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Vacation
I have had CLL a couple of years now. I am a year and a half post FCR, and it has worked despite the fact that I am unmutated. I do tend to get infections a great deal, and IVIG helps tremendously. Here is my question. We are heading to Idaho for the lakes and mountains. I worry about infections
I have had CLL a couple of years now. I am a year and a half post FCR, and it has worked despite the fact that I am unmutated. I do tend to get infections a great deal, and IVIG helps tremendously. Here is my question. We are heading to Idaho for the lakes and mountains. I worry about infections
beanlake14
in
CLL Support
7 years ago
Further necessary tests for PA
Do I now need the Homosyctein and the other one mentioned -
Immunoglobulin
(sp ?) I'm determined to be proactive as I've other autoimmune diseases to deal with too! SM
Do I now need the Homosyctein and the other one mentioned -
Immunoglobulin
(sp ?) I'm determined to be proactive as I've other autoimmune diseases to deal with too! SM
CCSP-27
in
Pernicious Anaemia Society
7 years ago
Oncologist told my Stepdad there is nothing else he can do for him.
His blood levels also stabalized and he ceased needing blood transfusions but continued to get
immunoglobulin
infusions.
His blood levels also stabalized and he ceased needing blood transfusions but continued to get
immunoglobulin
infusions.
lkw16
in
Advanced Prostate Cancer
7 years ago
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gh intravenous immunoglobulin
Has anyone heard of using intravenous
immunoglobulin
treatments for PMR? They say it's a great treatment for autoimmune conditions.
Has anyone heard of using intravenous
immunoglobulin
treatments for PMR? They say it's a great treatment for autoimmune conditions.
jwb43
in
PMRGCAuk
7 years ago
Test results and what to ask next
Hi. I finally got ahold of my test results from 4 weeks ago. With these results and a few abnormalities with liver and protein tests the doc was going to just ask me back in 3 months like the test results suggested. When I started asking what could she do for my symptoms now and listed a few of them
Hi. I finally got ahold of my test results from 4 weeks ago. With these results and a few abnormalities with liver and protein tests the doc was going to just ask me back in 3 months like the test results suggested. When I started asking what could she do for my symptoms now and listed a few of them
AngieAsh
in
Thyroid UK
7 years ago
Fall i platelets count after ivig treatment
My platelates fall upto 2000 then after transfusion treated with ivig treatment. My platelates level rises upto 1.4 lakh with in a month but after that falls to 40 thouand. I m on depsone 100 mg. Im worried now please comment is this fall and rise is common in itp
My platelates fall upto 2000 then after transfusion treated with ivig treatment. My platelates level rises upto 1.4 lakh with in a month but after that falls to 40 thouand. I m on depsone 100 mg. Im worried now please comment is this fall and rise is common in itp
Vika0001
in
ITP Support Association
7 years ago
Globulins... Is there a link between high Anti-Thyroglobulin Antibodies, high Immunoglobulin A (IgA) and low C4 (Complement Component 4)?
So here's my results: Anti-Thyroglobulin Abs 484.8 <115 in December 2016
Immunoglobulin
A 4.6 g/L (0.7-4) in January 2017 C4 220mg/L (200-500) in 2009 Please note I'm looking back through my history as I've had hypothyroid symptoms since early 1990s when I was a teenager.
So here's my results: Anti-Thyroglobulin Abs 484.8 <115 in December 2016
Immunoglobulin
A 4.6 g/L (0.7-4) in January 2017 C4 220mg/L (200-500) in 2009 Please note I'm looking back through my history as I've had hypothyroid symptoms since early 1990s when I was a teenager.
tinkerbell22
in
Thyroid UK
7 years ago
My daughter is doing well. Thanks for your blessings
Dear all ... Here is update regarding my daughter . As you all know , in Nov,16.. her hematologist made her stopped all medications after gradually tapering her steroid doses from Aug .. when she was diagnosed with ITP at 4000 count and got IVIG infusion. In Dec ,We took her to Gayatri Institute ,
Dear all ... Here is update regarding my daughter . As you all know , in Nov,16.. her hematologist made her stopped all medications after gradually tapering her steroid doses from Aug .. when she was diagnosed with ITP at 4000 count and got IVIG infusion. In Dec ,We took her to Gayatri Institute ,
Toughytoughy
in
ITP Support Association
7 years ago
ITP DISORDER OF MY SON
Dear sir My name is Shilpi and I am from India. I have a son whose age is 6.6 years. Recently on 13th June I observed redish and blackish spots over his hands and legs. I took child specialist on 17th June to show these spots and he asked us for cbp done. In cbp report we found that his platelet were
Dear sir My name is Shilpi and I am from India. I have a son whose age is 6.6 years. Recently on 13th June I observed redish and blackish spots over his hands and legs. I took child specialist on 17th June to show these spots and he asked us for cbp done. In cbp report we found that his platelet were
Shilpid
in
ITP Support Association
7 years ago
I just finished Cycle 6th on my Venetoclax plus Ibruvica trial. So far so good!!
Hello, As an update I just went to the doctors and my numbers are good. WBC was 1.9. ALC 0.9 WBC was 50 when i started in January. My Nodes were very large though. I just finished Cycle 6th on my Venetoclax plus Ibruvica trial. I was Nuetropenic so they gave me a shot to boost my ANC and
Hello, As an update I just went to the doctors and my numbers are good. WBC was 1.9. ALC 0.9 WBC was 50 when i started in January. My Nodes were very large though. I just finished Cycle 6th on my Venetoclax plus Ibruvica trial. I was Nuetropenic so they gave me a shot to boost my ANC and
Hoffy
in
CLL Support
7 years ago
Just diagnosed with APS
Hello all, I was recently diagnosed with APS. I am 43 and live in Canada. I had a stroke and MRI actually showed multiple strokes. Feel very lucky that they didnt affect me much, other than some minor issues with my vision and headaches. The stroke made the doctors here look at my medical history, going
Hello all, I was recently diagnosed with APS. I am 43 and live in Canada. I had a stroke and MRI actually showed multiple strokes. Feel very lucky that they didnt affect me much, other than some minor issues with my vision and headaches. The stroke made the doctors here look at my medical history, going
ellochka99
in
Hughes Syndrome APS Forum
7 years ago
IVIG with Imbruvica
I have been on IVIG 10+ years, starting with only cold seasonal treatment. I have been on IVIG 30 grams q 28 days continuously for almost 6 years. I started Imbruvica 14 days ago due to my first leukemia recurrence since remission, 2011. Yesterday morning, 6/27/17, I had my first IVIG since starting
I have been on IVIG 10+ years, starting with only cold seasonal treatment. I have been on IVIG 30 grams q 28 days continuously for almost 6 years. I started Imbruvica 14 days ago due to my first leukemia recurrence since remission, 2011. Yesterday morning, 6/27/17, I had my first IVIG since starting
W00dfin
in
CLL Support
7 years ago
Need advice on treatment options for relapsed SLL
I will be going for a follow-up visit with my specialist at UPENN after new blood work to check for mutations and to discuss treatment options. My questions is: Based upon my SLL parameters what drugs other than ibrutinib may be an option? I am a female 63, diagnosed in 2008 with SLL. I was treated
I will be going for a follow-up visit with my specialist at UPENN after new blood work to check for mutations and to discuss treatment options. My questions is: Based upon my SLL parameters what drugs other than ibrutinib may be an option? I am a female 63, diagnosed in 2008 with SLL. I was treated
ReneeSusan
in
CLL Support
7 years ago
sorry, another APS question
Hi I wondered if anyone could help me understand these test results. I was told on the phone last week that my 3 APS antibody tests were negative. But I picked up a print-out of the results today, so that I can take them to the rheumatology appointment in a few weeks. And now Im confused. The results
Hi I wondered if anyone could help me understand these test results. I was told on the phone last week that my 3 APS antibody tests were negative. But I picked up a print-out of the results today, so that I can take them to the rheumatology appointment in a few weeks. And now Im confused. The results
charlieab
in
Hughes Syndrome APS Forum
7 years ago
Good hematologist in London
Hi , My son is 3 years old and he had been diagnosed with ITP one month ago , started with small dots on his body and when we did the CBC test his platelets were 10 , he admired in the hospital for one week and they gave him steroids and IVIG , after 4 days his platelets jumped high to 179 , after 10
Hi , My son is 3 years old and he had been diagnosed with ITP one month ago , started with small dots on his body and when we did the CBC test his platelets were 10 , he admired in the hospital for one week and they gave him steroids and IVIG , after 4 days his platelets jumped high to 179 , after 10
qassemi
in
ITP Support Association
7 years ago
Any feel strange dull pain in lymph nodes in treatment as they clear out?
I am on both Imbruvica and full Venetoclax now. I on my 6th cycle of the clinical trial. Over all I have been very good. My numbers have rapidly gone to normal. WBC 2.1 ALC 1.2, PLT a little low at 110. Others are good. IGA, IGG, IGM are improving as well. I have been on full Venetoclax for 2 months
I am on both Imbruvica and full Venetoclax now. I on my 6th cycle of the clinical trial. Over all I have been very good. My numbers have rapidly gone to normal. WBC 2.1 ALC 1.2, PLT a little low at 110. Others are good. IGA, IGG, IGM are improving as well. I have been on full Venetoclax for 2 months
Hoffy
in
CLL Support
7 years ago
9 year old with ITP
Hi my son was diagnosed last June 9 with itp with platelet count of 4. had two bottles of ivig and platelet count was still at 4. had another two bottles of ivig and platelet count went up to 7 and the doctor discharged him. cbc were done june 15 and june 21 and platelet count still at 4. has no major
Hi my son was diagnosed last June 9 with itp with platelet count of 4. had two bottles of ivig and platelet count was still at 4. had another two bottles of ivig and platelet count went up to 7 and the doctor discharged him. cbc were done june 15 and june 21 and platelet count still at 4. has no major
Hidden
in
ITP Support Association
7 years ago
IVIG infusion
Just wondering how people did with IVIG infusions. I've had lots of sinus infections over the past 3 years so doc thought I should start IVIG infusions. I am 56 and pretty healthy otherwise. I had chemo 4 years ago and had 7 months of Imbruvica a year ago.
Just wondering how people did with IVIG infusions. I've had lots of sinus infections over the past 3 years so doc thought I should start IVIG infusions. I am 56 and pretty healthy otherwise. I had chemo 4 years ago and had 7 months of Imbruvica a year ago.
Huckfin1
in
CLL Support
7 years ago
Glad I found this group
Hi! My name is Deana and I was diagnosed in 2008 at the age of 40. In 2010 I had my first round of chemo and had a reaction to Rituxan but continued on with the other two. I have been on IVIG consecutively for the last year but no chemo since 2010. Numbers are going crazy now but praying they stay somewhat
Hi! My name is Deana and I was diagnosed in 2008 at the age of 40. In 2010 I had my first round of chemo and had a reaction to Rituxan but continued on with the other two. I have been on IVIG consecutively for the last year but no chemo since 2010. Numbers are going crazy now but praying they stay somewhat
DRADCLIFF
in
CLL Support
7 years ago
Magnetic bracelets
Hi all, I was diagnosed 4 years ago now, still on w&w + 3 weekly IVIG transfusions, & nave been suffering for years with arthritis in my right thumb (I am right handed, which makes this a pain). A friend tells me his arthritic pain has much reduced after using a magnetic bracelet. I am keen to try, but
Hi all, I was diagnosed 4 years ago now, still on w&w + 3 weekly IVIG transfusions, & nave been suffering for years with arthritis in my right thumb (I am right handed, which makes this a pain). A friend tells me his arthritic pain has much reduced after using a magnetic bracelet. I am keen to try, but
Alan20
in
CLL Support
7 years ago
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