Search
Search
About
Log in
Join
Experiences with
Immunodeficiencies and defective immune system
Posts
Communities
36,873 public posts
Filter results
crohns scare
I had a colonoscopy 6 months ago . All was clear , no cancer no ibd. Since I’ve had in and off abdominal pain and inflammation . I just been diagnosed with a parasite of the intestine as well. I have. Signoidoscopy tomorrow, could I still have Crohn’s despite nothing was found 6 months ago? Or could
I had a colonoscopy 6 months ago . All was clear , no cancer no ibd. Since I’ve had in and off abdominal pain and inflammation . I just been diagnosed with a parasite of the intestine as well. I have. Signoidoscopy tomorrow, could I still have Crohn’s despite nothing was found 6 months ago? Or could
jennwhite80
in
Colon Cancer Connected
6 months ago
immunotherapy
hi there Very low. My midway scans are showing my lymph nodes that grew after my huge debulking surgery in March have not shrunk with the chemotherapy and I have some nodules on peritoneum ( nothing in any organs) So he can’t say that the chemo hasn’t worked in other type cancer but it’s not doing
hi there Very low. My midway scans are showing my lymph nodes that grew after my huge debulking surgery in March have not shrunk with the chemotherapy and I have some nodules on peritoneum ( nothing in any organs) So he can’t say that the chemo hasn’t worked in other type cancer but it’s not doing
Le-gra143
in
My Ovacome
8 months ago
Great purchase
I want to make everyone aware of an amazing book by the world reknowned PBC expert. I encourage everyone, especially those newly diagnosed, to purchase this book - both editions if possible. Dr. Jones has been one of the contributors to The PBC Foundation's Thursdays' live Q&A sessions. This information
I want to make everyone aware of an amazing book by the world reknowned PBC expert. I encourage everyone, especially those newly diagnosed, to purchase this book - both editions if possible. Dr. Jones has been one of the contributors to The PBC Foundation's Thursdays' live Q&A sessions. This information
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Suspected Bechets - affecting me mentally & physically
Hello, So sorry for the long post! So my doctor believes I have Bechets and I am currently undergoing tests/waiting for results. I have suffered with horrendous mouth ulcers ever since I had glandular fever at the age of 19 (now 36), and after a couple of years back and forth to the doctors about it,
Hello, So sorry for the long post! So my doctor believes I have Bechets and I am currently undergoing tests/waiting for results. I have suffered with horrendous mouth ulcers ever since I had glandular fever at the age of 19 (now 36), and after a couple of years back and forth to the doctors about it,
TigerLily42
in
Behçet's UK
3 months ago
Dark Green stool
I am 23 years old, I have dark green stool problem as well as left side middle abdomen pain. I am feeling very discomfort on left side middle abdomen pain after passing stool and sometimes after eating food. I am done ultrasound but report is normal I also experience sometimes diarrhea and constipation
I am 23 years old, I have dark green stool problem as well as left side middle abdomen pain. I am feeling very discomfort on left side middle abdomen pain after passing stool and sometimes after eating food. I am done ultrasound but report is normal I also experience sometimes diarrhea and constipation
Sohankumar34561
in
Pain Concern
6 months ago
positive occult blood test but no parasites ?
I'm a mid-sixties female with R.A. Constipated until a year ago. Oftentimes in the last year (but not always) my poop looked well-formed but had something that looked like a string coming out the end, up to an inch long. My bowel habits changed a lot a few months ago/much less constipated. A couple
I'm a mid-sixties female with R.A. Constipated until a year ago. Oftentimes in the last year (but not always) my poop looked well-formed but had something that looked like a string coming out the end, up to an inch long. My bowel habits changed a lot a few months ago/much less constipated. A couple
12345Marie
in
Colon Cancer Connected
6 months ago
Swollen painful hand
I've had PMR for 2 years. Was started on 40 mg of prednisone. I have slowly gotten down to 13 mg. Recently I tapered to 12 mg but have not felt very well & suddenly my right hand fingers are swollen & very painful. This has never happened before. Is this some kind of flare?
I've had PMR for 2 years. Was started on 40 mg of prednisone. I have slowly gotten down to 13 mg. Recently I tapered to 12 mg but have not felt very well & suddenly my right hand fingers are swollen & very painful. This has never happened before. Is this some kind of flare?
noslak
in
PMRGCAuk
6 months ago
Omeprazole and Gastroscopy
I have been having digestive issues since May, lots of indigestion, acid reflux, belching etc. It comes and goes, sometimes good, sometime not, I would say I feel unwell 50% of the time. I was referred to a gastroenterologist. I had a colonoscopy last year and all was clear. Gastro decided
I have been having digestive issues since May, lots of indigestion, acid reflux, belching etc. It comes and goes, sometimes good, sometime not, I would say I feel unwell 50% of the time. I was referred to a gastroenterologist. I had a colonoscopy last year and all was clear. Gastro decided
Basilpie
in
PMRGCAuk
6 months ago
Where does the blood come from?
Hi, I have endometriosis and with it I get bowel symptoms. The most prevalent is pain but I also get cyclical rectal bleeding. I had a colonoscopy and it was all clear they took some biopsies but results i probably wont get this year. I know this is common with endometriosis, but where does the blood
Hi, I have endometriosis and with it I get bowel symptoms. The most prevalent is pain but I also get cyclical rectal bleeding. I had a colonoscopy and it was all clear they took some biopsies but results i probably wont get this year. I know this is common with endometriosis, but where does the blood
Giraffegreen
in
Endometriosis UK
6 months ago
Glaucoma, OCT showing deterioration since starting Pred for PMR
I am on 17mgs Pred for PMR for 6 weeks. I have had glaucoma for 8yrs . At my opthalmology FU today the, OCT showed marked deterioration in one eye since March. The GCC Analysis has gone all red, when it was mildly yellow before. Has anyone else noted the same when they went on steroids? I am off for
I am on 17mgs Pred for PMR for 6 weeks. I have had glaucoma for 8yrs . At my opthalmology FU today the, OCT showed marked deterioration in one eye since March. The GCC Analysis has gone all red, when it was mildly yellow before. Has anyone else noted the same when they went on steroids? I am off for
Sillydogsmum
in
PMRGCAuk
8 months ago
Thyroid cancer
I have a close friend who’s just been diagnosed with thyroid cancer so is waiting for surgery. She has been told this is not the worst cancer to get and it will not kill her. So she is trying to be upbeat about it. Can you live normally without a thyroid please? I’d really like to give her some optimistic
I have a close friend who’s just been diagnosed with thyroid cancer so is waiting for surgery. She has been told this is not the worst cancer to get and it will not kill her. So she is trying to be upbeat about it. Can you live normally without a thyroid please? I’d really like to give her some optimistic
sidneymark70
in
Thyroid UK
8 months ago
Omeprazole ...side effects...
Update of last post...all now settled thank you.Regarding omeprazole...spoke to GP this morning for steroid script, and asked if I still needed to take omeprazole on such a low dose of pred. He asked if I had ever had indigestion or stomach ulcers in the past...no. He was willing to try me on half my
Update of last post...all now settled thank you.Regarding omeprazole...spoke to GP this morning for steroid script, and asked if I still needed to take omeprazole on such a low dose of pred. He asked if I had ever had indigestion or stomach ulcers in the past...no. He was willing to try me on half my
Temoral
in
PMRGCAuk
6 months ago
ctDNA - signatera
has anyone had the signatera bloodwork test? It is somewhat new science and compares a current blood draw to original tumor biopsy tissue. It then look for a match and works to to detect circulating tumor dna (ctDNA) in blood. It assigns a numbers as to how much ctDNA is found. My Mets are bone only
has anyone had the signatera bloodwork test? It is somewhat new science and compares a current blood draw to original tumor biopsy tissue. It then look for a match and works to to detect circulating tumor dna (ctDNA) in blood. It assigns a numbers as to how much ctDNA is found. My Mets are bone only
Gardengirl345
in
SHARE Metastatic Breast Cancer
8 months ago
Going in for a radical Cystectomy, stopping Biologic.
Hello lovely people. My first six monthly Cystoscopy after getting the all clear from bladder cancer in January showed that the cancer was back with a vengeance. So on Monday I'll be undergoing a Radical Cystectomy. I'm OK and positive with the outlook of living without a bladder and lots of other bits
Hello lovely people. My first six monthly Cystoscopy after getting the all clear from bladder cancer in January showed that the cancer was back with a vengeance. So on Monday I'll be undergoing a Radical Cystectomy. I'm OK and positive with the outlook of living without a bladder and lots of other bits
stbernhard
in
NRAS
8 months ago
Starting Enhertu
was on Xeloda. Mets to liver and pleural cavity. Liver tumor increased slightly in size. Changing to Enhertu. More on my progress soon.
was on Xeloda. Mets to liver and pleural cavity. Liver tumor increased slightly in size. Changing to Enhertu. More on my progress soon.
Hotlantaphatz
in
SHARE Metastatic Breast Cancer
8 months ago
Atrophic Gastritis
Hi everyone, I have deen trying slippery elm to no avail for general stomach discomfort. I sometimes feel as if I have a 'fist' moving around in my stomach. The 'fist'feeling then just stays perfectly still, I then feel like I need to stretch to accomodate the 'fist' and then it feels a little better
Hi everyone, I have deen trying slippery elm to no avail for general stomach discomfort. I sometimes feel as if I have a 'fist' moving around in my stomach. The 'fist'feeling then just stays perfectly still, I then feel like I need to stretch to accomodate the 'fist' and then it feels a little better
Helliborous
in
Pernicious Anaemia Society
6 months ago
Iron blood test - definitive list
I got my recent blood test back, haven’t yet posted all results to my profile, but my ferritin was rock bottom (7 out of 7-271 range) so I’m going to get a full iron test before I share all the numbers here and decide my next med change. What should I ask for: Iron Total iron-binding capacity (TIBC
I got my recent blood test back, haven’t yet posted all results to my profile, but my ferritin was rock bottom (7 out of 7-271 range) so I’m going to get a full iron test before I share all the numbers here and decide my next med change. What should I ask for: Iron Total iron-binding capacity (TIBC
FallingInReverse
in
Thyroid UK
6 months ago
Clinical trial - Recorded hypnosis or relaxation reduced cancer pain and anxiety. Hypnosis also improved fatigue and sleep.
Hypnosis and relaxation interventions for chronic pain management in cancer survivors: a randomized controlled trial Linda H. Eaton, Min Kyeong Jang, Mark P. Jensen, Kenneth C. Pike, Margaret M. Heitkemper & Ardith Z. Doorenbos Supportive Care in Cancer volume 31, Article number: 50 (2023) Cite this
Hypnosis and relaxation interventions for chronic pain management in cancer survivors: a randomized controlled trial Linda H. Eaton, Min Kyeong Jang, Mark P. Jensen, Kenneth C. Pike, Margaret M. Heitkemper & Ardith Z. Doorenbos Supportive Care in Cancer volume 31, Article number: 50 (2023) Cite this
Graham49
in
Fight Prostate Cancer
6 months ago
Complementary therapies?
I have just come to the end of the chemo radiation and seemingly I now wait about three months before having a PET scan and a fibroscopy to see how effective the treatment has been and what might be the next steps. Just for my own sense of well being I am thinking about trying some complementary therapies
I have just come to the end of the chemo radiation and seemingly I now wait about three months before having a PET scan and a fibroscopy to see how effective the treatment has been and what might be the next steps. Just for my own sense of well being I am thinking about trying some complementary therapies
Vitex
in
Oesophageal & Gastric Cancer
6 months ago
Thoughts and Help
Hello all! I am new here. I know this is a lupus / autoimmune group, but before joining I noticed some helpful posts for other conditions, so I am hoping I can find some advice here. I have been dealing with declining health for a few years now, but have not received any diagnoses. I do have a positive
Hello all! I am new here. I know this is a lupus / autoimmune group, but before joining I noticed some helpful posts for other conditions, so I am hoping I can find some advice here. I have been dealing with declining health for a few years now, but have not received any diagnoses. I do have a positive
Hidden
in
LUPUS UK
5 months ago
1
...
79
80
81
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
3223 results
My Ovacome
2885 results
Thyroid UK
2767 results
View top 10 communities
Sort by
Most Relevant
Newest