colitis

[Bluegirl1948]

I been diagnosed with UC about five years ago . I started meditation was on Octasa ASA. Nothing seem to work until I was put on a course of prednisone which in conjunction with pentasa granules but was put on 8 weekly infusion Vedo at St Albans hospital this work brilliantly for 1and half years, then suddenly a couple of weeks ago i started seeing bloody mucus around my first stool of the day going on an average 3 time a day . I have no fever no diarrhoea no abdominal cramps etc. I’ve tried phoning my IBD nurse, but unlike when I first had this disease you could speak to someone straight away. Now it takes a few days for them to get back to you. My question to anyone is . Anyone been on Vedo infusions and this has happened. I did start to take 3 prednisone for 7days and it seem to help a lot went down to to and it’s all back. Anyone with UC could you please get back to me. Being fine for one and half years I feel like I am back to square one . Lynda Thankyou.

[Bluegirl1948]

I’ve just had a change of my infusion from Vedo to ustekinumab.

Vedo which wasn’t working well.

I started this new one on New Year’s Eve and will then self inject every 12 weeks . I’m not sure of side effects but when I wipe mainly 1st stool of the day blood showing on the tissue. Is this normal side effect or is me getting used to the new drug.My consultant says I’m not giving it time, it can take anything up to 12 weeks for full affect. Anyone on this site on ustekinumab that can put my mind at rest.

What side effects are common and I would be interested in how long it could take to kick in….thanks Lynda