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Finally Home in my comfort zone
Hello everyone. Hope you are all ok x Nice to be back in my own bed, So Some of my family came to visit me when I got home on Friday which was nice but draining, they had forgotten to mention they had been suffering with a really bad cold virus!! That spreads like wildfire, they laughed & said I would
Hello everyone. Hope you are all ok x Nice to be back in my own bed, So Some of my family came to visit me when I got home on Friday which was nice but draining, they had forgotten to mention they had been suffering with a really bad cold virus!! That spreads like wildfire, they laughed & said I would
LauraMk30
in
LUPUS UK
7 years ago
Help! Newly diagnosed 31yr old very confused.
His doctor mentioned possibly
immunoglobulin
protein treatment? but I am wondering why not chemo given his young age and no co-morbidities. I intend to set him up with a specialist in CLL who can answer all his questions. Obviously, with him being so young we are very confused on why this happened.
His doctor mentioned possibly
immunoglobulin
protein treatment? but I am wondering why not chemo given his young age and no co-morbidities. I intend to set him up with a specialist in CLL who can answer all his questions. Obviously, with him being so young we are very confused on why this happened.
Jade263
in
CLL Support
7 years ago
Very high RF & symptoms, can anyone relate / have gotten diagnosis?
Hello everyone. As the question says, I'm interested to see if anyone can relate to what I'm experiencing and what diagnosis has been given. So, I have an elevated RF latex test of 450 (tested twice) and IgM that is 3.1 (above normal). I also have an elevated calprotectin of 90. Just some info that
Hello everyone. As the question says, I'm interested to see if anyone can relate to what I'm experiencing and what diagnosis has been given. So, I have an elevated RF latex test of 450 (tested twice) and IgM that is 3.1 (above normal). I also have an elevated calprotectin of 90. Just some info that
WK1010
in
NRAS
7 years ago
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Beginning Rituxin 4 weekly infusions on Friday. Very frustrated.
Diagnosed in May. Started on Dex pulses tha went up to 120k then down below 10k twice. Shifted to Prednisone which kept platelets slightly above 10k. This was through June. IVIG shot me to 230k and back down to 17k within the second week of July. I began 75 mg Promacta in July and late August it was
Diagnosed in May. Started on Dex pulses tha went up to 120k then down below 10k twice. Shifted to Prednisone which kept platelets slightly above 10k. This was through June. IVIG shot me to 230k and back down to 17k within the second week of July. I began 75 mg Promacta in July and late August it was
jasondemarzo
in
ITP Support Association
7 years ago
IVIG infusions
Hello there, After six years of terrible infections, including shingles, strep throat, several pneumonia trips to the hospital, including intubation... Breathing machine, forced oxegen, our local disease control got involved to see if there was a way to keep me lot of the hospital. A new oncologist
Hello there, After six years of terrible infections, including shingles, strep throat, several pneumonia trips to the hospital, including intubation... Breathing machine, forced oxegen, our local disease control got involved to see if there was a way to keep me lot of the hospital. A new oncologist
Kimsome
in
CLL Support
7 years ago
Blood Test Results (undiagnosed/not Lupus?) So, what next?!
receptionist over the phone at my surgery who has given me my results of the blood test I had last week to check for inflammation: Electrolytes - Normal Sodium 138 Potassium 3.6 Creatinine 65 Filtration = 90 Full Blood Count - Normal HBA1C = 44 Serum - Normal Glucose - Normal Liver Function - Normal
Immunoglobulin
receptionist over the phone at my surgery who has given me my results of the blood test I had last week to check for inflammation: Electrolytes - Normal Sodium 138 Potassium 3.6 Creatinine 65 Filtration = 90 Full Blood Count - Normal HBA1C = 44 Serum - Normal Glucose - Normal Liver Function - Normal
Immunoglobulin
tigerlily72
in
LUPUS UK
7 years ago
Update
Me7 minutes ago Hope you're all ok, I haven't been on for a while. Been really struggling with my itp. I was on high dose predisolone which made me feel awful and I didn't respond to it, I was then given ivig to buy me some time. Basically it was all going pearshaped !! Anyway I was started on rituximab
Me7 minutes ago Hope you're all ok, I haven't been on for a while. Been really struggling with my itp. I was on high dose predisolone which made me feel awful and I didn't respond to it, I was then given ivig to buy me some time. Basically it was all going pearshaped !! Anyway I was started on rituximab
Olivia2812
in
ITP Support Association
7 years ago
I am sleepy every second of my life
Hello. I haven't been diagnosed with fibro, I'm just posting here because maybe someone can relate or help me. What could cause me to be sleepy every single second? I've got a positive rheumatoid factor of 450 and IgM of 3.1 and calprotectin of 90. I am going back and forth to the hospital for evaluation
Hello. I haven't been diagnosed with fibro, I'm just posting here because maybe someone can relate or help me. What could cause me to be sleepy every single second? I've got a positive rheumatoid factor of 450 and IgM of 3.1 and calprotectin of 90. I am going back and forth to the hospital for evaluation
WK1010
in
Fibromyalgia Action UK
7 years ago
Low IgG and low IgM
I have just been told I have the above. I'm hypothyroid on 100 of Levo. I'm sick with worry could there be a correlation? So grateful for any advice
I have just been told I have the above. I'm hypothyroid on 100 of Levo. I'm sick with worry could there be a correlation? So grateful for any advice
Cazzalouise
in
Thyroid UK
7 years ago
Azithromycin ECG
Hi I saw the chest consultant on Tuesday I have bronchiectasis and am having
immunoglobulin
replacement therapy. For the last 9 weeks I have picked up Haemophilus and have been treat with co-amoxylclav and doxycycline to no avail.
Hi I saw the chest consultant on Tuesday I have bronchiectasis and am having
immunoglobulin
replacement therapy. For the last 9 weeks I have picked up Haemophilus and have been treat with co-amoxylclav and doxycycline to no avail.
Armadillo57
in
Lung Conditions Community Forum
7 years ago
Seeking answers
Hi, 66 and diagnosed with Primary Immune Dificiency in past 18 months while in hospital for pnemonia. Fast forward, several more pneumonias, repeated bronchitis and now dx with, asthma, mild bronchiectasis and COPD. On IVIG infusions for immune disease, now bumped up to nebulizer 2 x day- budesonide
Hi, 66 and diagnosed with Primary Immune Dificiency in past 18 months while in hospital for pnemonia. Fast forward, several more pneumonias, repeated bronchitis and now dx with, asthma, mild bronchiectasis and COPD. On IVIG infusions for immune disease, now bumped up to nebulizer 2 x day- budesonide
Mahod
Asthma Captain
in
Living with Asthma
7 years ago
Questions about stopping Imbruvica due to infection
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of FCR which gave him a fantastic and healthy 10 years with no detectable cancer. About a year ago after struggling with a 6 month respiratory infections
Hi, my husband is a stage 4, SLL/CLL survivor, he was first diagnosed as a healthy 49 year old man and after 6 months completed 6 grueling rounds of FCR which gave him a fantastic and healthy 10 years with no detectable cancer. About a year ago after struggling with a 6 month respiratory infections
bellasmom
in
CLL Support
7 years ago
Just waiting blood test results very anxioud
Still waiting diagnosis . Saw professor Pinzani at the at the Royal free. He is so very kind and caring . He even stayed with me when my bloods were taken . He booked me in for a fibro scan then and there . I was the higher. end of normal . 6. 5 was mentioned and 12 . There is some moderate fibrosis
Still waiting diagnosis . Saw professor Pinzani at the at the Royal free. He is so very kind and caring . He even stayed with me when my bloods were taken . He booked me in for a fibro scan then and there . I was the higher. end of normal . 6. 5 was mentioned and 12 . There is some moderate fibrosis
Mirimaur
in
PBC Foundation
7 years ago
Blood results terrifying
Hi. Just got my blood test results back. So I have high PLT, Eosinophil, Alkaline Phosphatase, Alanine Transaminase, and Igm. I don't understand any of this. Are these connected to PBC?
Hi. Just got my blood test results back. So I have high PLT, Eosinophil, Alkaline Phosphatase, Alanine Transaminase, and Igm. I don't understand any of this. Are these connected to PBC?
SharonM69
in
PBC Foundation
7 years ago
Lupus? ITP?
I was diagnosed with ITP on August 4th. I was given 3 dosages of IVIG through August. I started steroids yesterday, 150 mg/4 days. I got tested for lupus because my joints hurt and I crack a lot. He thinks it's just ITP but I'm so scared! Prednisone is the steroid i'm on. No bad reactions yet. He also
I was diagnosed with ITP on August 4th. I was given 3 dosages of IVIG through August. I started steroids yesterday, 150 mg/4 days. I got tested for lupus because my joints hurt and I crack a lot. He thinks it's just ITP but I'm so scared! Prednisone is the steroid i'm on. No bad reactions yet. He also
16ITP
in
ITP Support Association
7 years ago
I have some Blood Test Results- 1st post
Here's the blood work my Endo ordered for me last Friday: TSH 11.56 .45-5.10 Thyroid Stimulating
Immunoglobulin
10.30 <.10 T4, Free .60 .6-1.6 My Endo emailed me to tell me she wants me to start with 100mcg if Levothyroxine, but I haven't rec'd the prescription for it yet.
Here's the blood work my Endo ordered for me last Friday: TSH 11.56 .45-5.10 Thyroid Stimulating
Immunoglobulin
10.30 <.10 T4, Free .60 .6-1.6 My Endo emailed me to tell me she wants me to start with 100mcg if Levothyroxine, but I haven't rec'd the prescription for it yet.
Rkstarkey
in
Thyroid UK
7 years ago
Blood Test Results
Hi! I'm a Hippo. I mean Hypo 😉 but I do feel like a hippo lol. My doctor sent off for 3 blood tests:- - Protein Electrophoresis Serum - Immunoglobulins - Liver function I've checked online and there are only the results for Liver and Immunoglobulins A, G and M. Nothing for Protein Electrophoresis Serum
Hi! I'm a Hippo. I mean Hypo 😉 but I do feel like a hippo lol. My doctor sent off for 3 blood tests:- - Protein Electrophoresis Serum - Immunoglobulins - Liver function I've checked online and there are only the results for Liver and Immunoglobulins A, G and M. Nothing for Protein Electrophoresis Serum
beckss38
in
Thyroid UK
7 years ago
Recent Diagnosis
I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after my 16th birthday on August 3rd. Though, I knew something was wrong for months before that. In the beginning of July, I got a terrible stomach flu. I thought it was a hangover because of the Canada Day drinking I did with
I am currently 16 years old. I got diagnosed with ITP on August 4th, a day after my 16th birthday on August 3rd. Though, I knew something was wrong for months before that. In the beginning of July, I got a terrible stomach flu. I thought it was a hangover because of the Canada Day drinking I did with
16ITP
in
ITP Support Association
7 years ago
FCR 18 months later
I finished up 4 rounds of FCR in March of 2015. I realize it is not always suggested for unmutated patients, but I had it anyway. I am Zap 70, trisomy 12, CD 38 positive. Except for infection issues, for which I receive IVIG, I am doing great. I am wondering if anyone else who is unmutated received
I finished up 4 rounds of FCR in March of 2015. I realize it is not always suggested for unmutated patients, but I had it anyway. I am Zap 70, trisomy 12, CD 38 positive. Except for infection issues, for which I receive IVIG, I am doing great. I am wondering if anyone else who is unmutated received
beanlake14
in
CLL Support
7 years ago
very confused..
As you all know im going to see dr kaul at the london bridge lupus centre the end of this month. Well i have requested a letter and old bloods from my nhs rhumy and recieved them on friday - The letter he has wrote for me to take i wont be giving the new hospital as his basically saying he doesnt want
As you all know im going to see dr kaul at the london bridge lupus centre the end of this month. Well i have requested a letter and old bloods from my nhs rhumy and recieved them on friday - The letter he has wrote for me to take i wont be giving the new hospital as his basically saying he doesnt want
Hidden
in
LUPUS UK
7 years ago
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