Experiences with

Immunoglobulin

Hey y’all!!! It’s been a while. Things over yonder are friggin crazy if you haven’t heard. 😂😫😂 Got 3 IVIG infusions and they helped tremendously with swallowing and cranial neuropathy. However, the effects are not sustained so I’m back to square one. Neuro-optho is pushing rheum for a plan and rheum

Are people with APS or compromised immune system not suppose to get the flu shot? My dr says I should as I also have IGA deficiency (barely have this in my system). I was doing IVIG infusions until a few years later I had a bad reaction - so I stopped them. I’m a lil confused as I read different things

My GP says my bilateral shoulder and hip pain cannot be polymyalgia because my blood tests are normal. My pain started in the last 6 weeks. Worse in the morning. I am 80, northern European and Swedish descent. I also have other autoimmune diseases: celiac, PCOS and they run in my family: Crohn's,

The patient was initially treated with intravenous immunoglobulin, prednisone, and dapsone; and continued solely on dapsone. He responded well to treatment, but had multiple flare-ups due to not taking his medication. Dapsone and prednisone were restarted.

- Thyroid Stimulating Immunoglobulin (TSI): 12.9 IU/L (normal < 0.10 IU/L) - TSH Receptor Antibodies: 42.99 U/L Normal borderline: 9 - 14 U/L Positive: > 14 U/L Negative: < 9 U/L VITAMINS AND MINERAL TEST RESULTS - Zinc serum: 165.98 ug/dL (normal range 70 -150ug/dL I’m not supplementing so not

Our 6½ year old son has chronic itp. He was diagnosed with itp at 18 months old. His platelet counts have been all over the place but mostly low. We would be happy to have platelet numbers at 20,000-50,000. He has been on promacta for the last several years also has had many ivig transfusions. He is

On October 2020, I celebrated my 3 year anniversary since my last IVIG which was on 10/16/17. It has been about 2.5 years since needing to do Promacta, prednisone, etc. I am wanting to share my story in case it helps even one person with ITP; I no longer have ITP. I came back from a trip to Costa Rica

After suffering a major case of hemolytic anemia in July, I was put on Venetoclax and actually had stellar results for three months, until about a week ago now. After my blood tests moving into normal ranges on almost all numbers, I find myself in a situation where my WBC have moved to a below normal

Hi wants your opinion please. My son,bless him, worries about me. Wants to wrap me in bubble wrap to stop me getting covid. Live on my own and have IVIG treatment. Issue is my daughter is due her 3rd baby and as it will be during half term i said I would have my grandson of 6yrs and my granddaughter

I was admitted to hospital as my blood platelets were severely low and finding bruising all over my body.Ive had x2 treatments of immunoglobulin transfusions and x2 bags of platelets also on a heavy prescription of 60mg per day of predisolone hopefully seeing a haematologist tommorow znd find a treatment

HI EVERYONE!!! I know this is a difficult time for folks and I pray for my CLL friends, I wanted you to know. My question after a brief explanation. My user name is Kimsome. I was diagnosed with lymphoma SLL/CLL in 2010 when I was 45 year old female. I had aggressive chemo with a mix of Fludara, Cytoxin

Hi everyone, I am thinking this is probably going to seem like a mild problem, and I tend to be very overly anxious about anything new, but my Immuneglobulin g is down to 245. I have had no infections, been on Imbruveca for 2.5 years and my numbers are all really very good and I feel great. My Oncologist

The first IgA Vasculitis ( HSP ) online patient event happened just over a week ago. It was well attended by over 30 patients. The video is now available online... it is interesting, informative and also entertaining. https://www.vasculitis.org.uk/news/hsp-information-video

Has anyone experienced this at all? Refusal to prescribe and do bloods? I have been waiting to see an oral medicine consultant since January. Obviously, due to the dreaded, it was, like many appointments, cancelled and put on hold. Thankfully, I have not had to wait too long since easing of lockdown

I attended the chemo ward today for my IVIG infusion, the first in 5 months. I suspended this 5 months ago in line with the CLLForum's Recommendations of reducing the risk of CLL patients contracting COVID. Because it had been 5 months since my last infusion, I had to go through the ramp up procedure

My blood work was ok except for the Immunoglobulin A and Ferritin were both high. So on my brain MRI, it looks like it is ok with a notation that I have “rare scattered punctate subcortical T2W hypertensities of the frontal lobes bilaterally seems. No demyelination plaque isn’t noted.”

My husband has CLL, AND HAS HAD THREE issues with fluid in his lungs, and the last one was very serious , with infection! So they stopped Imbruvica, and have him once a month doing infusions of IVIG. VERY EXPENSIVE, even with insurance , monthly it is 549 per month. We can’t afford this indefinitely!

Hello everyone. I haven't posted in a while But I need the wisdom of your experience. Here's my question: have you had ear aches caused by swollen lymph nodes without having an infection? Here's my story: I'm still in a clinical trial and pretty closely monitored. My immunoglobulins are low and falling

The treatments for my GPA have now beaten my immunoglobulin levels down so low that the Vasculitis clinic at Addenbrookes referred me to the Immunology clinic.

[/i] [i]'Clinically relevant biomarkers predictive of poor response to CIT include unmutated immunoglobulin heavy chain (IGHV) gene, del(17p), mutated TP53, and cytogenetic or genomic complexity (GC).8-11 Targeted therapies overcome the adverse impact of IGHV status, but the identification of biomarkers