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Immunodeficiencies and defective immune system
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more bleeding and pain after Colonoscopy 2 weeks ago
Hi all, Wondering whether anyone else has experienced worse symptoms (particularly more bleeding) following colonoscopy? it’s nearly 3 weeks later and bleeding worse than before the procedure. Gastro refuses to acknowledge this - she says I’m just in a bad flare. I can’t understand why it is worse
Hi all, Wondering whether anyone else has experienced worse symptoms (particularly more bleeding) following colonoscopy? it’s nearly 3 weeks later and bleeding worse than before the procedure. Gastro refuses to acknowledge this - she says I’m just in a bad flare. I can’t understand why it is worse
Bunnygirl1
in
Crohn's and Colitis Support
6 months ago
The Effect of Intranasal Oxytocin in Patients With Functional Motor Symptoms: A Preliminary Open-Label Case Series
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
I think I may have FND. I have these jerks and subtle lurches that would not fall under PD (and I have not been diagnosed with PD). I have been diagnosed with REM Sleep Behavior Disorder, which is likely a sign of something not good coming, but I am working on heading that not good thing off at the pass
Bolt_Upright
in
Functional Neurological Disorder - FND Hope
6 months ago
black out
Hi. I’m wondering if anyone else has experienced this. My mum who has CBS finds that when she laughs now she blacks out and feels faint. She is finding that this is happening more and more so is worrying. It’s very hard when we try and keep things upbeat but she’s scared of laughter. Any advice please
Hi. I’m wondering if anyone else has experienced this. My mum who has CBS finds that when she laughs now she blacks out and feels faint. She is finding that this is happening more and more so is worrying. It’s very hard when we try and keep things upbeat but she’s scared of laughter. Any advice please
Helsbell
in
PSP Association
4 months ago
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Knowledge is Power
Becoming informed is so important. The more you know the more confidence you have to advocate for yourself. When we come up against arrogant or prejudiced professionals it gives us confidence to stand our ground. However, no matter how much we read as lay people we have to recognise that we don't have
Becoming informed is so important. The more you know the more confidence you have to advocate for yourself. When we come up against arrogant or prejudiced professionals it gives us confidence to stand our ground. However, no matter how much we read as lay people we have to recognise that we don't have
cycli
in
PMRGCAuk
6 months ago
positive fit test
Hi all I’ve got to have a colonoscopy in a couple of weeks my symptoms were all of a sudden I had really bad diarrhea for one night and then just loose stools for about five days no visible blood. I went to the doctors and told me to do a fit test which came back positive. The stool sample I used was
Hi all I’ve got to have a colonoscopy in a couple of weeks my symptoms were all of a sudden I had really bad diarrhea for one night and then just loose stools for about five days no visible blood. I went to the doctors and told me to do a fit test which came back positive. The stool sample I used was
Liv56
in
Colon Cancer Connected
6 months ago
Info needed before sending letter to GP
Hi, I'll give some background information for you. Diagnosed with Functional B12 deficiency in Dec 2016, after being really unwell, and suffering a multitude of symptoms including severe neurological ones. My mother has PA. I researched and fought my corner, and I was given loading doses, and then had
Hi, I'll give some background information for you. Diagnosed with Functional B12 deficiency in Dec 2016, after being really unwell, and suffering a multitude of symptoms including severe neurological ones. My mother has PA. I researched and fought my corner, and I was given loading doses, and then had
BeachArt
in
Pernicious Anaemia Society
6 months ago
Help For Pernicious Anaemia Injections Effect
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
I was diagnosed with Pernicious Anemia, B12 Deficiency and vitamin D Deficiency. I started B12 Injections in October 2/3 a week until a full course of ten injections were given now I'm down to one every three months. My doctor allowed me an injection between the now every three months dosages as I feel
So_Drained
in
Pernicious Anaemia Society
6 months ago
New job, Anxiety Attack
Hello all. I’ve been struggling with the decision to pursue a job requiring me to move over 2000 miles away from Florida to Arizona. Ever since interviewing for the job I’ve been preparing for the move by applying for rental housing and other preparations in case I got the offer. Yesterday I received
Hello all. I’ve been struggling with the decision to pursue a job requiring me to move over 2000 miles away from Florida to Arizona. Ever since interviewing for the job I’ve been preparing for the move by applying for rental housing and other preparations in case I got the offer. Yesterday I received
CatDogLover
in
Anxiety and Depression Support
4 months ago
will it cause anything during this few months
I had a precancerous polyp removed in October 2023, will be doing another colonoscopy in October 2024. I’m just wondering whether from October till now is 4 months, will the polyp come back or cause any discomfort to the colon/ stomach during these 4 months? can someone able to say something. I’m just
I had a precancerous polyp removed in October 2023, will be doing another colonoscopy in October 2024. I’m just wondering whether from October till now is 4 months, will the polyp come back or cause any discomfort to the colon/ stomach during these 4 months? can someone able to say something. I’m just
Mondlee
in
Colon Cancer Connected
6 months ago
Any body else like me?
Please excuse the long post, I’m hoping to pick you lovely ladies brains 💗. I was diagnosed in feb 2020 - hgs stage 3. Surgery and the usual chemo followed and then avastin for maintenance. In October ‘22 my ca125 rose gradually and a scan showed 3 lymph nodes that my oncologist didn’t think were anything
Please excuse the long post, I’m hoping to pick you lovely ladies brains 💗. I was diagnosed in feb 2020 - hgs stage 3. Surgery and the usual chemo followed and then avastin for maintenance. In October ‘22 my ca125 rose gradually and a scan showed 3 lymph nodes that my oncologist didn’t think were anything
Emmacrispins
in
My Ovacome
8 months ago
Surgery to remove FNH
Hi all, I have been here before but it was quite a while ago. (10 months) Over the last two years, I have been in pain on my upper right quadrant, had lots of scans, tests which included an unpleasant ERCP being done as one thought was that the sphincter of oddi could have been the culprit. For a
Hi all, I have been here before but it was quite a while ago. (10 months) Over the last two years, I have been in pain on my upper right quadrant, had lots of scans, tests which included an unpleasant ERCP being done as one thought was that the sphincter of oddi could have been the culprit. For a
Elverra30
in
British Liver Trust
4 months ago
Depo and panic attacks?
So, I've had my first depo provera shot last week, and today, I think I've had 3 panic attacks, all seemingly out of the blue. As far as I can remember, I haven't had one before. I do have very mild anxiety but nothing I take medication for. Are panic attacks associated with depo? Have any of you experienced
So, I've had my first depo provera shot last week, and today, I think I've had 3 panic attacks, all seemingly out of the blue. As far as I can remember, I haven't had one before. I do have very mild anxiety but nothing I take medication for. Are panic attacks associated with depo? Have any of you experienced
Violetskyss
in
Endometriosis UK
4 months ago
PSA rising after my 4th chemo
I am quite mad (not with anyone in particular). I had a steady decrease in PSA during my first 3 round of docetaxel. It was 15 before starting, 3 after the first infusion, 1.5 after the second, 1.01 after the third. Each time it was measure 3 weeks from the infusion (on the day before the next infusion
I am quite mad (not with anyone in particular). I had a steady decrease in PSA during my first 3 round of docetaxel. It was 15 before starting, 3 after the first infusion, 1.5 after the second, 1.01 after the third. Each time it was measure 3 weeks from the infusion (on the day before the next infusion
Maxone73
in
Advanced Prostate Cancer
8 months ago
Wendy
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax, Rituximab to follow next month. Swollen lymph nodes have disappeared.
My husband was diagnosed in 2010 at the age of 40. 2013 he had FCR. 11 years later, he is in week 5 of venteclax, Rituximab to follow next month. Swollen lymph nodes have disappeared.
Fluxthecat10
in
CLL Support
4 months ago
Bile Acid Diarrhoea
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
I have this condition and take colestyramine daily which controls it well. I recently asked my GP to have my fat soluble vitamins checked (A,D and K, I believe) in a blood test as this has not been checked in a long time. The email! came back saying there was no indication for this. The literature
Whitesugar
in
IBS Network
6 months ago
Rosacea due to B12 deficiency?
Hi, I have been diagnosed with vitamin b12 deficiency and starting the loading doses after firstly being prescribed oral. I had felt unwell for at least a year and had lots of the usual symptoms but I developed a rare form of rosacea (rosacea fulminans) at the end of last year which the GPs had not ever
Hi, I have been diagnosed with vitamin b12 deficiency and starting the loading doses after firstly being prescribed oral. I had felt unwell for at least a year and had lots of the usual symptoms but I developed a rare form of rosacea (rosacea fulminans) at the end of last year which the GPs had not ever
Bebe74
in
Pernicious Anaemia Society
6 months ago
metistatic castrate sensetive bone Marrow prostate cancer
had bone marrow biospsy and the mCSPC has spread bone marrow. They are recommending thaat I stay in hospital replace Abiraterone with Xtnandi. Thoughts? 2nd question my red blood 2,38 and platelets 23. have plummeted, they want me in hospital. How can I manage the red blood and platelets outside the
had bone marrow biospsy and the mCSPC has spread bone marrow. They are recommending thaat I stay in hospital replace Abiraterone with Xtnandi. Thoughts? 2nd question my red blood 2,38 and platelets 23. have plummeted, they want me in hospital. How can I manage the red blood and platelets outside the
TMcgee
in
Advanced Prostate Cancer
8 months ago
ive lost myself
hi guys. just came back to give an update. so i got diagnosed with ocd, panic disorder, gad, whatever. i started buspirone because im generally sensitive to ssris and i thought it was working for a bit, but then it started giving me problems. i went off of it and then it gave me more problems. now i
hi guys. just came back to give an update. so i got diagnosed with ocd, panic disorder, gad, whatever. i started buspirone because im generally sensitive to ssris and i thought it was working for a bit, but then it started giving me problems. i went off of it and then it gave me more problems. now i
thegoat123
in
Anxiety and Depression Support
4 months ago
Requesting advise for chronic inflammation and iron deficiency anemia
My wife is having a nagging health issue that is still unidentified, only visible thing is I have chronic inflammation and iron deficiency anemia but my other tests are normal like Ana test, HPLC TEST, LDH, LFT, KFT, cholesterol, thyroid, hba1c and fasting blood suger everything is normal only lower
My wife is having a nagging health issue that is still unidentified, only visible thing is I have chronic inflammation and iron deficiency anemia but my other tests are normal like Ana test, HPLC TEST, LDH, LFT, KFT, cholesterol, thyroid, hba1c and fasting blood suger everything is normal only lower
Orco
in
Women's Health
6 months ago
For ILC or Lobular ladies
This video was released within the last 10 days from by LBCA (Lobular Breast Cancer Alliance). Highlights of 2023 International ILC Symposium. The video is about 2 hours long with a lot of info. I want to listen again because of all the info. A couple things I initially took away all or almost all
This video was released within the last 10 days from by LBCA (Lobular Breast Cancer Alliance). Highlights of 2023 International ILC Symposium. The video is about 2 hours long with a lot of info. I want to listen again because of all the info. A couple things I initially took away all or almost all
ba5083
in
SHARE Metastatic Breast Cancer
8 months ago
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