Experiences with

Immunoglobulin

last week I started Immunoglobulin replacement therapy and it has really helped me. I no longer need a nap just to be able to function, feel clear headed and able to go work out at the gym again. Thought I’d share.

CLL is well characterised as a cancer of the immune system, hence CLL specialists recommend keeping up to date with non-live vaccinations https://healthunlocked.com/cllsupport/posts/148546478/vaccinations-for-people-with-chronic-lymphocytic-leukemia-cll-sll and the use of prophylactic Immunoglobulin

Hi all hope your all keeping well.I wanted to ask if anyone else is or has had Immunoglobulin treatment.

I’m about to start it. https://thankyouglennandjeff.com Best, -Matt [i]Randomised human clinical trial of cordycepin shows no significant difference in lymphocyte or immunoglobulin counts between the treated and placebo groups.

However, my doc prefers that my CLL haematologist should write to him requesting immunoglobulin testing, rather than the request just coming from his patient. How unusual or non-standard is immunoglobulin blood testing for us CLLers? I’m confused.

To recap I am: ANA positive Anti phospholipid IgG positive Permanently low platelets Edit: also high immunoglobulin IgM Raynaud's Undifferentiated Inflammatory arthritis, connective tissue and lupus (or so it says on my notes) Thanks in advance.

I'm looking to connect with some who have a Primary Immune deficiency and on immunoglobulin replacement. I have both and am having some issues specific to them.

recently been diagnosed with peripheral neuropathy last time he was admitted, numb feet, trouble walking, dizziness,etc I've been telling them about b12 as don't know what he's been checked for & he's not been given any treatment for that I've yet to hear if he's having immunotherapy due to low or high immunoglobulin

To recap I am: ANA positive Anti phospholipid IgG positive Permanently low platelets High immunoglobulin IgM Raynaud's Undifferentiated Inflammatory arthritis, connective tissue and lupus (or so it says on my notes) Thanks in advance.

Her primary care doctor/PA appointment ran a bunch of normal blood tests, and turned up low Immunoglobulin A Qn Serum 78 (scale of 87-352), while the IgG and IgM were normal, so I think that's the main reason for the referral.

We also learned from the COVID pandemic, that immunoglobulin protection from COVID-19 infection is challenging for us to achieve.

The frequency of TP53 aberrations in patients with chronic lymphocytic leukemia (CLL) is higher in those with unmutated immunoglobulin heavy variable (IGHV) genes.

National Library of Medicine. https://clinicaltrials.gov/study/NCT05648110 Some of the exclusion criteria are: Receipt of IV or SC immunoglobulin within 6 months prior to Visit 1 or expected to receive IV and SC immunoglobulin 6 months after dosing.

IVIG Treatment: He was given two bottles of IVIG (intravenous immunoglobulin) along with Dstron. His platelet count increased from 8,000 to 56,000 within a two days, and he was discharged. Platelet Count Fluctuations: • After a week, his platelet count dropped again to 18,000.

As a person who is Stage 0, is in W&W who has healthy RBC, Platelets and Immunoglobulin numbers… am I still considered immunocompromised? My WBC number is currently around 34. I work in large crowds and I wonder whether I should go back to masking .

My TSH has risen from 1.37 pre-surgery to 3.99, I now have half a thyroid and autoimmune thyroiditis in the remaining left lobe, yet my GP is not interested as all my bloods are within range with the exception of Tissue Transglutaminase IgA immunoglobulin A level which is 4.25 g/L (range is 0.8 - 2.8

Click on the link - https://www.patientpower.info/navigating-cancer/what-high-and-low-immunoglobulin-g-levels-mean-for-people-with-cancer?

Ongoing immunoglobulin treatment managing this well. Now I have been diagnosed with localised T2 Prostate Cancer and the two courses of treatment are a Radical Prostatectomy or External Beam radiotherapy (with hormone treatment). Research time….

The immunoglobulin test can show whether there's a problem with your immune system. But usually when you are low you get sick a lot. Of course I have stopped all RA treatment and I am getting monthly infusions to try to raise the IGG. There is nothing they can do for the IGA and IGM.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10653498/ [i]Clinical outcomes of treatment for patients with secondary antibody deficiency: Data from the Ontario immunoglobulin treatment case registry[/i] PLoS One. 2023; 18(11): e0294408. Published online 2023 Nov 16.