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Covid-Induced ITP Recovery Questions
At the end of August 2022, I was diagnosed with covid-induced ITP. I only caught it because all my extremities were covered in little red dots (petechiae). I made a freaking-out visit to the ER, and they diagnosed me after they did labs and my platelet count came back 0. All these weeks later (October
At the end of August 2022, I was diagnosed with covid-induced ITP. I only caught it because all my extremities were covered in little red dots (petechiae). I made a freaking-out visit to the ER, and they diagnosed me after they did labs and my platelet count came back 0. All these weeks later (October
thestrugglebus
in
ITP Support Association
2 years ago
Graves' Ophthalmopathy in the Setting of Primary Hypothyroidism
Laboratory investigation revealed positive thyroid-stimulating
immunoglobulin
of 500 IU/mL (normal value: <140 IU/mL) with thyroid-stimulating hormone (TSH) and free thyroxine (FT4) in the euthyroid range.
Laboratory investigation revealed positive thyroid-stimulating
immunoglobulin
of 500 IU/mL (normal value: <140 IU/mL) with thyroid-stimulating hormone (TSH) and free thyroxine (FT4) in the euthyroid range.
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Need help in understanding immunoglobulins..
I have a question about IGG. I have noticed IGG is slipping gradually. Now at 6.25. I keep reading the term IVIG on this site and I am wondering will we all have to have IVIG eventually as this disease progresses? As the number lowers, does it mean we will have more infections or hospitalizations
I have a question about IGG. I have noticed IGG is slipping gradually. Now at 6.25. I keep reading the term IVIG on this site and I am wondering will we all have to have IVIG eventually as this disease progresses? As the number lowers, does it mean we will have more infections or hospitalizations
Curling123
in
CLL Support
2 years ago
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Advice
ive got an appointment through for endrocolgist clinic in oct they want me to get some bloods done which i enclose. Also im having the medichecks ones asvised on here the same time i enclose have i covered everything? Also ive been having problems for a while with either my igg or iga or igm sometimes
ive got an appointment through for endrocolgist clinic in oct they want me to get some bloods done which i enclose. Also im having the medichecks ones asvised on here the same time i enclose have i covered everything? Also ive been having problems for a while with either my igg or iga or igm sometimes
France92
in
Thyroid UK
2 years ago
IVIG recommended
I’m currently in remission after my one year Obinutuzumab and Venetoclax treatment. It’s been one year since finishing the Obinutuzumab infusions and my IGG counts remain quite low. My oncologist is recommending IVIG infusions. Has anyone had these? How were the infusions tolerated? Thank you!
I’m currently in remission after my one year Obinutuzumab and Venetoclax treatment. It’s been one year since finishing the Obinutuzumab infusions and my IGG counts remain quite low. My oncologist is recommending IVIG infusions. Has anyone had these? How were the infusions tolerated? Thank you!
Cllinmaryland
in
CLL Support
2 years ago
Please help! RLS is very bad, also have leukemia, hemochromatosis and severely low immune globulins. Never heard of augmentation till read
Hi RLS community, I just joined. I have had RLS for 23 years but it has been fairly successfully treated with Mirapex although I have been on the max dose for a couple of years. I have been focusing on my other problems and not the RLS because as long as I took the pills by 7pm I could go to bed.
Hi RLS community, I just joined. I have had RLS for 23 years but it has been fairly successfully treated with Mirapex although I have been on the max dose for a couple of years. I have been focusing on my other problems and not the RLS because as long as I took the pills by 7pm I could go to bed.
maggiesgrandmom
in
Restless Legs Syndrome
2 years ago
Doctor cannot fully diagnose without bone marrow biopsy and PET scan?
Update Results: Hello i did have the cyclometery test done, but i didnt put it here before. Is thaat the same as a FISH test? Here are my results: An abnormal CD5-positive B cell population accounts for approximately 35% of lymphocytes and 13% of total events. This population shows kappa restriction
Update Results: Hello i did have the cyclometery test done, but i didnt put it here before. Is thaat the same as a FISH test? Here are my results: An abnormal CD5-positive B cell population accounts for approximately 35% of lymphocytes and 13% of total events. This population shows kappa restriction
SunCalifornia
in
CLL Support
2 years ago
Unexpected remission - Maybe it will help (even one person)
Hi all, I was diagnosed with ITP in March 2021 with a count of 3, however it began October 2020. Until then I was just normal and quite fit and active, around that time I caught a virus and just never seemed to get better I was exhausted and developed digestive issues (trapped gas) it was soo very
Hi all, I was diagnosed with ITP in March 2021 with a count of 3, however it began October 2020. Until then I was just normal and quite fit and active, around that time I caught a virus and just never seemed to get better I was exhausted and developed digestive issues (trapped gas) it was soo very
Loftyc
in
ITP Support Association
2 years ago
Vitamin B12 deficiency ?
Hello everyone, well after blood tests showed my MCV at 105 ( Doctor said red blood cells too chunky ) I had more blood & urine tests and had results for Serum gamma GT - immunoglobulins - Serum iron - and serum folate all within normal range - but my Serum vitamin B12 = 148 ( normal range 187 - 883
Hello everyone, well after blood tests showed my MCV at 105 ( Doctor said red blood cells too chunky ) I had more blood & urine tests and had results for Serum gamma GT - immunoglobulins - Serum iron - and serum folate all within normal range - but my Serum vitamin B12 = 148 ( normal range 187 - 883
jules1955
in
PMRGCAuk
2 years ago
New Diagnosis :what does all this blood work mean?
I was recently diagnosed with CLL. My hematologist/oncologist ran the standard tests and this is some of the info I see: No Jak2 17 mutation detected, No 9 mutation detected, No 12 mutation detected, No 10 mutation detected, No 14/17 Mutation detected A negative FISH for BCR-ABLI fusion. 2 weeks
I was recently diagnosed with CLL. My hematologist/oncologist ran the standard tests and this is some of the info I see: No Jak2 17 mutation detected, No 9 mutation detected, No 12 mutation detected, No 10 mutation detected, No 14/17 Mutation detected A negative FISH for BCR-ABLI fusion. 2 weeks
Adante
in
CLL Support
2 years ago
Good news and Bad news?
( IGHV mutated, No 17P or TP53 deletion and borderline for 13Q 6.5% and W&W for 18 years) I recently had bloods drawn and to my surprise WBC went down from 29K to 24K and Hgb is holding steady at between 10.5 - 11.0. However, platelets have fallen to 62 from 72 in just about four months. Otherwise
( IGHV mutated, No 17P or TP53 deletion and borderline for 13Q 6.5% and W&W for 18 years) I recently had bloods drawn and to my surprise WBC went down from 29K to 24K and Hgb is holding steady at between 10.5 - 11.0. However, platelets have fallen to 62 from 72 in just about four months. Otherwise
bertie260
in
CLL Support
2 years ago
Newly Released Real World Mavenclad Study
My neuro is contemplating switching me from Ocrevus to Mavenclad once my immune system is in better shape. This study gives me pause because it states: “Moreover, we identified better outcomes in patients exposed to a lower number of previous DMTs, suggesting that cladribine might be more effective when
My neuro is contemplating switching me from Ocrevus to Mavenclad once my immune system is in better shape. This study gives me pause because it states: “Moreover, we identified better outcomes in patients exposed to a lower number of previous DMTs, suggesting that cladribine might be more effective when
Raingrrl
in
My MSAA Community
2 years ago
happened again
this was my 3rd FET (first time with new clinic). Today found out it was a CP. last two was early mc. This time I was on multiple medications: 1. Prednisone 2.plaquinil 3. Baby aspirin 4. Lovenox 5. Low dose ivig 6. Calcium 7. Other supplements like prenatal, D3, fish oil etc. 8. Progesterone
this was my 3rd FET (first time with new clinic). Today found out it was a CP. last two was early mc. This time I was on multiple medications: 1. Prednisone 2.plaquinil 3. Baby aspirin 4. Lovenox 5. Low dose ivig 6. Calcium 7. Other supplements like prenatal, D3, fish oil etc. 8. Progesterone
Devi2021
in
Fertility Network UK
2 years ago
Telitacicept Reduces SLE Severity in Phase 3 Trial in China
[
Immunoglobulin
A nephropathy, primary Sjögren’s syndrome and myasthenia gravis] have been a major part of this focus and our portfolio of other indications for which Telitacicept could potentially be the first biologic therapy is expanding rapidly,” Fang said.
[
Immunoglobulin
A nephropathy, primary Sjögren’s syndrome and myasthenia gravis] have been a major part of this focus and our portfolio of other indications for which Telitacicept could potentially be the first biologic therapy is expanding rapidly,” Fang said.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
IVIG vs Intralipid
Hi ladies, this is more for anyone that’s had immune treatment success… my question is, has anyone NOT been successful with Intralipid but been successful with IVIG? About to have my 3rd transfer with Intralipids and my reproductive immunologist said that if this one doesn’t work, we have no choice but
Hi ladies, this is more for anyone that’s had immune treatment success… my question is, has anyone NOT been successful with Intralipid but been successful with IVIG? About to have my 3rd transfer with Intralipids and my reproductive immunologist said that if this one doesn’t work, we have no choice but
Kimbob82
in
Fertility Network UK
2 years ago
Hi guys any thoughts on these results.
Serum ferritin level 508 ng/ml [22 - 275] Serum iron level 6.7 umol/l [11.6 - 31.3]
Immunoglobulin
M level 3.1 g/L [0.5 - 1.9} Anti-smooth muscle autoantibody level POSITIVE Serum ferritin level 508 ug/L [22.0 - 275.0] Serum immunofixation No serum paraprotein detected.
Serum ferritin level 508 ng/ml [22 - 275] Serum iron level 6.7 umol/l [11.6 - 31.3]
Immunoglobulin
M level 3.1 g/L [0.5 - 1.9} Anti-smooth muscle autoantibody level POSITIVE Serum ferritin level 508 ug/L [22.0 - 275.0] Serum immunofixation No serum paraprotein detected.
jimbo1234
in
British Liver Trust
2 years ago
*Sensitive* - OE Testing update - 11dp5dt
Hi HealthUnlocked Fertility Warriors! I hope everyone is hanging in there. After 7 rounds of egg collections in 2019 (aged 42) and 2020 (aged 43), I ended up collecting 6 PGS normal embryos which I froze. I then took a break over Covid to recover, physically and mentally. After much preparation: weight
Hi HealthUnlocked Fertility Warriors! I hope everyone is hanging in there. After 7 rounds of egg collections in 2019 (aged 42) and 2020 (aged 43), I ended up collecting 6 PGS normal embryos which I froze. I then took a break over Covid to recover, physically and mentally. After much preparation: weight
Dogpark
in
Fertility Network UK
2 years ago
reaching out!!
I was diagnosed with Autoimmune Encephalitis of the brain and Spinal Cord October 2020. I received 1 year of IVIG infusions( tapered-completed) My 2 year anniversary is October 2022 love to share my story with any and all( ask me anything)😀
I was diagnosed with Autoimmune Encephalitis of the brain and Spinal Cord October 2020. I received 1 year of IVIG infusions( tapered-completed) My 2 year anniversary is October 2022 love to share my story with any and all( ask me anything)😀
Zanzibar3
in
Encephalitis International
2 years ago
Which blood test results do you watch?
In 2020 I had some abnormal
immunoglobulin
readings, and elevated white blood cell count. That issue seemed to resolve itself. My question is - what other kinds of tests, aside from liver enzymes, do all of you watch during this journey?
In 2020 I had some abnormal
immunoglobulin
readings, and elevated white blood cell count. That issue seemed to resolve itself. My question is - what other kinds of tests, aside from liver enzymes, do all of you watch during this journey?
jpenny57
in
Living with Fatty Liver and NASH
2 years ago
advise on how to manage the derma (skin) with DM
I've been told that skin rash/ulcers are the most difficult to treat . Has anyone had these issues and if so, how much time are we talking before improvement? Any medications that worked better than others? Azathioprine (imuran) made my skin worse, just an fyi for others. I'm already on hydroxychloroquine
I've been told that skin rash/ulcers are the most difficult to treat . Has anyone had these issues and if so, how much time are we talking before improvement? Any medications that worked better than others? Azathioprine (imuran) made my skin worse, just an fyi for others. I'm already on hydroxychloroquine
Slydog
in
Myositis UK
2 years ago
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