I had itp years ago and after so long thought I was home and dry. It has returned however, I'm trying to be positive. I have debilitating fibromyalgia which is making it a struggle. My antibodies are on a mission destroying my platelets . Predisolone no good, ivig no good , platelets at 9 .so starting
Hi I had itp years ago and after so long thought I was home and dry. It has returned however, I'm trying to be positive. I have debilitating fibromyalgia which is making it a struggle. My antibodies are on a mission destroying my platelets . Predisolone no good, ivig no good , platelets at 9 .so starting
Olivia2812
in
ITP Support Association
7 years ago
So confused, would love your opinions
This afternoon I had my second appt. with my hepatic specialist. I am so confused and hoping some of you can chime in. Current labs are back and my two mitochondrial tests are still positive (titer is 1:80 and AB serum is positive), I have 3 positive AFP tests from two different labs and I just had an
This afternoon I had my second appt. with my hepatic specialist. I am so confused and hoping some of you can chime in. Current labs are back and my two mitochondrial tests are still positive (titer is 1:80 and AB serum is positive), I have 3 positive AFP tests from two different labs and I just had an
angelofeventide
in
PBC Foundation
7 years ago
Life or death... Or IVIG.
Thanks to you lovely people and great support group advice, I have my first IVIG INFUSION in two days in Portland, Oregon. I had FCR six years ago.... Cll/SLL Stage 4, Rai II. My FCR was stopped by the 5th month because I was so very toxic. Very aggressive FCR and I just never recovered. Always had
Thanks to you lovely people and great support group advice, I have my first IVIG INFUSION in two days in Portland, Oregon. I had FCR six years ago.... Cll/SLL Stage 4, Rai II. My FCR was stopped by the 5th month because I was so very toxic. Very aggressive FCR and I just never recovered. Always had
Kimsome
in
CLL Support
7 years ago
High E.S.R
Hi, I was at risk of Lyme disease, I was on amoxicillin for 10 days, i have finished course 2 weeks ago, Fortunately I have no Lyme disease, all symptoms was just reaction of tick bite. Analysis for ELISA IgM and IgG are negative. Everything in My blood test are OK, except E.S.R. It is getting high
Hi, I was at risk of Lyme disease, I was on amoxicillin for 10 days, i have finished course 2 weeks ago, Fortunately I have no Lyme disease, all symptoms was just reaction of tick bite. Analysis for ELISA IgM and IgG are negative. Everything in My blood test are OK, except E.S.R. It is getting high
teona
in
NRAS
7 years ago
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